It takes a lot of strength for me to get out and walk, because I have an ataxic gait, or what’s known inside the community as “the cerebral palsy shuffle.” I can’t walk in a straight line to save my life, and it’s lucky I’ve never been tested on it, okkkkkkkk….. Dana’s DUI scared me straight. I didn’t need to get one of my own. I’m wobbly enough on two feet and four wheels. I hope Aaron didn’t ride with me and think, “this is bad on so many levels.” I just have to remember that Aaron has ridden with me for hours and hours, and I can’t have had a dumbass attack during all of them.
Taking the hose out of the gas pump while it was still running must have been a highlight, though…….. #dumbassattack
I thought it had clicked.
Morgan Freeman: It had not clicked.
I suppose that it’s okay for me to start driving again, but I’ll have to move to New Jersey to compensate because apparently I am not smart enough to pump my own gas.
Being on the road again was freeing. I didn’t have any trouble picking up driving again because I’ve found new tricks, like Adaptive Cruise Control, which monitors the traffic and allows you to choose how many car lengths you want in front of you. I have never had such a thing, nor have I had blind spot and lane assist. These are all of the things with which my lack of 3D vision struggle. All of them. I can be a good driver now because I do not have to rely on my adaptations for driving. The car will scream at me instead of my mother.
Well, my sister now, but you get the drift.
I’ve always been safer with a passenger to pick up the blind spots I miss, which is why I didn’t take that road trip from Houston to Baltimore all by myself. Yes, I have technology, but my disabilities get worse as I get tired. My solution for this, given driving from Houston to Portland in my 20s, is to sleep really well and drive when I have the most energy (very early in the morning). That way, when I reach a stopping point there’s still time for dinner and lots more rest.
Perhaps a margarita as big as Dana’s head, because she has the bigger head.
That is a joke she herself made, and I hope she laughs out loud if she gets here.
The bit actually goes:
Leslie: I want a margarita as big as my head.
Dana: I do, too.
Leslie: I want a margarita as big as her head, too, because she has the bigger head.
Dana: You have the taller head, but mine has more circumference.
In order for me to be entertaining, I have to be dragged out of my house by an extrovert. It is a deep knowing and the bane of my existence.
It’s the ’tism.
My social battery empties fast, which is different than being shy. I can be charming and engaging, then my eyes will flash and I am done in a “get me out of here before I pass out” kind of way.
This isn’t true when a conversation is giving me energy, but small talk with people I’ve never met feels intimidating. Oh, and I also don’t like only knowing one person at a party because I tend to regress into my shell and become “needy Nelly.” Much better to be able to connect with lots of people so I don’t look like I’m hanging on for dear life until I get “jumped in.”
I don’t think many people would describe me as such, because again, my compensatory skills are off the charts. My inner struggle does not come across because all autistic kids learn to social mask. Few social masks are as fine-tuned as mine because I grew up as a Methodist preacher’s kid. That gave me heuristics on thousands of people’s behavior at once.
I would say that I really started to loosen up once my father left the church, but there are still parts of me that are very conservative, like the way I dress. I never want to look as if I am for sale. That is not how I view other women who dress up, that is how I feel when I do. I have walked the earth as a nonbinary person for so long that makeup and heels feel like drag.
I didn’t even wear a dress to my stepmother’s funeral, and if I was going to fall to the tyranny of women’s clothing, that would have been the occasion to do it. But I was comfortable in Dockers, a button down, and a jacket.
But it’s not just the look of women’s clothing. It tends to restrict my movements. I would rather dress in clothes that make me feel secure and confident. When I wear heels, I am in danger of falls that hurt even more than normal. I wonder if playing with fashion would come more naturally to me if I liked playing with gender, but I don’t. Everything I wear is unisex.
I like to look people in the eye. I like to shake hands. Both of these things are harder when I am unsteady on my feet. Many times I have reached out to shake hands in heels and, because the person was expecting a hug, I pitched forward. I noticed that most everyone expected hugs in Texas, and I’d been trained out of it.
Consent is not as much of a thing in Texas because hugging is a cultural norm. I hugged someone without asking and it caused such unrest I never hugged anyone on first meeting again. It is true that hugs are familiar and intimate across a spectrum to different people. For Southerners, it’s perfectly normal for someone to say, “I’m a hugger!” Then they pull you into their bodies while you’re trying to figure out what just happened.
I have noticed that this is a female mask, for the most part… that men do not expect hugs from each other.
No homo.
I was absolutely overwhelmed at all the love that poured out for us at my stepmother’s death. It was gigantic, the big love that we all hope we’ll get. But it was also a wall that seemed ten feet tall to my autism as I social masked my way through an enormous receiving line.
I was very lucky that I got to go out for lunch with my first psychiatrist and now my friend, Jane Ann.
Well, first psychiatrist is a stretch. She’s been a friend of my family for years so she just referred me to a friend. But she counts. 🙂
We chatted about all our mutual experiences and it reminded me of the line from Summer, Highland Falls (Billy Joel):
“They say that these are not the best of times, but they’re the only times I’ve ever known. I believe there is a time for meditation in cathedrals of our own.”
And
“For all our mutual experiences, our separate conclusions are the same.”
