Tag: autism

About ADHD and Autism

~ Leslie Lanagan ~ Leave a comment

What skill would you like to learn?

I am not picking something I don’t know anything about, but if I start now, I might learn some of the finer points by the time I die. I will never know them all. There is a crossover, and I’m starting to think that I’m more autistic than ADHD. Stopping the Adderrall only convinces me some of the time. I mean, I can list the symptoms I have and they’re all text book……. but they’re also signs of being autistic and trauma reflexes. Even if I went to a doctor, I think my issues are so complex that they would think what I do…. it’s not a case of just one thing. Everything in medicine starts with one diagnosis. Just one.

“It depends.”

That’s why med students are asked for diagnosis, secondary diagnoses, and protocols.

Experts in medicine are not counted by how many As they got in medical school, though if they fuck up, that’s definitely an indication. No, being a superb doctor depends only on what you’ve seen and what you haven’t.

You’ve seen it if you’ve ever watched “House” (it’s not lupus). Those kids go through every dependency like they’re on a bender searching for House’s opioids. They don’t tell you this on the show, but every illness they’re talking about is what’s called a “fascinoma,” probably Latin for “first case” or something. I’m too lazy to look it up, but that’s what it means for lay people, anyway. In law, it’s “prima facie” (pronounced “fa-chee.”). My three fields have dependencies in common. You have no idea how much they matter in Ubuntu.

In all of these things, particularly Ubuntu and medicine, the consequences for being wrong are drastic and cause gastrointestinal distress.

Here’s why I’m specifically mentioning Ubuntu. Most linux nerds have autism. Most nerds, for that matter. You don’t have to be neurodivergent to be a nerd, but neurotypicals, you should know not to intrude on a safe space. You do it all the fucking time by thinking you’re going to be cool and go to ComicCon, but when you get there you’re somehow put off by the other patrons. If you can’t learn anything about the Autism spectrum by observing a Star Trek convention, you’re not paying attention. Neurotypicals seem to live by the slogan “walk softly and carry a big stick.” That’s because you’re perfectly lovely until we do something you don’t understand, and then you get judgmental and sometimes angrily so.

Supergrover definitely didn’t have empathy for it, but at the same time, she didn’t know enough about me to really take it in, because she knows from autism. And she didn’t see any neurodivergence in me not because she wouldn’t, but because she couldn’t. I’m not blaming her, because it would have been totally different if I’d been hanging out at her house for the last eight years. If she’d actually seen me in my day in, day out appearance and mannerisms, she would have had me pegged by the way I walk. Also, I’m not sure that it would occur to her how much crossover there is between me and some of the other people she interacts with on a daily basis. She didn’t get it and not because she didn’t want to. It was impossible to do all that online.

“The medium is the message.” -Marshall McLuhan

I think after a while, we just got so used to our rhythm that meeting up seemed weird, plus I could have more of her if I was only in her DMs because I was the only one traveling with her consistently. I am not sure  that anyone e-mails her more than me (by quite a large margin…. and if that’s not true, what I lack in frequency, I make up for in volume.

I wonder if she ever knew I was writing letters to her like a WWII-era high school sweetheart. I didn’t even realize that until today. News from the home front, essentially.  I wanted to be one of the pictures taped up in the cockpit, but I never wanted to be the only one unless that was a possibility. Next to her son or something. I don’t know.. Just not left in a box in Virginia.

I know by now that I am every bit the photo I say I am, and here’s how I know that.

She rips me off all the time. We’ve been writing to each other for 10 years. I absolutely know that things I’ve said have entered her lexicon, and she quotes me almost every day. I know they weren’t all bad lines, and hers weren’t either. I think I’ve said “painting my feelings as fact” 50 times since she said it. She says “pack up your toys and go home” now. There are word associations with me by the thousands. This is why I believe that I am her Impossible Girl, woven into her from the inside out. I haven’t changed her because we interact. I have changed her because now our brains are inextricably interrelated because reading someone’s most important thoughts makes them last a lifetime. She has two legacies now…… the one that’s big and impressive, and the one that fucking matters.  We’ve been writing to each other for 10 years. I absolutely know that things I’ve said have entered her lexicon, and she quotes me almost every day. I know they weren’t all bad lines, and hers weren’t either. I think I’ve said “painting my feelings as fact” 50 times since she said it. She says “pack up your toys and go home” now. T This is why I believe that I am her Impossible Girl, woven into her from the inside out. I haven’t changed her because we interact. I have changed her because now our brains are inextricably interrelated because reading someone’s most intimate thoughts is different than having a conversation.

