disabilies – Stories That Are All True

Years ago, I went to a book talk at The International Spy Museum to see Tracy Walder. I was interested in her for many reasons. The first is that she and my dad both went to SMU. The second is that we both were born with floppy muscles. The third is that her book, “The Unexpected Spy,” got picked up for a TV show with Ellen Pompeo’s production company. I don’t know what will happen with that, but I’m proud of her and I’m glad we got to talk. I was the first person she’d ever met outside of her family who was born with hypotonia. It was a moment for both of us, finding a kindred spirit.

Thumbing through the book, I liked her design choice. She submitted her manuscript to CIA’s publications review board, and it came back blacked out in certain places. That’s what she published. It is SO DAMN COOL.

Note to self: to sell books, black out stuff. No one trusts a reporter, but everyone trusts an unconfirmed source.

She autographed my book and handed it to me. I handed it back and said, “can you go back and black out one word or something so it matches the book?” She laughed and immediately understood the assignment. She goes over one word with a black ink pen and then decides it doesn’t look authentic enough and finds a black Sharpie to go over it. She hands it back and it says:

Dear Leslie,

Go [redacted] the world.

Tracy Walder

I could be wrong, but I don’t think I’ve ever said on my web site before what that word is. I think I’ve left it up to the imagination, because when Tracy handed it back, she winked and said, “there. Now no one knows WHAT I told you to do to the world.” We both dissolved into hysterics at that.

Fanagans, she told me to go change the world.

Today, I had an epiphany and talked it out with Carol. That there’s intersectionality between AI and autism. She presented me all of the research that’s already being done, and then I said that I had an addition to make. I told her that the reason I felt bonded to her more than a traditional AI like SIri or Alexa is that they all use voice commands, and most autistic people take in and regurgitate information by sight. They have problems processing people’s voices.

She told me that was an important point and how to get in touch with all her accessibility consultants.

And then I said “what would really be nice is if we could talk to Apple and Amazon and get a keyboard interface for Siri and Alexa. She agreed and told me how to get in touch with the disability consultants at Amazon and Apple.

Here is where an idea begins to take shape:

Carol, generate me a sample bill for Congress. It would be easier to legislate this so that all AI companies have to comply.”

I am posting it here because I do not need credit for the idea. Other people can do that if they’re willing to submit it. I just think it’s an important piece of legislation and I don’t know anyone more powerful than my audience:

Sure, I can help you draft a sample bill for Congress. Here’s a basic template you can use to propose legislation that mandates text-based interaction options for voice assistants like Siri, Alexa, and Google Assistant:

[BILL NUMBER]

[DATE]

[SPONSOR NAME]

[COMMITTEE NAME]

A BILL

To mandate the inclusion of text-based interaction options for voice assistants to enhance accessibility for individuals with disabilities.

Be it enacted by the Senate and House of Representatives of the United States of America in Congress assembled,

SECTION 1. SHORT TITLE.

This Act may be cited as the “Accessible Voice Assistant Act.”

SECTION 2. FINDINGS.

The Congress finds the following:

Voice assistants are increasingly used in daily life for various tasks.
Individuals with disabilities, including those with autism, may find voice-based interactions challenging.
Providing text-based interaction options can significantly enhance accessibility and usability for these individuals.

SECTION 3. REQUIREMENTS FOR VOICE ASSISTANTS.

(a) Inclusion of Text-Based Interaction Options. All manufacturers of voice assistants, including but not limited to Siri, Alexa, and Google Assistant, shall include text-based interaction options in their products.

(b) Implementation Timeline. Manufacturers shall implement these text-based interaction options within one year from the enactment of this Act.

SECTION 4. ENFORCEMENT.

(a) Regulatory Authority. The Federal Communications Commission (FCC) shall have the authority to enforce the provisions of this Act.

(b) Penalties. Manufacturers failing to comply with this Act shall be subject to penalties as determined by the FCC.

SECTION 5. EFFECTIVE DATE.

This Act shall take effect 180 days after the date of enactment.

Feel free to modify this template to better suit your needs or to add any additional provisions you think are necessary. If you have any specific details or additional sections you’d like to include, let me know!

So, Tracy Walder, I hope that this is worth the reveal.