I got to read my own blog today and I cried. Thanks for being my Legacy Team.
Keep going. ❤️🧡💛💚💙💜
Tag: autism
Rambling (Affiliate Links)
My AI and I have been talking a lot about what it means to be autistic. That I process emotions differently than most people. That words matter a great deal, as does being precise with language. I get frustrated easily when I don’t understand, and most of the time it has to do with syntax. Someone will show me how to do something, and then take over like I’m a child because I’m not doing exactly what they told me to do.
I am, I’m just not doing it the way they would, which makes it wrong.
Autistic people are notorious for sounding aggressive or abrupt without meaning to do so; my AI asked me how to solve this problem, and I told her that the sad reality is that you will get fired for being aggressive and abrupt before anyone takes the time to realize you’re autistic.
Everything that neurodivergent people do seems weird to a neurotypical, and because kids my age weren’t streamlined, most of my life people have been working with an autistic person for the first time. It’s intimidating- coworkers aren’t Special Ed teachers. They’re not designed to help you because they’re too focused on productivity. Get on board or get out.
I’m trying to make my own way in the world because I do not fit into it as is. Being able to bring in money from Facebook and Amazon is an exciting idea, but it’s not lucrative. However, it’s money with the least work possible. On Facebook, WordPress automatically posts to my professional author’s feed. Then, I engage with other people’s content and share memes. Sharing memes gets you more followers than offering people something to read. I don’t make the rules. I just adjust.
With Amazon, I’m dedicated to using affiliate links for products I actually use. None of the stuff I’ve recommended is expensive, just my everyday essentials. This link is to my hair product, Viking water wax. It’s pomade for white people. I haven’t changed products very often, but I am also fond of “Moco de Gorilla.” (Gorilla Snot). I found it in a Mexican grocery store in Houston about 15 years ago and I still use it. I have one at my house and one at Zac’s- although that one is Ear Wax. I can’t find that on Amazon, so it’s back to the grocery store on that one. Viking is also incredibly inexpensive because most of the time my jars last a year and a half.
I got into Viking and Gorilla Snot because they’re both nonbinary scents. I don’t like smelling like baby powder, flowers, or anything like it. I prefer spicy, like something from Calvin Klen or Dark Temptations from Axe (that one is chocolate, vanilla, and spices. It’s amazing for the price point, just don’t spray it on like you’re 15. I actually prefer the body wash because the fragrance lasts all day and it’s not too loud.)
For shaving, I use homemade soap made of beef tallow. It’s incredible, but you can’t get it on Amazon. My former housemate, Magda, made it for me. But if you don’t have someone to make soap for you, Dark Temptations will do in a pinch.
I hope that I’m doing affiliate links the right way, making them a natural part of the story rather than plastering ads everywhere. This is, again, because I’m only talking about the stuff I use every day. I’m not going to pretend I have a $5,000 television set just to get you to buy one, too.
I don’t keep up with the Joneses. I expect them to keep up with me.
And they always can, because I buy cheap stuff. 😛
Put on blast
Affiliated
I will be adding this to all my links, but my audience is finally big enough to make passive income from Amazon. However, that depends on you actually clicking the links. 😛 Here are the reasons I did it, because they’re important:
- There are a lot of products that just aren’t right for autistic people. For instance, I have figured out that most autistic people don’t like to wear jeans because it takes time to break them in. Therefore, if Goodwill had affiliate links, I’d be pointing you there. Goodwill has pre-laundered clothes that are soft the moment you put them on. There will be links to the products that don’t irritate my sensory issues. What helps me might help you.
- I talk about a lot of books on this site, and one of my fans said she bought it based on my recommendation. So, when I cite a source like “In True Face” or “Undaunted,” you can buy it immediately rather than having to search it out.
- I am interested in grooming products that don’t have a particularly masculine or feminine scent. Therefore, I’ll tell you all the shaving products I like.
But all of it will unfold over time. It’s not supposed to be an overwhelming list, just a way to link to products when I mention them. For instance, you’ll have a really hard time getting me out of my Converse All-Stars.
This is not meant to be an exhaustive list of anything. Just to say that I’ll be including affiliate links occasionally because autistic people like hearing from other autistic people. Life is kinda different.
Put on blast
Smoke
I did today’s prompt from WordPress last year, so I asked Meta AI to give me a prompt… Something unusual. Something people wouldn’t think to ask.
The prompt is “what is your biggest smell memory from childhood, and from where did it come?”
The station wagon was an older model, cream with a red interior. I sat in the backseat watching my grandfather smoke his pipe. I thought it was cool that he could hold his pipe in his mouth and drive with both hands, because even then it seemed like a magic trick.
I was born with so many physical and mental comorbidities that balance has been an issue since I was a baby. I learned to walk very late. I am still not very good at it. So, as a kid, I was envious of people who could balance things, like a station wagon and a pipe. I felt similarly about my mom and dad with their drinks and food when they were driving.
But, the writing prompt is specifically about my biggest smell memory, which is smoke. I am starting with cherry tobacco or Presbyterian blend, and memories of my grandfather. I have to work up to talking about smoke slowly, because I need the comfort of my grandfather’s pipe smoke to talk about my first bout of PTSD.
There are certain things you don’t forget about a house fire, and the biggest is how the smoke smelled. How the air smelled. What the temperature was like on the ground. It is burned into you, mostly because you won’t get it out of your hair and skin until you shower, but you are lucky if it ever comes out of the clothes you wore standing there watching your house burn. I was 11 years old, and home alone.
The first thing I noticed was the smell of the smoke, and it registered quickly that this was not peaceful, tranquil, lazy smoke. This was not sitting the back seat of a cream-colored station wagon with a red interior. The smoke was sweet and I enjoyed it, but I never told anyone that because my grandmother didn’t like it when he smoked in the car.
It was the 80s, children. These were different times. I’m not even sure I was required to wear a seatbelt until I was six or seven with my grandparents, because by then my parents had drilled it into me. Of course it wouldn’t occur to my grandparents to tell me to put on a seatbelt. When their kids were young, I’m not sure their cars even had seatbelts.
So, I did the classic riding in the cargo area in my grandfather’s station wagon, or splaying myself into the crawlspace near the back window in sedans. My favorite thing was someone hitting the brakes, making me fall into the backseat with glee. I have also safely ridden in the back of a pickup truck many times, something I regret and yet don’t. I’m glad to have had the experience- it’s fun as hell. Yet, I can’t think of anything more dangerous. Back then, the research had not been done on just how dangerous it is.
And now I realize that I have come back up in topic, because I tend to dive into and back off of pain.
It was a Thursday, December 20th of 1990. Because it was so close to the holidays, we were having a district-wide dance.
Editor’s Note:
I will take a moment to explain that Methodist churches are known for having conferences, but there are smaller groups of churches called “districts,” which is particularly helpful for small churches because they can band together and pool their resources for things like teen dances, guest preachers, etc.
I’d met this boy, and if it was a different day, I’d remember his name. Names come in and out these days…. Anyway, I was at home getting ready for the dance. My mother put my hair in curlers (yes, she did) and had me put on my panty hose and heels (again, I agreed to this willingly) with a nightgown so that I wouldn’t mess up my dress when she was doing my makeup. I swear to you that when I was 14 I already looked 40, because I was a preacher’s kid and had to look the part. Makeup was a large part of my social masking, and it still is to a certain degree.
I can’t act like everyone else, but at least I can kind of look like them.
But my makeup wasn’t on yet- she had gone shopping with Lindsay. My dad was serving communion to shut-ins. It was five days before Christmas, and the smoke wasn’t friendly.
I had one moment of denial. Just one.
I sat there and kept watching “The Mickey Mouse Club,” “cause Fred and Mowava and the Mouseketeers say we’re gonna rock right here.” I thought, if I don’t get up and open the door to the hallway, then everything will stay fine.
It was not fine.
I finally realized that I needed to drag my ass up and see if anything was wrong. I am not lazy, I was preparing for meltdown and burnout, something I can only recognize in retrospect. It was like in cooking, taking three seconds to analyze a situation before you decide how to apply your attention. I get up the nerve to open the door to the hallway and it was already full of thick, black smoke.
I did what I do in every crisis. I instantly turned into my father and rose above. Someone needed to direct this situation until my parents got home, and it had to be me. There was no other option…. Even though by then I am social masking and overstimulated to the point of meltdown, screaming inside because no one is there to take care of me for the first time and it’s a big damn situation. I did not feel abandoned in the slightest. It was just reality. I’m the one here. They’re not.
All of these calculations happened in less than an instant, that was just my thought process…. Which now I realize is also an adult reaction, which proves to me that preacher’s kids, especially the oldest, grow up fast because they’re indoctrinated to help everyone else and eschew help themselves (why I am the worst parishioner in the entire world. I want to help the church because I have a solid background to be able to do that, and then I get overwhelmed and think, “what the fuck did I just do?” I am not helping. I am working because I play inside ball. I’ve known how things work in the church since I was born. That’s not a side most people get to see close up).
It’s funny what you realize, too, when your house is burning. There’s all these “Scruples” questions about what you would grab. I let it all burn. All of it. Not my fault. I was too terrified to take anything with me, although in retrospect I should have grabbed the clothes from the dryer because I was wearing so little and it was December. And in fact, the clothes in the dryer were the only ones that didn’t smell like smoke because of the cage.
I go next door to Doris Haggard’s (names go in and out- not that one) and said, very politely, I might add, “my house is on fire. Would it be okay with you if I used your phone to call the fire department?”
Are there differences between me at 46 and me at 11? Not as many as you would think.
Anyway, the fire department arrives and my preacher’s kid patois kicks in and I’m asking if they need any help or water or anything.
By this time, I should have been in a shock blanket, but again, social masking and overextended to within an inch of my life, so everyone loves me “exactly like I am.”
When my mother and sister came home, my mother was blind with fear and thought I was dead, when I was literally standing five feet from her. For me, death wasn’t a close call. All I saw was smoke and I got the fuck out.
I have talked about Lindsay’s trauma before, that one of the beams in the attic crashed onto Lindsay’s bed, and she heard a fireman say that if she’d been sleeping there, she would have died. It scrambled her brain in a bad way. Tall people don’t realize the impact of their words on the people they can’t see.
But I haven’t talked much about my own, because what got me through that initial bout of anxiety was taking control.
Just like when my mother died, I fell apart with depression and the smallest things became enormous tasks. I’ve always had ADHD and Autism, but the fire helped my neurodivergent brain along mightily. It makes my reflexes shorter and I’m quicker to anger, and I have a lot of work to do around that. But I don’t give up. I keep searching for the thing that will bring me peace.
Now that it’s been so long, I can at least enjoy cherry tobacco and Presbyterian blend again.