Reading things makes you retain information longer than conversation.

It’s just that she’s so busy she cannot retain all of it. I’ve made it impossible. “LORDAMERCY” is a direct quote. 😛 I wish she would just not read it until she had time rather than responding immediately, because writing is what I do, not her. Of course I’m going to have more output than her if I’m workshopping an idea. During one of our big fights about it, I called her out on the carpet and she didn’t respond at all to it. “I told you to create a folder in Outlook and a filter so that my e-mails weren’t coming directly to your inbox, but going into that folder so you weren’t getting notifications for them. It was your choice not to do it. I didn’t expect you to be johnny on the spot, but you were.” That’s because she’s a fixer/pleaser always trying to please me as well.

Interestingly enough, this did not start happening until after I was a total idiot, so I’m wondering if she’s reacting to me like she reacts to her husband now. That nothing is ever good enough for me because she’s trying to please me and doesn’t see that I don’t need it. That gives me more empathy than anger, enough to bring me to tears because if I’d noticed what she was doing, I could have said, “my beautiful girl……. stop. You’re perfect.” And in fact I did try to say that a million different ways, but it didn’t take.

She is so pure- concentrated hope, love, sweetness, and light. She will also eat your face off.

Only my mother knows the whole story, and she didn’t hear it until long after she died. I comforted her and told her she could go, because I was safe. That she never had to worry about me again, both because she couldn’t and didn’t have to anymore. All the mother-love I have in me transferred to her and not as a replacement. Because she has kids. She’s already a mom. She got offended when I said she had that vibe, like it was some sort of joke. Even if I had been joking, I would have meant “I think of you as that vibe because it’s the one I need most desperately.” But it’s a mix. I kidded her later about our past and she destroyed me, not a sick burn that I thought was funny, either.

I told her that, too. Then she got even more defensive. I realize that I dropped an absolute bomb on her, but it’s never about me. Ever. I don’t have needs. I just said something to piss her off. It’s only my behavior, not what triggered it.

But my mother is the only one who knows exactly who I’m dressing down when I do it and she would be horrified. Absolutely horrified. That’s because my mother put a lot of stock into titles. But the rest of the world sees her as her title. In my head, she’s six. Our inner children talk to each other in adults’ voices. (What could possibly go wrong? Editor’s Note: A LOT). I am not sure that she’s taken in that I’m 14 when I talk to her…. and I’m not 14 with anyone else, because I don’t trust anyone else that much. She got in under the wire and disarmed the bomb. You only think my anger management is bad now. She metaphysically hugged and kissed me back together…. but I’m still a work in progmess. I have just begun the process to complete the transition.

Transitioning is a big word in my community. I hope I have a quarter of resurrection in me that my friend Evan has. God, he’s the most beautiful trans boy I know, and a redhead like Zac. Trans people have a lot of crucifixion moments. Lots of Sanhedrins out there, lots of Pilates…… but unlike Pilate, they were never chosen by anyone to have input.

I don’t have contempt for the Sanhedrin, because they were always going to be assholes. I have contempt for people who have the ability to not be an asshole and DON’T. Pilate could have saved all this from happening…. crucifying someone for their words and not their actions, a minority in culture because the Jews were ruled by the Romans. Jesus has more in common with Sandra Bland than he has with Joel Osteen, and please go right up and tell him to his face…. also don’t be an asshole. Put that shit on YouTube and send me a link. 😉

I would give up my life’s savings for that asshole to get a clue. He is a white supremacy Jesus apologist with one of the biggest platforms in the world.

He could overhaul American Christianity………….. but he doesn’t.

What all of this has to do with ADHD and Autism is that I’ve been rambling for 30 minutes without stopping regarding things that excite me because I can. I cannot do this in conversation witih anyone else, and I have stopped trying. No one puts up with it

Even when I can’t help it.

So I have to learn it on my own.

I just want you guys to know that I’m crying right now. Writing these entries take a lot out of me, a tempest in a teacup. Sorry for the cut and paste mess.I left it in because it proved my point.

You’re Supposed to Plan Them?

