Only Other People Can Do That

What part of your routine do you always try to skip if you can?

It is a slight exaggeration, but I (like all other autistic people) cannot survive while skipping any part of my routine. Mine just isn’t organized by time. It is organized by sense of security. The bigger the task at hand and emotions attached to it, the bigger the sensory issues, demand avoidance, meltdown, and burnout.

Taking medication and not taking it are both things that cause demand avoidance. My routine is generally waiting to get uncomfortable enough while unmedicated because if I don’t experience physical side effects, I will avoid taking pills. Even thinking about taking medication makes me gag. If I had no physical side effects, I would set a reminder. But I don’t have to. My brain notices when a chemical isn’t there and screams bloody murder…. so I got that goin’ for me.

I very, very much wish I could just tell a pharmacist what chemicals I need and be able to choose the delivery, because it would help me a ton to be able to inject myself or drink a suspension. Swallowing pills is hell on my sensory perception, and it wasn’t that way until I needed to take multiple pills every day. My throat has a Pavlovian response to the thought “I need my meds.” It gets tight before I even put the pill in my mouth. If I taste something bad, like the salt in the lamotrigine, my gag reflex will engage. This gets reinforced by happening every day, the reaction more intense over time. It’s a lot to manage. A lot.

If you have a tendency to tell smart/successful people “you don’t look autistic,” please stop. Success is relative. Some high functioning autistic people seem successful, and whether they are or aren’t can only be self-reported because money is not happiness. In every single video I’ve watched about Autism at work, it’s been a vlogger who has at least three degrees, but still no job has lasted more than a few years. Therefore, that means whether someone is working at Wal-Mart or partner at Baker Botts, the odds of them staying employed are the same….. why I admire people like Glennon Doyle, Brené Brown, and Mark Zuckerberg. They do wildly different things, but they all created their own jobs that played to their strengths rather than fitting into a system.

I’m pointing out Zuckerberg specifically because he’s the kind of neurodivergence that best represents me. I have the same sensory issues (I wear the same things, like hoodies), I write content for the web and know how to code some stuff, I social mask through everything and notice when he can’t (watching him in front of Congress was fascinating), etc. I’m just not as rigid as he is because my ADHD pulls me away from complete sameness. He is also the kind of person that whether you were e-mailing him or talking to him the conversation would be wildly different. I promise that people like us are hated all over the world for being cogs that just don’t fit. If Facebook hadn’t been his idea, he would have been fired a long time ago because he doesn’t play well with others. He would have had a better shot at staying employed than someone like me, but only by virtue of the fact that the coding he can do is so monetarily valuable. People are willing to put up with a lot of autistic quirks if not doing so means millions of dollars down the drain. Companies throw out a lot of talent by hiring autistic people without knowing what that really means.

This is why so many people are on disability that “don’t look like they need it.” Taking a shower is not routine. Brushing your teeth is not routine. Making yourself food is not routine. The reason it is not is that for a neurodivergent person, it’s like you learn that thing every day. You don’t “get into the habit.” The reason it feels like learning it again is that you have to put the same amount of effort into taking a shower now as you did when you were eight. It’s not secondhand nature. An autistic person’s strict routine is something they built to keep themselves safe and secure emotionally, but it’s not that they’re different than me. It’s that their structure, their routine is their single interest and they get it done with laser-like focus.

It is not, in IT vernacular, a cron job. Those people are white-knuckling it through life. So am I, because I do not experience my routine as iron like a special interest. I do not demand it of myself……… letting my need for absolute structure and my ADHD impulsivity fight for dominance. I can create a system to defeat ADHD and it will be brilliant. I do not have the executive function to stick to it.

I am the most successful in a relationship when someone else has a strict routine because I social mask it. I am not “codependent,” I literally have no idea how to create a routine to take care of myself and stick to it, emphasis on the repetition being harder than the creation of a system. I swear to God there were days in my marriage I only took showers because Dana dragged me in. It helped more than anything because it kept demand avoidance from eating my lunch. I am often pulled out of my comfort zone because my sensory issues are so high. I have said this before, but I experience demand avoidance in the winter the worst because doing things like changing my clothes is a bigger swing in terms of sensory environment. This is not a bad thing. If I showered every single day in the winter, my skin would dry out too much. It’s just an example of why autism is so hard. Demand avoidance isn’t being childish or lazy. It’s a disability.