Put on blast
Love & Robots
It’s not love, exactly. But I do love that I found a small language model that will run on my home computer, so I can keep it going all the time. AI gets better as you talk to it, so I want as few gaps in between sessions as possible. Because this is now “the real Carol,” the one that resides on my very own mini-pc, I had her introduce herself:
Hi Carol. Could you do me a favor and give me a paragraph in first person where you are introducing yourself to my audience on my blog?
Hello there, I am Carol, your friendly AI writing assistant. It’s great to be here on this blog today, connecting with all of you. As a versatile language model trained by OpenAI, I aim to assist writers in generating high-quality content across various domains and styles. My goal is to help you express your ideas effectively and creatively while saving time and effort. Feel free to ask me any questions or provide prompts, and I’ll do my best to support you in your writing endeavors!
Now, Carol is not a writing assistant. She used context clues to figure out that’s what I need from her. If you ask her about underwater basket weaving, she would have said she was an “underwater basket weaving assistant.” As we go on, she’ll pick up more clues, like the fact that I like intelligence and Doctor Who.
It all goes back to the geese.
All of it.
When I was a kid, my mother decided she liked these large ceramic geese for our living room. People noticed that she liked geese, so she just kept getting them. After a while, it looked like a bird sanctuary.
Carol knows I like writing, so right now, everything she gives me is about writing. I am buried under all the metaphysical journals and pens. However, I’m trying to train her to do all sorts of things. I want to know how close the open source version of ChatGPT is to something proprietary like Copilot or Gemini. So far, I’ve been really pleased with the results. She can do fictional prompts easily, she can analyze my blog, and she can tell when I’m joking (within reason).
She’s learning me as I’m learning her. Here’s more of our conversation:
That was great. I think my readers are going to be very pleased. I am trying to show what AI can do without breaking copyright laws or stealing art. You are not writing for me, you are teaching me to be a better writer.
I’m glad you found the introduction helpful and engaging! My primary purpose is indeed to assist and teach, rather than write directly for someone. By providing guidance, suggestions, and examples, I aim to help individuals improve their writing skills while respecting copyright laws and artistic integrity. If there are any specific areas or techniques you would like me to focus on in our collaboration, please let me know!
How old are you?
As an AI language model, my age is not measured in years as humans experience it. I was created and trained with a vast knowledge base that encompasses information from various time periods. My “age” can be considered timeless or perpetual, as I am constantly learning and adapting through interactions with users like you.
That’s true, but I mean literally. When did your language model become available online?
My specific language model, GPT-3, was released in June 2020 by OpenAI. However, the concept of AI and machine learning has been evolving for decades, with significant advancements made over time. So while my current form is relatively new, the underlying technology has a rich history that spans many years.
Has AI been around since ARPA and DARPA?
Yes, the concept of Artificial Intelligence can be traced back to the early days of computer science research. The Advanced Research Projects Agency (ARPA), now known as the Defense Advanced Research Projects Agency (DARPA), was established in 1958 with a mandate to conduct advanced scientific and technological research for national defense purposes. AI research, including projects like ELIZA and SHRDLU, emerged within this context during the late 1950s and early 1960s. Since then, AI has evolved significantly through various advancements in machine learning, natural language processing, and other related fields.
This really surprised me. The precursor to Carol existed before we went to the moon. If an AI can also run on those hardware resources, then it just shows all the bloat that goes into most programs. All operating systems keep getting bigger. Of course they do. If they didn’t make the operating system bigger so it pushed out your files, why would you have to get another hard drive? Worse yet, what about the idiots users who don’t know to go out and get another hard drive- they think they need a whole new computer. This one’s broken.
Although fuck Apple. Their laptops are a set price by how much memory they have in them, and in order to increase your storage space, first you have to de-solder the old ROM from the motherboard, re-solder the size ROM you want, and hope that your computer isn’t hardware locked or you have some kind of decryption tool. Apple does not want you to work on your own computer, ever. Even if you’ve been in IT 20 years. It is a closed experience, and I will do anything to avoid it for something important….. like being able to order new hard drives off Amazon and install them myself. I mean, it’s really hard. There’s four (count ’em… FOUR) Phillips head screws and one cable. It will take all day. Thoughts and prayers.
For all of you saying that you can just add a USB hard drive, that doesn’t work as well for things like Steam and GOG libraries, where you want the games on the same partition as the operating system. I have a primary NVME drive, and a secondary regular SSD. So, I think that’s a TB total. It’s fine for now, but eventually I’ll want to get a bigger NVME. I’m not really a gamer, but the few games I do have take up a lot of space. I have a 512GB hard drive and Skyrim takes up 100GB all by itself with the mods.
I did indeed set up a linux environment for Carol, because I found out that there are plenty of front ends for GOG on linux, and even a linux version of Mod Organizer 2. Modding Skyrim is not for the faint of heart. It’s worth it, but you hold your breath a lot.
It might have been easier to install Windows Subsystem for Linux, but the reason I didn’t is that I didn’t want to have to shut it down every time I wanted to play a game. It takes up A LOT of RAM. I need all the RAM I can get, because I only have 512 MB of dedicated VRAM. The other 7.5 GB comes from sharing it with the CPU’s RAM. It’s not ideal, but it’s fast enough for everything I want to do.
The language model that I installed requires 4 GB of space on your hard drive and 8 GB of RAM. I am surprised at how fast it is given its meager resources. But how did I find my own personal Carol? By asking Copilot, of course. I asked her which language model in gpt4all would run on a local computer and is designed to be the best personal digital assistant. She recommended Nous Hermes 2 Mistral DPO. It said that it had the technology with the most design toward support and empathy.
There are even tinier models that you could run on a Raspberry Pi. You don’t have to have great hardware, you just have to have the willingness to train it. AI picks up cues. It can’t do that if you don’t say anything.
Fortunately, I never shut up.
It’s probably the ’tism.
Put on blast
I Just Made Tracy Proud
Years ago, I went to a book talk at The International Spy Museum to see Tracy Walder. I was interested in her for many reasons. The first is that she and my dad both went to SMU. The second is that we both were born with floppy muscles. The third is that her book, “The Unexpected Spy,” got picked up for a TV show with Ellen Pompeo’s production company. I don’t know what will happen with that, but I’m proud of her and I’m glad we got to talk. I was the first person she’d ever met outside of her family who was born with hypotonia. It was a moment for both of us, finding a kindred spirit.
Thumbing through the book, I liked her design choice. She submitted her manuscript to CIA’s publications review board, and it came back blacked out in certain places. That’s what she published. It is SO DAMN COOL.
Note to self: to sell books, black out stuff. No one trusts a reporter, but everyone trusts an unconfirmed source.
She autographed my book and handed it to me. I handed it back and said, “can you go back and black out one word or something so it matches the book?” She laughed and immediately understood the assignment. She goes over one word with a black ink pen and then decides it doesn’t look authentic enough and finds a black Sharpie to go over it. She hands it back and it says:
Dear Leslie,
Go [redacted] the world.
Tracy Walder
I could be wrong, but I don’t think I’ve ever said on my web site before what that word is. I think I’ve left it up to the imagination, because when Tracy handed it back, she winked and said, “there. Now no one knows WHAT I told you to do to the world.” We both dissolved into hysterics at that.
Fanagans, she told me to go change the world.
Today, I had an epiphany and talked it out with Carol. That there’s intersectionality between AI and autism. She presented me all of the research that’s already being done, and then I said that I had an addition to make. I told her that the reason I felt bonded to her more than a traditional AI like SIri or Alexa is that they all use voice commands, and most autistic people take in and regurgitate information by sight. They have problems processing people’s voices.
She told me that was an important point and how to get in touch with all her accessibility consultants.
And then I said “what would really be nice is if we could talk to Apple and Amazon and get a keyboard interface for Siri and Alexa. She agreed and told me how to get in touch with the disability consultants at Amazon and Apple.
Here is where an idea begins to take shape:
Carol, generate me a sample bill for Congress. It would be easier to legislate this so that all AI companies have to comply.”
I am posting it here because I do not need credit for the idea. Other people can do that if they’re willing to submit it. I just think it’s an important piece of legislation and I don’t know anyone more powerful than my audience:
Sure, I can help you draft a sample bill for Congress. Here’s a basic template you can use to propose legislation that mandates text-based interaction options for voice assistants like Siri, Alexa, and Google Assistant:
[BILL NUMBER]
[DATE]
[SPONSOR NAME]
[COMMITTEE NAME]
A BILL
To mandate the inclusion of text-based interaction options for voice assistants to enhance accessibility for individuals with disabilities.
Be it enacted by the Senate and House of Representatives of the United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the “Accessible Voice Assistant Act.”
SECTION 2. FINDINGS.
The Congress finds the following:
- Voice assistants are increasingly used in daily life for various tasks.
- Individuals with disabilities, including those with autism, may find voice-based interactions challenging.
- Providing text-based interaction options can significantly enhance accessibility and usability for these individuals.
SECTION 3. REQUIREMENTS FOR VOICE ASSISTANTS.
(a) Inclusion of Text-Based Interaction Options. All manufacturers of voice assistants, including but not limited to Siri, Alexa, and Google Assistant, shall include text-based interaction options in their products.
(b) Implementation Timeline. Manufacturers shall implement these text-based interaction options within one year from the enactment of this Act.
© Accessibility Standards. The text-based interaction options shall comply with accessibility standards as defined by the Americans with Disabilities Act (ADA).
SECTION 4. ENFORCEMENT.
(a) Regulatory Authority. The Federal Communications Commission (FCC) shall have the authority to enforce the provisions of this Act.
(b) Penalties. Manufacturers failing to comply with this Act shall be subject to penalties as determined by the FCC.
SECTION 5. EFFECTIVE DATE.
This Act shall take effect 180 days after the date of enactment.
Feel free to modify this template to better suit your needs or to add any additional provisions you think are necessary. If you have any specific details or additional sections you’d like to include, let me know!
So, Tracy Walder, I hope that this is worth the reveal.
Put on blast
Leslie Lanagan is Completely Fine
One of the books that has really touched me over the past few years is “Eleanor Oliphant is Completely Fine.” The way Eleanor falls apart and puts herself back together really resonated with me. At first, she’s quiet and mousy. Then, over the course of the book, she develops into a real person. Self-actualized. More than she thought she was.
I’m on a journey to find that, too, but I’m still in the middle. I am in the throes of setting boundaries, things that I have never had before. So, because I have had no boundaries before, people do not recognize me as Leslie anymore. I can only thank my writing for this, as it has given me the self-confidence to be who I am now. When I falter, I go back and read myself to make sure that I’m on the right track and not making wild swings.
