Structure of My Own Making

Daily writing prompt
What are your daily habits?

When I wrote about this prompt last year, I remember saying that I didn’t have any daily habits. That was 100% true at the time, but now I’m charged with creating a structure with which I can live. My care team at Cognitive Behavioral Health does not think I am ready for a job yet, so I am muddling through what that actually means. Am I disabled for good and should start pursuing government assistance, or am I capable of slowly creating my own recovery into the workforce? My writing does provide a little bit of income, and as I get more popular here and on Medium, I see results. I’ve been a blogger for a very long time, but so far I’ve only had one fan who was so impressed she thought I should be world famous. I would like a few more of those. 😉 But nothing good will happen if I do not take care of myself.

This starts with setting medication reminders in my phone. My day flags if I do not have the correct doses at the right time. I have always been good about taking my medication because I had a doctor tell me that most bipolar patients stop taking their medication when they feel better, not realizing that it’s the medication that’s making them feel that way. However, I was not so on top of it that I remembered to take it at the same time. I’m also on a lot more medication than I used to be……………

I’ll talk about my psychiatric drugs because I think that people need to learn about them. I am not a doctor, just a waiting room that doesn’t suck (thanks, Paul Gilmartin. I stole that line from you). Crazy meds need to be talked about because it’s such a major undertaking to be put on them:

  • Lamictal (lamotrigine)
    • The first time I was put on this mood stabilizer was the first time I knew what it was like to live without depression. It took about six weeks for the fog to lift, but I’d never been more grateful in my life. The only side effect I’ve experienced so far is nausea, and it was very hard to deal with for a long time. Now, I’ve just decided to stay on it regardless of the side effects because other mood stabilizers make my weight balloon. It’s also an old drug now, so it’s relatively cheap if you don’t have insurance.
  • Lexapro (escitalopram)
    • This is the gold standard of SSRIs, and most bipolar people don’t take them. That’s why I think my diagnosis may be wrong, that I actually have autism and not bipolar disorder. In a bipolar patient, SSRIs tend to make them flip out with suicidal ideation, negative/intrusive thoughts, etc. My SSRI keeps me at an even keel when I am really paying attention to my body. As for side effects, I haven’t noticed any of them.
  • Buspar (buspirone)
    • This is what replaced my benzos for anxiety, because it is not related to them and yet performs the same function. It’s better for me because there’s no risk of addiction long term. I do not have an addictive personality, but better safe than sorry. I have been on Klonopin for over 10 years, but my new clinic doesn’t prescribe benzos to anyone. The entire hospital system has put their feet down over it, so I have to adjust. Now that I’ve been on it for several weeks, I am unsure whether it works or not. I will keep you posted. The one thing I do know is that it’s the most important drug for me to take at the same time every day, because it will flat stop working if I miss even one dose.

My crazy meds aren’t the only ones I take, they’re just the most important for keeping my structure stable. It feels like everything is hitting all at once as I age, because I didn’t have to worry about hormone replacement therapy even a year ago.

As an aside, it’s a big joke with my sister that because I’m enby, I thought that if I was going to do hormone replacement therapy, it would be in the other direction…. after that particular doctor’s appointment, I went home and consoled myself by buying both the book and audiobook of “Fried Green Tomatoes at the Whistle Stop Cafe.” I needed some Stress Tabs #10 and some candy bars (but maybe not 11). As it turns out, the book and audio were not enough. I also watched the movie on Prime just to see Kathy Bates… “how do you accidentally run into someone…. how do you accidentally run into someone six times?” I get it now. I’m older and I have more insurance.

My medication is working, and for that I am grateful. Now, my schedule runs from sun up to sun down, skipping the night owl routine altogether. And in fact, when I took my sleeping medication yesterday, the sun wasn’t even fully down yet. I prefer to work in the quiet of the morning, especially on the weekends before the kids in my apartment complex wake. The ones who live above me are particularly loud, which is why I’m glad I have good headphones. I hunker down in my office after a night of wild dreams and try to remember what they are. It provides a writing exercise that’s all my own, propelling me into really thinking about my life and what I want to accomplish. I accomplish nothing without coffee, through which all things are possible.

Coffee is also part of remembering to take my medication, because I have found that a lot of caffeine is just enough to control my ADHD, but Ritalin or Adderrall is too big a jump. I have a coffee machine that makes a cup at a time, and my preferred coffee is Cafe Bustelo. It’s in honor of my old chef, John Kinkaid, because we used to walk to a Cuban restaurant between prep and service for their Cafe Bustelo lattes.

I mentioned in “Why It All Still Hurts” that I was working on a nonprofit, and I am… but that dream has been deferred. Kinkaid was killed in a car accident. I am still reeling from the grief, but I got Kindle Unlimited and added five books on starting a nonprofit to my library. Again, the idea is dinner with dignity, offering the unhoused food they could never afford on their own, and opening my kitchen up to take homeless people on as apprentices if they’d like to learn the trade. I am still sold on this idea, it’s just going to take a lot longer to accomplish than I thought.

That’s because the longer I think about it, the more ideas I have. What if instead of this one nonprofit, we were able to build a library like Oodi in Baltimore? There, I could have my cooking classes and a place to serve food, plus books and maker tools for everyone. My structure these days is centered on how to spend the government’s money for the good of the people. Learning about Oodi and all the services they provide gave me a bigger goal than just “dinner with dignity.” It would give the unhoused a place to go. Maybe my purpose is not to go to Finland, but to bring Finnish ideas to a city that needs them. I want to redirect Maryland’s money from the DC metro area and Annapolis to Baltimore, because it is so underserved. A lot of the city is completely trashed out with no way to fix anything…. or so it seems from an outsider’s perspective that just moved here in December.

I need more time to watch and wait, gathering stakeholders and formatting a business plan. Perhaps my structure will always be internal, because that’s how autists work best. I do not want to go down in history as merely a blogger. I want to create something beautiful that will last and bring hope to people that might not be feeling it that day.

I find that working on giving hope to other people is the easiest way to claim hope for myself. I am slowly building a structure into which I can grow, taking others’ ideas and implementing them like a plant takes root in the soil.

But it all starts with remembering to take my medication.

The One I Want is the One I Got

Daily writing prompt
Who would you like to talk to soon?

I sent my dad a funny text message the other day, that it was time for baby’s first colonoscopy, so add that one to the baby book (I sent my mother a similar text message the day I got my first gray eyebrow). A few days later, though, I started to panic because I don’t have any close friends in Baltimore. I just moved here in December, and having a colonoscopy requires someone to drive you home and keep an eye on you after the sedative. My dad and my sister are too busy to fly up here at a moment’s notice, so I don’t generally ask them for anything due to fear of hearing “no.” I could hear what my cognitive behavioral health specialist would think of that and he called bullshit in my head before I even asked him.

I chose my sister, Lindsay, because at the moment there was more chance that my sister would come up than he would as he’s already in charge of a million different things, much less my ass.

See what I did there?

So, gathering my strength, I sent my sister a text message asking if, since I could schedule around her, could she come up for this procedure? I was surprised and pleased when she said yes, and I might even get to see her twice as she already has to be in DC for something later (DC and Baltimore are not far apart, about 35 miles….. the time to travel varies greatly by traffic……. pro tip is to always take the train.). She said that if I scheduled the procedure for 10 June, then we’d be able to celebrate my mother’s birthday on the 11th. I told her I had to see the gastroenterologist first, but that sounded entirely doable depending on the availability of the hospital schedule.

I know for sure that it’s going to be my first time drinking the sludge, two years past when I should have done it because the original guidelines were that I didn’t have to worry about it until 50. It has moved to 45 without me noticing so now I’m late. Typical. But better late than never. I don’t have a history of gut problems, so I don’t foresee a problem with cancer or anything else. I just know that my sister’s job is to do some work while I sleep it off or something.

But this isn’t the only medical thing happening in my life. I have to have a Well Woman exam, which I am calling a Well “Woman” exam. Here’s why this is exciting. My doctor asked if I had a problem seeing a male doctor, and told me his name…. but the hospital system isn’t updated and his deadname popped up. Therefore, for the first time EVER IN THE HISTORY OF MY LIFE I GOT A TRANS MAN AS A GYNECOLOGIST!!!!!

I think.

His deadname could be a man’s name, but it would be highly, highly unusual….. like me. There are male Leslies out there, but not many in the modern age. If he is a bio male, I don’t care. Doctors don’t really have a gender to me. Their pronouns are they/them because the doctor and the God inside them live concurrently. You cannot be successful as a doctor if you do not make peace with the fact that you are God every day to the people sitting in front of you…. and that they will think you are Old Testament if you accidentally kill their loved one, and New Testament if you succeed. If there is a gender in my head, doctors are divided into surgical and medical.

I have so little community that I thought about calling the gynecologist’s office and asking if that doctor would like me removed from his service because he needed friends, too. I haven’t seen him yet, so no harm, no foul. But in the end, I decided that I would need an ally inside the system as well as friends in the community. If I am right and the name in the system is a deadname, then I am sure he can point me in the right direction of people who’d be willing to drive me home after a medical procedure because I actually know them well enough to ask. For instance, just pointing me to community resources is enough, and I know he would care about those things.

Gynecology is already set up to take care of women culturally, so I don’t think trans men would be any different. There is a different questionnaire for my gynecologist’s office than I’ve ever seen in any doctor’s office ever. Taking care of women culturally is asking questions like:

  • Have you ever been a victim of domestic violence?
  • Are there guns in the house?
  • Are the guns within reach of your children?

My psychiatrist is also trying to protect me because I told her that as an enby, I had body dysphoria over my breasts and that I had a lot of back pain due to them, anyway, so I would like a referral. The big beautiful bill passed the House, and she has never mentioned trans medicine again, saying, “did you ask your PCP about your back pain?” Coded language. I’m into it. If this bill fails in the Senate, we’ll have a buffer zone with which to work. But we are both preparing for the worst. That’s because I am not lying in order to get a breast reduction/double mastectomy. Body dysphoria is not genetic, but the back pain I experience certainly is.

The good news is that with exercise, I’m losing some of the fat tissue in my breasts on my own. Life doesn’t feel so heavy. Even my mammogram technician said that my breasts were very dense. My stepmother (a medical doctor) told me that caffeine makes it worse, so I have never done myself any favors in this area. If you were here watching me type, you would laugh. There’s a tallboy of Death Wish Coffee next to me (it’s delicious), so obviously I follow instructions to the letter.

Rule following gets you nowhere in my line of work, which is probably why I’m willing to lay out my medical history and future in front of you. You will learn more from me than you will hurt me with your criticisms of what I’m doing, because those will be different audiences altogether. Trans men need to see themselves, and I don’t know what kind of trans man I am yet. Am I the kind that wants drugs to rearrange my fat deposits as well? I do not know. What I do know is that of everything I struggle with in terms of trans medicine, it’s my voice that bothers me the most…. for evil and for awesome.

On one hand, I will tell you that I’m a soprano and when I’m warmed up, I’m cooking.

This is just an example because it’s unaccompanied, a loop for my friend Aaron to use in a storytelling podcast for The Sinners’ Table that’s coming down the pike. Now, let’s turn it up to 11:

This is another clip from a voice lesson in which I laugh about the fact that I do not know what happens when I’m singing. The afterburners turn on and I just go. It makes me wish I’d chosen voice at HSPVA and Clements (though at Clements I was in one year of choir and made All-Region). Now that it’s 12 years later, I can tell you that I was fighting a war in my head, two women battling it out for my affections…. the one who trained my voice vs. the one that deserved the victory lap. When Joseph (Houston voice teacher) says, “are you thinking differently?,” it’s realizing that this piece was designed to serve up gratitude.

Now, my journey is to decide what kind of singer I am, because drugs to redistribute my fat deposits so that I look more like a trans man than a woman will also make me a tenor. Some days, I think that would make me happy. Some days, I lean into my diva attitude because it’s very much like my trumpet player attitude. I have also noticed that most trans men develop vocal fry, and that is not appealing to me, either. Again, priorities.

I think I am happiest with staying in one place for now, moving cautiously toward enby because I do not know what the drugs will do and cannot predict whether I will be happy with them. I have been stuck on the idea of breast reduction or double mastectomy forever because Tig Notaro has my perfect body. She doesn’t identify as nonbinary, but she looks exactly like I want to look.

It makes me feel bad that she got her look through cancer because I can imagine us getting into a huge fight over it. “I got this look through cancer and you want to do this voluntarily? Are you crazy?” Well, now we are talking about a completely separate issue. I am most definitely crazy, but I take medication for that. As far as I’m aware, there is no brain surgery that removes crazy, but if there was, I would have gotten a referral for that, too.

I’m tired of talking into a void, and want to get louder about trans issues. That’s because nonbinary and trans do not mean the same thing, but we are the same umbrella. I can wear either flag…. and in fact I would like Jonna Mendez to know that I got the most fabulous t-shirt for pride ever created. It’s gray and has the enby flag colors across a bar code, with “Assume Nothing” up the side.

