Leslie: Could you call me?
Lindsay: Do you just want to do dinner tomorrow night?
Leslie: This is great. I didn’t even know you were in town, but even for a call, you’re in the right time zone.
Lindsay: My dinner got moved to tomorrow night. Zaytinya at 6:00?
Wait, wait, wait…… you mean I don’t even have to wait six hours to see you? This is the best part of ADHD ever. I live for this. Of course I can drop everything. Please. Anything else on my radar is now completely unimportant. As of right now, I’m just sitting here chewing my fingernails and keeping busy until the alarm goes off to get on the bus. Zaytinya is also one of my favorite places to go because it only takes 40 minutes and is located three minutes’ worth of walking from the Gallery Place/Chinatown Metro stop.
My sister works in DC, but she doesn’t live here. Therefore, sometimes if I time it right, I get these text messages full of joy because it’s an outing I didn’t expect, and it’s at “our Spanish Flower.” If I dwell on it, I’ll get misty-eyed. Spanish Flower(s- no one called it Spanish Flowers because Eli, the owner, told us that he named it after Mary, his wife, THE Spanish Flower.) It then spread to eating there three or four times a week. Since Lindsay and I both like finding a thing and exploring it intimately, we go to Zaytinya nearly every time she’s here. We have branched out a few times, like going to Union Stage to see Charlotte Cardin (which lets me know exactly what I should wear tonight…. Lindsay bought me a football jersey with Charlotte’s “number” on it- her album 99 Nights….. I love how she just rolls with my eclectic choice in clothing….. She also got me a hoodie with matching sneakers….. FANCY.). We have also been to that restaurant on the end of the pier where Union Stage is, which Lindsay had been to before and vetted.
It’s what’s nice about Lindsay working here- she has been to nearly every place we try with other lobbyists or Congresspeople. If I had to describe Lindsay’s life in one sentence, it’s taking people out to eat. She sits around, listens to people, and talks about stuff….. so that when she’s older, she can “sit around, smoke cigars, and own stuff.” That is an old, old joke because we used to live in a very tony suburb, and Lindsay went to a friend’s house that happened to have an elevator. My dad asked her what the friend’s parents did to have an elevator, and Lindsay said, “I don’t know. I think they sit around, smoke cigars, and own stuff.” We have repeated that phrase as the ultimate profession since then- probably 25 years.
It’s an unusual day for me, because I spent yesterday panicking about how I was going to get my Lamictal today, because I was completely out. I thought I was going to have to go to urgent care if I couldn’t get a doctor’s appointment today, because at urgent care I could have explained that I can’t get ahold of my doctor and they would have given me a month’s refill. But this morning, I woke up to a text message saying my medication was ready. I do not know how that happened, because on CVS’s web site it said that it was going to have to contact my doctor for a new prescription, and that can take days.
If you are completely out of a medication that affects your brain, you cannot skip a day. The effects are different on each person, but when I go without my medication, my brain starts making sounds akin to the Emergency Broadcast System, a minor second blaring in my head and I just want to stop the pain at any, and I mean any cost. Doesn’t have a thing to do with how I’m feeling. It’s that the pain is that bad. So, I’m vigilant about getting all my meds refilled as fast as possible, and prefer the Amazon pharmacy because they’ll give me three months’ worth of maintenance medication at a time, and I only need to go to the doctor for controlled prescriptions like Klonopin and Adderrall. I need the Klonopin, but I do not need the Adderrall all the time. I take drug holidays from it because even though it works on my mind, my body feels strung out and weak from all that stimulation….. Again, trading physical health for mental. Your body is keyed up and exhausted while your mind is quiet………. and you can’t really tell that your body is keyed up because your mind is quiet.
You quickly get a benefit, and after about two weeks of your body screaming, you want off of it again. I am also starting to feel that because my autism wasn’t caught, I am only treating my ADHD…. and that doesn’t work on autism. So, I’m taking ADHD medication and still feeling like crap because the same symptoms overlap with autism and therefore, don’t go away with ADHD medication. At this point, I am doing well on Sudafed and caffeine, so I might want to keep it that way. If I can get the same effect just by keeping my nose clear and having a cup of coffee or a 100mg energy drink in the morning, then another dose and small energy drink/cup of coffee at noon, it controls my symptoms for the whole day….. and I’m only on the smallest dose of workable stimulants and not beating myself to death with them.
