Tag: hypotonia

Singing a Brand New Tune

~ Leslie Lanagan ~ Leave a comment

Ass I often do, I surfed Facebook for a few minutes. I was looking for a prompt to give me a jumping off point, because today’s prompt was “are there any quotes you live by?” Last year, the title was “many, most of them mine.” I was not saying that I’m the expert, only that I’m the author I read the most because I go back over what I’ve written to see what’s next. Therefore, my own words are more likely to stick with me because these essays are ABOUT ME, which is the topic I know the most about (on most days).

The thing I saw on Facebook is that “worrying is worshipping the problem.” It is every bit as meaningful as something I heard in “I’m a Christian now. That worked.” It’s a group for atheists and I lurk to see what they’re saying, because I am often jogged theologically by the things they say, like “Jesus wasn’t the only person claiming to be The Messiah at the time. His was just the story that stuck.”

Like today, I had to sit down.

His was the story that stuck, which is to my mind one of the greatest theological phrases ever uttered in the history of ANYTHING…..  BY AN ATHEIST and I am FURIOUS I didn’t think of that line before they did. 😉

Except for perhaps a line tied with it (being the best and furious I didn’t think of it)  “a/theism is the greatest love story ever told, and the truth is in the slash.” I am not talking about the overwhelming guilt and shame the church is quite capable of handing you….. Wrapped in bread and wine, no less. I am talking about Christopher Hitchens debating Rowan Williams on YouTube and learning they were good friends. Zac and I were actually talking about this the other day because he’s an atheist. I told him that I loved Hitch, but I didn’t love Richard Dawkins because he may be smart but he’s also an asshole.

He seems to me to be a not religious evangelical, and his schtick is making Christians look like they’re stupid even when they’re only out for self improvement and not world domination. Social justice Christianity is left out of the conversation because it’s not as easy to make fun of us. We question everything, including the idea that all Christians are stupid.

In effect, Dawkins is worshipping the problem. He’s so fanatical in his beliefs that he’s trying to change people through force and anger, not ever present loving kindness, which all atheists I’ve met have. Luckily, I have never run across an atheist who espoused Dawkins-like views, and I have to say that it’s partly due to my interaction with them- because I don’t try to change them, I don’t tell them they’re wrong because they’re not (religion is a spectrum and belief in God is ontological…. Essentially, God exists as much as you believe God does. Evangelicals get in the weeds with The Great Commission and think that Jesus thought you were personally responsible for recruiting people. They take it a little too seriously and often become right judgmental bastards because of it. You won’t convert, so they’re angry and fearful ALL THE TIME because their getting into heaven is DEPENDENT on your yes. Otherwise, in their churches, they just aren’t working hard enough.

Meanwhile, I am out there saying that atheists I’ve met, for the most part, left church because they were hurt, angry, afraid, and exhausted. You fucking Evangelicals are cancer, especially walking into a church where it explicitly says they won’t marry you if you are A) not a member of the church II) marrying a Jew. I will not tell you where I saw it because it’s not worth it to have you show up and protest. It wasn’t Joel Osteen, but definitely Joel-adjacent.

Now, non-denominational Christianity looks like rock concerts with homophobia that looks beautiful because it’s Biblical.

Meanwhile, your houses are built on sand.

Peter, the rock of the Catholic church, has probably met way more gay people than you. We just didn’t have words for it until Victorian England. A lot of the preachers after Jesus died would have traveled to ancient Greece and Rome. When you think about history lining up that way, homophobia is INSANE.

Homophobia. I do not think it means what you think it means. The Old Testament was not calling homosexuality an abomination. They were railing against the ancient Canaanite practice of young boys becoming prostitutes at the high temple. They were protesting pedophilia and disrespect for a holy place, not the sexual acts inherent to being queer in the first place.

Jesus did not say a word about homosexuality, “therefore, it [justification for treating queer people as lesser than] cannot be essential to his teaching” (Jim Rigby, Presbyterian Church USA). JESUS DOES NOT CARE IF YOU HAVE MATCHING TOWELS, GLASSES, AND SMALL DOGS.