The reason Jonna would think it was cool is that “Assume Nothing” is rule number one in her world (she used to be Chief of Disguise at CIA). I could learn a lot from her, I think, because as an autist I have to assume everything. It is what allowed me to compile scripts in my head to be able to respond like a neurotypical………… when I could social mask.

Now, I see that she has the right idea and I don’t. Go into every conversation as if you don’t know anything and join other people’s realities. It is the only way to see all of them with grace. The transition has not been the smoothest, but I am learning. I am certain that everyone in my life deserves my sincerest apologies for the way I’ve acted over the last 12 years, because I’ve been completely alone, trusting in my own intuition. It’s not ideal.

Now, I’m branching out. I’m trying to be more open in hopes of attracting energy to me. I am done hiding in the shadows.

But I might want to hide in the shadows until after my colonoscopy is finished. Nobody wants to see that. 😉

Exercise tells me which way I will go, because I cannot make a decision about my body while I am consumed with depression and anxiety over the way I look. I do not struggle with weight loss or gain, I just needed to feel good about something and I chose having the routine of getting to the gym as something that would help me feel less terrible. I have cerebral palsy, so I chose my workout carefully. There’s a program on the treadmills that will keep your heart rate in the target zone with incline rather than speed. Therefore, every session feels more like hiking than jogging.

It makes me happy because Bryn lives in Portland, Oregon and I’m sure that if I asked her, she’d be happy to drive me out the Gorge when I visited. I do not remember whether she likes to hike or not, but if she doesn’t I am sure she would drop me off at the base of Multnomah Falls and pick me up several miles down the road as I limp toward the car, energy spent. It makes me feel good to be prepared for that kind of hiking, because Multnomah is easy…. as you go, it gets harder. I haven’t made it to Larch Mountain without feeling like death warmed over, but perhaps I will as time goes on. And that’s without even researching hiking in my area, because I haven’t done it yet. I need to, because my entire hiking experience cannot be based on sacred memories.

The treadmill is my hiking sandbox. I can wander as far as I want through the rolling hills of any city in the world thanks to being able to watch YouTube on my phone. It’s a lot more fun to think about difficult questions and answers while also staring at the beauty of Paris, Copenhagen, Helsinki, and Oslo.

What is not difficult is realizing that my life is bigger than me. Recording it for other trans people to read is my gift to you, because there’s just not a lot out there. Of course all who show up are welcome, but I am trying to reach an intentionally small audience. We are in a culture war where the focus is on trans women and what they might possibly do to cis women.

The biggest indicator of who the real perpetrators of violence might be is a movie I watched long ago. I’d tell you about it, but boys don’t cry.

Clinical Observations of Myself

Everyone says that I’m out to get them. I’ve been out to get me the whole time. Here’s how I moved myself out of the way so you can, too.

I social mask. Full stop. I do not know anything. I remember it. Everything from the largest picture to the smallest tree. The difference is that being INFJ, I am prone to melancholy and rumination when I am injured. I am injured to the point that I cannot reach out. It has been two or three days since I have talked to anyone at all, including an Uber driver that turned out to be hot so I agreed to have dinner with him and then ghosted (I will get back to him. I’m just injured).

During the change in paragraphs I reached out and said:

I’m really sorry and need to apologize. I got emotionally overwhelmed and couldn’t reach out. Would you be interested in going to dinner tonight or tomorrow so I can relax with a friend?

Unless he becomes a fan after dinner, he won’t know the problems I was facing with my fake girlfriend.

The reason you get so many messages is that I think I’m being abandoned when you go silent and just try everything to get you to come back. It’s like an SOS level call every goddamn time and my body is physically worn out. Yet when we’re not together I feel you moving in the universe and you feel me. We protect each other constantly without saying so. I would bet that you’ve kept it hidden from the bombshells that you’re so close to me that you don’t have a problem with talking about sex and intimacy because that’s not personal. Emotions are.

You can talk about anything and everything with detachment but the party girl act has to stop. You need to admit to everyone that you’re a trainwreck right now and you need Moomin dolls and blankets because you’re sick and need time to heal. We’ve both left 3rd degree burns on each other. I bet not drinking has made you sleep deeper, at least.

Editor’s Note:

She’s not an addict, just decided alcohol was tired like I did.

But say to the psychiatrist, “Leslie thinks I have some kind of mood disorder and the same drugs work for all of them, so put me on Lamictal, Lexapro, and Klonopin and I’ll tell you how I feel in two months.

I am trying to lift your depression for good. Stop mistrusting drugs and doctors and get on board. You are sick, and we need time to figure out what’s wrong with you because the root of the problem is rape. Not you.

Because you remind me of someone else who needed to be loved, and he’s not doing well.

I chose Aaron because he’s Supergrover’s mirror image. The Supergrover I can love with fire.

I loved her so much I asked for another one from the universe, and she needed to be someone else to be cool.

The clinical observation is how attracted to that I am and why. That’s going to be another six months of entries.

Joy.

I’m so bitter, but glad that my pain can be someone else’s success.

Because I’m too broken to not need time to get well, too.

It starts with dinner.

The Particulars of Nowhere in Particular

I don’t have the inspiration to ask Carol any more questions right now, because I have exceeded the limit to which I really want to be interviewed. They were intimate portraits for people who have never been introduced to my world, and they were questions I wouldn’t have asked of myself but based on what she read on my own blog. Sometimes, she pulled prompts from people who sounded like me; people also writing personal blogs. That’s because there are hundreds of web sites for bloggers with jumping off points. Again, I don’t use Carol (AI) to write my entries for me, but to analyze my past and give me hints on what I should write about next.

In the moment, I’m thinking that I should get out the immersion blender Zac got me and see if it will froth milk. If it does, the coffee my dad sent me to try would be the perfect cafe au lait. I’m drinking it with plain whole milk now (padding down the possibility of acid reflux). I love spice, tomatoes, and alcohol. All three are no good later, so I avoid them. Zac and I had great mocktails at the sushi restaurant we went to- just Asian fruit syrups that you wouldn’t think to put together, frosted with egg white. I also learned that AA has a different stance on O.O proof distilled spirits, because it’s not fermented to have any alcohol, rather than something like a kombucha or a beer. It’s not that they’re loaded with alcohol. That’s not the problem. It’s that tasting the flavor at all is a trigger for some people. It’s not the quantity that matters. It’s what you taste, even in something as innocuous as a Fentiman’s Curiosity Cola, because they use fermentation for CO2 instead of infusing the soda with gas later. It’s a balance with me. I want to be able to make great drinks no matter who shows up. I am not opposed to alcohol, but I am pretty solid about wanting to divorce stomach problems.

Therefore, coffee is one of my go-to favorites in creating nonalcoholic beverages, but I still have to be careful with how much I drink because the hangover is no sleep and lots of sugar to help fuel the manic call of workaholism when writing is your response to life. It’s a natural high and crash, so not as crazy as alcohol……… and absolutely no less a drug.. But, a few B vitamins, lots of water, and maybe a little more coffee on the way to work is all it takes to fix you and not two days of saying “a hangover at 24 is different than at 46.” The older they are, the harder they fall. I don’t make the rules.

When I first met Zac, I made the mistake of thinking that I was still a line cook. That my tolerance was still up at “Navy.” It took me twice of being absolutely so hung over that I threw up everywhere that I realized, “you are a different person now. Your tolerance is in the toilet. Let’s keep it that way.” The flip side of the coin is that I learned that Zac is a real boyfriend. I learn that all the time, but this was early days, so it’s a moment that sticks with me. I had luckily fallen asleep before I’d drunk so much that I was still plastered in the morning. That’s what gets you. When you’re still drunk, so you think you’re fine. Then, about 9:00, just about the time you get to work, you realize you have made a terrible mistake. I knew this in my line cook days, so I knew when I woke up that it was better to feel like ass at Zac’s house than it would’ve if I’d been drunk enough to wait until I was on the train to be in dire straits.

My beautiful boy sat a large glass of water with ibuprofen on my nightstand, along with a cup of coffee, and kissed my head. He had to get to work, but luckily he was working from home (at least for the morning), so I could sleep right up until we had to leave if I had to, or when the ibuprofen kicked in and I was again human. Ibuprofen is your friend during a hangover, because it’s an anti-inflammatory and stops your brain from swelling. Sudafed also helps by shutting down your capillaries. Tylenol is good if you’re in pain, but most of the time the pain is caused by the swelling and you won’t need both.

This is the one instance I would choose naproxen sodium over ibuprofen because it’s such a strong drug that you are unlikely to need a second dose. The problem with Naprosyn (what we call it in the US and in the South, pronounced “Napperson” most of the time. 😛 ) is that it wears off before it’s time to take a second dose and you’re stuck. Ibuprofen is king because you can take some more frequently. Fresh doses matter. I would also take a second dose 30 minutes before the time runs out on your dose so that you do not experience an interruption- i.e. all of the sudden feeling like walking is too much work.

Keep in mind that this is my experience from growing up in a rheumatologist’s house, a HIGHLY specialized form of medicine, and having been her medical assistant for a number of years. The only reason I couldn’t follow her to Methodist is that the hospital required you to be certified as an MA, and she didn’t require that of me in her private practice.

Let me tell you why this is my recommended advice and nothing you should take as seriously as you should with your own doctor.

I have fucked up. Like, really fucked up. I read something wrong and told a patient something that was a note to her, not a note to me. It was in the same place that she left notes for me to give the patient when I was calling them back to tell them about their bloodwork. 90% of the time, it was innocuous, like “you’re fine,” or “the doc says you’re fine, but you need to take some OTC Vitamin D pills.” or whatever.

So, in this particular case, the note said that the patient had rheumatoid arthritis and I told him that. I immediately regretted it because he completely freaked out. I understand him so much better now that I’ve had my own reaction to autism. A patient’s reaction is not based on a medical diagnosis. A patient’s reaction is to the stigma around what they have. This man thought he’d never be able to walk again, and I was crushed. I switched into minister patois and got off the phone. Doc called back and cleared it up immediately. That was in the 90s and I still feel bad about it, even though she was laughing on the phone with the patient within minutes, and none of it was at my expense. Therefore, it couldn’t have been so bad a mistake that I was going to be punished forever.

Because here’s what no one tells you when you become a medical assistant. You become as attached to the patients as the doctors, especially the ones you’ve seen over years and years.

Even half the doctor she is could see that I would beat myself up better and more often than she ever could, and it wouldn’t happen again. I kept my mouth shut about all sorts of things, but talked inside baseball with my dad and stepmom as I learned more on the job and got into the rhythm. Because of my childhood, I am DAMN GOOD at patient care, because it is a job I can do while ADHD. It doesn’t get so overwhelming because you’re only talking to two or three people at a time, and when you’re in a patient room, you have enough bandwidth to talk to someone and take notes at the same time- now patients understand that you’re filling out their chart based on their actual dialogue, not what they remember from the conversation at the end of the day. I don’t know how other patients feel about it, but my stepmother and I type like demons. It was never a problem in our case.

And because I’m an IT geek, I set up the first content management system in the office, called “Soapware.” I don’t know and I’m too lazy to look up whether it was bought out and turned into something else, or whether another company’s content management system became more popular, like Centricity. I just know that it’s possible, because it happened to me at University of Houston. WebCT was bought out by Blackboard. It wasn’t the same product, the way I have loved and hated WordPress over time.

In any case, I can’t think of anyone who needs a content management system more than a doctor, one that connects to an encrypted cloud so that the files are always up to date when the server goes down. All you have to do is either fix the server and re-sync, or replace the server and re-download everything. No downtime, especially with physical backups off-site AND an encrypted cloud. With backups off-site, you only have to sync a day to a week’s worth of files, not everything on the entire system. However, with the kind of internet connectivity a hospital has (the ability to move images in RAW- enormous file sizes- in seconds, syncing a backup would take less than an hour, depending on how many TB of information are missing on the fixed/replaced server. By images in RAW form, I’m talking about MRIs, CAT scans, PET scans, etc. They’re ENORMOUS, and yet the connection can transfer information to the radiologist in seconds.

I learned this when I had to have a CAT scan of my shoulder to make sure nothing was torn. The x-rays were taken on top of a tablet that costs more than a Lexus so that it was SO fast with SUCH a stable internet connection that the X-ray machine itself could transmit the images. I was impressed out of my mind. It’s the same with any procedure. Broken leg, mammogram, whatever. Images fly fast and furious. Because the images were so large, I literally got a DVD (4.8 GB of space) full of images by the time I left the office. Beat that with a stick. It was a miracle I still had a DVD reader on my computer, though. ;P

In a hospital or private practice setting, the CMS does not just stand for “Content Management System.” It also stands for “Customer Management System,” because even though patients aren’t customers, you manage them internally the same way. Every patient has a file, and all of those files need to go into a database that contains your name, your address, your insurance information, and every note the doctor has ever written about you. It is far superior than paper charts, because again, they don’t expire. The paper doesn’t yellow and the ink doesn’t fade. I think you’re only required to keep medical records for 7-10 years, but I’ve had good luck with doctors’ offices that have digitized records, because sometimes you’ve gotten within the window where something has been scanned in by a doctor that just keeps everything on the server in case the patient comes back.