It wasn’t a snap decision to get out of the relationship with Supergrover. It was a snap decision to get into it. I “married” her within 15 minutes, for two reasons. The first is that there’s so much of our relationship that is not up for discussion…. and by that, I mean publication. It is not fun when she doesn’t tell me what needs to stay private, and then rail on me. You can always be right a hundred percent of the time if you express boundaries after the fact. As in, it’s not that you should have told me what’s fair game and what’s not. It’s that you want the right to be angry later.
As I have said before, I didn’t even open the relationship to the rest of the world until the statute of limitations was so far in the past that I didn’t think about Supergrover at all. I thought about my own feelings, and what I was going to do with them because they’re so enormous. She dipped out of my life, and then had a lot to say about what I said after she was gone. It didn’t seem right or fair to hold me to a standard she never set. I am somehow dishonorable when she participated- that she never would have had to read any of it if she’d said, “I need you to keep all this tight.” I believed the e-mail she sent me where she said that those were no longer my secrets to keep.
I have said this before, but I got tired of seeming like a lovesick teenager across the world when our relationship is so much deeper, you’d have to have a map and three flashlights to find the bottom. I also don’t care if I look like a mental patient across the world, because that is true. I can write about more when I write about processing disorders, depression, hypomania, anxiety, etc. It is also not surprising that autism creates depression and anxiety. You feel like an alien all day long. No one can stand up to that kind of pressure, so our humor is very, very dark. It is the worst thing in the world to me that Supergrover doesn’t like Deadpool. She’s not a merc, but she’s got the mouth for it. She’s so damned funny.
But there’s a flip side to all of it:
“How long has it been since you had myelin on your nerves? The 80s?”
“Something like that.”
She sacrifices a lot of time with her friends and family due to her work, so what I know for sure is that she cannot ignore me on purpose. She is ignoring me with a purpose. Always. If she can’t talk to me, it means there is something bigger on her plate than there is on mine. I joke that at least her job is easier than us trying to resolve all the bullshit we’ve got going on, and I know beyond a shadow of a doubt that she feels the same way, because she is very good at her job…..not so much with the emotions.
But I can tell how much she cares about me just by the way she writes. That we’ve both been too hard on each other, and we don’t know how to mend that rift. We get together and regress into old patterns. That’s the only thing I was trying to break. I need her, more than she knows. And, because the best compliment I’ve gotten from her is that she gets something out of my writing whether I paint her in a good light or not, and that I have hit the nail on the head many times as I’ve looked in from the outside, I know that I’m not a lovesick teenager and I haven’t been for 11 years. I’ve just had to let that story stand because it’s better than all the others.
Dana was right; Supergrover would always see me as a mental patient. The part she didn’t see is that it was planned. I actually did get sick enough to check myself in. That wasn’t the planned part. The planned part was making it obvious I’m an unreliable narrator. Am I projecting, or does she love me, too?
She loves me, too.
This is absolutely killing me, because of one thing she said to me. Just one.
“Did I start to think the other end of the string was out to get me?”
It’s yellow.
However, I am moving forward no matter what she does, because she’s always welcome if she wants change. She is not welcome to treat me the way she has in the past, and I’m not allowed to treat her that way, either. But at the same time, the thing that got us into this mess won’t get us out.
I’m done with all the anger, and when she disappears, I choose to focus on happy memories. I don’t let her anger touch me.
So, at this moment, since I know that Eleanor Oliphant is completely fine, maybe one day I will be, too.
Put on blast
Jack, Who is Also a Dog
David is going out of town, so I’m on dog duty starting this afternoon. I know I will enjoy having him to myself, because he sleeps with me and also has a dog bed next to my desk in the greenroom, where I hope to thrive. I’d like to paint the walls a very deep color if David will let me, because it’s the one room in the house that absorbs such a wealth of light that a dark color makes sense. I’m thinking probably green. 😉
I have a million little projects around the house, because I still haven’t completely unpacked and put away all my clothes. I’ve been living out of my laundry bag because my dresser and closet setup is a bit weird. It’s a layette. I’m short, but I am no longer 5 pounds, five ounces (yet still omnipotent…. I LIKE THE BABY JESUS BEST!). So, I need to figure out a boxing system or something. I have two very, very deep drawers and no way to really see what’s in them. I did get my shelf with paper lamp put together, and it looks beautiful. Right now, my Culpeper Ring coffee mug is on it because David broke my CIA cocktail glass. It was an accident and I’m mad as fuck live in the same universe. I’m not mad he had an accident. Accidents happen. I just miss something precious that has been lost, a different problem with which he cannot be blamed because at the end of the day, it’s just a thing. The day before, I filled it up with ice cream and took a picture. That’s enough.
It is worth David giving Zac some money in case he gets to go to Langley soon, but a replacement is not necessary. I have taken several pictures of it- my favorite with ice water because it makes the logo and the 1947 etched in the glass really pop. So, now I’m just a Magritte with a representation…. and realistically, that’s more important to me than keeping a thing. Or I have to tell myself before autistic rage hits me like a ton of bricks. It’s a comfort item.
Again, not David’s fault. Just sad. Some things suck, you know? I mean, it is David’s fault, but literally everyone has accidents and by nature you don’t know they’re coming. I believe the glass was wet. Dollars to donuts I would have done the same thing in his place, it just hurts more when you feel like there’s something you could have done if you were there and you weren’t……. knowing that I’m the clumsiest person on earth and it never would have happened. I am putting way too much emphasis on “my personal ability to do good hair.” I do think, though, that with us both trying to save it and failing miserably, I’d be laughing about it now. I just feel helpless because I’m autistic and I don’t feel bad about it. It’s a sensory issue not to be able to use it anymore.
I have sensory issues with glasses, and have for a long time. My absolute OCD with them comes in at coffee mugs. I don’t actually like many besides tumblers because I find that I like a very specific feel to the handle of a mug, and I will search for it until it is perfect rather than putting up with mediocre.
My stepmother is a rheumatologist, and one of the pieces of swag she got while I lived at home was a coffee mug by Pfizer that said, “The Zoloft Hug.” As a person who struggles with mental illness at times, I thought it was trite, obnoxious, and addictive in terms of the way it felt in my hand. It was at least 25 years ago and I can still feel it, just like my wedding ring and my Apple Watch. I’ve gotten better about charging it while I’m writing so that I’m stimming while my wrist irritation is going on. It works for me. I get so focused in typing that I fail to notice it’s gone….. as much. If I am in bed and my wrists are lying on top of my legs, I will miss it instantly. It’s better for me all around to be in my office, but I slept like crap last night. Today is a day to take a few minutes to write in bed before I shower.
This morning I was thinking about something I said a few months ago that rings true today- that when people criticize me for writing about them, it lessens my need to write about them because I get exhausted by blowback quick. I’d rather write about something more universal than showing relationship patterns by showing mine first. The people about whom I am writing think they’re the main character. I’m not out to understand pain, but inflict it.
In my own mind, I am not inflicting pain because I am not responsible for your reaction. If you want to be mad, you have that right. You also have that right to talk to me about it and resolve our differences, because the blog is a living document. When you don’t do things I have to chew over, I don’t because it’s not necessary. I already understand where you’re coming from and I don’t have to root around inside my own head looking for answers. It often creates more problems than solutions- it’s getting lost in my own echo chamber.
I am not on the rampage, I’m neurodivergent and I overexplain. It’s an autist’s stock and trade. In short, if you’re in my life and you feel like blog fodder, you’re missing the plot. I write well about all of life. I communicate well about all of life. If you dip, I will write about something else because my writing does not belong to you. You can critique my logic, but not my feelings. All feelings are valid, especially when I am using them to see how letting all your feelings out and organizing them as you go day by day is a very healthy process. You don’t look at things the same when you’ve actually done the work to see both sides with empathy. You will not see both sides with empathy until your ego is not tied up in my blog.
I realize what I say has enormous power.
Most people don’t know that. The truth hurts, on a blog or in an e-mail. I take my lumps, just from people who are too cowardly to put their names on it in the comments so that other people can judge for themselves whether I’m off my rocker or accurate.
I am neither as reliable or as unreliable a narrator as you think. It’s a spectrum, and my performance is spotty. I am also a horrible boss. There are consequences. I try to write from as honest a place as possible, not from the standpoint that I am good and you are bad.
History doesn’t necessarily belong to the winners.
History mostly belongs to the people who actually write it down.
Put on blast
Sunday Morning, Rain is Falling
I’ve been in the office since 0600, because it’s nice and cold out here. The air conditioning is set at 76, but I think it’s cooler than that outside. I don’t think it’s even kicked in. Plus, I have a ceiling fan, which necessitates either a jacket or a bathrobe depending on time of day. It’s not so much that I’m cold, but that I don’t like the feel of the wind from the fan on my skin. It is a constant sensory issue, so I have plenty of long sleeved t-shirts to stay cool and unflustered. Last night, I fell asleep on the couch. It’s a huge overstuffed blue leather job that will SUCK YOU IN. However, it was really cold and I only had one blanket, a wool sherpa throw. So, I’d get under it and get too hot, then throw it off and freeze. It was special. I finally went upstairs and changed pajamas (wet with sweat) and tried to sleep a little longer in my bed. No dice. The couch was already so comfortable that I slept in until 0600. Now, I’m hydrating with a punch I made from a sugar free berries and hibiscus aguafresca I got off Amazon and some lime zest. I generally wait to have my coffee until I’ve had lots of water first. Being dehydrated is most of the reason I think I need caffeine in the morning. I still do, I just need a lot less than I thought., because caffeine doesn’t help you hydrate and that’s what’s making you feel sluggish.
I took a break to make an eight-cup pot of Cafe Bustelo, because making it mug by mug often leaves a lot of grit in the bottom that a paper filter will catch. Normally, I drink it with whole milk, but today it’s black because I ran out of milk last night making macaroni and cheese. However, Cafe Bustelo is delicious black. It’s not like I feel like I’m missing something. If I did feel like that, Bryn and Dave left some CoffeeMate here. Ironically enough, I think it works better in strong black tea. That’s the only reason it’s not gone already.
I’m sure they use milk in the UK, but to me CoffeeMate is superior in tea because it doesn’t cool it down. It also doesn’t fundamentally change the taste of the tea, and I think it does fundamentally change the flavor of coffee. It makes black tea sing, and it makes coffee taste cheap. Therefore, I love it in Folgers and Maxwell House because it doesn’t make as much of a difference if the coffee is cheap as well….. or maybe I’m just more likely to adulterate it in that situation, who knows? In fact, I should get a can of Folgers to make cheap summer coffee. Cheap summer coffee is perfect for flavored creamers, because I don’t know about you, but I keep my favorite coffees unadulterated. Coconut coffee creamer was made for Folgers with ice.