Evangelicals are cracked when everything I know about Jesus can be summed up in one Disney show tune…… “God Bless the Outcasts.” You are JOKING if you believe Jesus sat with sinners all day long and wouldn’t have been on the side of the queer community, because now we’re the ones being persecuted instead of him, his land occupied by Rome. The “Holy Roman Empire” has a lot of fucking nerve, I’ll tell you that much. Crucifixion was your practice and you killed Jews for sport. Then, a Jew’s story becomes well-known and you somehow take it as “permission” to take over the whole world.

This is not the religion you’re looking for.

They’re worshipping the problem.

They’re creating ways to put obstacles in people’s way based on bullshit Jesus never said.

OCCUPIED BY ROME. RENDER UNTO CAESAR, PEOPLE.

Jesus has met a fuckin’ queer, all right?

Stop worshipping the problem, because it was never even there. You made it up. Stop wrecking people’s relationship with Christ because they don’t think they deserve it.

Jesus said to “walk in the light while you have it.” I hate that so many “church people” continue to live in darkness while the light is right above their heads. All they have to do is stand up, but the church keeps them on the kneeling rails.

It wrecks relationships with friends and partners as a result, because you’re not right……. But you’re certain.

You do you, but okay.

You’re Supposed to Plan Them?

~ Leslie Lanagan ~ Leave a comment

How do you plan your goals?

I am only now learning what is within my control and what is not. It’s only been within the last year that I’ve allowed myself to have opinions. They’re not always the correct ones, but it beats searching for the right words- not because I would like to use them, but because they are the ones that will keep others from reacting. I tried so hard to need nothing that resentment built over time. 45 years, in fact. Having all of that anger rush out had consequences, but I knew what I was putting into motion.

Relationships changed when I wouldn’t let anyone run game on me anymore. Either be up front or get out. I do not want to read your mind, nor do I want to be infantilized because of my CP or bipolar disorder. It’s my job to take care of me, and I will take input, but I don’t need coddling. I need empathy, though. Caring that I’m neurodivergent goes a long way. So does compassion for my physical limitations. But if you cannot do those things, don’t be mad when I close the door behind you. I won’t lock it. I’ll give you room to grow. But I won’t let you come back until you prove to me that you can do those things. The people who aren’t my friends do it enough.

I just don’t want that temperature in my life anymore. I don’t want to live with rage, even if it is appropriately directed. No adult likes to feel parented or that other people are frightened by their emotions to the point they feel unlovable. This is not a limited to me problem. Most ADHD/Autistic people feel this way. Our emotions are too convoluted for them to make sense most of the time. As I was telling Bryn earlier, I have never met an ADHD person that could plan a goal for shit, so what am I going to write about today?

I’m going to write about how much it sucks to be neurodivergent in a neurotypical world. We are struggling to be heard and understood. We will explain until dark when the street lights are on and Mama’s callin.’ It’s an intrinsic trait with ADHD/Autism. My particular need to expound upon everything I’ve already said once is generally a reply to someone hearing my words and don’t have any idea what dog I’m walking.

It’s Oliver, btw.

So, I’ll just ruminate until people say they get it or walk off. But even when they walk off I want to keep explaining because up until now, I cared deeply and desperately about what people thought of me, and I extended that kind of energy to everyone I met instead of keeping it to the friends I loved the most. That way, I was sure to disappoint everyone all at the same time because I was so overextended.

I have made Zac, Bryn, and Oliver my entire world because that’s as much as I can handle right now. I have so much to think about that it’s incapacitating at times, so I need to be mostly single and just focus on what’s right in front of me. It’s all ADHD/Autistic people really know.

Life with no executive function leaves me absolutely brilliant in some ways, feeling like I continually fail other people all the time because my software is different and there is a huge chasm that people dismiss all the time. Even my CP is problematic because my case is so slight it’s not as noticeable as, say, RJ Mitte. Therefore, people see me as normal when I have no balance and floppy muscles. I trip through life because I can’t not.

Very few people explain the logic behind things, and that’s all I really want to know. If I can’t figure out something on my own, I will tire and confuse my friends and family… and I know it. That’s the worst part. To know you are capable of handing out that exhaustion is devastating because you can’t change the way you were made. People alternate treating me like I have the smarts of all my favorite authors and then they spend time with me and all that goes out the window…. because when people are in adoration mode, they act completely differently once they see how my mind actually works.