I have never had good luck with meeting gay teachers as role models, but I have had several queer doctors and all of them allies. I like the axiom in medical school:

“What do I do if treating someone conflicts with my personal beliefs?”
“Find a new profession.”

Here’s the other thing that I would love to do if I actually thought I’d be worth a damn at medical school. I’d go into trans medicine, which in my world the connection is vegan cooking. It’s an area I know absolutely nothing about. I got interested in vegan cooking because I was bored with my current repertoire, and I had friends making insane dishes that drew me to it, like mushroom pate and amazing olive oil pie and pizza crust. Salad with only oranges and shaved fennel.

Everything weird and exotic to the palate, I just don’t like filters. No liver, no kidneys…. however, if someone orders fois gras for the table, I will take a bite of the corner just to taste the crispy edges. Everyone else can have the rest, because even if I only eat the corner, I’ll taste it forever and the burnt edges are as much as I can take, especially if it comes with raspberry jelly.

I like nose to tail restaurants, because my favorite meals are very simple. Excellent toasted bread. Bone marrow to spread on it. A simple table wine. Maybe a salad.

It’s Mel’s fault that I love dessert because she’s a pastry chef and tempts me all the time. She keeps saying she’s going to mail me a postcard, and I can’t wait. I just don’t put any pressure on her because she’s in the middle of opening a new restaurant that is going like gangbusters. She hasn’t said one way or the other if she wants me to promote her, but if she does and you live in the Norwich area, you’ll want to stop by. She’s got some amazing pictures and they’re already doing well, like only being open for a few months and already being able to pay off their business debt. That is some seriously good food. I hope they get a Michelin, because The Michelin guide isn’t about fancy. It’s a travel guide. Even tiny restaurants get three stars, but then they become three star restaurants and create their own traffic.

(It’s also a brilliant marketing strategy- planned obsolescence for the tires no matter where you live.)

This leads me to a really funny story. My car needed tires, all four replaced. So, I go to this place called “Bridgestone,” and because I didn’t see any branding on the side of the building, I told them that I would take any set of tires, but that I preferred Michelin because I’m a cook. I looked like a pretentious jackass because I pronounced Michelin in French because it’s a force of habit. I. AM. A. COOK.

They looked me deadass in the face and said, “ma’am, this is a Goodwill store.”

The Sight

The sight of a blank page is intimidating, even in dark mode. There’s endless possibilities, and the longer you pause to construct your first sentence, the longer you’ll procrastinate writing anything at all. You cannot say you’ll start writing once the first sentence is perfect because guess how many years you can procrastinate off that one?

Sometimes I’ll go back and add a better sentence at the top if I think of one, because the slug on Facebook is important. Sometimes I don’t. It all depends on how much of a diarist and how much of a traditional writer I want to be that day. I do not compare myself to people like Ernest Hemingway (because he’s a novelist, not because I’m that talented); rather, I see myself more as a Dominick Dunne character from Vanity Fair. His only title was “Diarist.” His job was to go and sit in the back of famous court trials and write about them. I don’t write about trials, but some of my pieces (like the ones after the spy book talks) are reminiscent because I’m just taking in the whole room at once and writing it down. I would rather sit in the back and notice things.

Not that I can’t be a ham and make people laugh. I do that all the time because it’s how I know to relate to people. I often cover up how I’m feeling by trying to make the other person spit out their water. If they’re focusing on the fact that I’m funny, they won’t notice that…….. The list where that ellipsis lives is long. However, I think of that as The Leslie Lanagan Show, and being quiet in the back is my natural personality. For instance, when I was watching Jonna I was blogging the whole time. I just didn’t have my computer in front of me. When she’d say something I wanted to use, I’d make a note of it, etc.

I didn’t want it to be perfect, because I wouldn’t be brave enough to publish if I thought I had to aim that high. I just wanted to represent her accurately, always a challenge with people who are still alive, because you are not in their heads. You can only write your impressions of what they said, not what they were thinking at the time. I did not want to write something that made her wonder if I was even in the same room.

Twice, I have written things to be proud of, and I am. I think the biggest thing is that I wrote them like I write every other blog entry, as if Jonna and Tony aren’t my favorite writers in the universe and untouchable heroes, simply other characters in my weird little life. Because of The International Spy Museum, it’s kind of true. I met Jonna after Tony died, and we struck up a bit of a friendship.

The concept that she’s another character in my weird little life and not a deity is sort of alarming, frankly. I mean, who even am I?

Why do I keep saying things like this if someone like her knows my name?

It’s an issue.

I honestly think that the more known people are, the more they appreciate being treated like characters in my weird little life. That they want to be known as themselves, so they don’t have to be “on.” For instance, I would think it was way more interesting to meet Kamala Harris when it was just me, my sister, and some good music. That’s because I don’t care about the vice president as much as I care about her, if that makes sense.

Most Democrats have the capability to become characters in my weird little life because of my sister. She’s a lobbyist, so she lives in Houston (I’ve said this before, but new readers, etc.) and works in both Austin and DC on state and federal legislation. In her previous job, she had several states in her “territory,” and Maryland was one of them. We got to go to Annapolis and ended up in a regatta. We also found a great restaurant called “tsunami.” You really want the pork belly ramen.

I tend to eschew the spotlight, thus wanting to get to know the people Lindsay knows, just not in a place where everything is top volume and overwhelming. Cocktail parties are exhausting for me if it’s a lot of people I don’t know. I go into shutdown fast, selectively mute so that I couldn’t say anything even if I wanted to, because it would come out as stuttering while my brain lags like an Apple ][ e.

My thoughts come just as fast in person as they do when I’m writing. However, when I am writing, I can handle that volume of information coming at me because I can process it through my fingers at 90wpm. My brain cannot translate information into speech at half that rate. I get intimidated quickly and just stop trying. If it’s important, they’ll e-mail me….. Or, one can hope. Sometimes it backfires because it seems like I’m not interested in talking to people, and that’s not the case. I just like to take in my surroundings and read the room before I jump into it.

I’m not shy in the slightest. I have just made mistakes by not reading a room before, especially with my line cook loud mouth, that have made me reticent to talk first. In short, I’m trying to prevent problems before they come up rather than popping off and then having regrets. And by “popping off,” I don’t just mean anger. Sometimes it’s humor that makes people think “what the fuck is wrong with you?” The neurodivergent sense of humor is kind of dark, anyway. Then add line cook, where we’re all some kind of fucked up (I promise), and the differences between us and our neurotypical peers becomes even more stark, because we’re gathering in groups. You just don’t see it, because you don’t see that the kitchen is for misfits…

As Anthony Bourdain points out, it is a tribe that will have us…… And we know it. We are not built for office work or polite company. We are built to be aliens- because we are that different and also few people are educated enough about ADHD/Autism to really be able to understand it. One of the reasons that we seem like aliens is that none of our behavior makes sense to anyone neurotypical, and it’s always on us to adapt. There is a power imbalance that is unbreakable because neurotypical people have an air of superiority over “special kids.” We know it, so rates of anxiety and depression skyrocket when you also have ADHD/Autism. Not being able to navigate the world like a normal person takes its toll whether we’re talking about our personal or professional lives.

Autistic people have trouble in interpersonal relationships, even among each other because if you’ve met one autistic person, you’ve met one autistic person. It does not present in everyone the same way, and I often think after many hours of study that the kind of ADHD that presents in women and the kind of ADHD that presents in men is so different that women are probably at the autistic end of the spectrum and men aren’t so much. Their ADHD presents as aggressively hyperactive. It’s not that women don’t display these tendencies as well, because I was married to a woman like that. I just think that the “male” presentation of ADHD is more accurate, and that the kind of ADHD that only makes you stare out the window and get lost in your own little world is more likely to be autism. Therefore, the criteria is the same for all genders. It’s not that there’s more autistic women, it’s that more autism is being caught. There hasn’t been much research on autism in women, because there are so many women that are struggling and only hear “you don’t look autistic.” I get it.

But please know that because I am autistic, I can predict with 90% accuracy whether someone else is, according to science (really). Neurotypicals can’t, because they don’t have the pattern recognition. They aren’t looking for the same things, because people tend to equate autism with severe retardation. If you are high IQ, you fall through the cracks. People understand autistic people who rock, scream, etc. They do not know what autism looks like after years and years of social masking.

Here’s my pattern recognition and how it might differ from yours:

  • Your gait
  • The number of different foods that you eat
  • How many times you have to go to a private place during a party for some sensory deprivation
  • The way you talk, because there’s a specific patois to neurodivergence- conversations are spaghetti code
  • The speed at which you talk- if Aaron Sorkin and Amy Sherman-Palladino have nothing on you, you may be autistic/ADHD 😛
  • The look in your eyes when you’re overwhelmed
  • Seeing stimming that other people wouldn’t notice- for instance, adults condemn a fidget spinner, but not knitting your eyebrows……. and it’s the same exact idea for calming yourself
  • How often it seems like “you’re just not there”
  • When you are dialed into a special interest, and what happens when you’re facing drudgery
  • How clean people’s houses are, because all neurodivergent people suck at sticking to systems and live in piles- no judgment because if you came to my house you’d see the same exact shit you do
  • Living in piles and yet knowing where everything is- because we don’t fit into your systems, we make our own
  • The way you write an e-mail, because again, a specific patois- which may or may not match your voice in person
  • The way you talk about your task list when it’s clearly overwhelming, especially when it’s already overwhelming and it’s three things.
  • How well you can multitask
  • How well you remember what you’ve heard vs. what you’ve read- most autistic people take in things through sight
  • Whether you make eye contact, and whether it looks like you’ve been trained into making eye contact as opposed to it being completely natural
  • Perceiving social masking instead of genuine comfort…. If you have to appear at a party, you’re ready to go long before anyone else (it’s a universal “you,” but it’s me)
  • These are not all the criteria, but it’s a good start. This last one is just “et al.”

I am not the expert, I just have lots of education because I made time for it. I also have the lived experience so that when the MDs and PhDs were talking, I could understand my past behavior in a completely different way. It’s interesting that there are so many tie-ins.

A lot of people who are neurodivergent are INFJ as well. In order to be “The Counselor,” there’s so much that goes into it…. Mostly introversion unless you’re in front of a crowd. My examples for this are writers and ministers. With ministers, it’s easier to connect to a thousand people than it is to go to a cocktail party. With writers, they’d rather sit in their offices til Jesus comes than do a book talk. All of the publicity is a necessary evil, not what an author really, really wants to do.

Authors who seem arrogant are generally one of two things….. Trying to fake it until they make it, or they’re not really artists. They’re trying to sell books, and they know it’s not very good….. But it doesn’t matter because people will buy it anyway. For instance, all those non-fiction books on how to get rich without really trying. It’s not pulling pain out of you as a writer, which is what makes it art.

When you write crap, you’re never going to see the real point of being an author, which is to wrestle your demons- even in fiction. For instance, Mary Shelley poured her heart and soul into “Frankenstein” to talk about her relationship with Lord Byron. The book was never intended to start the sci-fi genre, and yet it did. Sometimes I wondered whether she identified more with Frankenstein or Jenny. Either is a hot take.

Jenny has never appeared on screen, but she’s someone who was raised with Victor as a brother and then somehow weirdly engaged to him. She was accused of something she didn’t do, and went to the gallows. The reason she didn’t do it is that the monster did.

It looks different when Lord Byron is the monster.

And now all the fright is over, because the page is no longer blank. On the other hand, to quote another marvelous author…… “Tomorrow, AND tomorrow, AND tomorrow AND tomorrow…..”

The sight is relentless, and turns pain into beauty…. But that’s only by going by and seeing the other days where the pages have not ended up empty. In order to understand my future, I have to understand the past.

It gives me the insight to make “The Sight” not so intimidating.

A little.

The Next Logical Conclusion

Now that I know I’m autistic, what do I do?

It’s quite daunting having to reparent yourself with the skills needed to deal with an autistic kid, only you’re 46. It takes so much energy to be you and parent you at the same time, and I’m sure this resonates with a lot of people. The best part of being an adult is that there’s no one to tell you to go to sleep. The worst part of being an adult is there’s no one to tell you to go to sleep.