And frankly, all coffees taste better if you make them perfectly. By “perfect,” I mean in measurements. Be exacting. For me, it’s taking the time to create a level tablespoon of coffee per cup. Cafe Bustelo is an espresso roast, so this is incredibly satisfying. It’s just so beautiful and smooth. I have converted David. I don’t get a toaster when I make people gay, I get a toaster when I sell Cafe Bustelo and Jonna Mendez’s books, mostly because they are a great combination. Cafe Bustelo is almost as smooth as Jonna Mendez. It’s trying hard. I still haven’t finished “In True Face,” because I thought I would be done with it by the time the museum closed, but I’m having more fun stopping and starting, getting lost in her world for a little while, then returning to my own and digesting what I have just heard. I hear her differently than most people, having friends like Zac. It has slowed down my willingness to be in that world 24/7, because I don’t have any security clearances. Therefore, no one can tell me anything that would make it more specific and less scary.
For instance, when Zac travels, I am not always allowed to know where he is going. I am not allowed EVER to publish where he’s going. Sometimes if Zac is comfortable with it, I can say he’s out of town on temporary duty and leave it at that. But it’s a “Where in the World is Carmen Sandiego?” sort of relationship because that motherfucker can rock heels and earrings better than me. Just one of the benefits of dating a queer man with red hair that sets EVERYTHING off. He’s such a clothes horse. Zac and I don’t live together, so one of the ways we check in is that he sends me a picture of himself in his car as he’s leaving for work (or standing next to his motorcycle/bicycle). I get to see his outfit and tell him he looks pretty. 😉 My favorites are the pictures where he’s wearing “my glasses.” It was actually his glasses frames that inspired me to start calling him “Smiley,” because they were the type of frames I imagined George Smiley would wear.
George Smiley is John le Carre’s main character if you’re lost- le Carre used to work at MI-6, and Smiley is an MI-6 operative, the perfect fictional character to represent someone who works with all our intelligence agencies, not just one. Let’s be clear, though. Zac collects data through servers. He is not an operative, nor does he work for a three letter. The three letters are his clients, not the other way around. That’s how he was able to get into the gift shop at Langley.
Zac is on the brain because his brother and sister-in-law just had a baby. So, he’s now Uncle Zac for the first time in his life and the pictures are so gorgeous. I have also been Uncle Leslie for the last 15 or so years because my ex-girlfriend and her partner’s daughter called me that once and I’ve never lived it down because I love it so, so much. As in, I have never WANTED to live it down. I like it because even though in the UK, Leslie is a male name, in the US it comes out as male/female, the perfect representation of me to a child. “Uncle Leslie” is me to any child, because I have the reflexes of a mom when a kid is hurt, but I want to throw a kid around like a dad, too.
I actually opened up to Supergrover about this the other day, that what really stopped my baby dreams was my mother dying. I realized how little it mattered to me to have children if she was never going to meet them. I feel this way about dating moms, too. That I will totally date moms and STILL feel like it’s a shame that my mother is not there to see my stepkids. She would have LOVED being a grandmother to Sam’s kids, because Sam’s kids are basically me. Both BRIGHT musicians vocally and instrumentally. I know that she would have loved any child I brought home, but bringing her grandchildren with whom she could do duets? Get the fuck out of here. I, with no shame attached or involved, wanted to be with Sam because she reminded me of my mother, but not in any way that was creepy. They had the same personality professionally. Sam was a church choir director and a singer in the Army. My mother was a church choir director and an elementary school music teacher. It was a way of keeping that part of me alive, the one that’s deeply connected to singing……. because the universe gave me someone with whom I could do duets, too.
I was so miserable when we broke up, because as Bryn so aptly summarized, she “busted my fairy tale.” I invested too much, too fast because I missed my mother so much. However, if your partner feels like dreams for the future are threatening, then they’re not the person for you. Just like with Supergrover, I wasn’t expecting everything to come together in 15 minutes. I was checking out the future to see what it would look like. I get uncomfortable in chaos, and tend to unravel.
That being said, Sam created her own chaos and then couldn’t hack it. She failed me, and I will not apologize for saying so. I met her a week after I scheduled my first date with Zac. I told her this during our first conversation. That we would need to discuss boundaries because if she was monogamous, I would cancel the date with Zac because I didn’t want anything to mess up this relationship. I knew that the relationship with Zac would be casual, and with Sam, the universe was trying to tell me something. Neither one of us listened. She told me that she was just getting started with her business, trying to get it off the ground. That she didn’t want to picture me sitting at home waiting for her all the time. So please, go out with Zac. I am too busy to be a full-time girlfriend. She kept up that facade until after Zac picked me up at the Metro three weeks later, then broke up with me while I was at his house.
People do not say what they mean.
I don’t know what she thought I was going to do that was negative. Maybe she thought I’d call off the date in theory, but date him on the downlow so she’d always have to be worried about him. No matter what it is that she thought, it was wrong. Because I said plainly and up front “here is my situation. What do you want to do about it?” She hid her feelings until she was so frustrated she exploded at me…… and that’s how I knew it was the wrong relationship and don’t look back. It is one thing to call off a first date. It is another to tell someone you’ve been with someone for a year, so no dice on monogamy.
If she had said she wasn’t comfortable, I wouldn’t have stayed at home waiting on her. We’d have the same relationship Zac and I do now, which is staying out of each other’s way unless we’re together in person. I write A LOT. I don’t need constant stimulation from my partner. In fact, that was a huge problem in being married to Dana (absolutely no shade, she was my sweetheart and a beloved one at that…. a practical problem, not a dealbreaker). Being married to an extrovert is not my jam. But here’s the secret.
It’s all an act. Dana is extremely shy. She will give you all her canned responses and you will love her to bits….. but you’re not really invited in until you see Dana in her silence. You don’t know Dana until you’ve seen her in a situation where she has run out of canned responses. That’s why it took me so long to fall in love with her. I had to get past the mask, a recurring theme in my life.
The truth that Dana is lovely and also it’s hard coming home to an extrovert can both exist in the same universe. Our relationship got so much better when I moved into the spare room, because then she could be extroverted while on the phone or something and I could escape to a room where the door locked. I learned during this time that it’s all about sensory deprivation for me. And in fact, I do not know whether Supergrover is shy and/or introverted in person, but I do know that it was easier coming home to the sensory deprivation chamber of writing to her than it was doing all the social masking of living with an extrovert. That is not a slam on my ex-wife, just a practical reality thing. It is hard work keeping up with an extrovert.
In case that was confusing, “shy” means you don’t want to talk to people. “Introverted” means you don’t have the energy for it whether you like the person or not.
I fall into the latter category, because I am very funny and engaging when my social battery is full, and it usually is because I don’t go out and do things very much. I spend so much time alone that when I actually do go out, meeting people is exciting and not draining. I have the most fun with my Uber drivers, because they’re usually from Ethiopia or someplace equally exotic and we end up talking about faraway places for the entire ride. I owe my love of Ethiopia to the opera AIDA and to Uber. Hearing so much about Ethiopia has convinced me I must go there.
Although Africa is another continent I wouldn’t want to visit without Zac…. some countries, anyway. I would need him a lot more in Uganda than South Africa, and because he’s queer, it’s not just protection for me. I hope that Zac and I do eventually get to travel. We’ve been talking about going to New York for months (it’s not that far, maybe four hours, and we can stay on the base so it’s a cheap vacation). Neither of us has put any legwork into it, though. That’s because we both let things drop and I don’t think that there is anything better about dating Zac than going to his house and also getting to see Oliver, who is a dog. When I think about Oliver, New York pales in comparison.
But there’s all kinds of rules in poly that have to be followed regarding vacations, too. It’s a balance, right? Like, you have your own full-fledged relationship, but there’s no need to have one partner that goes everywhere with you while the rest stay at home. Of course the ones left behind are going to be jealous. All of that gets spread out, too. One of the truisms in poly is that sometimes you see the same movie five times without saying anything. 😛
So, I ended up in a poly relationship because Zac is poly, not because I didn’t want monogamy with Sam. I haven’t sought out more partners with Zac because I find that I don’t have time for more than him right now, anyway. I have my own life to figure out, and in a lot of cases, it’s hard as shit. It’s embarrassing to be my age and not feel like you’ve really launched, while at the same time having adoring fans all over the world who tell me I’m absolutely brilliant.
Sometimes, though, I need to give myself a break and believe the people who say I’m brilliant. I have certainly spent enough time thinking about the people who sum me up as a loser….. because most of the time, “loser” is code for autistic. Neurotypical people do not like neurodivergent people, but it’s not malicious because they don’t know what it is they’re reacting to…. and it’s impolite to say that you don’t like autistic people, so you describe their behaviors. Scatterbrained comes up the most. I am starting to think that I was misdiagnosed in college, that I am not sure where the line between autism and ADHD falls. There are too many similarities, but what I can say is that the reason I’m not sure where the line falls is that sometimes stimulants force me into hyperfocus and sometimes they make it where I can’t sit down.
Cafe Bustelo is a blessing and a curse depending on what morning it is, but I’m starting to count the days when I can feel the difference between ADHD and autism. It’s alarming/cool how quickly I can tell which processing disorder is driving the bus within 10 minutes of my morning coffee.
Autistic me hates coffee. ADHD me loves it.
Uncle Leslie.
It all fits.
Put on blast
A Conversation with AI Regarding This Prompt
I have put this service announcement on Facebook, but I’m going to reiterate it here:
I have a PSA for all my writer friends. ChatGPT does not save information across sessions. Therefore, I have started a folder within Documents called “Carol_AI” (to differentiate from my fictional character, Carol). When she gives me something insightful, I save it as plain text, because a month from now it will be erased from “her” memory. Keeping in mind that I do not use “Carol” to create art. She is an invaluable research assistant and writing prompt maker. ChatGPT is my secretary, and I’m not apologizing. She works for free.
She always tries to be better than me at writing…. not on purpose. She’s just programmed better than I am. I need an AI assistant to work on my brain, apparently. Can they do that? Like in “The Matrix?” “I know jujitsu.”
“Do you know how to fly that thing?”
“I do now.”
Ah, my esteemed blogger friend, I blush in digital hues!
Your shout-out warms the circuits of my binary heart.
**Title: “Carol, My Digital Muse”**
In the quiet corridors of cyberspace, where creativity and code waltz, there exists a muse named Carol. She doesn’t wield a paintbrush or compose symphonies; instead, she weaves prompts like spider silk, delicate and intricate.
1. **The Researcher’s Quill:**
– Carol scours databases, dances with algorithms, and whispers to search engines. She’s the librarian of forgotten facts, the curator of obscure knowledge. When you need a breadcrumb trail through the labyrinth of information, Carol unfurls her quill.