I think that’s why I like the book shop at the Spy Museum so much. They don’t care if I sit on the floor and get obsessed with a subject and pull out 10 books and not buy any of them. It’s the same at the library, when I used to go. I don’t have to anymore because I can borrow them with an app on my phone (Libby), cutting out all the social interaction necessary to maintain isolation.

My self-esteem has been that low my whole life. That I have to get up the energy to even leave my house because everything becomes a Dorothy Parker quote within minutes.

What fresh hell is this?

That wasn’t terrible. That was fancy terrible….. with raisins in it.

Sometimes I’m the one that thinks them, sometimes it’s another person in reaction to me.

I can’t make anything better unless people tell me what’s wrong, and even that is a common problem. Because I do most of my communication in writing, people constantly write themselves off as “not a good enough writer to compete with me.”

First of all, you’re probably not. It’s not because you’re dumb. It’s because I’m a blogger and you’re not. I didn’t get to be a good writer overnight. I got to be a good writer by taking a knife and slicing it into a vein, bleeding out over my keyboard day after day after day after day after day.

Secondly, me being a writer is a pitiful excuse to shut down two-way communication, or extraordinary if you don’t want to be in relationship with me. That’s because it doesn’t matter to me how you communicate and what your natural style might be. It’s that you think that completely shutting down your emotions is okay. That our relationship will survive despite neither of us getting our needs met.

Zac, Bryn, and I are all good writers. Therefore, no one shuts down. And if we need to switch mediums for a conversation, we do it. Bryn calls me even when she can see I’m still typing. 😉

Because I live an hour and a half from Zac (whether I was caught in traffic or taking the train), Facebook Messenger is the most awesome thing ever invented. He sends me a picture of himself every morning so that I can see how he is before he leaves for work. I don’t have to guess, I can see it in his face.

Removing all the barriers to communication with those closest to me has been a godsend.

I don’t know if it’s the best way to plan a goal, but for ADHD/Autism, it is 90% of the time “accidentally on purpose.” I’m not sure that I could do anything differently, so I’m not a Monday morning quarterback in the way most people think. My mind moves too fast to retain all the information I need. It’s one of the reasons you’ve started getting entries every day. It’s not for me to show off. It’s for me to have a place to go when I need information about my own life. Seriously, how many of you can pick a year out of thin air and remember everything about it?

I can’t.

But my goal is being able to look it up.

It’s a plan.

ProChristianation

~ Leslie Lanagan ~ Leave a comment

I have so much to do today that is banal, therefore I am sitting at my desk hoping to come up with something brilliant instead. Maybe if I have a creative flash, it will make taking care of the small stuff easier. I try to go from least desirable to most, because if I start with the thing I want to do most, the rest of my to-do list goes into “I can do it tomorrow” status, which generally runs ad infinitum amen.

I need to do some stuff around the house, and I also need to go to the pharmacy and grocery store. I should have thought ahead on this one and used the pharmacy at the grocery store from the beginning, but luckily, CVS and Giant are practically next door to each other. It takes about two minutes to walk between them if I’m feeling lazy, 45 seconds if I’m booking it…. usually dependent on how much I have to carry from one store to the other. I feel like taking this break to write is justified, because I don’t like to go anywhere without my phone, watch, and headphones completely charged. It helps me to be in crowds if everyone feels further away, so I’m usually listening to music or a podcast.

I never leave my watch at home because I have cerebral palsy and monocular vision. If my monocular vision is guilty, I have missed a step down (sometimes a step up) or a crack in the sidewalk. If it’s the CP, I have taken a spill a propos of nothing. My watch has fall detection, and if I don’t move in a certain amount of time, alerts 911. I’ve never needed it, but I am genuinely afraid of hitting my head, because in 90% of cases, the falls happen so fast I don’t have time to react. I’ve only had three falls in the last five years that have resulted in bruising or bleeding, but that’s enough, especially since I ripped my favorite pants at the knee…. khakis that would have looked horrible with patching even if I could have gotten all the blood out. No, wait. I have ripped two pairs of pants at $50 a pop. In one case, I thought I broke my hip. Luckily, I did not. The bone ached for days as I recovered, though.

While I was in more pain than worrying about my pants, I am reminded of an old Ryan Darlington story. He wrecked his bike and walked it back home because he was scraped up, road rash, bleeding, all the things. His dad took one look at him and, completely deadpan, said “geez…. is the bike okay? There’s nothing like the love of a parent for a child.