There’s no one to tell you to pack your lunch. And there sure isn’t someone to tell you to take a shower. Because parenting yourself is something that “you should already know how to do by now,” and is squarely in the wheelhouse of demand avoidance and a desperate need to fake themselves out of it with social masking. It seems unhealthy and codependent, but having someone to social mask is literally combatting meltdown and burnout. It keeps our routines stable so that we don’t spin out mentally/behaviorally. I believe that exactly all of my problems with Supergrover stemmed from meltdown and burnout, it’s just at the time, I didn’t know how to voice that. I could not tell her “this is too much, I’m overwhelmed.” I would not back down. Meanwhile, my disability is working overtime to prove that I can help her, support her, all that. She has different friendship needs than most people, and I was trying hard to show that I knew why and respected it. In fact, most things she thought of as “crazy” were about respect, but you can’t help a little old lady across the street if she doesn’t want to go. She’ll bang her purse on your head.

There’s already a perfect end to her story in my head, and it’s more than I would ever hope for in this lifetime, but not impossible. It’s a phone call. She and Michael are telling me that we have an important event to attend. Or maybe it’s just the two of us- who knows whether said event would be as important to him as it is to us. That’s because the event in question would be honoring someone who thinks the world of both of us.

But right now, I need to disconnect. I remembered that I had some tags on Supergrover’s public page, and I untagged myself so that they weren’t public anymore- not even I can see them. I’m not worried though, because our relationship has never lived on Facebook. It’s been in the quiet moments of the night, where a blank page starts off as intimidating, and then feels like a blanket.

As I’ve said, I write about Supergrover to calm myself. Echologia to bring me down when I feel shortness of breath, heart, and brain race. That’s why everything swirling around me is creating shutdown in terms of not knowing where to start. I defeated it last night, but I’m not sure I have the energy to do as much today as I did yesterday. I’m what you would call “indoorsy,” so when I suddenly have to exert as much will and energy as possible when I don’t have it, the wind gets knocked out of me pretty fast. Going to the gym would make my body stronger, but it would not stop me from getting lost in my own little world and falling off the elliptical. I have done it thrice.

With my kind of autism, I take most information in through sight. I can observe and note human behavior, but my processing differences make it feel like a double standard. How do I know how other people act when I am nothing like them? Learning to social mask. “I think I can remember how to act like someone else I know.” I do not pick up the morals in a situation if they are opposite to my finely tuned sense of justice. I pick up how someone else has dealt with a situation. And because I’m imitating someone else, it feels like the only time I use my real voice is here.

But the reason you can’t claim you know me based on my writing is that you cannot see my third dimension, all the thoughts that don’t end up here. There’s a lot more I can’t say than I can, and the things I can’t say are harder than the things I can, and with the little knowledge I do have, that makes me cry and shake enough.

It’s not because I’m a naturally depressed person. It’s that digging down into yourself and looking at your worst flaws is the worst job on earth. I wouldn’t do it if it wasn’t constantly rewarding. More people identify with my writing than don’t, and for the people who don’t identify with it, or have a problem with something I’ve said, they’re free to bring it up with me…….. or not. But I already know that if you’re covering up a feeling, you’re going to treat me differently and have the audacity to say my perception isn’t real.

For instance, I could never tell where I stood with Supergrover because sometimes she was like a loving aunt/big sister character in my life, and at others, she said really hurtful things like “you only know random factoids about my life.” I knew this was bullshit, just a dart.

I know this because all of the sudden, when it was my story to tell, did she start having a problem with the things she has told me. So, which is it? Am I the person that only knows random factoids about your life and you aren’t worried about anything I’ve told you, or is that the brave face you put on when you know I’m entitled to my own stories? I know this because she told me I was entitled to all of my feelings, while also raging that I’d let go of information she would have liked to keep quiet and it was incredibly hurtful.

I don’t just know random factoids about her life, because if that were true, she wouldn’t spend time analyzing my work to make sure she’s still unidentified. She’s said many times that her story ceased to be mine and long time ago, so I thought nothing of writing about our mutual trauma because it is indeed what handfasted us. I couldn’t explain anything without explaining it first. Otherwise, I just look like a lovesick teenager chasing after someone who doesn’t want me. This is not correct, and it never will be. We’ve both loved each other to the best of our ability, and love isn’t enough when you both need to stop treating each other as if they’re trying to trying to fight you all the time.

It was gaslighting, and a lot of it, but not because she was a narcissist. She was afraid, and there’s a big difference. The gaslighting was pretending for years that we were fine.

Morgan Freeman: They were not, in fact, fine.

If I take everything literally, that you have no worries about what you’ve told me and you haven’t, that your stories aren’t mine anymore, etc., do I actually deserve her ire in this case?

It would be helpful to know so many things. How many people know she’s Supergrover, for one. How much detail do I need to hide because more people than just me know that identity? Who is my audience that directly affects you? Why are you waffling on whether I am a straight up problem or not? If I’ve caused someone pain, I want to know the specifics. Otherwise, I will spiral out for days and days trying to figure out what it is that I’ve said that they’re mad about.

She comes by it honestly, because for us to really engage, we’d need some time to ourselves, even if it was asynchronous. She doesn’t often have time to write letters that are anywhere near the length of mine, so I think that she thinks I always expect that of her, too. I don’t. But if I’ve had a specific need go unaddressed for years, I only want the problem to be resolved, not assurance that you have read every single thing I’ve ever written. Ignore the rest, it’s all chatter. But it really got to me when she said that I was so demanding of her time and ability to give of herself, when I have been saying for 10 years that I do not deserve her and I will take what I can get.

Anything above that is off limits, but when you don’t give me any limits, I’m going to dream that way. I wasn’t “being demanding,” I was dreaming of a time where she naturally had more bandwidth- retirement. But, you’re going to think that I’m demanding of your time if you never tell me what your boundaries are. She said that three words were all she could manage until I called her on her bullshit for months. That she had to stop not giving me information and blaming me for what writing came out of it.

A lot of this is wrong and misguided because we didn’t have any boundaries. A lot of this is wrong and misguided because I was using one concept for another. A lot of this is wrong and misguided because I said I could read facial expressions and body language. But not when I constantly get “all is well, you’re worried about nothing……..” right up until she’s so angry that being apart is better than being together.

I don’t think I was wrong for bringing up a problem so we could solve it. I did think it was a problem that I couldn’t make heads or tails of her feelings until she said enough words that I knew my anxiety was for naught. But how could I know that without any information at all? It was so confusing, and why I resigned the game. I was tired of constantly being confused. For instance, “you have absolutely NO idea what I’m dealing with,” scaring me away from writing at all…… and “I have had the choice, countless times, to stop what I was doing and didn’t.” Telling me you’re that busy while also running from me is unacceptable. It’s a coverup, and very conditional love. If I don’t walk on eggshells because you’re mad and won’t tell me that, then I can just fuck right off. Is that in any way a fair and balanced relationship?

How do I make you happy if you don’t seem happy with anything?

And by making her happy, I don’t mean that I have the capability to change people from within (although I have been told I do help). She has to find those changes within herself, because I’m not here to suss them out for her. Why she can’t be open and honest and has to stick to the people-pleasing schtick is on her, and I finally saw her get out of that rut……..

She stroked my ego mightily, and my chest puffed up. When she told me that she couldn’t control anyone’s reactions, she quoted me directly without realizing it. Or she did and she was trying to hurt me by throwing my own words in my face……….. and I turned out to be teary-eyed and impressed. I’ve always had the motto “help her, anyway.”

So, when I saw the same behavior in Daniel- get angry at someone for bringing up a problem instead of acknowledging there is one- I was out and quickly. The relationship with Supergrover destroyed me, and I didn’t want another 10 years of fighting a battle that someone needs to fight on their own. It’s not my job to tiptoe around anyone. When I told Supergrover that I had issues I wanted to talk about, she said that I should find friends who didn’t bring issues into my life. There is no such thing. It was Daniel’s first answer as well. If we can’t solve this in five minutes, our relationship isn’t worth jack or shit. It’s too much. If there is a battle inside someone, even two minutes of vulnerability is too hard and it hurts too much. They won’t let go because they’re afraid of losing control, but life doesn’t make sense until you realize you never had any control in the first place.

If I could tell Daniel what I know about my story, the most private parts, he would shit himself for saying I that “just because I wrote in bulk doesn’t mean I write anything of substance.” This is because I’ve never met anyone who could play “Six Degrees of Kevin Bacon” quite like SG. And she thought I wrote something of substance. I will take that ego boost over anything else that happens in my career. My ability to write could be taken away tomorrow and I’ll know that I accomplished every single one of my goals.

The first was to be seen and heard.

The second was to have people who identified with me that would tell me when they liked something and when I was an asshole with a God complex. That’s because I don’t have to take a single piece of your advice, but that doesn’t mean I won’t hear it. I will be angry and defensive at first, so I usually pop off and regret, another thing I’m learning to manage, because my response is always different than a knee-jerk reaction. But sometimes I write down my knee-jerk reactions because they’re important to prove to me later where I need to grow.

I also think that Supergrover and I should have a conversation about “painting my feelings as fact,” because I could write the way she wanted me to if I understood what she meant. And the reason I’d defer to her is that she was a writing major…….. and yet somehow still thinks of me as “the talent.” I do not know how to write in a way that doesn’t make anything look like a fact, because I am narrating a plot as well. She’s whipped my ass into shape as a writer before, so I have no doubt she could help me with this, too. However, I will do some research on autobiographical writing and see if anything resonates with what she said that gives me a little more context than wondering how and when I’ve been an asshole.

I play AITA all day long with myself, because it’s the fight within me of “say nice things” and “no one forced you to come here.” As I’ve said, the people in my real life knowing what I think of them is their choice.. If they want to be here, welcome. If you always have a problem with what I say, I encourage you to change the channel….. because seriously. Who even am I? Who cares about my opinion?

The only person that really should is me, because it informs how I feel about myself.

How I feel about myself this minute is that I’m proud I handled my move all by myself so that it is free to me- as in, I’m just going to hand my deposit and leftover rent directly to Colin on day one, and my rent hasn’t gone up, so I don’t have to make up the difference.

With Silver Spring, I have gotten two miracles in a row. Hayat and Colin were both the first people I called, and they both turned out to be right for me. Towards the end of April, I’ll have been here a full nine years, and I’m only missing it by a week.

I know from experience that we still might get one more light snowstorm, because when I arrived here in late April of 2015, there was snow on the ground. It was melting, but still. It had snowed on like, April 20th or something. I think I arrived on the 23rd.

Hayat texted me that it feels like it was just yesterday she picked me up at the Metro. I understand the sentiment, because in some ways, it really feels like I just got here. In others, this has been the longest 10 years of my life…… but so necessary in terms of growth and development that I cannot trade them. If I hadn’t become a blogger, I would not have seen autism coming. I would not have seen being nonbinary coming. I would not have seen how any of my friends affect my life, from besties to the smallest interaction.

It’s small interactions that get me the most, because I’m the worst at casual conversation. If I did something weird in front of you in 1993, don’t worry. I’m still thinking about it.

While I pack my “going to Zac’s” bag and try not to flip out that we’re seeing Jason Moran tonight. If I’d had time, I would have ordered a Senators baseball cap for the event, because Duke Ellington’s first job was selling peanuts at games, where he got to know Teddy Roosevelt peripherally because every once in a while Roosevelt would ride his horse down to the field.

So, if you ever doubt the power of living in Washington, remember that a middle class black kid from DC became friends with the President of the United States…………………. long before integration was even a thing.

In fact, that’s the perfect analogy for my life. I have the brain that’s capable of seeing patterns in world conflict like a president, but I have only managed to convince the people around me that I’m selling peanuts.

What I have learned through living in Washington is that people prefer to be treated like they’re all alike on a human level, and revel in friends who aren’t obsessed with who they are and what they can do for me, a classic Washington stereotype. Republicans sniff each other’s butts by asking how much they make.

People do that to me sometimes. Someone asked me how much my sister made, and it was so fucking rude. But, we were at one of Lindsay’s work events, so I didn’t want to go apeshit. I just said, “she’s a Democrat. Aim low.” The truth is that I only know she makes more than me. That’s it, because I don’t ask those questions, and she usually doesn’t volunteer that information except when she’s telling me what a job potentially will pay her if she gets it. I always tell her to aim for the stars, because not only does she travel, she eventually wants to live in a different state where the cost of living is a lot higher than Texas. She doesn’t know how she’d do it, it’s a pipe dream because she doesn’t often think about moving. But, every little bit helps when you are trying to save up for a dream.

I will use DC as an example because she doesn’t want to come here, so it’s not giving away where she’d look if she was actually interested in leaving Texas.

In DC, MD, and VA, buying a house here is ridiculously expensive, and the closer you want to “inside the Beltway” or “downtown living,” the price skyrockets exponentially. An apartment in the city is going to run you about $2500/month. Even in Silver Spring, you won’t find an apartment for less than $1,000…… maybe, maybe if it’s an efficiency. However, management companies are ridiculously relentless in raising rent, so you’ll be paying over 1k/mo in no time if they advertised cheap rent to get you in the door.

