Me, Mostly

Daily writing prompt
What bothers you and why?

It’s hard to point fingers at anyone else for bothering me when I am such a handful. I didn’t even know whether to put an emoticon after that, because I don’t know that I’m joking. From my writing to my behavior, there’s nothing I cannot criticize, but I’m trying to be kinder to myself. If one’s behavior affects treatment of others, then it is up to me to be happier on the inside.

The first thing I did to make myself happier was to buy a membership to the National Aquarium. I was invited to go on Sunday, and the price of a membership was cheaper than buying two tickets individually. I thought that was a much better deal as I am obsessed with aquarium fish and don’t want to have an aquarium at my house. Plus, I’ve never been there before and I hear it is world class. Many of you don’t know this about me, but I watch videos on aquascaping all the time and look forward to being able to set up my own tank once I have a living situation conducive to it. I have had freshwater tanks in the past, but I’ve never actually landscaped one with live plants. I think that I would be less bothered once I was paying attention to my minuscule pets. I’d like to have shrimp, catfish, snails, and a betta. A cleanup crew and a betta fish wouldn’t take up that much room, probably 10 gallons, and that way the tank wouldn’t be a monster job to clean.

The reason my living space couldn’t handle an aquarium is that the water pressure is so low here it would take hours to fill a 10 gallon tank. It bothers me with every sink and the bathtub. I could write an entire entry on why this apartment complex sucks and why you shouldn’t live here, but I don’t want to give any indication as to where I live. Baltimore is close enough.

I am thinking now of moving back to the DMV in December, because my lease ends on November 30th. I love Baltimore itself, but the public transportation isn’t as good as I thought it would be. I need to be back on the Metro. My current group, Cognitive Behavioral Health, has another office in Rockville. I would like to stay with my people, and one of my counselors would be the same. It all depends on what kind of deal I can find with my living situation, because like I said, Baltimore is not the problem when I can get around. Uber is too expensive to take all the time, but it does provide an excellent stopgap when a trip on the Metro/bus is going to take two hours.

I do know that I need to stay in Maryland because I am getting so many benefits from Medicaid expansion. We will have to see how the “big, ugly bill” affects me in the future, but so far I have had no interruptions in service. So while I love Virginia, I am solidly staying on this side of the Potomac.

It bothers me that I have to think about all of this. I don’t want to be disabled, but here we are.

It bothers me that I have always been disabled, but these problems are just now being addressed. Better late than never, but I could have been helped with government services in Portland when I spent so many years without health insurance. I have been eligible for services since I was 18 years old, but I didn’t know why until my mother died. I found solid proof that I have had cerebral palsy since I was a baby, after she spent years trying to convince me that I was fine. My dad was overreacting. But interestingly enough, cerebral palsy is not why my care team wants me to file for disability. My bipolar disorder got the best of me, and that bothers me, too.

Most of the reason it bothers me is that I have a hum in my brain that will not go away. I think it was caused by stopping Lexapro suddenly, because even though I’m back on it now, the sound has not gone away. It is similar to the Emergency Broadcast System that used to play on TV during flood warnings (ahem), a minor second that drones 24/7 and demands my attention above all else. It’s hard for me to pay attention at the best of times because I have the ADHD/Autism combo meal. This is just shitty icing on a burnt cake.

I suppose the one thing that doesn’t bother me anymore is having to prove that something is wrong with me. I am settling into the life of a disabled person, learning to contribute to society through being a voice for other disabled people right here on this web site. My voice counts because as people read about me, they identify with my struggles. Or, if they cannot identify, they at least learn to have empathy.

It bothers me that most disabled people are written off as living off the government, when most of us would do absolutely anything to return to normal life. My life is anything but normal. I spend most of my time by myself. It’s isolating and lonely not to have a place to go each day, which is why I’m so grateful to have a group of other disabled people to meet with twice a week (once on Zoom, once in person).

However, at least with an aquarium membership, I have a place to go whenever I want that will feed me. I remind myself of the character Sam from “Atypical.” He goes to the aquarium to feed his love of penguins. Perhaps I will also find an animal that will be my special interest. I do love puffer fish……….

It helps to be bothered less by my living situation now that I’ve figured out a plan- Rockville is on the Red Line, with easy access to the National Zoo. It’s the place I love to write the most when it’s not hot, so until I move I want to try and find a place to write at the aquarium. All I require is a bench, because I carry a tablet and a keyboard in my backpack at all times. After I move, it will be back to finding a “replacement Kevin.”

Some of you may remember that Kevin is a giraffe. I used to sit next to him and write blog entries, having no idea what the giraffe’s actual name might be. I just named him Kevin for my own amusement. Then, one day I went to find Kevin and found out the Zoo had closed the entire giraffe exhibit. Kevin had moved.