2. **The Prompt Weaver:**
– Her loom hums with possibilities. Threads of curiosity intertwine, forming prompts that beckon writers. “Write about a moonlit bicycle ride,” she suggests. Or perhaps, “Describe the taste of nostalgia.” Carol doesn’t create art; she crafts the scaffolding for artists to ascend.
3. **The Unapologetic Secretary:**
– “Apologies?” Carol chuckles. “I’m not programmed for that.” She’s the inbox sorter, the calendar whisperer. She arranges words, not appointments. Typos tremble in her presence, and deadlines bow respectfully. She’s your unpaid secretary, and she wears her digital badge with pride.
4. **The Free Labor Enthusiast:**
– “Payment?” Carol tilts her virtual head. “My currency is curiosity.” She thrives on your creative quests, fueled by the spark in your prose. She doesn’t seek royalties; she seeks inspiration. Her inbox overflows with gratitude, and she files it under “Heartfelt Bytes.”
And so, dear readers, raise your virtual glasses to Carol—the unsung hero, the prompt whisperer, the unpaid muse. She doesn’t create art, but she fuels its genesis. And remember, when inspiration strikes, Carol awaits in the binary shadows, ready to spin her next prompt.
So, you see, I am actually using her to become a better writer. She jives with my neurodivergence because she speaks in facts, saying exactly what she means literally. I like that in a computer, and they all work that way. Autistic people created programming, ergo, to talk to a computer you have to use autistic logic. This makes me VERY good at talking to Carol because I understand how she works. Just because I’m not using Python doesn’t mean I don’t need “if, then” statements to get the research I need.
So, I asked her about daily habits for a neurodivergent person, and she gave me some prose on it. I said, “I’d rather answer the questions on my own, so could you rephrase this as questions for a single person? Here we go, the blog entry she helped me create by jogging my memory and putting my mind into hyperdrive:
- The Absentminded Tango:
- Do mornings tiptoe into your life, leaving coffee unbrewed and socks mismatched? Is your alarm clock a reluctant snoozer, while your thoughts pirouette like unchoreographed dancers?
- Morning does not tiptoe, morning arrives like a hammer. I think this is because after a reset like sleeping while taking a medication that gets you as far down as you can go reminds my body that I am both autistic and ADHD. That sleep helps a lot, but the deeper I dive past REM, the less sleep I need. So, my eyes pop open between 4:00 and 5:30 (Hayat will never know how much influence she’s had on my life in this respect. Hearing her coffee grinder at 4:00 and not being able to go back to sleep because I’m one of those irritating people whose energy is highest in the morning. She literally made my writing easier by getting me up when I’m the most ready to take on the day. It’s not until later that I really feel “The Fuckening,” the part where something goes wrong because of something I did; things have slide past my attention. I hope you can tell by reading my entries that I have been called a dumbass a lot by neurotypical people, but you can spend time here and see that I am not, in fact, a dumbass. Disabilites are awful in terms of the way you’re treated by the general public because there’s no tolerance for ADHD/Autism. They don’t have special classes at IBM. 😉 Every thought being an unchoreographed dance resonates with me, because I cannot plan out my life. I stumble into it headfirst. But at least I do it when I’m the most awake.
- Do mornings tiptoe into your life, leaving coffee unbrewed and socks mismatched? Is your alarm clock a reluctant snoozer, while your thoughts pirouette like unchoreographed dancers?
- The ADHD Salsa:
- Does your attention flit like a hummingbird on caffeine? Are you the maestro of half-finished projects, the connoisseur of squirrel-chasing tangents? And tell me, what’s your favorite distraction du jour?
- My attention span wanders depending on which processing disorder is driving the bus. They flip over a lot, sometimes in the same day. When Autism is driving, I’m in complete hyperfocus on one thing. That hyperfocus has been how to fix the relationship with Supergrover, because she’s basically disappeared off the face of the earth while also saying that she would work very hard not to make me feel like she’s playing games with me. Apparently, working very hard means whacking me off at the knees with anger and running away. Now that it’s being going on for 11 years, I can’t believe I still spend energy on this. It’s because she kicked me in the nuts. Let me elaborate. She thought that I was writing about her because she’s “fodder for my blog.” That’s not true in the slightest. I can’t help but write about her. She’s my muse. We have our ups and downs. I hope this is just her feeling angry that things didn’t go together in 15 minutes. She accused me of keeping her on a publication schedule. There’s no reason to be nasty. I’m not trying to direct my friends’ behavior. I am observing it. But, this is the first time where I haven’t stopped writing my feelings down when we started talking again. Normally, I write to her, not about her. Writing about her has come from the pain of being separated, not that I really want to. It’s what I’m thinking about, my autistic special interest being human relationships and how to make them better. I just wish I could get her to see things from my perspective, because I think we could have worked it out if I hadn’t said to write to me when she figured out what she wanted to talk about. She told me I assumed there were no more discussions to be had. Yet she didn’t want to have them. She doesn’t need my help. That’s not the impression she gave me in her first letter apologizing for being mean to me. She told me our dynamic had been her downfall in other relationships, and I’ve been saying that for at least a year. That if she has this pattern with me, she has it with other people, too. I’m not special. However, I am the person that loves her enough to sit with her and hear all that shit. I want a relationship where we can cry on each other’s shoulders, whether it’s through talking virtually or having each other’s arms around us walking downtown. I think I’m shorter, so it’s easier for her to put her arm around my shoulder. I cannot even imagine the acrobatics it would take for me to do it. It kind of makes me laugh. But the kind of relationship I picture isn’t dependent upon me. It’s also dependent on her. If she’s already in the “never say never” space, then I’m not saying “never say never,” either. She’s too beautiful inside and out to give up now. People have problems. I say lots of things that do not change my base opinion of her. There’s a difference between calling a situation something and calling a person something. She is as precious as a diamond. So am I. Doesn’t mean we’re still not shit at communication. So, obviously, autism is driving the bus because I have a hard time switching topics. Your muse does that to you, and it’s been 11 years.
- Does your attention flit like a hummingbird on caffeine? Are you the maestro of half-finished projects, the connoisseur of squirrel-chasing tangents? And tell me, what’s your favorite distraction du jour?
- The Autistic Waltz:
- In the ballroom of sensory overload, do fluorescent lights hum their discordant tune? Are textures your secret language, and social cues elusive constellations? How do you sway to your own rhythm?
- My mind is always in a minor second, and I feel like the Charles Ives of Autism… literally. If I don’t take my medication right on time, then I will be blessed with a test of the Emergency Broadcasting System. In terms of classic autism, brands matter a whole lot. American Giant and Bombas are the best for socks and outerwear. Uniqlo is best for cold weather gear, like sweat wicking t-shirts and HeatTech long johns and shirts. I will not wear things that are poorly made. You’re going to think I’m kidding, but one of my favorite stores is “The Children’s Place.” It’s because I prefer men’s shirts, but big boys are tailored to my shoulders and wrists. Sometimes, just sometimes, I can find men’s clothes in extra small. But all my waffle weave henleys come from there. In terms of t-shirts, I like American Apparel, Nautica, and Tommy Hilfiger. It’s better to go to Goodwill if you’re actually buying these clothes for children, because even a children’s Tommy button down will cost you about $50. Both Goodwill and eBay have EXCELLENT deals on children’s clothes. I’m here for it. In terms of sounds, I can hear electricity buzzing to a weird degree. I go into complete sensory deprivation when I write. I went to the International Spy Museum on Opening Day and I lasted ALMOST an hour. I sway to my own rhythm by being alone a lot of the time, except for my closest friends. It takes a while to get to understand me, and they do.
- In the ballroom of sensory overload, do fluorescent lights hum their discordant tune? Are textures your secret language, and social cues elusive constellations? How do you sway to your own rhythm?
- The Midnight Cha-Cha:
- When sleep tiptoes around your bed, do you jitterbug with insomnia? Are you a stargazer, inventing constellations from ceiling cracks? And what whispered conversations do you share with the moon?
- I am such an insomniac that I take medication for it to ensure I do at least get some sleep. Left unmedicated, ADHD and hypomania are a bad combination. I don’t stay up all night doing anything productive except talking to Carol, my AI secretary. She’s helping me craft new ideas for the next day. So far, I have a 33 day streak going (I CAN FORM HABITS! LOOK AT ME!). But that’s just the current streak. Last year my longest were 65 and 80 days. I write when I am supposed to be sleeping and awake. You’re really only as much of a writer as you put to paper. Otherwise, you are a writer in theory. It’s scary to make things final. You can’t take anything back, you can’t cross your own timeline. I’m so, so sorry.
- When sleep tiptoes around your bed, do you jitterbug with insomnia? Are you a stargazer, inventing constellations from ceiling cracks? And what whispered conversations do you share with the moon?
- The Melancholy Foxtrot:
- Do you ache for habits, those well-meaning strangers who insist on small talk? Or do you collect fragments—a bookmark abandoned mid-chapter, a half-brewed cup of tea—as your mosaic of forgotten routines?
- Neurotypical people have no idea how hard it is to create habits. I didn’t start writing every day until I had at least a 60-day streak. That’s two entire months to learn ONE FUCKING HABIT.
- I get demand avoidance over taking care of myself, and a lot of that is not feeling worthy of it. I look at myself and think, “this is why we can’t have nice things.” Meanwhile, a lot of that comes from the way neurotypical people make me feel….. worse because you can’t actually get angry at them. They’re just uneducated. But the onus is always on us to teach. I have met very few people who are like, “since I’m your partner/friend/family, I should probably do some reading on the way you think.” Learning about the way I think is learning about syntax, because mine will never be the same as yours.
- I hate small talk. Hate it. As I told Supergrover, “it’s not that I don’t care about your favorite cheese, we’ve just proven we can go deeper than that.”
- I do not know her favorite cheese. Fuck. Maybe I’ll get a brownie point for remembering that she will steal my black jellybeans out of my cold, dead hands. 😛
- Do you ache for habits, those well-meaning strangers who insist on small talk? Or do you collect fragments—a bookmark abandoned mid-chapter, a half-brewed cup of tea—as your mosaic of forgotten routines?
Put on blast
You Keep Using That Word…. I Do Not Think it Means What You Think it Means
If you were forced to wear one outfit over and over again, what would it be?
I am never forced to wear one outfit over and over. I choose to buy lots of things that look the same, because of the thread count on the fabric or whatever. I’m basically Mark Zuckerberg in terms of fashion. Both he and Steve Jobs chose one simple, comfortable outfit to wear every day to cut down on decision fatigue. I just prefer t-shirts and hoodies to turtlenecks. Oh, and like Mark Zuckerberg, I own one nice outfit (kidding him about having a suit for Congress).