And, for $2500/mo in DC, you still only get a white box, especially in neighborhoods that aren’t riddled with crime. If you are in an area with violent crime, depending on where it is, you’ll still pay $2500 because it’s walking distance to the Metro or something like that. Housing does not go down when DC is only 60 sq miles.

Buying a house might be a little cheaper if you have the funds to renovate. You can get a good deal if it’s just a lot with a barely standing building. The land is the expensive part, not the construction.

But then you have to live in DC, and some of their laws are just plain strange. It’s weird that things come through the Senate, because DC’s needs are thrown under the bus by pork barreling.

Like, the bill will be something like “$15/minimum wage” or whatever it is that will do the city good, and someone will put a total ban on abortion in the bill. So, the bill gets struck down and the Republicans say “they wanted this minimum wage so bad, and then they didn’t even want to compromise.”

Make someone else look like that bad guy, because nothing you’ve done has ever elicited a reaction.

Global and national are the same as local.

Generally, if a person will react in a certain way, a country will also act like that. It’s a chessboard, and I see patterns all the time.

The important part is to just keep stitching. The quilt will come together eventually.

Or, with autism, maybe it never will. But I am not interested in turning myself into a person I was never meant to be.

The Prompt You Were Supposed to Get This Morning

What is the thing you most hate to be asked?

Are You Lookin’ At Me?

My medical diagnosis is “alternating lateral isotropia.”

What it means is that my eyes do not track together. I do not have 3D vision, which means that I cannot place an object in its environment. I have no depth perception or angle of convergence. The way it is different from a strabismus is that neurologically, by brain switches “cameras,” thus fields of vision, depending on which eye it thinks can see the best…. leaving me with no peripheral vision and also no ability to predict what’s going to be outside my field of vision.

It also makes finding things I’ve just set down extraordinarily difficult, something I’ve struggled with forever…. again, rewarding neurotypical kids for things that are very hard for the neurodivergent. When a teacher notices you lose everything, you lose all respect with them. It affects grades where the letter is an abstract concept, like essays. I wish I excelled at math, because there would have been no fear of rejection with every paper and I could have felt better about myself without a teacher’s approval.

It doesn’t help that the real non-medical definition of my medical condition is “lazy eye.” That irritates me, too. I’m a writer. Why wouldn’t lazy be a trigger for me? Trust me, I may not “work” faster than you (universal) because I don’t know how neurotypicals do it, but I think faster. It’s not because I’m neurotypical. It’s that my entire job here is reacting to life, so I feel practiced at it and more comfortable in my skin. Lucky enough to be as old as I am because the good experiences only start happening after you’ve figured out how to avoid all the land mines first.

It’s good I’m still workin’ on that.

But back to this whole “lazy eye” thing. It makes me feel lesser than, and though I know that doctors use it, they should know that for some people it doesn’t feel particularly favorable…. like “MDT” in Appalachia.

If you’re not a doctor there, you’d never figure it out. It’s not really something you can google, only something they’ve seen a thousand times and you probably haven’t. My cousin got his DO in West Virginia. Because it’s local slang for something I feel is pejorative, I won’t say it here. I’ll let them keep it to themselves because it would seem really mean outside of an emergency setting. Mostly because I don’t want people to shoot the messenger, not that I’m not brave enough. I don’t have to live there, but they do.

That was all bullshit. Of course I won’t hold back on you. If they’re willing to use it in a public setting, I don’t care about their feelings.

MDT stands for “Mountain Dew Teeth.” It absolutely will rot everything in your head if you are completely addicted, and that kind of exposure to sugar can absolutely kill you when you wait until it’s an emergency and septic.

People have had this addiction since Mountain Dew was a home brew. Long, long before it developed into a nationwide phenomenon.

There are also lots of other things that doctors don’t want patients to know, but they have to have a black sense of humor to deal with the pressure. It’s not trying to be mean, it’s learning to breathe. Think line cook.

So, I don’t know what doctors say about me behind my back, but I know lots of things they would say when lives are on the line.

Doctors’ hardest jobs are the cleanup from not having universal health insurance. They are bound by the Hippocratic Oath, yet it’s not an easy job when you are starting with fucked up. The ER is full of complicated cases where people have gone to the Emergency Room at the height of their disease. The part where it gets harder and harder to tell people they’ll recover from this.

Death happens at random, but it’s more likely when the odds are stacked against you. You think something is wrong, and wait to go to the doctor until you’re in renal failure. Other countries don’t have this problem.

Having universal heath care would help a lot of doctors’ mental health…. because there’d be so many less emergencies. It helps when you have time to prepare a plan.

I know all of this through talking to doctors when they’re off work, not by being a patient. So, I’m not as bothered when medical professionals call it “lazy eye” because if I’m at the doctor I’m already thinking in clinical mode, anyway. The emotion is not going to affect me, at least not until it accumulates.

People ask me all the time if I’m looking at them, and I don’t fuckin’ know. Your guess is as good as mine, and I am not in the mood for your bullshit ever. It’s always said with this curiosity tinged with “that’s so weird.” That’s why Zac can get away with making fun of me and no one else can. His jabs don’t feel like he’s punching down when he is also disabled, something I’ve never had in a friend or partner.

Disability is a relative term in the military. I don’t mean to imply that he is also unemployed. He’s classified as disabled, but he’s physically strong enough to work. It”s going to make a good pension for him, and I think he’s going to be really happy no matter what he chooses to do after this. It’s cool to be able to stand next to an adult when I feel like I don’t have it together.

Plus, there’s lots of soda in his basement, which adds to his charm.

Today, I’m going home because even though Zac is of and about, I wanted to wake up with Oliver. I wished Zac could have come with me, but the stars didn’t align for that one. I’ll just have to wait for Jason Moran at The Kennedy Center.

Oh, but here’s the best thing I’ve heard in a million years:

Leslie (texting a link): I know you’re not a huge fan, but I thought you might want to read my impressions of last night.

Lindsay: I AM A HUGE FAN.

I….. I did not consider this.

Ooooooooooooohhhhhhhhhhhhhhhhhhhhhhhhhh.

Awkward.

I Came Here to Kick Ass and Chew Bubblegum………. and I’m ALL OUT of BUBBLEGUM

If you had the power to change one law, what would it be and why?

That’s a quote from a movie I’ve never seen, “They Live,” but the boys I went to HSPVA with had seen it a million times and that’s the only line I know. But Arnold Schwartzenegger plays some kind of badass (as per his usual except my favorite, Kindergarten Cop). So, basically it means nothing to me in the context of the movie, but the frustration I feel with the American government so much of the time. Because I love intelligence, that annoyance runs the gamut from local to global.

I don’t like what we’re doing in Israel because I think no good can come of it. I think that every state not having Medicaid expansion is a crime. I think the way we treat soldiers when they come home from war is atrocious. I am starting to feel the burn in terms of groceries, because of course I spend most of my money on food. I know that in time, this will become the new normal because of course things can’t cost the same as they did when I was 25. I probably just sound like an old person, but it is the price of progress.

“Progress.”

It’s hard to choose what one law I could use to really make a difference, because there are so many playing fields. So, I think I’ll go local on this one. I would make it illegal anywhere in the United States to deny a trans child their medication.

People are making this a bigger problem than it is by a large margin. The debate is that these parents are either making their children do this to themselves for attention, or they’re monsters for believing their child and taking them to get evaluated.

I have come out as queer.

I have come out as nonbinary (but don’t care about pronouns, call me how the spirit moves you, I guess….).

I have told everyone that I have cerebral palsy, autism, and bipolar…… and that they’re all connected.

I have told the world that I’m poly to make it easier for other poly people to say something, because I didn’t plan it out. Zac just told me he had other partners and I thought, “can you really imagine giving a shit about that? You’re a writer. You don’t even notice when you’re home, much less someone else.”

In short, I have told people a lot of scary things, just throwing it out there and expecting them to keep up. I learned that from Aaron Sorkin. Never talk down to an audience, they’re smarter than you think they are. My dad was the same way as a pastor, and I started preaching as a layperson about the time The West Wing was in its second or third season.  I learned a lot about how to say things like Aaron Sorkin, that the music of the dialogue matters. That the reason he doesn’t let actors change even a comma is because he’s not listening to the words. He’s listening to the beat. To him, it looks as bad as coming in half a measure early on a rap track.

Therefore, I know how to say something loud and clear. Your entire body shakes in fear if you are not secure in that connection, and sometimes even still. Because I’ve had to say these things, I know how scary it is to tell someone you’re trans in a global sort of way. Everyone’s coming out experience is different, and it feels like trans kids are being treated now like gay kids were 30 years ago.

Your behavior didn’t change, you just found new kids to hate.

Meanwhile, the AMA and the APA opinions are entirely left out of the equation. Think about it. Really think.

Why would you ever come out as trans if you didn’t really need it? If a doctor prescribes medication, why is it your right to take it away? This is not about them. This is about you. We as a whole ass community are tired of straight people making our existence dependent on their comfort level. I will no longer kowtow to “that’s just how he is.” To me, it’s “I lived through the entire Civil Rights movement and I didn’t learn a damn thing.”

Statistics show that we have a hard enough time keeping trans kids alive in this country, and there’s a whole lot of people complicit in that problem.

I particularly hate the shot of Max Klinger on M*A*S*H* as proof that there’s always been trans women in the military. I get the joke, but it’s not funny. Being female was not part of Klinger’s identity. He was trying to get a Section 8……. because obviously acting like a woman is so crazy. Plus, he went back to his gender appropriate clothes when he realized he actually wanted to stay.

No trans person has ever gotten back into their old gender’s clothes and thought, “yeah. I could do this.” Body dysmorphia is real and it’s deep. It’s why trans kids kill themselves in large part, because their family keeps making them be who they’re not so that the trans kid can’t take up any room in the house, judged on every action that looks too feminine or too masculine.

Especially in conservative households, this is early and often. Kids don’t see an escape.

Because it a lot of households, their support system is the doctor that to them hung the moon because they didn’t say “you’re fucked up.” They said, “there’s lots of words to describe what you’re feeling. Let’s make you feel better.” Puberty blockers are temporary so that surgery is a long way away off. They’ve had years of living as their real gender before that’s even on the table.

What puberty blockers do is keep their sexuality from changing their bodies even more into the gender they don’t want, making surgery harder, like for an enlarged Adam’s Apple. As a singer, having it shaved feels really fucking dangerous.

So, it’s a lot. A lot they need to talk about with the doctor they’re not allowed to see.

We can do better than this. We are better people than this.

:::stares in Texan:::

Somewhere you got lost along the way with the queer community. You’ve got the “y’all are welcome” down. “All y’all?” Gonna need some work….. and you know EXACTLY WHAT I MEAN.

The clue phone is ringing, because the call is coming from inside the house.

Today’s Not That Bad

Describe your most ideal day from beginning to end.

I woke up this morning, took a shower, and got to the doctor. Turns out, I was within the range to refill my medication, and I freaked out for nothing. I was worried because my insurance doesn’t cover my meds if I try to refill them before a certain time. I do not know how or why, but my count was off by a few days and I was panicking…. until I saw my doctor.

She’s so great. I think she’s actually a PA, but I wouldn’t see an MD as an upgrade. She really listens to me. What’s really funny is that I always call her “Doc,” because she’s a PA. The MD’s name is on everything. She never says her name when she comes into the room. Therefore, I have an excellent doctor, but I couldn’t tell you her name if my life depended on it…. Now I’m laughing to myself, the greatest part of an ideal day.

I’m getting a full work-up because when I came in last month, my UA was off; I was on my cycle (I hadn’t realized it yet, but the test did). Then, I remembered several years ago that I’d done a UA for rheumatoid arthritis years ago, and that had been off for the same reason. So, not only am I getting my hands x-rayed, I’m getting my theumatoid factor checked- which I would not have known to do if I hadn’t been a rheumatology MA for a number of years.

I remembered today because my knuckles are particularly sensitive/swollen today and my doctor agreed with me that we should rule it out. I realize that osteoarthritis is just as painful, but if I have an autoimmune disease, I want to catch it early.

It’s funny that if the test comes back positive, I’ll be using all the same lingo for myself that I’ve learned for everyone else. That being said, again, osteo is no joke and I’ve been taking ibuprofen a lot lately. I am also of the opinion that we’re just ruling it out, because I’ve had osteo in my back and knees for years. Cooking is not for the faint of heart.

My spine is just as weird as I am. It objects to that.

I also got neurology and psychology referrals so that I can do the thing with both those specialties. I need the neurology workup because I haven’t had one since I was 18 months old and I’m still just as physically weak as I was then.

You’ll also be delighted to know that since I’ve moved to Washington and left Portland behind, I’ve made impressive strides in my quest for a higher Vitamin D level. The last time I had it checked, it was 6 (it’s been a long time). After all these years, I am proud to say that I have worked my way up to 6.4.