As I have said before, there is a LARGE jump between coffee/Sudafed and Adderrall. I do not suggest using Adderrall long-term. It just affects my muscles, bones, and teeth too much. However, I do not recommend never going on Adderrall at all. You need to know what controlled symptoms feel like so you can replicate it….. but of course, I’m not talking to everyone. I’m talking to everyone who thinks “Driven to Distraction” is really about them….. and them only, because everyone feels that their problems are unique. Like, if you read “Driven to Distraction” and it doesn’t come across as a personal attack, you don’t need Adderrall. 😛
“Driven to Distraction” is the seminal work on ADHD, the Bible for therapists and psychiatrists on ADHD….. every bit as important a work as “One L” for law students and “Intern” by Doctor X is for med students. Speaking of med students, “Intern” is out of print, but you need to get a copy pronto. See also “Five Patients” by Michael Chrichton. Nothing will prepare you better for life in the hospital than reading about someone who went to, I think, Harvard in the 70s….. because nothing about hospital politics has changed in a hundred years……….. see also “Scrubs,” which my stepmother has said is the only accurate show about medicine ever on TV. She noped out of ER during the pilot because there was an X-ray upside down and backwards.
Because I know how the sausage is made in medicine, I do not suffer fools gladly and yet I do because I do not want to exhibit “drug seeking behavior.” It is a balance of knowing my shit and not seeming “demanding.” I swear to Christ, you will not meet anyone as self-aware as me. If I tell you I’m panicking and absolutely need more Klonopin than normal, you can take that check to the bank and cash it. But what you can’t do is get a doctor to stand in your body and feel it. Feel the panic that you do. Feel the nausea that’s going to make you throw up if your brain chemicals don’t “get right with God.” What you cannot do is convince a doctor you have ADHD if your symptoms are under control that day.
Please take it with a grain of salt if you’re in that position. These people see genuine DSB all day long and twice on Sundays. I had a patient back in my MA days who, before they started tracking controlled medications nationally, would go to six different doctors in a day for Valium, and she was one patient of many who had the same idea. So, I don’t push my doctors hard on anything, ever, because that’s the shortest way to cut yourself out of getting narcotics, benzos, and methamphetamines when you’re actually hard up. For instance, knowing what I need ahead of time and being able to explain, “okay…. here’s what I’m dealing with. You make the call, but here’s what I suggest based on what my previous doctors have done and it worked.”
You do not, for instance, ask for a prescription for those drugs and then come in halfway through the month and say you need more, or that you need your dose upped because either you’ve already run through the first prescription, or the doctor doesn’t believe that you actually need your dose upped, you’re just saying that because you’ve run out. There is no chance that a doctor is going to believe that you still have all the pills at home unless you bring them to the appointment.
I had another patient in my MA days that bought a safe for his house, because he noticed that when he didn’t keep his meds locked up, for some unknown reason they went missing. You have to watch for other people in your house exhibiting drug seeking behavior as well as watching it in yourself. I’ll give you a for-instance. If I have Adderrall and I’m going to Zac’s, I keep maybe two pills on me. That way, if my bag gets stolen or the pills do, I have only lost two pills, not my entire prescription. Same with Klonopin. Also, it’s harder to tell that they’re controlled substances when they’re not in a labeled bottle.
You have to know the difference between “I’m doing better” and “I’m fried all day” as well. Because the point of those drugs is to make you feel better, not to numb you out all the time. There are just certain situations that make me more anxious than others. For instance, going with my sister to a familiar restaurant would not cause me as much anxiety as going to a party in which I knew absolutely no one. I’m always afraid that I will find one person and hang onto them like a sloth because I’m intimidated. Luckily, I seem to hang with people who also do this…. because we’re the kind of people who seek out “the introverts’ recharging station” at any large gathering, anyway.