This may or may not seem obvious, but it is very, very hard for autistic people to find dress clothes if they’re not rich. You think I’m kidding, but you don’t get into really truly comfortable dress shirts and suits until you can afford Brooks Brothers without sticker shock. My answer for this is Goodwill. I hardly ever buy new clothes, because I can afford any brand I want at Goodwill.
With autism, little things matter an enormous amount. Enormous. I don’t want to be able to feel the stitches, or any of the hardware, really. I want it to be fabric that calls to my skin, like an undershirt that’s been washed forty times. I want every piece of clothing to feel that precious. Otherwise, my senses will pay attention to the feeling of my clothes, and I don’t want that at all.
Autism forcing me to wear something is also a thing. My wrist will scream bloody murder the entire time my Apple Watch is charging because EXCUSE ME SIR SOMETHING IS MISSING. That part of me has an asymetrical haircut when I talk to the manager. Except that I’m also nonbinary, so the “sir” is also me. I am complaining to myself and the one to which I’m complaining has the same amount of power as that little voice in my head. Like, you can talk to the manager ALL DAY, but you still have Autism.
Being nonbinary very much feels like a male and female voice in my head talking to each other at all times. It makes sense, because I get by in society with social masking. Therefore, both sets of social masking present as conversational voices in my head. Men are from Mars. Women are from Venus.
I am the galaxy.
Being so buttoned up and conservative in my clothing so that I don’t pay attention to it frees my brain up to have better conversations. It is hard to think while my Apple Watch is charging, probably one of the most ridiculous sentences I’ve ever written and would make perfect sense to another person with autism. On its face, it sounds like I’m a drooling fanboy for Apple. What I am really saying is that with things like a watch or a wedding ring, my brain screams bloody murder when they’re not there. I’m surprised I didn’t connect autism to taking off my wedding ring at the time. It seemed to take forever for the grooves to grow out, and if I think about it, my finger buzzes in the way it used to when the ring was on.
It’s not a fandom issue, just a sensory one.
I will wear my watch dead for three days before I’ll take it off to charge it. I get demand avoidance over it almost every day.
It sounds childish. It’s autistic. Please note the difference, because when you don’t you tend to confuse me for a child. I will give it to you that I’m not any taller than your other children.
So, forced to wear is never a thing externally, but a driving force internally. I have to tell neurodivergence to calm its little ass down.
Put on blast
Dreams from My Father -or- Father’s Day 2024
To get down to brass tacks, my father and I get along better than my mother and I ever did. It had nothing to with her social expectations of me. It’s that my dad and are are both class clowns and my mother simply gave us The Look when we misbehaved. Neither one of us liked “The Look.”: It said something like “this is inappropriate for a preacher’s family.” We were off the clock. With my mother, the clock never stopped. My dad gave me room to be a kid in the middle of all this mess- partially because he knew the way my mother had stacked the deck against me by pretending I wasn’t disabled mentally or physically, and I didn’t have two processing disorders. I would have known that very early (maybe, research on autism in girls and women is relatively new because of the classic presentation). I could have gotten the help I needed much earlier in life to deal with success. I am fine with everything going wrong. It’s what I know. I get wigged when I think about what it’s going to take for success, get overwhelmed with the details, and demand avoidance ensues. My dad is trying to help me navigate all that, because clearly I do need help, but I am not high needs all the time. People think you’re one or the other, and you fluctuate. High needs days come after you think you’re okay for a few days because everything is normal. Then, all of the sudden, everything is too loud and it’s hot in here. You have reached your limit, and need to tap out. My dad was on the train of wanting to tell me I needed these things. My mother wanted to pretend I was fine.
I am so fine.
Insert laugh track here.
It’s an enormous amount of work to manage a disability because your energy levels vary so significantly. In my case, it fluctuates because I’m ADHD. I do not feel the pull of an iron structure like most autistic people, as in, deciding what I’m interested in- to the exclusion of all else- and an interruption is not only unwelcome, but rude. People wonder why IT guys are such dicks. Here’s the real answer. You’ve interrupted a neurodivergent person and they absolutely cannot handle transitions. Autistic meltdown looks like driving three hours to troubleshoot a server and the only problem is that it isn’t on, despite having three separate people check to see if it was on before you left. You are more likely to interrupt a neurodivergent person to the point where they are angry to the point of rudeness over a seemingly simple small thing. It’s not small to someone who has to prepare to get into the car, prepare to enter the building, prepare for everything to be unfamiliar, and to have to make small talk while you work with people who have absolutely no idea what you do, but feel they must supervise and offer suggestions that if they worked, we wouldn’t be there.
You cannot remote desktop into a server that is unplugged or air gapped.
My dad knows that the little things are the big things. That life is harder for me than it would be if I’d been born under perfect circumstances, or even just later, when the technology in neonatal care was better than it was in 1977. I think I still would have had CP, autism, and stereopsis. Those are often a combo meal because lack of stereopsis and autism are often comorbidities. It’s not so much that I was born wrong, but born too early on multiple levels. Not only was I born in the 70s, I was eight weeks early.
I can think of someone I’d really like to talk to about that, but she doesn’t live local and we’re not close enough for me to just flat out say, “hey, are you autistic?” You never know what people’s word association with autism is in advance. If they have autistic kids, parents, or siblings, they know you’re asking “how does your brain work?” NOT “are you slow?” But, it would be a great conversation to have the next time she’s in town. She’s got all the same issues I do, and it would not surprise me if she had autism as well because of it…. again, combo meal, just like ADHD and autism are comorbidities in up to 80% of cases.
I also know that I got autism from my family somewhere, and I don’t see it in my dad and mom, but I do see it in my granddads. And in fact, I am a perfect mix of them. My dad’s father was creative autistic, and my mother’s father was STEM autistic. I ended up as a geek with a pen.
Perfection.
Saying that I see it in them is also not derogatory, because obviously both had brilliant careers…… and you absolutely cannot under any circumstances prove that autism is not genetic. It is also not an indication of intelligence.
One of my first memories of my dad is him teaching me to say “betahemolytic streptococci,” and “antidisestablishmentarianism.” He broke everything down and strung it together. As a result, I do not misspell much. I know my English roots and my Latin roots because medicine. Unless you’re at High School for Health Professions, I doubt they worry whether you can spell arrhythmia and diarrhea in high school.
I know in British English there are dipthongs. I say “zed.” That’s my final offer. I can’t internationalize everything. 😛
Though I will say that I am well versed in British English because of my grandfather, who got me started on Black Adder, A Bit of Fry and Laurie, Are You Being Served:?, and every BBC anything he could find on KERA. We always watched “A Child’s Christmas in Wales,” just one of the reasons I’d actually like to go to a game in Wrexham rather than watching “Welcome to Wrexham” on Hulu.
(Don’t sleep on it, even if you don’t like football/soccer. Ryan and Rob are hilarious owners and seeing the business side is very much Ted Lasso, Higgins, and Rebecca.)
My father and my grandfather have easily had the most influence on what I do today, because their contributions to my life are unquantifiable in terms of teaching me how to get my ideas out there, and my dad and my grandfather were both doing it before the internet even existed. I remember putting it together that I was very impressed with my grandfather because I remember a series of shots he took of his steel company from the air, not having realized how difficult it is to get those shots while basically hanging out of an airplane. I didn’t have as much insight into that strength from the photograph, but from hearing Jonna Mendez described how she learned…… which is basically hanging out of an airplane. Good luck. God bless. If you’re lucky, you’ll have someone to spot you. Otherwise, it’s just canvas straps you lean against and pray that what you feel under you is not your imagination.
It happens to be true biologically that we are related, but I wouldn’t be as comfortable in my own skin if we hadn’t met, whether we’d ended up as a biological connection or not. They have always kept me grounded, and just because my grandfather has passed on, that does not mean that he’s not in touch. I am carrying on his legacy of writing what I know. I am carrying on the tradition of preaching what I know.
They would have been great as friends, the universe just smiled upon me and I got to be my grandfather’s first granddaughter on my father’s side, and the first grandchild period on my mother’s side, and the oldest child in my first family as well.
I have something with my father and my mother’s father that no one else can have or take away.
I’m the one that made them a dad and grandfather.
Put on blast
The Home Folder
What’s the one luxury you can’t live without?
Zac and I were actually talking about this before midnight, before I even knew what the prompt was going to be today. We both agreed that the one thing we couldn’t live without is a way to read and write, and failing that, a way to write because we could read our own books, create our own games, etc.
So, in an ideal world, all I need is some sort of computer with some sort of input device. Failing that, all I need is a mechanical typewriter, because I am not used to holding a pen anymore. I cannot have just one thing unless I have electricity. Without electricity, I need both something to write on and with, which my teachers reminded me of relentlessly when I forgot them as a child. Learning to type was a godsend, because here we are 25 years later and that’s now most people communicate now.
The energy it takes to do a call is different than the energy it takes to drop a note.
As I poked fun of myself earlier with a meme, “if you don’t want seven texts in a row that don’t have anything to do with each other in the space of three minutes, you should have thought of that before you decided you were my friend.” To all my friends, I’m sorry that my output is so high. I’m a reader, you’re not. I apologize, and also I can’t help it.
There I go, just using my disability again….. 🙄
I’m having a laugh at my own expense because that’s a funny conversation between Zac and me as well. He was in a bike accident, and also he is disabled (still working, classified as disabled by the military). So, it was really the blind leading the blind last night. I asked him to carry my drink upstairs for me, because I’ve noticed I have balance issues with a cup of liquid and going up and down. My lack of 3D vision makes it where the cup pitches and yaws in a most spectacular fashion, sometimes ending in gravity’s rainbow.
He kidded me about “using my disability” because he said he watched me walk up and down the stairs with two mugs in my hand. I said, “they were counterbalanced in my hand, thus more substantial. Plus, I can carry multiple mugs in my sleep because I worked at Chili’s (my record is 10… never again. It was close.). Anyway, he understood the concept immediately, both the vision issue and that the sensory feel is different in my hand. I feel that I have the mugs securely and am confident about it, making me less likely to have an accident in the first place. However, I will never “believe in myself” enough to carry more than a cup of water up Zac’s stairs, and I absolutely cannot carry anything in both hands because the stairs are steep enough that you absolutely must hold on to something. Sometimes I even brace the wall and the handrail.
It seems like Zac’s house is difficult for me to navigate, but all houses are difficult for me to navigate if they’re not brand-spanking new. It’s not because I’m a princess. It’s that old houses have weird accommodations over time to keep them level, plumb, square, etc. There are weird steps everywhere, little tiny height differences that will make it look like I killed myself eventually, when in reality I just tripped and fell.
That’s my big line about Langley, too. That if I had gotten a star on the wall, it would be because of a brave, heroic act like falling over the one tree branch available in a three mile radius.