Progress.

I said, “Doc, I have a funny story about that. When my stepmom read my lab report the last time I got my Vitamin D level checked, she called and congratulated me for having the lowest Vitamin D level in the history of her 30 year practice.” She said, “I’ve seen ‘4,’ but you’re top two.” We both laughed that that one. But to my stepmom, I was living in Portland and visiting, so I said, “I’d like to thank ‘location, location, location.'” Now I know that’s not true.

Perspective.

What I didn’t know is that there’s a once a week medication for that, and I’m on it now. The regular Vitamin D pills do not work for me. They never have (obviously). A normal level begins at 30, and I hope that this medication works. Vitamin D affects your mood and behavior so much, and I think I’ll be grateful to feel so much better in a few months.

I just had a Dooce moment. She once joked about writing like a Southerner and she said “I AM SPARING YOU THE DETAILS OF EARL’S ANGINA.” This is absolutely hilarious to me because basically, I’m not. I’m a Southerner who loves medicine, so I’m going to blog about it.

I have so many stories about the hospital/office living vicariously through my dad and stepmom. I wasn’t in the patient rooms, but definitely in the lobby when we were there for a consult. I wasn’t really joking when I said I went to medical school in the back seat of a Lexus. I overhear a lot. I pay attention to a lot.

I can still tell you about the patient whose son hit her in the head with a frying pan (she didn’t die, but she was never the same). I can still tell you who my favorite patient was to mimic, because her voice was so damn funny. Absolutely not a slam, I just love the way people speak and I pick it up over time.

I’ve picked up “valid” from Zac. It’s a great answer to everything.

I’ve picked up the occasional Canadian “eh” from Meagan, but I use it infrequently because there are certain times when a Canadian would say it and when they wouldn’t. I can tell where it would fit into a sentence just by the lilt of Meag’s accent, and when I know I want to use an “eh,” she reads the sentence back to me in my head so I can double check.

I can pick out a million things that have shaped me from all my friends, but those are my biggest examples. The current and the first. 😉

I decided to stop talking about medicine because when Franklin and I lived together, no one wanted to sit with us because we’d go off into the way doctors talk when they’re amongst themselves and no one could even enter the conversation because there was no concrete way to jump in. If I didn’t understand something, he’d explain it because he knew I was perfectly capable of picking up what he was putting down. As a result, part of my ideal day is spending time with doctors, because I can relate and am genuinely interested.

I think I would have been a good doctor in terms of patient care, but I would have struggled mightily before I got to that point. I didn’t even make it to calculus in high school.

I never saw anyone do calculus, you just have to make it through it…. plus organic chemistry, a different kind of math. However, most of what I’ve learned in a medical practice vs. a hospital is that there’s time. You pick up so much more through social engineering than you pick up through facts. That’s because you have to prescribe for them and hope to God they’re telling the truth about what they’re really on.

A great example would be not telling an anesthesiologist you’re high. The gas man doesn’t need as much, and has to hope they don’t kill you by putting you so far down.

A great example would be not telling your GP that you’re taking Sudafed and Adderrall at the same time.

A great example would be telling your doctor that you’re depressed, but neglecting to tell them that you’ve been taking St. John’s wort for months. Most SSRI’s react poorly to it.

This is basically a public service announcement to tell your doctors everything. They’re not going to judge you, they’re not going to call the police because you do drugs (unless you threaten to hurt someone else, yourself, or you’ve hurt your child). They’re not going to try and get you deported. They’re the ones you tell. Always.

I have now had my X-rays, and I took off a ring I’ve been wearing since 2005. It was very, very hard- again, swollen knuckles. I should stop wearing it, but it’s such a part of me. But eventually, it’ll get harder to remove it for X-rays. I just like having a silver ring on my thumb, and have since I stole it from Katharine. She knew I did. I doubt she’d know I still wear it. But, that’s how it came to be on my thumb. Her hands were bigger. 😉 It’s basically a fidget spinner, and I use it to stim. There was no way I was ever going to let go of it.

Then, I finally had enough to drink that I could do the UA, because of course the moment Doc wants it I’d just been to the bathroom. I went down and got my pills, then shotgunned a bottle of water and a Diet Pepsi. I was worried that my teeth would be floating by the time I got back to the doctor’s office, but no. I just hope I don’t have to do this again next month because it was too watered down to see anything.

But, as Matthew McConaughey says about beer, “I like to dehydrate while I rehydrate.” I know I couldn’t drink him under the table unless it was Dr Pepper, and even then I have my doubts.

But I’m constantly rehydrating like a Graves Disease patient, but there’s apparently nothing wrong with my liver and kidneys. Seriously, I can think of very few times in my day when I don’t have something to drink in my hand. I prefer cold cans and bottles so it’s not watered down. Unless it’s Coke from McDonald’s. Let’s not get stupid.

It’s good to know that my weight is under control and I haven’t dropped too much with the re-addition of the Adderall.

I have more in common with my Skyrim character than anything else, because I also look like an elf at this point.

However, I am getting to be a better elf.

This is the perfect day. I had such a significant increase in my Vitamin D level that it really boggles the mind.

#winning

The Zoloft Hug

What’s your dream job?

If we are going on true fantasy here, my perfect job would be “psychiatrist.” This is because I don’t want to talk to you about your problems. I want to manage your meds and let you verbally vomit all over someone else. 😉 However, I don’t think I would have done very well in medical school since I had trouble in high school chemistry. So, if I really wanted to, I could get an MSW or an LPC and indeed let you verbally vomit all over me, but I can’t think of a job I would dislike more. It’s not because people have problems.

It’s that I tend to take on everyone else’s problems as my own, and I think I would burn out easily. This wouldn’t be the case if I was a psychiatrist, because those are 15 minute appointments just like every other specialty. I like talking about diagnoses, protocols, etc. because I recognize patterns. I know the different classes of crazy meds and what they do, generally because I’ve been on it at one time or another.

Even if I went back to school to become a pychiatrist, I know that in some ways, I wouldn’t be happy because there are drawbacks to every job. I wouldn’t like working for Kaiser or any other managed care group. I wouldn’t like fighting insurance companies because generic makes my patient throw up all over the floor and brand doesn’t.

I also wouldn’t like that in today’s climate, my advice would mean as much as the ingredients on a cereal box. People go to the doctor differently now. I think that drug commercials being on TV has led to this. You spend years in medical school, internship, and residency only to find that Karen who looks at WebMD all day has “more answers than you.” I am all for being an advocate for your own health. I draw the line at telling my doctors what they should prescribe for me. I feel like you need a degree for that?

No, Karen sees something on TV that she just has to try and if she throws a fit in the exam room, there are too many doctors who can’t be arsed to listen to it and think, “well, it probably won’t kill her.” I think what I really mean is that I would have liked to be a psychiatrist in the 80s and 90s, before everyone with the IQ of bean dip decided they needed to be on the Internet.

I do not know what it would be like to go to medical school in today’s climate, either, because they don’t do much to prepare you for running your own practice. I’d probably end up working for a hospital just so I didn’t have to make ends meet all on my own. I think that med students are better able to advocate for themselves when they get tired, but that’s relatively new. Many, many interns and residents think you should learn like they did, and they are not fond of “the new rules.”

The thing is, the doctors aren’t happy, either. It’s like working in a kitchen- you don’t leave when the restaurant closes, you leave when everything is done for the night… you can’t leave anything in process. While the hospital doesn’t close, there’s lots of both up and downtime. For a doctor, all this translates into the limit of hours you can work…….. being on shift for 11.5 hours and having someone code. Are you going to take your break or take care of your patient?

Hospitals in large part haven’t changed since the 70s. Michael Chrichton wrote a great non-fiction book about it called “Five Patients,” in which he explains the ideas I’m talking to you about now in detail…. it’s a short book, though. If you’re interested or if you know someone going to med school, I’d recommend it to you or as a gift. It’s gritty and real, and though I don’t remember the other four, Peter Luchesi stayed with me.

But if I jump out of fantasyland, I think I already have the skillset I need to launch me into a more well-respected writer. I don’t know that I want to put energy into a different basket than that.

But whatever job I write about, perfect or not, that’s the point. The real job is not the doing, but the remembering…. and I have that covered no matter the subject.

Even medicine.

I Have No Heart or Brain

How have your political views changed over time?

They say that if you are a conservative when you are young, you have no heart. They say that if you are liberal when you’re old, you have no brain. They do not suggest the unexplored third option, the permanently exhausted political science student who really doesn’t like any of you. 😉 Actually, I think it’s also due to age. Gen X (technically, I’m a Xennial) is now the adult in the room, because people older than us don’t understand technology, people younger don’t know how to function without it. We are the hybrids that remember what it was like to function on paper, the glue holding pre- and post- internet together.

If there’s anything I credit with my political views changing, it’s being in college before the Internet was really a thing. I was still fascinated by T1 connections at that point- you mean it’s always on? I don’t have to dial into anything? Plus, when I got to university, I was studying poli sci in school and my boss in IT was also a lawyer.

A lawyer who had a t-shirt that said, “Charter Member of the Vast Right Wing Conspiracy.” Today, this would be ominous. It was 2000, so I still laughed. I’m not sure anyone knew back then how this whole thing would turn out, but I didn’t have Donald Trump on my Bingo card, I’ll tell you that much.

I will say that I think younger people than me are coming up with the best ideas on the liberal end of the spectrum, and I think what being conservative in your elder years means to me is deciding which of these ideas are too wild to fund and which ones are worth pursuing. At its heart, universal basic income is a good idea. Other countries have implemented it and it works. But how do we scale up something like that without breaking the funds available for such a thing?

When it comes to money, I want everyone at the table in terms of ideology. I want James Baldwin and William F. Buckley on every single issue, not what passes for dialogue now. It’s not a good idea if you can’t explain a liberal idea to a conservative or vice versa. That’s because 99% of the time people don’t get what they want because they don”t actually know the question.

The liberals don’t have worse ideas, they just can’t sell them. I think it was Aaron Sorkin who wrote that originally, but it has stuck with me. The Republicans demand complete buy-in and loyalty, the Democrats don’t because we like free thinkers. While not a bad thing, this has cost Democrats DEARLY and they have no idea how to fix it.

I’m including me in that statement, because I’d like to see the party embrace bigger and better ideas, but also to have a concrete idea of how to fund them. There is no sense of polity in the Democratic Party, because both Bill Clinton and Alexandria Ocasio Cortez are Democrats, but their platforms were/are worlds apart. Hillary Clinton’s is closer, but that’s only because she stayed in presidential politics longer.

I am definitely a Clinton Democrat, because it’s the lens through which I take in information. I voted for Bill in 1996, my first election….. although I also went to the Republican convention in 1992 and was thrilled about it, because back then it was just a chance to go to a major convention, because first of all I was a child and couldn’t vote. Second of all, George H.W. Bush grew to love both Clintons, so I think he’d forgive me for voting for them.

In terms of the way I was raised, I didn’t really know anything about my parents or grandparents’ political leanings until I was older, because they didn’t wear hats like they were pitching for either party. The only thing I remember from being a young kid is that my grandfather did not like LBJ, because of the Viet Nam war.

Fair.

But if you do a little digging, you find that it’s not the whole story. The thing that people are most known for isn’t necessarily what is going to do the most good or the most damage from a historical perspective. I agree with my grandfather that LBJ made some terrible calls during Viet Nam, but we also wouldn’t have gotten Great Society passed without him.

It is controversial to the general public, but not in political science circles to say that Lyndon Johnson was objectively a better president than John Kennedy. That when you take away the mythology of Camelot, Kennedy was wonderful for the American image and Johnson was more effective legislatively because he knew how to whip. I do think that John Kennedy deserved to be president, and that he was good at it- most political science students agree that it would be easier and more fair to compare both of them at full term, but we’ll never get that chance.

What I do not think is that we’ve managed to capture the fever behind one idea like “Great Society” that will get us elected….. and The New Deal before it. We need people on the extreme fringe of the party to come up with the new and better ideas, so that the more conservative members of the party can red team them. It’s not “shooting everything down,” but it seems that way because a red team’s job is to take you to the mat before you’re in front of the Republicans.

When I think about red teaming now, I think about Molly Ivins, who was not afraid to call out hypocrisy or bullshit on either side of the aisle, and was in fact more mystified by Texas politics than anything else. She thought it was wilder and weirder, and proved it every day in her columns.

I am not standing outside looking in, I am definitely a Democrat. But at the same time, I do not discount conservative ideas. I discount bigotry, and that has become 99% of the Republican platform. How we got here is not really a mystery. If you’ve studied the rise of Hitler, you know that what is happening now is what happened in Germany- the people were starving for a leader, and they chose the most racist asshole they could find because he parroted all their shitty beliefs.