~ Leslie Lanagan ~ Leave a comment

How do you plan your goals?

I am only now learning what is within my control and what is not. It’s only been within the last year that I’ve allowed myself to have opinions. They’re not always the correct ones, but it beats searching for the right words- not because I would like to use them, but because they are the ones that will keep others from reacting. I tried so hard to need nothing that resentment built over time. 45 years, in fact. Having all of that anger rush out had consequences, but I knew what I was putting into motion.

Relationships changed when I wouldn’t let anyone run game on me anymore. Either be up front or get out. I do not want to read your mind, nor do I want to be infantilized because of my CP or bipolar disorder. It’s my job to take care of me, and I will take input, but I don’t need coddling. I need empathy, though. Caring that I’m neurodivergent goes a long way. So does compassion for my physical limitations. But if you cannot do those things, don’t be mad when I close the door behind you. I won’t lock it. I’ll give you room to grow. But I won’t let you come back until you prove to me that you can do those things. The people who aren’t my friends do it enough.

I just don’t want that temperature in my life anymore. I don’t want to live with rage, even if it is appropriately directed. No adult likes to feel parented or that other people are frightened by their emotions to the point they feel unlovable. This is not a limited to me problem. Most ADHD/Autistic people feel this way. Our emotions are too convoluted for them to make sense most of the time. As I was telling Bryn earlier, I have never met an ADHD person that could plan a goal for shit, so what am I going to write about today?

I’m going to write about how much it sucks to be neurodivergent in a neurotypical world. We are struggling to be heard and understood. We will explain until dark when the street lights are on and Mama’s callin.’ It’s an intrinsic trait with ADHD/Autism. My particular need to expound upon everything I’ve already said once is generally a reply to someone hearing my words and don’t have any idea what dog I’m walking.

It’s Oliver, btw.

So, I’ll just ruminate until people say they get it or walk off. But even when they walk off I want to keep explaining because up until now, I cared deeply and desperately about what people thought of me, and I extended that kind of energy to everyone I met instead of keeping it to the friends I loved the most. That way, I was sure to disappoint everyone all at the same time because I was so overextended.

I have made Zac, Bryn, and Oliver my entire world because that’s as much as I can handle right now. I have so much to think about that it’s incapacitating at times, so I need to be mostly single and just focus on what’s right in front of me. It’s all ADHD/Autistic people really know.

Life with no executive function leaves me absolutely brilliant in some ways, feeling like I continually fail other people all the time because my software is different and there is a huge chasm that people dismiss all the time. Even my CP is problematic because my case is so slight it’s not as noticeable as, say, RJ Mitte. Therefore, people see me as normal when I have no balance and floppy muscles. I trip through life because I can’t not.

Very few people explain the logic behind things, and that’s all I really want to know. If I can’t figure out something on my own, I will tire and confuse my friends and family… and I know it. That’s the worst part. To know you are capable of handing out that exhaustion is devastating because you can’t change the way you were made. People alternate treating me like I have the smarts of all my favorite authors and then they spend time with me and all that goes out the window…. because when people are in adoration mode, they act completely differently once they see how my mind actually works.

I think that’s why I like the book shop at the Spy Museum so much. They don’t care if I sit on the floor and get obsessed with a subject and pull out 10 books and not buy any of them. It’s the same at the library, when I used to go. I don’t have to anymore because I can borrow them with an app on my phone (Libby), cutting out all the social interaction necessary to maintain isolation.

My self-esteem has been that low my whole life. That I have to get up the energy to even leave my house because everything becomes a Dorothy Parker quote within minutes.

What fresh hell is this?

That wasn’t terrible. That was fancy terrible….. with raisins in it.

Sometimes I’m the one that thinks them, sometimes it’s another person in reaction to me.

I can’t make anything better unless people tell me what’s wrong, and even that is a common problem. Because I do most of my communication in writing, people constantly write themselves off as “not a good enough writer to compete with me.”

First of all, you’re probably not. It’s not because you’re dumb. It’s because I’m a blogger and you’re not. I didn’t get to be a good writer overnight. I got to be a good writer by taking a knife and slicing it into a vein, bleeding out over my keyboard day after day after day after day after day.