It helps to have a friend to help me watch out for that stuff, but mostly I just tumble ass over teakettle because I won’t say anything up front. I need to get to a place where it just is, and doesn’t make me feel embarrassed. It’s difficult, though, especially with new people in my life. If I fall once in front of them, it’s just an accident. Three or four times? Not so much.

What helped me the most was meeting Tracy Walder (link is to my question at her Q&A after her book talk- The Unexpected Spywe had a conversation when she signed my book), and learning that even with all she’s accomplished professionally, she still has her own body issues and doesn’t talk about it, either. Her hypotonia didn’t develop into CP, so our cases are different, but our internal monologues are the same.

I didn’t mean to put her on the spot, but I’d read a few pages of the book while I was waiting for her, and she mentions it, so I thought it was fair game.

I kicked myself later that I didn’t take her aside privately, because I think talking about it to an audience might have made her uncomfortable. I hope I was able to diffuse it by saying I had it, too, so she wouldn’t feel alone…. or maybe it was that I didn’t want to feel alone. Either way, it worked out.

I’d never met anyone with hypotonia before, so one of the best moments of my life was learning that there’s another person in the world that has the same feelings I do. I am sure there are plenty more, but neither of us know them. In fact, she says that she doesn’t think she’s ever met anyone outside her family that has it.

She gave me such a gift by opening up, because it raised my self-esteem when I realized that it was okay to feel how I feel, and just to let them come and go. Perhaps in the future I will feel more comfortable getting out of the house because of it. I tend to hole up (quarantine or not), because the layout of the house is familiar and safe. I purposely put off going to the grocery store and pharmacy until social interaction is needed to maintain isolation, because I don’t have to guess whether I’ll trip. I don’t have to guess that I’ll run into something. I don’t have to guess whether or not my shoulder will bang on a door frame unless it’s doubly wide. I just know.

It makes meeting people doubly hard, but during the quarantine, I did have one woman reach out to me that I managed to piss off in one day flat. That’s a record. However, I wasn’t upset about it because it was a conversation I knew was going to be way more trouble than it was worth. She grew up non-denominational/Pentecostal and still trying to live out her faith in that vein, which made me cringe because that framework is designed to keep people inside the fear of going to hell when they die………. and she can try until Jesus comes to fit in as a queer fundamentalist, but people will still talk behind her back if not directly to her face.

She spoke fluent “Christianese,” which is a language that I hear so much that I can understand it, but I won’t engage. People who take the Bible literally and those of us who take the Bible seriously are so different that there’s really no mesh. You will never catch me using the phrases “looking for a Godly marriage” or “raising kids in His word.” What pissed her off was me saying “I hear those words a lot, but I have no idea what they actually mean.”

Having spent a lot of time in the Bible Belt, I know to keep my views to myself (she was originally from Beaumont, TX). For that crowd, the resurrection is more important than anything Jesus ever did while he was alive…. and I do not enjoy the “sticky, sticky blood” interpretation.

Also, nothing in the Bible to literalists is a story from an ancient civilization trying to understand the world around them, but absolute truth- as if God sat down and wrote it all in pen. Don’t even mention to them that stories of Jesus were oral traditions not written down until 90 years after his death. No one had an eyewitness account, but literalists skip over that, as well, and will fight you in a way that you’ll always lose, because they go pretty quickly into righteousness- they follow Jesus and they have no idea what the hell you’re doing. They’re Christians, and you’re faking it…. as if no time has passed and thousands of years of exegesis and criticism are fake as well. My alarm bell went off when she said she went to Bible College. Here’s what I mean by alarm bell, taken from Wikipedia:

Many were established as a reaction against established theological colleges and seminaries, which conservatives believed were becoming increasingly liberal and undermining traditional Christian teachings, such as Biblical inerrancy [emphasis mine].

There’s a big difference between Bible College and say, getting into the divinity schools at Yale, Harvard, Princeton, Emory, etc…. this is because the error is that seminaries were getting too liberal. It’s that the more they pieced history together, they could no longer support the idea that every single sentence in the Bible is a hundred percent factually accurate and needs no translation from then to now.