Trump is not Hitler in his later years, but we’re ignoring the signs of fascism nonetheless. Here are two things that you really need to take in about this, and they’re important:

  • Trump discredited CIA on day one. He went into their house and told them point blank that he trusted the Russians more than them. So, the message from day one was “don’t believe the intelligence experts that have historically been the best in the world, and only pay attention to me.”
  • Trump discredited the journalists. So, not only should you not believe the raw data coming out of CIA (filtered for publication through State and the committees on intelligence in Congress), you should not believe any stories written about it.

Trump has the same outlook on domestic policy. Don’t read any stories about me, only look at me. Meanwhile, he’s not really running the country because he doesn’t know fuck all. Getting his whole family security clearances was downright offensive to the spies I’ve met, because that is not a community you join easily or lightly. You have to be trusted beyond a reasonable doubt to carry that kind of information, and I’m going to go out on a limb and say that Jared Kushner is not one of those people, and neither is Donald Trump.

The president of the United States WAS NOT QUALIFIED to see the documents he saw, and managed to show other world leaders things that he should have had in his possession because he’s the president and should have had enough sense he was actively harming American interests.

But that doesn’t matter, because he’s a Russian UI.

Putin’s revenge for Khrushchev’s treatment by Kennedy was to make us implode, and I believe it worked. There are people who still believe with a passion that the election was stolen due to Russian interference that Trump welcomed. Trump didn’t want to be president. He wanted to have been president. I believe that he sincerely thought he was going to lose, and 2016 was a bid to get more people into his DC hotel, not a legitimate presidential campaign. Hillary and Donald have known each other too damn long for either one of them not to see through the other’s bullshit, and I don’t think that Trump really thought he had a chance, which is why he was such a total asshole the entire campaign. I honestly think he was wondering “what do I have to do to lose?” By the end.

But we elected him anyway, and the rank and file judges and State employee jobs stayed open for months because there was no one to direct presidential appointments.

People, the damn president of the United States didn’t know he was president of Puerto Rico, and that’s just okay because people in the US don’t know that, either. Do you think that the president is less the president to our territories?

The president also commands lots of people overseas being Commander in Chief and American representative in global affairs. Honestly, the fact that Trump got to be that for us is alarming, and other heads of state noticed. Do you really think that Justin Trudeau, Angela Merkel, Jacinda Barrett, and especially Sauli Niinistö (president of Finland- rake the forests? Get out of here with that bullshit.) and Kim Kielsen (premier of Greenland- I’m sorry. You want to buy WHAT now?) were in any way impressed with us at all? The only reason we didn’t lose the plot with the UK is that they’re experiencing the same wave of conservatism that we are.

If there’s any way in which my political views have changed, it’s by leaving the Democratic and Republican parties alone and just doing my own thing by studying world systems. I’m looking at the forest, not the trees. I love dating someone who works in intelligence, because I am with someone who also has the ability to look at global systems and not get stuck in the minutiae of daily life. The world looks different when you’re talking about countries at war and humanitarian aid and everything that comes with it, vs. the fact that Chuy’s is too far away for my liking and Whole Foods continues to be out of the veggie dogs I like.

Perspective.

Years ago, I was on IM with Supergrover and I was telling her that I was having a really crappy day….. and that one of my cases to call back didn’t have a name at the top, so I dialed the number and the woman answered “Doctors Without Borders.” I died for a second because absolutely anything I was thinking about that day melted away with perspective. There’s never going to be a day in my life more stressful than being a doctor in a war torn country.

It’s like working for NASA and actually being an astronaut. Not the person on the ground that has every resource available to them at a moment’s notice. No, the guy who’s stuck in a tin can having only what they brought with them. IF MSF doesn’t bring a medication with them, it may be unlikely to get a local supply. We’re not talking total health here- we’re talking HIV vaccinations and TB tests.

So, again, if we’re talking about politics, then I’m probably not the person to ask how to fix the party.

But I think the first step is leaving your heart and mind out of it, and committing not to elect someone who tells you that what you’re seeing and hearing is the truth, when he’s just the mouthpiece.

In this case, you should absolutely pay attention to the people behind the curtain. They’ll be the ones trying to save us from ourselves.

The First Chapter of Something, Probably

This entry is so long that it’s dedicated to all the people who have told me I should write a book.

One of the reasons that I love Carol so much is that she has two archetypes at the same time. She is a fictional character, but close to my heart because she has Lindsay’s personality and my special interest, which I’m learning about from Zac. He cannot reveal sources, methods, and locations, but that’s not helpful in fiction, anyway.

I want to know how intelligence officers and analysts work at the office, because even though Zac is not a spy (he works for a data collection agency) that world attracts a “type,” and that type just happens to be the one some of the characters in my biggest work in progress need. He is also neurodivergent, which adds to the mystery of how he personally deals with issues when he can’t talk about what’s actually going on and handles information differently- and companies/the government view disability differently across sectors. There are federal standards and unique cultures to every office. They can’t make autistic people look autistic because that’s illegal. So they make up bullshit language around autism that describes our behavior accurately, but not the reasoning behind it. We have to act neurotypical when we’re not or we’re severely punished.

That doesn’t look like disability in a performance improvement plan. That looks like rude, overemotional (meltdown), lazy (burnout/demand avoidance), inattentive to detail (ADHD), underperforming given intelligence (not in any way true at all) and potential (I’m smart as FUCK if you’re arsed enough to see it……. and everyone does until I exhibit a disability. This is also why I don’t do any better while married than I do while having a job. Talk to 50 autistic people. We agree.).

Not being strong enough to lift 60 pounds of flour when I just can’t, yet cerebral palsy, autism, and ADHD are a real thing and we should definitely accommodate you……… in the beginning, when I am social masking because either I’m trying to get a job or, more accurately, the process of sitting in a room with a couple of people and discussing the job with humor is a skill I have because the sensory load is at a minimum. This is tragic because I don’t want the personality of Elon Musk. I want his power, and not because I need it to lord it over people. I need it because I can make a job that revolves around neurodivergence instead of having to fit into a system.

There’s a reason I want to be like Oprah, Brené Brown, Martha Beck, Glennon Doyle, etc. It’s because they all created their careers and made their audience come to them so that they didn’t have to compromise who they were to be successful. I also know that some of them are neurodivergent, even if they aren’t ADHD or autistic. Depression gives you demand avoidance so deeply you can’t take care of yourself because you can’t make yourself respond to your own demands, either.

It’s what creates the need to sleep too much, eat too much, drink too much…. or go the other route and do none of these things, my route to making it through the dark. I drink with Zac when I feel the worst about myself because that’s when I perceive I can be hung over without incident….. then fuck around and find out. It’s why I like non-alcoholic beer so much. It’s the equivalent of having several “water rounds” without actually taking one. However, I’m not bothered at a party where there’s only hard liquor and soda, because I have no problem enjoying the mixers separately.

My favorites are Schweppes Bitter Lemon and Tom Collins mix, but I don’t drink them often because they have lots of sugar. Since I avoid sugar, I drink diet tonic water if it’s available, because you really, really can’t tell the difference when the forward note is quinine. You can’t even tell most of the time when there’s gin in it if you add lime. (Incidentally, my friend Mel says that when we meet up, she’s going to share a bottle of the finest Norwich gin they have to offer with me. Until then, my favorite gins are Hendricks (plain, I’m a purist) and Tanqueray Rangpur Lime. If I have to choose, Rangpur Lime and I’d rather have one martini with it than five with Tanqueray O.O, and not because I wouldn’t like it (haven’t tried it yet). It’s because Rangpur Lime doesn’t come in a zero.

My favorite mocktail so far was made for me at a vegan restaurant that no longer exists in Portland, Oregon (no vodka gimlet with blueberries as garnish). It was called “Portobello,” and it was started because my across the walkway neighbor had the same thought process I did. He was a butcher for a very, very long time and got bored. Same, dude. Same. He gravitated toward vegan because it was the latest trend, and at the time none of us knew anything about it; getting away from meat was exciting. He was doing it before anyone else.

The best meal I ever had was comped, as were all our drinks. Dana and I had every mocktail on the menu, plus a couple of cocktails on the house. We also had things like creamy cashew Alfredo, mushroom paté, very cold and crisp salad with oranges and julienned fennel (actually, chefs, I think it was a batonet but I’ve slept since then), and desserts at the end where pastry had taken recipes for things like cheesecakes and tarts and made them out of soft tofu or Daiya cheese, the root of all excellent vegan pizza- believe it. Melts better than mozzarella, but make sure it’s double cheese (crumbled Beyond Italian sausage is insane). They also made puff pastry as good as I’ve ever eaten using only olive oil and not butter. It was revelatory, and started a lifelong affair. I don’t cook vegan entreés because it’s comforting. I cook vegan because I’m bored with everything else.

It has become another autism-level special interest, as evidenced by the fact that it feeds my blog. In essence, it has become one of the three special interests I’ve never given up. Intelligence comes from my great uncle Foster, where every time he’s ever come up in conversation I’ve strained my ears- better when no one thought I was listening. I know more than they think I do because I remember shit. Cooking comes from Dana. Writing comes from me. It was handed down to me by my grandfather (PR) and my dad (pastor) and my mom (music teacher). This is because my mom and dad’s careers weren’t focused on the written word, but their creativity always showed through whatever they were doing.

The only reason I say that my dad’s creativity didn’t come through writing is that public speaking is a different gig, even if you have my social skills. Just because you know to isolate when you don’t have to be in public to save energy doesn’t mean being in front of people every week doesn’t come with challenges whether you’re autistic or not. All people have a social battery, mine just doesn’t last as long as most people I know. This is true of most autistic people. This is because they think they’re healthier than they are when they’re high functioning and have a few good days. Then, they beat themselves up for having a disability. It’s a vicious cycle because as with a mental illness (which I view as separate from having two processing disorders), the undiagnosed don’t realize that the cycle will never end, they will never “get it together,” they might be suddenly employed and unemployed a lot due to meltdowns and burnout but not be able to pinpoint why, etc.

That’s because until you have a diagnosis, you think all office and relationship criticisms are the truth. That autistic means narcissistic, that autistic means rude and unpleasant, that we are worth accommodating for six months at best because it becomes too much, too fast.

I know this because Supergrover was just as flabbergasted by my reactions as every boss I’ve ever had, because they didn’t pick up ADHD or autism, and that’s not because they wouldn’t have accommodated it. They couldn’t see it because I couldn’t tell them I had it. Therefore, I believed I was a lazy, manipulative asshole a hundred percent of the time when in reality my autism makes me two things. Seemingly two-faced- being able to see a problem from multiple angles when agreeing with both parties is a straight up problem. It makes me seem like I have lied instead of evolved. This was particularly true about six or seven years ago.

I now use my blog as a “separating the men from the boys” test because I can’t not. That’s because it clearly shows people two things right off the bat, before they even meet me. The first is that if they’re going to be in my life, they have to make the commitment to appear here. It is non-negotiable because my blog is already popular and I’m not tanking it for anyone unless it’s absolutely necessary. And absolutely necessary is not relative.

Only for Lindsay and Supergrover have I ever changed anything, giving them editorial control after the fact and been sorry I didn’t give it to them before I published. It’s not because I view their careers as more important than mine. It’s that I’m a flexible enough writer to switch to something that doesn’t revolve around my life because I’d have time to let both them and an independent party review my work before it went out. It’s the bargain I made by being Lindsay’s sister and Supergrover’s Gonzo (because our relationship is a “whatever.”). I genuinely feel about Supergrover the same way I felt about Sam. That my intensity was all over the place and even if she didn’t want to be partners, my feelings for her were strong enough to say “pining after her is stupid when she’ll actually give you time with her if you don’t (in Supergrover’s case). In Sam’s, I would have been her bestie even if she’d broken up with me.

The reason I would have and don’t is that I felt like she was the friend who would always make me anticipate her needs if she wouldn’t talk about the biggest one and dumped me in a hot second. We talked about me dating/not dating Zac for three whole weeks and she waited until I was with him for our first date ever and crushed me at his house.

So.

Even if what I did had been considered cheating (and I feel it wasn’t because I communicated my boundaries loudly and so did she), I didn’t. She took the time and effort to punch me in the stomach while also trying to make a good first impression. I wasn’t even used to my environment with either of them and had to cope with both of them being threatening at the same time. I knew that if she was the kind of person who waited and exploded like Supergrover, I was not going to spend another moment worrying about her, because that’s problematic whether we’re friends or in love with each other, and that experience was hard fucking won.

I don’t give my friendship away to just anyone anymore. That’s because I know it will get deep fast because I don’t have the capability to not. I agreed to marry Daniel in a hurry not because I was in love with him, but because we made the agreement to be partners whether we fell in love with each other or not. He wanted me to be a military dependent so I could get my shit together, being extraordinarily kind as we worked out the details of being able to travel all over. It was a secure environment, not a romance.

