There’s a feeling to hard work, a zone. When I am in the zone, my typing speeds up to 90 words per minute and I do indeed start to break a sweat- or cry if the material is touching to me. Most of the time, I cry about an entry after it is published and I have let it go- I’m not in the process of changing it. It’s a different kind of mental acuity than watching burgers on the grill, but it is no less intense.
Writing about this week will take years, because there are so many little moments that jump out at me. Yesterday was Angela’s funeral, and it was just beautiful. My dad was a Methodist minister for a number of years, and he did the service. The main idea, the foundation of the service, was twofold:
- Nothing is ever going to be the same.
- Everything is going to be okay.
He highlighted the fact that we live in that liminal space all the time.
It was harder watching him work than it was thinking of entries to write here because I know him so well. That his reflexes kicking in to do Angela’s service was carrying him through his grief. As I told my aunt Shawn, “we’ll find a new normal. Just not today.”
Because it’s so true that there’s a difference between how you function in the immediate aftermath of a death and how you function six months later. It also feels heavier because she’s the sun around which we rotated, the name on the back of the door. We’re going to have to learn who we are as a family unit without her, and those words are excruciating to say because she didn’t like the idea any better than us.
During the funeral, my dad talked about how Angela was so proud that we’d all ended up with our soulmates. I knew that line was for my brothers in law, but lamented that Angela would never meet anyone I wanted to bring home. She’ll just have to tell me whether she approves in her own way. But the line about soulmates made me miss Dana and Aada, because they’re the closest things I’ve had to soulmates in this life. I ruined my relationship with both of them.
- Nothing will ever be the same.
- Everything will be okay.
I have reached out to both of them saying that I would like to rebuild trust. That I recognize I have done wrong and would like to make amends. Neither one of them have gotten back to me. Therefore, the only thing I can do is create a new normal without them as well.
The new normal is easier to take in Houston, where I have my sisters and old, long-time friends around me. In fact, today I’m going to lunch with my old boss from ExxonMobil 25 years ago, and Monday I’m getting together with someone I’ve known since I was seven. That doesn’t happen in Baltimore. So even if I don’t move to Texas, I’m going to take the advice of a friend and spend some more time here.
And maybe that’s really the answer- I think my dad likes coming to Baltimore and spending time with me there. Same with DC. And DC is really “my place.” I thought I needed to get out of Washington and create new memories, but as it turns out I prefer DC to Baltimore and don’t know whether that’s due to the city itself or to whether I really, really don’t like my apartment complex. I’m leaning towards the latter, because when I’ve gone out in the city and experienced good restaurants I’ve always had an excellent time. There’s nothing wrong with Baltimore, but after I move I will be spilling the dirt on this apartment complex and all I’ve been through.
I have also been burgled once, and that’s not the apartment complex’s fault, but it doesn’t endear me to it, either.
Sitting here and telling my stories does not seem like hard work until you realize that in order to create the memory on paper, I have to be willing to “dive back into the wreck.” Things get less and less painful the more I write about them, but I shake and cry when I need to do so. The entry about my apartment complex will be easy because it is full of facts. Most of my entries are about feelings.
Exploring feelings is where the sweat starts to pour.
Nothing I’ve written about over the last 12 years has been safe or comfortable. It’s all been unusual because I’m unusual. I don’t know how to do life like a neurotypical and I’m tired of trying. I see myself struggle in these pages and I don’t want to struggle anymore.
I had to sweat it out.
I had to see that my disability was real.
I had to see that Aada was fake…. that we had all the components to make a real relationship, we just never used them and turned on each other instead…. because the first time Aada lied to me? Ok. That was small. But the pathological nature of the way it grew turned my stomach. She was seeing consequences play out in real time and only cared for herself. My response was still over the top and I still regret.
- Nothing will ever be the same.
- Everything will be okay.
These two sentences have now become my mantra, because of their universal nature. I also know that just because I am unhappy in one area of my life, that does not mean I am unhappy in all of them. So I am lost without Aada, Angela, and even Dana, but I can find happiness somewhere else.
For instance, Aaron is taking me car shopping on Tuesday when my original plan was to fly back to Baltimore that day. I am thrilled because I’m such a gearhead. I want to future proof and look at SUVs, because I’ve been thinking about getting a pit bull as a service dog for over a year now. His name is Tony. I don’t even have him yet, but he already has a name- Tony Kellari Lanagan.
He’s named after Tony Mendez and Tony Bourdain, the spy and the chef that have taken over my imagination.
I know that owning a dog, particularly a large dog, is a lot of hard work. I feel like I’m finally ready to take on that kind of responsibility, raising a dog from a puppy. I have the time and space to make sure that he is very, very well behaved… and a best friend that will remind me that it’s not the dog that needs training, it’s me.
Bailey and Bridget, my dad’s dogs, do not seem to be complaining about their quality of care so far. The one note I got is that Bridget was not ready to get out of bed and eat this morning. Such a princess.
If I stay in Baltimore, though, it has been suggested to me that I would be better off with several cats. In Baltimore, we like dogs just fine, but cats are business associates. Everyone’s got mice.
I like cats, too, but the pit bull is going to be a service dog. So if I’m going to get any pets, it’s going to be aquarium fish until I have my dog in hand. The pack has to be built around him, including cats.
I want to work smarter, not harder- and I want that for my dog, too. Anything to make either one of our lives easier is high on the priority list.
I am sure that the writing prompt isn’t meant to jump around quite this much, but I like taking walks where WordPress might not think to go………………….
My dad has already left for orchestra (church), and I’m writing until the spirit moves me to get in the shower. What that spirit is, I do not know. I just know that I don’t have to be ready for hours, and it’s more fun typing in my pajamas.
I think that my writing is starting to take on more of a playful nature because I’m trying to be open. I’m trying to connect. I’m trying to be a different Leslie than I’ve been for the last 12 years, because I shut myself off from everyone else. It’s painful to admit how introverted I got, because agoraphobia only made it worse. Agoraphobia came with accepting my disability and feeling like people were looking at me all the time.
They do look at me, because I walk funny. It’s called an “ataxic gait,” or the “cerebral palsy shuffle.”
I just need to stop being so sensitive to it and get on with my life. Getting on with my life is the real hard work of being disabled, because there are so many stumbling blocks in the way…. and that’s not counting the ones external to your own body.
Taking in my environment is hard work, because I’m always at risk of falling physically due to cerebral palsy and mentally due to bipolar disorder. I feel that the only way to understanding the world is understanding my role in it, so I try to be as self-aware as I can be.
From where I sit, my dad’s words are just getting louder…….
“Nothing will ever be the same, and everything will be okay.”
But I’ll sweat first.