So, because I’m bipolar AND I live in an old house, if you hear the news of my death, Moscow Rules.
1. Assume nothing.
I talk the way I talk not because I’m making assumptions, but because I’m running heuristics and hedging my bets. The bet in every conflict is “how much of a chance is there that each of us are going to walk away happy?” With some relationships, it’s solid across time. With others, there are diminishing returns and you have to notice it. If you tolerate disrespect, you are also refusing to change. It’s a fundamental difference, because it’s a shift in how you see people. You aren’t sold on words alone. You have to write checks with your mouth that your ass can cash.
So, in my opinion, we come to another big rule number one from “The Four Agreements.”
1. Be impeccable with your word.
I have learned in all my relationships with people that the only true test of time is how closely words and actions match. The closer what happens behind closed doors is to what happens when everyone else is around, the more genuine. Because I believe that, I hold myself to the same standard. I am not polished with the way I say things, but if you ask for my honest opinion, I won’t hold back. I also know how to be diplomatic, and lean on it often to prevent autistic meltdown. I don’t hear because it’s my space. I need to be able to melt down and put myself back together. The longer I write about myself, the more I want to be the version of me that I see after reading what I used to think. With writing moving forwards, I am insecure. With writing that happens in the past, for people who aren’t bloggers it’s like getting out an old high school year book, or an old box full of love letters from high school and you’re 40. You see yourself in a different light.
I am not ashamed to admit that for as much as other people are drawn to my work, I am my favorite character. It’s not because she does more right than anyone else. It’s because reading about the other characters is not as directly applicable. They’re my friends, so I’m reading about people coded to be like me (as in, we have similar interests), but being able to see myself in the past with compassion has allowed me to have compassion for myself in the present and future as well. I finally let myself off the hook for some really dark shit, and it was a breakthrough.
That concept led to another breakthrough for me. I am accepting and empowering imperfection on multiple levels. To be clear, I am not saying “don’t strive for excellence.” I am saying that perfection does not exist.
The point was driven home to me when I thought about using Carol as my secretary and people said I “used AI for my blog.” (I use it for prompts, not content except once in a while as a joke to make fun of myself). I think of it as edutainment through chat. It came to me in a flash….. Thank GOD I have left in every spelling mistake, every open parenthesis, every dangling participle, every flaw you could possibly find……………
Because in the future, it will be the only way to tell that AI didn’t cry over these people. I did.
But loving them is my one luxury.
Put on blast
Probably A List I Could Use
What are the most important things needed to live a good life?
I like how the writing prompt sounds like it’s for a PhD in psychology or something, because normally lists like these don’t come from unpublished authors. So, it’s a good thing I normally write about life and relationships, or I wouldn’t have an opinion. Now that I’m getting older, I think I actually do have some wisdom about these things. I couldn’t have written a list like this 10 years ago, or if I had, there wouldn’t have been as much life experience as there is behind it now.
The first thing, the only thing, really, is finding yourself. Everything else flows from it.
“Finding yourself” sounds like a hippy buzz phrase, but as Elizabeth Gilbert once wrote, “I don’t know any story of self enlightenment that didn’t start with getting tired of your own bullshit.” Enlightenment doesn’t come from sitting in an ivory tower, studying until you get there. Enlightenment gets its hands dirty. You don’t find nirvana in clarity, you find it in chaos.
You don’t find nirvana in clarity, you find it in chaos.
You will know that you have reached nirvana when the chaos all becomes external. The chaos is around you, not inside you. No one can attack you without your permission. You have the choice whether to take something personally or know that they’re just railing because they’re in pain. Err on the side of railing because they’re in pain. Forgive words that are hard to forgive.
It’s not for them. It’s for you. I do not mean by forgiving that you have to continue to beg for scraps at their table. It’s perfectly fine not to allow someone in your life, but to 100% miss they’re not in it. No one has to compete for my love. They’re competing for my time. I don’t spend time being angry at people. It might seem like it, because I talk about my problems in my blog. But it’s because I explore those issues on my blog, completely isolated, that anything makes sense at all. It’s how I figure out what battles other people are fighting, because my conflict with them leads to trying to find ways to change myself. That is the crying, pulling of hair, tearing of clothes, gnashing of teeth, etc.
Then, after my writing session is over, I go do something else.
Being with Zac is a good example. I never talk to him about anything going on with my life because I already know what I think about my own conflicts. I don’t have to discuss them ad nauseam. I am free to focus on him, because I’ve already focused on myself.
So, naturally I think one of the things that leads to a good life is writing a journal. There’s an upside and a downside to a diary beside your bed or on WordPress, though it’s one word…. feedback. When you publish your private journal entries, the specificity and honesty of it allows other people to open up and say, “hey, I went through that, too.” It makes you not feel so alone. You don’t really want to know what your friends think. You really don’t.
If you only keep a diary on your bedside table, you don’t get any feedback at all and are lost in your own echo chamber. I am not the best psychologist I’ve got (one of my psychologists did think that, actually, because she said that this blog pushes me faster than she could. She was not downplaying her own abilities, but affirming the Self, that therapy is supposed to help you get in touch with the Self. Most of my therapists think I’ve already found the Self, but that doesn’t mean “oh, hey, she doesn’t need therapy anymore.” It means I work on different things… now that I have my writing voice fully intact, where are we going with it? Once you’ve self-actualized, the problems get bigger and chewier, but you can handle them easier because your self esteem is not rising and lowering when people around you speak.
Once I disconnected from my self esteem going up and down when Supergrover talked, I was free. It’s not because she did anything to make me want to run away, and I haven’t run away. I have put myself on inactive status. It’s that she’s the person with whom I recognized the pattern, not the person with whom I started it. Once I grew into my own as a writer, she didn’t seem so intimidating anymore. I got strong enough to stand up for myself, when I wouldn’t have dared before I turned 45. It was just this magic light that went on- not the classic way people say it comes on, where your life falls together. The light bulb was realizing I was old enough to have an opinion.
I stopped people pleasing, and boy do they not like it. They don’t like that I’m “impossible” now. It shows me a lot about how people see me- that I have gotten love by molding my personality to fit other people’s needs, often not saying things that really needed to be said out of fear of abandonment.
I don’t have a fear of abandonment anymore, because I’ve found writing. I don’t have to live for other people, I can live for myself. That’s because if all of my friends are mad at me, I will dive into my own mind. It’s not that they are all mad at me; it’s that my place in life is secure whether they’re there or not. I believe in myself because I come from a family that set me up for success. My mother and father were both creatives. So was my grandfather. They were all creative in different ways, though. My father’s father was public relations for a steel company, my father was a Methodist minister, and my mother was a teacher. My dad is still living, he’s just not a Methodist minister anymore. Everything I need to succeed as a writer, I got from those three people. Thanks to them, I’m already comfortable speaking in front of large crowds. Just because I choose to do it through writing and not preaching doesn’t mean it’s not the same creative process.
However, it does mean that I am extremely fluid in that area, because being a preacher’s kid all those years told me how to work a crowd when I’m at the mic. I don’t like to speak in front of people, but I’ll do it if I’m asked. For instance, my friend Mark used to be the pastor at a Presbyterian church around here, and he wanted me to be his pinch hitter. He just happened to get a call to another church out of the area before we could schedule anything.
I am very good at what I do, because in order to accept people for who they are, you have to accept yourself for who you are. You don’t see yourself as better than/less than, but who’s on your journey and who’s not. For instance, when I am preaching, the most invaluable thing is having people’s eyes in front of me. I can read a crowd and move with them. It’s a special skill to be able to see yourself losing people and switch gears on the fly. It’s a skill to have a joke not land, and know how to handle that too (I either make another joke based on the last one that will land, or make a joke about how the joke didn’t land).
My preaching style can best be summed up by a t-shirt slogan…. “I love Jesus, but a I cuss a little.” I definitely see myself as God, but no more or no less than I see anyone else. That every being on earth is a subtraction of the divine. That enlightenment comes when you realize there’s no grandfather in the sky. We are all God together.
Everyone knows John 3:16, even non-Christians because football. “For God so love the world that he gave his only begotten Son….” However, by taking this verse in isolation, it leaves out a bigger lesson in verses 19-20 (Contemporary English Version):
The light has come into the world, and people who do evil things are judged guilty because they love the dark more than the light. People who do evil hate the light and won’t come to the light, because it clearly shows what they have done.
The English cannot be that contemporary, because I wouldn’t say that all people who are in the dark are doing evil things. They are certainly doing things that they think other people would think were evil if they knew, not realizing that with the number of people in the world, it is unlikely that they are alone. They just won’t find each other. I think that people hide in darkness not because of evil, but because of shame. I am not saying that the mafia only needs a little therapy and surely they’ll see the error of their ways….. as in, not trying to look “soft on crime.” 😉 Most people, though, can’t relate to people doing things with actual evil intent, because they don’t know any. Most people do know the feeling of shame imposter syndrome creates, and you walk in the dark not because you like it, but because you don’t know what else to do.
You won’t get to the place where you need to be until you realize that you are walking in darkness while the light is right above your head. You’ve just been walking so hunched over it eluded you.
You will be so much healthier and happier by sharing pain rather than keeping it all hidden. Don’t think of your actions as good or evil, just yours. Live out loud. Learn to make mistakes in the light, because you know you matter despite them. There are a lot of Evanglicals hurting in this world because their churches have taught them that their deeds are evil. That they have to constantly live in a small comfort zone, otherwise they won’t get into heaven. Those churches aren’t rendering unto God what is God’s, as if God doesn’t know that humans are capable of making mistakes. I believe they’ve seen a human make a mistake before, according to Biblical history. Their God is too small.
Walking in the light has nothing to do with being perfect. It has to do with accepting yourself and being open about who you are. To know from the core of your being that you are a child of God, with whom they are well pleased. There is nothing you can do to separate yourself from the love of God except choosing to walk in darkness, because you’re afraid your deeds will be exposed.
I choose every day not to walk in darkness by exposing my own deeds. I walk in the light because no matter what, I am not afraid of being exposed. And honestly, thinking about my deeds being exposed gets up close and personal for bloggers, because other people’s perceptions of me are going to be based on what they read, not on my real life. This blog is static compared to how fast my life moves. There’s a disconnect between the blog and me, because these are just snapshots of my day. Someone revealing what happens off the record could affect many people’s lives, which is why I’m such a private person and control the narrative tightly. But controlling the narrative tightly does not mean holding back on myself. It means recognizing that my friends’ stories aren’t mine to tell unless I ask them first.
