If It Happened to You

The more I understand the disconnect in my personality, which is neurodivergent to a bigger degree than I thought, I understand more about why my reactions seem so two-faced when I’m not mallicious in the slightest and so hurt when I hurt people with my own fallibility. I am not saying that I have an excuse for every wrong thing I’ve ever done. I’m saying that maybe I shouldn’t be so hard on myself because a public lashing every day is only so helpful. When you have problems, you have to start searching for solutions. I always start with medicine, because you can’t live in a doctor’s house and not begin the process of thinking that way, just like when you turn 18 in a lawyer’s house should count as One L. Plus, for background on my novel, I got three books from the Kindle store on how to think like a spy, because one of the plot points is a recruitment in Paris with enormous consequences. My protagonist has to be a confident enough asset that a case officer can trust them.

I know exactly jack and shit about how to do that, which is why I spend so much time at the Spy Museum reading non-fiction set in France and Asia. I know a lot about The Cold War and the transition from OSS to CIA. I don’t know anything about Viet Nam, which is why it is both inconvenient and not that I’ve decided to write a book about it. Pros include going to places I never thought I’d go, meeting people I never thought I’d meet in real life that only exist as avatars, and possibly having a good enough proposal to get a grant to finish, and I believe with all my heart that I can do it because Jonna Mendez said, “maybe we should hire you.” šŸ˜‰ Cons include leaving my house.

This is because half of my brain speaks ADHD, and half of my brain speaks Autism. The way those brains fire are completely different, yet there is crossover in behavior… not what drives it. Therefore, I am constantly tempted by change and hate it within a month. Why I have more energy than I think I do, constantly. Why I look like a vulnerable narcissist a good bit of the time and I can stop apologizing for it now. The way I describe situations hurts neurotypical people because they’re reading my words with a voice I don’t intend. I am being kind and not nice. They are being nice and not kind. I do not interpret words no matter how they’re delivered without running them through a million checksystems before I know how I feel about something. That’s because my first reaction is ADHD, no impulse control. My response is autistic. I go deep inside myself and ruminate, getting burnout quickly and having to regroup with no if or when as to my reappearance. This is because it takes time and patience for me to get the energy to do social masking……. because when I don’t my interactions hurt people.

The urge not to sugarcoat things anymore is how I’m letting myself off the hook. That I was doing myself more harm by trying to sugar coat something because my emphasis was on the wrong point. It’s not that I am not listening. It is that I don’t understand. I am not a narcissist because I’m direct. I act like one because I’ve made the executive decision not to care about what comes out of my mouth because I cannot control your reactions. I can only control what I say. I can be mindful about that without concentrating on my fear of your response. Fear is what causes burnout and isolation. Burnout is difficult, because you cannot predict spoons in advance. So, you take a day off and it’s fine, but it’s not enough transition time to reset anything.

The other thing is that my autistic nature has a tough time with having days off because of my need for structure and schedule…. and burnout because masking becomes exhausting quickly.

The main difference between being a narcissist and not is empathy. It’s not that I don’t have it. Far from it. I process it differently than a neurotypical brain and get edgy at being misunderstood all the time, even by other people who are neurodivergent because not all quirks line up. When you both have processing disorders, the way you communicate is sometimes more difficult and less. It’s hard to tell what’s a bad pattern and what is us continually reading each other wrong?

I learned in one YouTube video why my entire marriage to Dana was on the rocks from day one, and it’s something that neither of us would have picked up on because I wasn’t a writer back then in the sense that I am now. I didn’t spend hours alone every day like I’ve done for the last eight years. We did not have the coping mechanisms to deal with autism, ADHD, and cerabral palsy because only one of us had all three. I was never going to get as much alone time as I needed from an extrovert. She was never going to get as much interaction as she needed from me. The longer I went into writer mode, the more I got comfortable with receding into total autism mode…. where writing took away all my barriers in communication and I felt freer when I wasn’t constrained by other people’s opinions….. not that I don’t need other people in my life.

Writing brought on the process of unmasking all of this. Why do I write from the early morning and sometimes again into the night? Because I am not interrupted. There is no one to tell me to shut up because if my friends don’t want to talk to me, they don’t have to. Other people will read my words and it will resonate with them instead. The last thing I want in this world is to feel like a burden, so I retreat to an enormous degree. I want to invite friends into my inner circle that understand me, rather than having to save up enough energy to mask. I just don’t have that kind of disorder. I refuse to be continually uncomfortable all the time, and it was my 37th birthday that really got me thinking about all this… in retrospect, of course.

My birthday that year was at the end of my first year of friendship with Supergrover, cute and cuddly monster that she is. So, we’d had a year of talking nearly every day, nearly every hour. It was so adorable it made me throw up in my mouth a little bit. I couldn’t have been happier on the first day of kindergarten. This is relevent because my birthday party was where I realized another, darker nature of the fissure with Dana and it was becoming more apparent. We simply were not compatible on a fundamental level and had ignored it for years. Keep in mind that I am not saying all the other reasons are now invalid. I am saying that they are the many cores I’ve been working through these past 10 years. The problem is that complex. No one thing is true, it is a wheel in which I stuck too big a stick. But the birthday party stuck harder.

Dana and my friends threw a birthday party for me the night before my first day at work. I didn’t have to be there until 0900, so it was no big deal. We weren’t big partiers. Even if everyone stayed until midnight, it was fine. Still plenty enough time to sleep, as I wouldn’t have slept a full eight hours on the night before my first day, anyway.