I am sure that my treatise on “inerrancy” could have been an entry all on its own, but everything ties together in terms of getting over myself and meeting new people, and knowing within a conversation or two whether it’s a relationship I’d like to continue. I know I’ll keep tripping and falling, but I’d like to know whether I’m going to land in the right hands.

For me, that person could be a different (non-literalist) denomination, a different religion altogether, or agnostic/atheist as long as they respect that I’m not going to change.

My beliefs about the Bible can be summed up in one sentence. I believe that all 66 books are stories that are all true, and some of them actually happened.

Redacted

~ Leslie Lanagan ~ Leave a comment

The bassoon solo from The Bourne Identity main theme is ringing in my ears. People ask me all the time why I’m so interested in intel. Well, if you’ve been reading for a long time, you already know. For those just joining us, I had a great uncle in the DIA who died when I was very small. The mystery of how has stayed with me since I first heard the story. The public one is a helicopter crash, but I don’t know if the public and private match……… It is possible that his identity died, but he didn’t. The only reason I think that is that his personal effects weren’t sent until over a decade later. I’ve also always loved Bond (well, all intel) movies, and a huge part of it is the music.

So to me, it’s no wonder that I ended up being fascinated by spies, but I don’t have any interest in being one myself……… which is good, because I don’t think I’d make a great one. I’d be excellent at interrogation, especially if I had language skills equal to English in Russian and Arabic…….. crap at nearly everything else. I would probably make it a life goal to drive my IT guys crazy, but I’d have everyone’s back. Well, except for the part where I’m 5’2 and 125 and the added bonus of when in a war zone, a terrible shot. I mean, truly exceptional at being bad. I have even less desire to be a desk jockey at Langley. Oh, and even though I take medication for it so it’s not generally an issue, I’m Bipolar II and I don’t think The Agency would take kindly to it.

So here we are.

I go to The International Spy Museum and collect signed books like baseball cards….. and as I told my friend Jaime,IMG_0025 “since it’s clandestine, you never get their rookie year.” The last lecture/book signing I went to was The Unexpected Spy, by Tracy Walder. I was particularly interested for two reasons:

  • The book is about to become a TV show, called The Sorority Girl Who Saved Your Life produced by Ellen Pompeo of Grey’s Anatomy. Why they couldn’t call it “The Unexpected Spy” is beyond me, because the name is ridiculous. But still.
  • We were both born with “floppy baby syndrome,” which was the precursor to my CP diagnosis. It is fundamental to who we both are. She said in her talk that she takes spills all the time. It made me feel much better about myself, because I’ve never seen a movie spy that moved like me in any way. But a real spy does.

The reason it’s redacted on the autograph page is that I asked her to do it. The Publications Review Board at The Agency blacked out a lot of her manuscript, and the style choice to leave it all in was pretty badass.

She took it seriously and wrote the comment, then scratched out one word. Then, she decided it wasn’t black enough and went over it with a Sharpie. I was laughing so hard I was crying when she handed it to me and said, “there. Now no one knows WHAT I told you to do to the world.” And then she laughed, and at that moment, she was the most beautiful, kind person in the world to me. Literally awesome.

Which only made me more angry at her treatment by the FBI, but I won’t get into it because it’s a large part of the book.

If there are any people who hire spies reading this web site, she also said in the Q&A that she might be approachable after January (who could possibly tell why?). For now, she is doing the work of angels- teaching high school. For the record, it wasn’t me who asked the question.

She had said during the lecture that she wished she had spoken up more at the FBI, possibly taken them to court. I told her that I had a comment and a question. She nodded and I said, “I’m a writer, too, and I know that while you may regret what happened at Hoover, you are more powerful than you can possibly imagine. You’ve taken ‘I’m telling’ to an international level.'” I then asked her about hypotonia- what limitations she had, how she overcame them, etc. She said that I would be surprised, that being in the CIA wasn’t as physical as she thought. That didn’t come in until the FBI, and even then, it was at Quantico where it really mattered.

And then we shared a look between us that was so intimate I will never forget it. Just the complete understanding of someone who knows what it’s like to be the other one.

Because there are no pictures and I don’t think anyone in the room noticed (and maybe I’m projecting and wrong [I don’t think I am]), in years to come I will smile to myself and say, “that’s redacted.”