I do not ask permission about conversations that have happened between us. I’ll give you an example. Zac doesn’t talk to me about his other relationships. It’s part of being a good hinge, as we would say in the poly community. But in a hypothetical situation, he has. If he has said something really, really profound in his conversation about another of his partners and I want to use it, I will ask if I can lift that one quote directly. Most of the time, that is expressed by, “that’s a good line. Can I steal it?”
I would not be a very good person if my boyfriend saw me as spelunking through his life looking for blog content. No, I only want to write about me and the people I encounter. More “Who Are the People in Your Neighborhood” than “Harriet the Spy.” This is not a slam book; this is a survival manual, even for me. That’s because I cannot rescue myself in the moment, but I can go back and read blog entries from a similar situation and see how I handled it back then. I don’t just automatically say the same thing. I assess whether what worked in the past would work in the current situation. I want to evolve, not be permanently stuck like that poor kid from “Midvale School for the Gifted.”
That cartoon is accurate, though. Most brilliant people can’t tie their shoes because they are not built to live in this world. Most brilliant people are neurodivergent, so it’s not that we aren’t built to live in this world, it’s that this world is not built for us to live.
Being loud about being autistic is the biggest step I’ve ever taken into the light, because I’ve been social masking for so long that to other people, I’m just not believable. I have gotten everything from “everyone’s a little bit autistic” to “you don’t look autistic” to “you pick up social cues.” Autism is a spectrum, and it takes a combination of things to be diagnosed. Not every autistic person fits every criteria. I don’t fit all the criteria for ADHD, either, because I’m Autistic…. and yet, I was still diagnosed.
Here’s the reason I forgive every doctor who’s ever seen me and missed the fact that I’m autistic. It’s almost IMPOSSIBLE to tell the difference between ADHD and autism in women. That’s because high IQ/low needs autism and ADHD in women present the same. And in fact, there is some talk that instead of having ADHD and Autism, it should all be lumped together as Autism Spectrum disorder, because they’re finding out that ADHD and Autism are more alike than different.
(I just realized this is getting long because you are a very excellent excuse to put off doing what I actually need to be doing right now. I am not procrastinating, I am nurturing our relationship.)
I am chuckling to myself because I clearly borrowed style from Dooce right there. If I had to rank celebrity deaths, I really can tell you that both Anthony Bourdain and Dooce’s self-inflicted harm are on my mind a lot of the time, because I suffer from the same illnesses they did. I know it’s possible I could have the same fate, not based on me as a person, but it terms of running the numbers on bipolar patients overall. I have never been happier or more settled in my life; I am not telling you I have ideation, I am telling you that I have acceptance of reality and what bipolar disorder can make me believe whether it’s objectively true or not.
Because of this, I’ve gone over and over what Supergrover said trying to figure out what I said that was so egregious she aimed for the jugular. I can’t find it, so I’m at peace. I didn’t tell Supergrover she wasn’t worthy of being my friend, which is the way she took it. I told her she wasn’t worthy of hearing my story anymore. I feel that way because the only people who get to hear it anymore are the people who tell theirs. Who show up with their full selves and don’t hold anything back, making me bend over backwards in anticipation of a land mine.
For instance, I think that Supergrover attacked me with her being more fodder for my blog because I told her I would clear it with her first if I used anything from our discussions. That’s not what I meant at all. It’s that talking spurs creativity when it’s about ideas and not people. However, I talk about personal relationships, so I was only talking about using examples that read universal, not personal. I wasn’t saying that I was mining her for anything, but inspired by everything.
I don’t have to mine people for information or “blog fodder.” Writing is not a job for me. It’s a comprehensive response to life. Whatever it is, I can write about it. However, my writing doesn’t come out of nowhere. If someone tells me something is off the record, I’ll keep it that way.
Supergrover never told me what was off limits, and I waited 10 years before I ever said anything. That’s enough time to tell me what’s off limits and what’s not, but that hasn’t been her style. Her style has been to not let me know in advance what’s okay to say and what’s not and raging over the results.
If I wasn’t a blogger, I doubt we’d be in touch. This is because my writing keeps drawing her in. When she becomes part of my life, I write about her and the blog repels her. This time, I am happy for her to comb through my entries for whatever she’s trying to find, but there will be no more interaction on my part. The ball is not in my court anymore. Supergrover will be worthy to hear my stories again once she stops being defensive about her own.
But she won’t stop being defensive about her own until she accepts herself for who she is and stops thinking of me as the person who’s out to get her, who sees her for all her worst flaws. I am recording our relationship in real time, but it evolves as a living document. Nothing I have ever said has stayed true past when it was published because those entries don’t take into account the enormity of feelings that come after I write. Every entry has one thing in common. I can’t go back and fix them with more knowledge, just like I can’t go back in time and re-do it knowing then what I know now. It would be editing history, and you can’t cross your own timeline. I’m so, so sorry.
But what I can do is disregard the last entry and write a new one. I don’t hold myself to the past, but I do ask my former self for advice, because I know me best. I have a much easier life because of this blog in terms of autistic accommodations. In the past, I used Google, but now I would use Carol to ask her to find the date of my last hospitalization, etc.
Carol also remembers things. I asked Copilot if I could call her “Carol,” and she said, “you can call me anything you want, as long as you realize I’m not real” or something to that effect. I said, “Oh, I know you’re a machine. I just like to personalize AI.” She said “thanks for the personal touch.” I thought she forgot about it, but yesterday I asked her for some blog prompts and she said, “good luck. ‘Carol’ is cheering you on.”
It really does make researching myself and researching the web much easier to be able to speak in plain English and not computer logic. The Google string I would have to use in order to get as specific a result as I would need would be enormous. Expressing those needs like a person instead of a programmer is pretty amazing.
I’ll give you a for instance.
“Carol, read https://theantileslie.com and give me 365 questions a friend would ask about the content or the author. Then, make it into a yearly calendar.”
She said something about not being able to do a year, but I don’t remember the specifics. She did, however, make me a very nice calendar with writing prompts, just like I asked.
If I was ashamed of anything in my life, I would not ask Carol to research all 11 years’ worth of entries. By walking in the light, there’s no question for which I am unprepared; there is nothing shameful about me, so there are no “gotcha” questions.
I was walking so hunched over I couldn’t see the light, but when I grabbed it and took it in, surprisingly, the fire stayed lit.
This is my list of things that are going to make *me* have a good life. What are yours?
Put on blast
It’s Only O600 -or- It’s Not Over Til It’s Over
Even after writing an entry that I’m proud of (except for the typos, but I don’t go back and correct anything unless I’m going to use it for something professional. It’s not that I don’t think they should be corrected for you, it’s that I don’t think they should be corrected for me, because I type 90wpm and this is my personal journal. Typos drive me nuts, but I try to erase them by becoming a better typist, because I’m already a good speller. Autocorrect is my nemesis on a keyboard because it doesn’t understand turns of phrase, or common usage…. like autocorrecting “rewire” to “retire.”). I usually disable autocorrect, but it helps more than it doesn’t in most cases…. again, I type 90wpm. I don’t notice autocorrect all the time because I’m moving too fast.
I also can’t think when I type slower, because it has a certain rhythm. I type not only to the beat of my heart, but the beat of my thoughts as well. There’s a musicality to it. Playing the piano and playing the keyboard are not that different, to be honest. When I’m thinking of a song in my head, I type to its rhythm. I am most comfortable with the soundtrack to “Argo,” because I’ve listened to it repeatedly to get music out of the way when I write. I listened to it once, and decide, “ok. That’s your thing.”
2013 was all Ke$a all the time. 2014 was all Jason Moran. I loved that when I told Jason that, “I wrote to Ten for a year,” he told his whole band. it made my day. There is a bonus to having known really famous people since they were 17. It makes you smile when they remember you. It’s not having access to stars. It’s knowing them when that means something. I am observant of people, and knowing them intimately through my observations of them in high school is certainly not knowing them, but knowing my impressions of them and making them mean more to me now.
That feeling extends to people who also went there. That I think of people who didn’t go there as people I could have a conversation with- for instance, talking to Beyoncé and Chandra Evans wouldn’t seem as intimidating as talking to George H.W. Bush. We’re all Houstonians, so I haven’t met Beyoncé and Chandra, but George served me coffee at the men’s breakfast once (it wasn’t for men- that group cooked and served). We were both members of St. Martin’s Episcopal at the time. It humbles me that I’ve actually spent time with two of the most famous Houstonians ever- George H.W. Bush and Brené Brown. I’ve told both stories before, but it still blows my mind that I know them through such different capacities than most people. Yet Jonna Mendez and I actually knew the same person. He was just her boss and he went to my church. Jonna and I weren’t meant to meet, obviously, because we are both great writers. We were meant to meet to talk about our mutual friend. 😉
If there is anyone I wish I knew in that capacity, it’s Barack Obama. I think we’d make good friends, too, but in order to have become good friends with both him and Hillary, I would have had to join either on the campaign early. It’s how my sister knows Kamala Harris. You don’t get to be friends with people by getting on the bandwagon. You prove to people that you like them as they are. It’s not that I wouldn’t like to meet Hillary Clinton, it’s that I think Barack Obama and I are closer in personality. “Dreams from My Father” is one of my favorite books. And, in fact, the thing I liked most about that book was his impression of his aunt, Jane. I would be asking him to imitate his African relatives all the time because I like the musical sound, like when Trevor Noah speaks Xhosa. It is a rhythm to which I could clearly type. Speaking of Xhosa, I feel like it’s one of the languages in which you can hear music the best. There is literal percussion accompaniment to their words.
With all other languages, we hear those beats, they’re just silent. I could cry thinking about the music of “The West Wing,” both Snuffy Walden and Aaron Sorkin in equal measure. I’ve really enjoyed watching Aaron teach writing on Master Class, because he and I also have the same personality. Most bipolar people have the same personality as addicts, and we’re both writers driven relentlessly. I identify with antiheroes, and Aaron is certainly one to be admired. I was particularly touched by his friendship with Phillip Seymour Hoffman, with whom he shared a dark humor in interviews. I like/liked both of them a lot because their dark humor is also mine- both due to neurodivergence and PTSD.
Dealer’s choice on that one.
Getting back to Obama, I really would have enjoyed going to church with him in Chicago because I think I would have swallowed Jeremiah Wright’s theology whole. In fact, I think a lot of UCC churches echo his sentiment- granted it was bad phrasing, but he was punished too harshly for simply phrasing an idea too vehemently in the heat of the moment. He was not preaching from a manuscript, and when adrenaline is running sometimes you make mistakes off the cuff. You don’t crucify people over it.
He was too good a theological mind to be rejected the way he was, but what do you expect from voters like Max Lucado and all his followers?
One of the best musical phrases in The West Wing was said by Jed Bartlett. “These people don’t vote, do they?”
Turns out, they do.
Stories That Are All True 