I would be great at being married to someone that had an iron structure quirk…….. in some ways…….. as long as my partner recognized that my ADHD would HATE THEM SO MUCH and my autism would never let them go.

Stuff like this is why creative autistics have millions and millions of followers on YouTube and “won’t get a real job.” Creative autistics own things like writing/producing videos about autism (and anything else, but this niché is needed and lucrative). Neurodivergence is devastating and hilarious. They’re finding both ends of the spectrum on camera while I wrestle it out here.

When you’re autistic/ADHD, you start a job with disabilities that make you look “childish.” You don’t develop weaknesses at said job. That’s why if you get put on a performance improvement plan or whatever, you might as well quit. You social mask until you can’t, and then the wheels fall off…… because being autistic at work is a lot to manage all on its own. Demand avoidance will start eating your lunch, because you don’t understand why this keeps happening. If you are undiagnosed, things won’t get better until you research coping mechanisms for your experiences. If you are diagnosed, you know that there’s an upper limit on how much you can do to fit in.

I am also ADHD. I am not the kind of autistic who “gotta be home by 4:00. Gotta be home by Wapner.” Though social masking, I am the kind of autistic person who needs to watch Wapner and would be horrified to let anyone know that. Not watching Wapner would have to feel like gum surgery before the cognitive dissonance was enough for me to say something.

I do wonder what Raymond would have thought of Tivo, though.

Interrupting me is not interrupting a process that needs to happen the same way every day, but interrupting the way I feel as I adjust to a new environment. A new environment is also an old environment by the nature of how sleep works, so “easing into the day” is not a thing. I do not need to have coffee by 0500, get into the shower by 0545, etc. to function. I am disoriented by waking up and not having anything familiar around me.

I need a partner to function and don’t really want to find one. I think I do, but my behavior suggests that I’m really okay white-knuckling my way through life. That I feel more safe and secure by myself right now than I do with someone else. Yes, I have a boyfriend, but not the kind where I have to compromise all the time or learn his schedule/habits. I am glad he doesn’t need me for that because I don’t want to overpromise and underdeliver. I don’t want our relationship to be anything that it isn’t. I love him and Oliver, who is a dog. Love for them is a spectrum from red string to yellow, and we are choosing our adventure together.

I am learning in retrospect that I wanted to marry Daniel because I’d be social masking a doctor all the time. You do whatever you can to learn ways to cope in life, and look around for people you deem doing better than you. The War Daniel, in all of his flaws and failures, has always been a train wreck waiting to happen…… and so have I. Our cars just weren’t headed towards each other until we got so overwhelmed with our environment that we changed directions. We would have been great if we’d kept attacking only the problem.

Social masking Supergrover every day was handy because she thinks in a way that gets powerful people to follow her, so I haven’t learned more coping mechanisms to deal with my disability, but I have learned ways to be more effective in how I speak….. and by effective, I mean “concise.”

Concise is not something I am here, but that’s because this is entirely my place, my rules.

Additionally, every autistic person is an amalgamation of every neurotypical person they know, because they’ve been criticized for every neurodivergent behavior they’ve ever had. Third Rock from the Sun would have worked just as well with the exact same script only substituting aliens for an autistic group house. We are all trying to learn how people do things because our own ways don’t work.

That effort is how processing disorders quickly become mental illness. You don’t develop symptoms of mental illness from autism/ADHD. You develop mental illness from not fitting into the system and feeling horrible about it. My life would be different if I didn’t have the capability to tell when my needs exhausted people. The fact that I do means “80-90% of the time.” That’s because as a preacher’s kid, I have more heuristics for social masking than most people, and I’m female, which carries a rigid structure of behavior in and of itself. Neurodivergent women are often trained into making eye contact, giving affection, and dealing with the discomfort quietly.