Secondly, me being a writer is a pitiful excuse to shut down two-way communication, or extraordinary if you don’t want to be in relationship with me. That’s because it doesn’t matter to me how you communicate and what your natural style might be. It’s that you think that completely shutting down your emotions is okay. That our relationship will survive despite neither of us getting our needs met.

Zac, Bryn, and I are all good writers. Therefore, no one shuts down. And if we need to switch mediums for a conversation, we do it. Bryn calls me even when she can see I’m still typing. 😉

Because I live an hour and a half from Zac (whether I was caught in traffic or taking the train), Facebook Messenger is the most awesome thing ever invented. He sends me a picture of himself every morning so that I can see how he is before he leaves for work. I don’t have to guess, I can see it in his face.

Removing all the barriers to communication with those closest to me has been a godsend.

I don’t know if it’s the best way to plan a goal, but for ADHD/Autism, it is 90% of the time “accidentally on purpose.” I’m not sure that I could do anything differently, so I’m not a Monday morning quarterback in the way most people think. My mind moves too fast to retain all the information I need. It’s one of the reasons you’ve started getting entries every day. It’s not for me to show off. It’s for me to have a place to go when I need information about my own life. Seriously, how many of you can pick a year out of thin air and remember everything about it?

I can’t.

But my goal is being able to look it up.

It’s a plan.

Talking About Boundaries

~ Leslie Lanagan ~ Leave a comment

My friendship needs are different than most people. I’m bipolar and have chronic PTSD. I also have ADHD. It means that I get frustrated when things aren’t clear, so when people aren’t, I overfocus and they’re exhausted. I am not trying to hurt them, I am asking for more information. If you do not understand that, then I am going to be a straight up problem for you and I do not want to be fixed. I don’t have some stereotype to fill, because I’ve never been that for anything except maybe Arthur. Most people don’t know that ADHD presents like Asperger’s sometimes. Mine doesn’t come across verbally, but it does when I allow myself to write into and out of a problem. If no one will tell me how to understand, I will find out on my own. Whether it is right or wrong is of no consequence, because no one else is responsible for what I understand. It just helps if they’re willing to do the little bit of extra work it takes to communicate. Exhaustion leaves me in the same state of dread as he is here:

This is the first time I’ve ever gotten my own Arthur meme. It’s not that someone made it just or me, it’s that I’ve never related to anything so much.

Because I process online, I’ve noticed a beautiful symbiosis between David Sedaris and me. My style and structor is borrowed from him, and his style and structure seems borrowed from me in his new book, “Happy Go Lucky.” He takes a hard, hard, look at himself and his family and every word resonated.

He also talked craft in a way that I felt he was in the room with me. He said that when you’re writing these essays, you’re not writing about your friends. They’re the characters. You’re writing about their characters and not them.

He talked about my frustration with blowback, because it happens more than you think. “I don’t want you to write about me at all.” “Ok.” “It seems like you don’t like me because you don’t write about me.” This can go ad nauseam for years. This is especially true of people who also struggle with mental health issues because they don’t like being criticized and love being praised.

It comes across as that you don’t care you’re teaching us how to love ourselves, and in turn, how to love you. It is the mystery of faith, to be able to hold in your mind that you are capable of great decisions even after you’ve cratered your life over and over because of the very conflict I’ve mentioned. People don’t want to do that kind of work, especially bosses. We’re not aware of our interactions with you because we’re focused on other things.

We want to know how the world works, and stifling that is very difficult. No system is built for it. We just have to feel anxious or stop buying in. A lot of people lose their lives because the system for dealing with mental health is so poor in this part of the world, specifically our country (and thank God not my state).

Being ADHD means that through hyperfocus and medication, depending on whether it’s natural or drug induced, you lose your appetite until your body screams.

Nothing gets easier, and yet we pretend it does.

Edited to add that the prompt for all this was someone breaking a boundary. “Michael,” the guy I was chatting with, deactivated his Facebook account and started flirting with me. I said, “what I need you to realize is that when you deactivate your account, I don’t think about you at all.” It’s not because I’m an asshole, it’s that he’s already done it once, then when he came back, he called me “baby girl.” Those are trigger words for me because they do not belong to him. I told him that if he called me baby girl again, I would block him. So, when it happened a second time, I blocked him. If I tell you that’s a sore spot, believe it. I am made of nails right now and I need to be because I am not settling for fine.

If lightning can’t strike again, it doesn’t even matter.