This is generally the kitchen, btw. If you’re looking for the introverts, they’ve either gone to the bathroom or to the room where the least people are gathered so they can hear themselves think. Introverts do not do well in situations where they can’t hear themselves think, because they’re more drawn to their inner monologues than they are anyone else’s. But at the same time, I’m an empath and can feel others’ emotions, and can’t seem to stay out of the heavy conversations because I’m built to hear them.
As I have said before, I do not have the ability to protect my mind, so I carry a lot of pain that’s not mine. I have clinical separation when someone is bleeding, but not when they’re crying. My dad said something to me that’s stuck with me since he said it- which was at least 30 years ago. He said that one of the reasons he left being a pastor is that he was exhausted at only being able to pray for people and not help them concretely. It’s exactly why I would have ended up in medical school if the fates had thrown me the kind of autism that understands STEM completely. Like, that’s a whole thing with me. If I could be mad at a deity for the roll of the dice, it would be having the kind of autism that makes me lost to the rest of the world, inside my head and protective of my environment. If my parents hadn’t both been dedicated to helping me physically and pulling me out of my own thought processes, I would have sat in my room forever, and I know this about myself.
I discovered my ability to take on others’ pain to an enormous degree when I was a toddler, and because I’m an INFJ, I have a deep inner landscape where I can get lost- easier than feeling every emotion in the room and bleeding out until I am full of rage at my sensory environment. When I am in meltdown, it is not pretty……. and you only learn who your real friends are when you stop social masking and start working without a net….. when you are so overwhelmed with your own symptoms that any change in your environment sends you into a place where you cannot take in any more. Rage is about putting up boundaries, a cry for help when it doesn’t sound like it.
Everything about autistic rage is a cry for help because we don’t have the words to express something clearly when social masks fail. We say things wrong and others focus on how we’ve said something vs. what we’ve said. If we could have just gotten the words right, our problems would be valid. We learn over time that there is no tone we can take that will make you see that our problems are valid, because we adjust and the answer is still no, because you’re still rightfully hurt over what we’ve said previously and you’re focusing on it. We are not narcissists or borderline. We are in hell, and we are sorry.
The hard truth is that many people are diagnosed with Narcissistic Personality Disorder or Borderline Personality Disorder because they’re female and “hysterical.” Many people aren’t because they’re male and their opinion is expected to sound sort of arrogant all the time. Non-binary people get the worst of it, because sometimes it is missed for either or both reasons. I also think ASD is under-diagnosed and ADHD is over-diagnosed in both sexes because of “bad behavior” in boys and introverted behavior in women…. not that ADHD isn’t valid. It’s that sometimes ADHD medication doesn’t work and that’s because the symptoms overlap just enough for doctors to be allowed to miss it, frankly. I am not angry that my psychiatrist in college missed it, because I have watched hours and hours of video on YouTube where psychologists talk about the neurodivergent brain, and ADHD is always lumped together with Autism Spectrum Disorder because it’s a comorbidity in something like 80% of ASD cases….. also why there is argument in combining ADHD and Autism as one diagnosis, that ADHD is part of the autism spectrum, not outside it.
Where ADHD and Autism differ is that there is not such a pull to get lost inside yourself because you need so much stimulation, and the need changes frequently. ADHD makes you a daredevil, autism makes you need quiet and a lot of it. I vacillate between those two things, but autism wins 99% of the time. That means actively avoiding relationships because I get tired of trying to communicate and it just not working the way I thought it would. I develop selective mutism and agoraphobia because I am trying to create a secure environment again….. and once I find it, it’s hard to pull myself out. I feel like the more I explain that this is part of my disability, the less my people will take it personally. Selective mutism and unwillingness to change my environment doesn’t necessarily come from conflict with people close to me. If I go out to, say, pick up a prescription and the experience is taxing, I will retreat for days to fill my social battery………
Again getting lost in my own world because it’s not as scary there.
Tonight, though, I’m going to a great restaurant with the world’s greatest person.
Stories That Are All True 