Well, people get there and I’m cool for about an hour tops. This is not unusual. What was unusual was being strong enough to say, “the house is huge. You guys go ahead.” I was okay with it and also not. My birthday party wasn’t for me. To design a birthday party for me is to make sure I am not completely overstimulated at every moment. But I didn’t know that ahead of time. I just surfed up and down, masking and not. Deciding on the fly and suddenly needing to leave. It makes me seem like an all-around self-centered jerk when in reality my nerves are on fire.

They’re on fire from masking and from trauma, inextricably interrelated so fire is never one alarm. One sets off the other, an alarm as loud as morning prayer in Damascus and which also changes five times a day. My prayer is to be stable, inshallah. We can’t always get what we want. I haven’t stopped trying.

I can only ask for so much patience from other people while I work out my shit, while also accepting that my brain and body are more complicated than most. I’ve been beating the shit out of myself for not understanding everything perfectly since I was born, and assuming that my limitations are other people’s fault a hundred percent of the time. None of that is objectively or subjectively true, but the neurotypical world is set up for me to feel like a failure. Representation matters, but in terms of autism and ADHD in adults, no one cares. Apparently, ADHD is only for children and we should have just learned to cope by now.

If I had been diagnosed as autistic, that is seen differently in other people’s minds. People look at ADHD and just see spazzed out little boys. You begin to see how ADHD works in women by looking at autism first. That’s because they aren’t the same, but again, present that way. People with ADHD tend to have problems logically. People with autism tend to have problems emotionally. My body has decided to cut out the middle man and have those two disorders duke it out for supremacy when both of them suck.

ADHD will only rescue me from autistic burnout for so long. That’s why when I travel, I’ve loved the seven and 10 day trips I’ve taken and hated the shorter ones. Not enough transition time to really enjoy myself. But again, “hating” is relative. I loved going to Paris, but it was a long haul for three or four days. It completely upended my rhythm for months. It was worth it, but for my thrill-seeking ADHD side. My autistic side was nervous and fearful the entire time. I am sure I was delightful company because of it, because my dad and sister don’t expect me to see fear in front of them when it’s relentless. It’s not fear of them. It’s that everything in my environment affects me differently than it does them. They’re both neurodivergent, but not autistic as far as I can tell. That’s because my dad and sister can change his environments at will and I cannot keep up with either of them.

It affects everything, from feeling out of place socially to the tag on my shirt to the people talking about their problems way over there that I’ve somehow managed to overhear. It’s too much stimuli in every outside environment, which is why I take public transportation. It is built-in, ironclad transition time. If I am driving, I am still in control of something. If I’m riding the train, I can fall asleep….. which I often did coming home from my job as a SQL developer because I could only handle so many people and problems in one day before I passed out. I know I prefer the train because I did have a car here for a while and wrecked it because of rumination. I got so lost in my own head that I took an unmarked curve a little too fast and couldn’t correct in time. Or, at least, I assumed it was marked until the cop told me it was marked on the other side of the freeway. Well, thanks a lot. That was helpful. I’ve never been here in my life.

I decided that being neurodivergent and having eye problems was not the best recipe for a driver. Getting my Fire HD and Bluetooth keyboard was the committment I needed to make the hour and a half on the train count. It’s a great writing environment as long as you don’t forget your headphones. I find that either movie soundtracks (Argo, The Bourne Identity, Syriana for me) or white noise are my best bets for being able to tune everything out except the motion the train makes, unperterbed by the sound. Reinforcing boundaries is hard when you know that some people are just crazier than you’ll ever be. Logic keeps chasing them, but they’re stronger and faster.

It’s not the sound of the train that’s bothersome, but the people on it. Most DC locals keep to themselves. Tourists will talk to anyone, for any reason, at any time. Most Americans are too polite to turn down genuine interest because we don’t want to seem rude, while avoiding tourists is a DC sport. There is also a huge difference between the federal government and the DC population. There is a reason that 5:00 in DC used to be called “white flight” and it has gotten so much better over the years, but we aren’t done yet. Therefore, there’s disagreements of all kinds on the Metro and you just have to ignore it when it gets loud…. that is, if I am completely uninterested in the conversation and not jumping in because I can’t not. “I had the right to remain silent. I did not have the ability. -Ron White

Again, ADHD vs. Autism. Am I worried about challenging my political beliefs on the subway to learn something and have more to talk about here, or am I worried that my sock is sliding down into my shoe? Are we going to talk about peace in the Middle East or why Whole Foods doesn’t have the veggie dogs I like and why I am nuclear pissed about it?

But if we’re going to talk about love, know that I’m not trying to hurt you when I describe real life situations, and I’m not trying to evade fault. I am owning what is mine, without speaking for you. I think that is being kind, in spite of the fact that it wasn’t nice.

I don’t need you to understand it. I just need you to respect it. Otherwise, I’m just another Leslie crying at her birthday party. I’m betting that if you are autistic, you have cried, too, when it happened to you.

5 thoughts on “If It Happened to You

  1. ā€œā€¦save up enough energy to maskā€¦ā€ and the ā€œI had the right to remain silent. I did not have the ability. -Ron Whiteā€
    I’m so with you! Well said, er, written. I write for much the same reasons as you and joke that most of the time people ā€œjust don’t listen to me.ā€

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