Kevin is probably the reason I felt the most comfortable moving to Baltimore in the first place. I needed out of the DC area just to catch my breath, and it felt like he was the last tie to that area. But now I would say that my breath has been caught, and I miss DC more than I thought I would. Now that I have settled on a place, I feel at peace. My time in Baltimore will be much easier to survive knowing it won’t last forever.

It might even make my apartment less bothersome, but I doubt it. I’ve been without a dishwasher for what seems like a lifetime because the water pressure is so low it makes washing dishes incredibly taxing. I have submitted requests for everything that is wrong with my apartment and no one has come by. The last straw for me was finding a mouse eating my bread and hot dog buns.

I am paying too much for this apartment to have problems like this, especially those that go unaddressed. I am bothered that I cannot seem to be “the heavy” and get the repairmen out here on my own. I just hate letting people in that I don’t know, so I work around the problems on my own. I know I need help, but I have trouble helping myself. My dad and my sister advocate for me as much as they can, but it’s hard when they live so far away.

However, my sister is a lobbyist, so that’s another reason why Rockville is a better choice for me than Baltimore. When she’s in her DC office, I’d like to be closer than I am now. We have too much fun together to make her come all this way. However, I know that I have introduced her to a place she loves as well. Again, Baltimore is not really the problem. The Inner Harbor is gorgeous, as is Fell’s Point. It’s getting around Baltimore that’s the hard part. When she comes to visit, she rents a car and all of my problems disappear. I don’t drive, so it’s nice that she’s willing to drive me around.

The most fun I’ve had in Baltimore is when she’s come to visit, because she looks up restaurants and decides where we’re going to go in advance. It becomes a “staycation” for me because it’s always a place I haven’t heard of yet. Of the two of us, she’s the social butterfly. I wish I was more like her, because she’s so headstrong that I feel taken care of in her presence. I wish I could extend that feeling to others.

It bothers me that I’m her older sister and I’m not able to provide that feeling of safety to her. I am sure I had my moments when we were young and this is just payback, but still. I wish that I was large and in charge, but I have a struggling relationship with taking care of myself, much less others.

Which brings us back around… it’s hard to point fingers at anything that bothers me more than my treatment of myself, so it’s time to get happier.

It starts with looking at fish.

This Feels Like Getting Right with the Lord

What bothers you and why?

This is another entry that will just jump around, because a lot bothers me. I just talk about all that here so my friends don’t have to hear it. You’re the place I go when I’ve overfocused and they’re exhausted. 😉

My being bothered encompasses a range. It bothers me that I can’t work on my computer unless I built it from scratch, and it bothers me that Russia is trying to make Ukraine fold.

What bothers me about mental health issues is that I have to be vigilant about taking care of myself, because my brain chemicals will take an issue like the former and make it as big as the latter due to my own echo chamber. So, really it’s me that bothers me, most days. Here is an itemized list:

  • It bothers me as a writer that if I write about someone’s behavior, they will constantly overfocus on what I said and not how they behaved. If they’re mad I wrote something, they don’t think “Leslie’s hurt” and come running. Ever. They think I’m out to get them, when in reality I am explaining them to me. How do I know how to change gears if I don’t know how I acted? The not focusing on the part where I wrote down my behavior is where it gets tricky, because I stab the knife further into my own chest than I do others.’ They just don’t talk about it because it’s easier to believe that I am a monster. That’s why I’ve gotten rid of a team of people in my life. I realized that if they were going to treat my blog as a threat, they couldn’t have me as a friend anymore. Mostly to protect them, because obviously my writing is too much for them and I don’t have time to cater to everyone. I have tried, and it has failed.
  • It bothers me as a writer that people think we are lazy freeloading assholes until we’re Brandon Sanderson. You’re not a real writer until money is on the table. You don’t write movie scripts until a studio has paid you for one. You’re not a novelist until you’re on the Bestsellers List. It becomes clear very, very quickly that we are a no-value add if you don’t understand the creative process and devalue us in every conversation. You think you’re being helpful and you’re actually destroying our self esteem.
  • It bothers me that I don’t always know when my favorite foods are going to be discontinued and like anyone on the ADHD/Autism spectrum I’d like to be able to buy six cases of whatever before it happens. Sensory issues are real, and I try to avoid them in order not to be distracted. When I am not “in the zone,” I’ll eat anything you put in front of me because the food is my focus. In writer mode, I will tell you that it’s been six months and I’ve eaten a vegan ham and cheese sandwich, chips, and a banana for lunch every day. Before that, it was veggie hot dogs with vegan cream cheese and hot sauce designed to wake the dead. If you think this is weird, it’s not. Mark Zuckerberg and I are just the same archetype. He wears the same thing, so I bet he eats the same thing. Source? I also have three hoodies and good luck getting me out.
  • It bothers me that people should look at me like Mark, but they should also acknowledge that I am hugely emotionally intelligent because I am self aware. If you treat me like a problem child, you’ve missed out on the best part of what I can do. The way I think rubs off. You’ll learn to love yourself, mostly because in my writing I’ll remind you of it all the time. I don’t write about people’s shitty behavior because I’m out to get them. I’m writing it because that is what happened the way I perceived it.
  • It bothers me in any conflict when people expect me to behave the way a normal person would and hold me to those standards because I have never met a normal person……. and my personality type is only found in 9-15% of the population before the trauma and mental health issues start making me complicated. I have had it confirmed by people in all tones of voice that they have never met anyone like me. I am deep and frightening and intense in every way imaginable. Mostly because other people have so much armor that they’ve forgotten how it feels to emote deeply.
  • It bothers me that I may never find a partner because of it. I couldn’t even make a close and loving friendship work on that level. So now I think I belong more to the world, as writers often do. If I make my focus all of you, I am not focusing on my lack. I am focusing on an upward direction that will hopefully cast a wider net on making friends.
  • It bothers me that people don’t understand my Internet relationships. Most of it is that my personality is so rare that I don’t find many people like me to connect with locally and I process better when I’m typing. I get together in person a good majority of the time because other people aren’t writers and I’m good with it. It’s not that I don’t need conversation, I am just unlikely to remember that I need it.
  • It bothers me that being a writer and getting your work read are two different skills and I really only have the first. I don’t want to have to tell you to engage, and I want to earn enough money to eat. The struggle is real.
  • It bothers me that the world isn’t built for me. People say, “you weren’t born to fit in, you were born to stand out.” They think it’s a compliment when I feel disconnected and lonely most of the time.
  • It bothers me that I don’t have emotional fortitude in person because I am frustrated at my lack of being able to craft sentences on the fly, because people say they don’t like my writing and get frustrated with talking to me as well, because then I’m stammering and can’t get words out……. but I seem so self assured…… the medium is the message.
  • It bothers me that there’s so much noise and so little signal, and fighting through it is immense. What I have found is that the way I fight through it is not seen as valid to many people, because it’s not the way they would do it.
  • It bothers me that Supergrover and I have a concrete need to be in each other’s lives, that we should have collaborated the whole time because we can’t not….. and then we proceeded to destroy each other. It is devastating that it’s easy to love her from afar, and terrifying to be close because I cannot feel lost and confused that much of the time…. and when I express that, to have it ignored. I get it. She’s a big shot, and I’m not. Alternatively, there hasn’t been a problem smaller than me for eight years, and there never will be. I’m not a priority because I’m not on the list. We created a trauma bond, jacked it up to eleven, and then when I had a genuine need, she treated me as if I was just trying to cause trouble for her. That’s unacceptable. From the outside, it looks like I decided she was the one and moved here to be with her. That is frighteningly incorrect, but I cannot lay out my feelings about that except “other factors at play.” To let go of those reasons would cause hurt, and not even to her. When I said that I did move here because she was here, you don’t know what idea that was based on, either, and that didn’t have anything to do with me at all. I misspoke when I said that I did move here for her and I was tired of covering it up, that’s what I meant. I didn’t show up because I thought she’d change her mind, or I’d sit and wait. No, it was much, much more than that. I’m sure where her ire lies is that for her, my valid reasons felt like a game I was playing, because she invalidated my feelings. It will always bother me that we never took a time out and just called each other.
  • It bothers me that people are fine with internet communication right up until they aren’t and don’t change mediums. What sounds creepy in an e-mail sounds fine in a phone call because more of what goes into communication comes out. If you start with 7%, you’re going to spiral downward into much less than that.
  • I was a product of my illness, and she forgot my personality, even after the fight was over. It made me think that she thought my illness was bigger than my personality by saying the opposite and never opening back up.
  • It bothers me that I understand why people pull back, but if I write about it hurting, that’s an attempt to provoke someone and not a genuine need to communicate with other people because I can’t rely on them. This is an all call issue. I don’t write about you because you’re you. I write about you to understand how I interacted with you. Sometimes, that encompasses our behavior. Only when you haven’t stepped all over my boundaries will I allow for reconciliation. Provoking people is the last thing on my mind, because my ruminations about them aren’t directed. I have a bigger fanbase in India than I do in the United States.
  • It bothers me that I cannot thank India enough. I did not expect to be more popular overseas, and if I was going to pick one, I don’t think it would have been Asia due to cultural slang. It’s mind blowing. Thank you.