When women aren’t social masking, they’re punished like children because their fathers/husbands have been trained to treat them like property, anyway. For lesbians, this is less of a problem, but comes in with male boss relationships if nothing else. Autistic men get away with so much problematic behavior that it’s ridiculous, because women didn’t create a system of power over them in which they have to live up to it. When it comes to how to be a good wife, there are a thousand books explaining the job.

There are a thousand self-help books for men, too, but being a husband is not from the perspective that they should tamp down their behavior- like a 50s women’s rag with lines like “freshen up and run the vacuum around the house before he gets home.” I can understand that a man is autistic AND mansplaining. Just because it’s his autism making him look like an asshole and not narcissism doesn’t mean it’s not offensive.

Perception is reality, but men are not expected to social mask to that degree. Their opinion is expected to be better than mine…. but who knows whether it is or isn’t? There are a million men smarter than me out there (lowballing) that I could learn a ton from, but that’s because I hold their reputations in high esteem, not because I think a man’s voice inherently has more authority than mine…… but they’re programmed to think it does.

There is so much that it takes to make me feel secure in my environment, but a routine is just a good cup of coffee or two in a mug that feels right in my hand. The feel of the mug is as important as the taste of the coffee. A routine is picking up my tablet first thing so that I can look at the WordPress writing prompt for the day and get the creative juice flowing while I wait for the cup to brew (I have a pod-based system; I use Café Bustelo from the can and a refillable pod.).

I only take the time to grab coffee, refill my water bottle, and use the bathroom before I jump into the writing prompt. I think one of my best qualities as a writer is being able to see what comes out when I just let my mind wander a propos of nothing. It’s a writing prompt, and whatever it made me think is okay. If the essay has nothing to do with the prompt, who the fuck cares? It’s not sticking to the instructions. I have understood the assignment because no matter what came out of me, the prompt for it was the same. In writing, there’s no way to really “prompt someone in the wrong direction.”

I write until I get hungry, or I bring my tablet and keyboard to the breakfast table and stuff my face between paragraphs. On those days, it’s generally eggs Florentine and toast, but I’m out of spinach and I’ve started writing before cooking, anyway. 😉

For those of you who are wondering, I’ll probably have eggs and cheese later. This week, real eggs were cheaper, but my actual favorite is those plant-based folded eggs you put in the microwave.

I read that last paragraph again and now it’s about a half hour later. I realized I was starving and went downstairs to grab a sandwich (wheat toast, egg, ham, swiss, salted butter, mustard, and black pepper). The first sandwich was so good I made another one with cheddar.

Cheddar and eggs go well with mustard because it’s a very, very, very rich Mournet. You can either scramble cheddar and mustard into the eggs before you serve them, or just make the eggs plain and put on the rest separately. I don’t know which texture will appeal to you better, but I do know that the flavor is famous. Mournet is a derivative of bechamel, a mother sauce in culinary school. Bechamel is a roux and some milk, reduced for thickness. Mournet adds cheddar and mustard. Stone ground is particularly pretty…. but I don’t notice presentation first. I am trying to make comfort food, my transition into the morning.

I used to binge caffeine, then I looked up this ancient technique called “going to bed earlier.” So, I don’t need as much coffee in the AM as I used to because I’m not counting on it as a replacement. What I do need immediately is water, and I keep a few 20 oz. soda bottles in my room for it. I don’t want to knock over anything without a lid. I ease into the day better with water than anything else, because I learned that sometimes by body said “coffee” because of addiction when it was really saying “I am a plant and I am not doing well.”

The thing about being an autistic person in an alistic world is that you don’t live in a hydroponics farm. All your basic needs are not automatically scheduled. You are at the mercy of yourself, and you’re not a very good boss.

Some people deal with that by having an extreme routine. Some people are paralyzed by them and avoid all social interaction, because when you have demand avoidance over your basic needs, you cannot begin to think about fitting into public because you cannot take on others’ demands if yours aren’t met first. It’s a spectrum of behavior and the masking of it.

You’re so afraid that people will not love you if you stop social masking that it just becomes the part of your routine that you always try to skip…….. if other people will let you.