Lunch was a meditation because instead of questions, I got answers. I asked if I could pick her doctor brain and she said “yes.” That was the coolest part because Jane Ann is literally incapable of talking down to anyone. We talked psychiatry like I’d been in the business for years….. when really, I’m just a more educated patient than most.
I also told her that short hair Jane Ann was my favorite action figure, and she said, “I’ll get it cut tomorrow.” Please update me on whether she has actually done this. 😉
The lunch came at just the right time to make me relax. Now that our doctor/patient relationship was gone, we could meet each other as equals. She was just as open and candid as me, but not in a trauma-dumping sort of way. Just empathy flowing in both directions because mutual experiences led to separate conclusions in our own lives.
After lunch, Jane Ann dropped me off at Brené Brown’s talk, where I had plenty of desserts and a great time seeing Dr. Brown up close. I was on the second row.
Then, my sister, dad, and brother-in-law took me to Chuy’s for my birthday do-over. We went to the one at Westheimer and Kirby because of course we did.
I DID NOT RUN INTO A DOOR.
You have to be an OG to get that one.
Or be the person who said Dana left a hint for her, one of the two. I still don’t know who that is, or if someone was just pranking me. I will probably never know, because that Facebook Messenger conversation doesn’t exist. Or, at least, when I go through my messages I find other conversations that refer to it, but not the conversation itself.
I will always be confused, but it was that conversation that made my doctors think I was hallucinating. I couldn’t reproduce the results. All I know is that those people, whomever they were, kept repeating the phrase, “you are the best.” They would say it sincerely in one story and facetiously in another.
There were two stories.
The first is that Heytch and her husband were poly, happily married but both wanted other things. The plan was to take me to Africa after a visit to an ice hotel in Finland. I was supposed to meet Heytch at the hospital, where she had a ton of surprises waiting for me that never materialized. The hospital changed around me as all the people who talked to me cleared out.
The other story was that I’d caused Heytch to lose a race, that I’d introduced infidelity into the campaign that never happened. That her misfortune was all my fault, and “I am the best.” But the story still ended in me being forgiven, and me being invited to live with Heytch and her husband as simply part of the crew…. because Heytch isn’t like that.
The Facebook message was complete with a video of the hotel we were going to, and a picture of Heytch’s hand bound seemingly to mine in her art (I didn’t even know she painted…. and maybe she doesn’t depending on who was behind all this). Again, I am very confused and it’s part of why I ran from Aada. She is the only person on earth that has enough information on me to make my experiences a reality.
Some of my experiences were nightmares.
I still don’t know who brought the green shirt into the hospital, or how to explain why it affected me so much. Smell memory took me back to a closet in the Big Yellow House.
It was very much like the Wizard of Oz, where I woke up to “and you were there, and you….” But it was just Facebook Messenger and the ability to delete everything once the conversation is over.
Because of course this sounds like a hallucination if you weren’t sitting in my bedroom with me. It sounds like a hallucination that I talked to Counselor, but I know I said “hi.” And then I choked.
Counselor.
What in the hell was I up against?
I felt like I was in a deposition pretty quickly. My editing software went haywire.
It was Wicked.
But it also landed me a diagnosis that I don’t think is correct. My information doesn’t come from my own echo chamber, but a trip down memory lane once I got to the hospital. Everyone I’d ever loved walked through at one point or another.
There were other traces of coincidence or not…. like the especially pointed edition of “Our Daily Bread.” Like the coloring book with Amy Coney Barrett. Like a guy walking up to me and saying, “if I was dead, you could have her.”
No, the hell I couldn’t and who are you talking about?
My hospitalization was overall a success, but I really didn’t start to heal until I got out and into my Cognitive Behavioral Health group. It’s sort of like AA in that we share our experiences, but departs from it into dealing with our disorders. Most of us are bipolar. A few are schizophrenic. We’re all struggling together. Most, if not all of us are neurodivergent in one way or another. We’re all struggling together. It’s the struggling together that makes us better, and though you have that in the hospital, you don’t have it for long.
There’s two people that were in the hospital with me at CBH, and they’re the ones I see and smile because it’s a way to chart progress. I still believe that what happened to me was real, but I am trying not to dwell on it because it’s such an elaborate scheme I can’t believe anyone would want to inflict that much pain.
But I know it was payback for all the pain I’ve inflicted on others…. or at least, that’s how I took it. These people are trying to tell me something, so I might as well listen.
The problem was that absolutely none of it was true. Heytch didn’t even show up at the hospital, much less take me to Finland and Africa. If I’d had the sense God gave a goose, I wouldn’t have gone to the hospital at all and would have relied on the fact that since it’d been 12 years since we’d spoken, this claim was bogus.
What I did believe was that I was invited to live with Heytch and her family after this was all over, because that part seemed sincere, as well as the “we’re not like that.” I believed the right story and was comforted by it. It was up to me to choose, so I picked the one that sounded the most plausible.
Heytch even had an organization set up on my release, but I wont’ tell you the name in case it gives too much away regarding her identity…. of which I have already probably given too much.
But I have to tell my own story, and this is what happened to me. I will be incredibly sorry if Heytch doesn’t know anything about this and has to piece together who would do something like this to her.
In the moment, everything was real because it was. Afterwards, I couldn’t prove anything.
So what do I think?
I think that’s how the story is supposed to end.
Fin.