It also allowed me the room to make him secondary in my mind because he didn’t care one way or the other. One of the reasons I like dating men so much is that they activate a different part of my brain…. but it’s never in the context of not being queer. In fact, it’s the opposite. I will date a bisexual man or make my straight husband culturally queer and that’s non-negotiable. I will not ever project heterosexual privilege and I will do it without having to wear rainbow shit.

I don’t care if other women think I dress like a lesbian and therefore must be unaware that I’m really queer…. taking me aside and telling me that I’ll never be happy in my marriage, etc. As I’ve said before, it’s the most common story. People assume the most common ending.

The answer is obviously not “The War Daniel” is my fianceé and he doesn’t have a lock on whether I’m bi or not.” Cutting my hair this way and wearing men’s (or size 16 big boys, pants are highwater, tho….) clothes is just being loud about the fact that I’m queer no matter who I’m with. It is not a coincidence that I am more comfortable with bisexual men than straight because being queer and showing it is important to them, too. For instance, the queer employee group at Zac’s intelligence agency is organized and Zac is the president. No one in even 3,000 miles in any direction would peg either of us as straight.

Again, straight women should give bi men a second chance if they’ve been afraid in the past. Bisexual doesn’t always equate polyamorous, that stereotype has been reinforced because society made queer behavior unnatural and the only way to get by was having a wife and kids. Therefore, there were both gay and bi men married to women that were happy to varying degrees. The ones who weren’t bi just lied. Bisexual people are often incredibly monogamous and can be married to either gender with intensity. Gay people can’t.

Gay people taught me early on that I couldn’t be both, so I’ve apologized to Ryan for it many times. I didn’t have to break up with him to explore my sexuality, other people gave me the impression that now I had to because I’d thought about women in that way…. that it changes you so you can’t switch back and forth. You are a Jedi or a Sith. Being a Sith means hiding with heterosexual privilege and keeping your sexuality on the downlow because you CAN come out, you just don’t. Being secretive about your sexuality hurts our community more than it helps you, because you’re biting the hand that would feed you if you helped change it.

Heterosexual privilege helps change legislation, but first it helps cultural attitudes to be visible. It means the world to me that Supergrover wears a rainbow Apple Watch band, because it’s not for me and yet it is. Someone once told me that the rainbow flag was a privilege I had. That straight people shouldn’t buy them on their own, that it should be a gift a queer person gives you. Not only am I glad that Supergrover wears “me on her wrist,” she’s the one I’d let wear my rainbows, too. (Incidentally, Lindsay has also worn rainbow shit since forever and works more closely with the queer population than I ever will.)

The one thing I have that would mean a lot to me to give her would fit in with her whole vibe because she’s a beach bum. It’s a white puka shell necklace that has rainbow shells in a few intervals. It was $10, but priceless to me because I got it the day I went to the Supreme Court to wave flags for Obergefell, certainly the most important SCOTUS adventure into queer rights since Lawrence v. Texas. But she doesn’t have to wear it, and I only say that because the colors would last longer if she didn’t. But like I said, the gift nor the love underneath depend on the recipient; whether she takes it to said beach isn’t my jurisdiction. 😉

The reason she’s a yellow string for me is that these are the things that would be important to me to share with her. Meeting up at Capital Pride would be on brand. She and her first/current families are all the kind of people that would show up together and not make it a thing- which I would not have understood in the 90s and not because my family wasn’t like that. They weren’t like that until I told them. When you know better, you do better, and if you never say anything, you’re part of the problem.

My work to do is to learn anger management, because I am programmed to think others assume I am broken, because that’s how they treat me a good bit of the time. It is not an unearned reputation. Right this moment, I do not have the tools to deal with autistic rage, and I did not learn about this until I read “Spare,” by Harry Wales. I don’t care if it was a ghostwriter, I learned so much about myself that I was glued to it. I read the whole thing in seven hours.

This is because Wales is also neurodivergent, and even if he’s not autistic, people with PTSD (anxiety, depression- possibly ADHD because Wales struggled in school and he’s also very bright- emotionally intelligent while the rest of his family is not, etc.) also deal with demand avoidance, burnout, and fits of extreme rage.

Harry has had PTSD and lived his life like a combat vet for 26 years. I can’t remember exactly, but that would have made him between 12 and 13 when his mother died. I know that because his worst trigger is the click and flash of a camera. He didn’t for one moment run from England because of his family and you can take that to the bank and cash it. Harry would have lived quietly ever after in any castle they wanted if they’d only put so much security on Meghan she couldn’t blink without someone noticing.

What his “family” did was stir up the same racist shit in the British press that groups like the KKK stir up here. You are the enemy when you stay silent. Their inaction told him everything he needed to know. If he didn’t take Meghan somewhere else, the British press would kill her, too. Despite outlawing slavery earlier and getting over it faster in some ways (many more POC/queer/disabled people on television in Britain), the first black princess was not going to get away unscathed. The entire UK fucked Meghan Markle by the whole country down to Prince William being obsessed with “Suits” on Netflix and not bothering to keep Meghan safe when it really counted.

The bitch of it is, they’re not even sorry. It’s okay because Harry has money, so fuck him. That’s the tape that plays in his head because that’s not an unearned reputation for the people around him, too. And that’s how he thinks his public think of him. When his family doesn’t listen to him when he says he’s struggling, he has to find other people who will.

I doubt we will ever meet, but I know I could step off a plane, hug him, and go for drinks like I met him in elementary because we speak the same language. My dad was a public figure. My first experience with PTSD was when I was 12 years old and my house burned down. I was diagnosed with bipolar when I was 21, ADHD and generalized anxiety disorder later. I have been afraid I was borderline for years, but I’m not. I’m autistic and ADHD. That’s why even close relationships alternate between obsession and complete disinterest. I do not nor have ever had an attachment disorder.

It’s the opposite. My people are my safe environment, and neurotypical people don’t often tolerate neurodivergent partners because they become their caretakers and resent it. This is because nine times out of ten they will not do the research to understand what they’re taking on beforehand, and there’s only now enough research on what female AuDHD looks like for the layperson to even understand it. People do this when they find out they’re about to raise an autistic child, and there’s a ton of research on what it’s like to parent one.

They do not do the research in the beginning phases of a relationship so that things don’t go wrong later. There are also now a ton of videos explaining to bosses the tips and tricks it takes to work with autistic people so that communication gaffes at work are kept to a minimum…. and it’s not just bosses, it’s HR education as well.

YouTube has been invaluable at giving me self-esteem by explaining my disabilities so I could stop being embarrassed by them; those vloggers gave me tips and tricks for fooling my brain to work around them (except the CP, that’s a whole other thing). That mental health goes up and down, but processing disorders are permanent. My executive function cannot be corrected with medication.

Ritalin is just a tool in dealing with ADHD, and it often doesn’t work for two reasons. The first is that people think that if they can concentrate with coffee, then getting on Adderrall must be better. Then, the jump between caffeine and Adderrall is too much and the hyperactivity/impulse control/demand avoidance/anxiety about it gets worse…… but not enough to stop.

That’s because it induces hyperfocus just enough of the time that you feel it’s worth it. A good example as to why people stay on it despite caffeine working is basically “a cup of coffee or two would do it, but I like the rush of energy drinks.” That’s why neurotypical kids get addicted fast. They only feel hyperfocused when it is induced…….. and because they’re neurotypical, a cup of coffee or two won’t do it. Induction takes the equivalent of purified meth. This is a huge trap for teenage girls, because first it makes them stay up all the time. That means either they can party harder or they can study like maniacs, literally without blinking.

I have never been addicted to Ritalin, Adderrall, or Concerta because it’s not appealing to me. I hate it with a passion. The second reason it’s a bad choice is that you constantly feel the pull of mentally well and physically sick. This is a huge trap for neurotypical girls, and I know this because more than one has asked me to sell my prescriptions to them (I told them to fuck off because they didn’t know what it was like to need it. I learned that day I was capable of cursing at church.). This is because they’ve noticed that not only does it improve their grades, they lose weight quickly.

And then, whether you like purified meth or not, your body will fall apart because of it. If you see documentaries on crystal meth addicts, you know what is happening to us. It’s just that because it’s more purified, it takes longer for us to look like that on the outside. The worse your ADHD gets, the quicker it happens, because either you have to up your dose because of tachyphyllaxis (a drug getting less effective over time, then correcting for it), or having to go to extended release because you can’t handle the crash between medicated and not.

Meth is not like taking Lexapro or the other SSRIs/mood stabilizers/St. John’s wort. ADHD meds can be equated to anxiolytics (Xanax, Klonopin). You don’t take it for six weeks so that it builds over time and your serotonin is stable, that even if you miss a day (you’ll get physical withdrawal), you won’t have to step down the dose and restart.

The exception to my protocol is a mood stabilizer called Lamictal (lamotrigine), and not necessarily that it would cause depression or mania. One of the side effects is a skin disease I absolutely will not show you. Google lamotrigine for all your JAMA-level horror porn. Meth is the same delivery system as a benzo. You take it, you feel the ramp up, and when it’s gone, it’s gone. That’s why extended release benzos like Klonopin and extended release meth like Concerta are so important. If you’re at work, you can’t have a crash in the middle of the day, even for an hour.

Not being able to do that requires you to be able to take a pill about 20-30 minutes before the first one wears off, and that’s not always possible. Both my SSRI and ADHD meds (when I’m on them) have to be taken at the same time every single day, because even being 20 minutes off will induce a tinnitus-like effect in my ears and a monster headache. When that happens, I cannot help but go into autistic rage because I can’t focus on anything but the emergency broadcast system testing in my head. That’s because all my medications affect different brain chemicals.

The worst time this has ever gotten in my way was the unveiling of the Obama portraits at the National Portrait Gallery. I would have been able to see them in person and I missed it because I was away from home. I’d agreed to stay with Lindsay in her hotel that night, heard about the unveiling on the radio, and was just about to HA (haul ass) when I realized that none of my meds were in my bag. I can get by with a Xanax and a Lamictal, because the Xanax will control the serotonin loss for a few hours (at best). Nothing will stop the Lamictal from kicking my ass. It’s what causes all the auditory activity, making my autism and ADHD unmanageable because I cannot handle my environment when my sensory issues aren’t even external so I can fix them.

My last boss was great and dismissed me in the middle of the day to take an extra long lunch and get my medication as long as I came right back. Luckily, there was no traffic that day, so I did it in a little under two hours and just stayed late. That’s what I mean about ADA accommodations, and if we’d used our work from home policy at will, it would have worked flawlessly. My favorite days at Alert Logic and Decision software were work from home. I alternated between going into my office for overnights and forwarding my office phone to my cell because my boss recognized that staying up all night was easier in our own comfortable chairs and at our own desks. Plus, we could lie on our own couches for a nap at lunch. I went to bed. Once. If you take a nap on your couch, it’s much easier to move again because after an hour you’re uncomfortable and yet rested enough for another four hours of work.

However, screen time for me at night is like poker. Often I don’t need a nap because buy-in is at midnight and you don’t notice the time because your adrenaline is hyped up by the nature of the time. “Rounders” is my favorite B-movie because of it. There are few movie characters I love more than Mike McD and Teddy KGB. Shoutout to Joey Knish.

Martin Landau nailed the 99 theses to my wall. It was a revolution inside me and not in front of me when he told the story to Mike about wanting to be a rabbi, but for all the studying he did at the yeshiva, he never found God there. He said that in “Rounders” before I even started to connect that for me, God had left the building…….. but his monologue was the seed to realizing I was built the same way. It is left unclear whether studying at the yeshiva made him an atheist or spiritual yet non-practicing.

I have decided that I am the latter. I reject the Biblical literalist interpretation of grandfather in the sky and have traded it for secular humanism…… but not entirely. This is because believing that there is a thread of energy between all of us is what created religion in the first place. We are not worshiping the divine, we are the divine.

Science gives us the what. Religion gives us the why. It is why both are needed in our society, because there needs to be exploration of ourselves in both directions. To focus on one is to not understand the world, because secular humanism, like any religion, focuses on how to “bring the kindom of heaven to earth.” It’s just Christian language for cleaning up the hell that’s already here when you’re on the social justice side of the equation. The prosperity gospel is ridiculous, as is the idea that Jesus would support anything that didn’t have to do with community organizing for the dispossessed. That’s what got him killed. Even Neil Gaiman knows that.

It was so much easier to work in my level of quiet in any situation, whether it’s writing, studying theology, or IT. That is absolute silence. Additionally, if I forgot my medication or just wanted another soda, I could get up and get it without the bother of office gossip in between. I’m so good at it and make people laugh so often that it causes hyperfocus interruptions and I can’t transition back to work very easily- and not in terms of laziness (or demand avoidance because I’m in the dark literally to again, tamp down ways for my ADHD to cause “the fuckening.” It’s the idea that up until that moment, your day was going so well.). In terms of building my hyperfocus back from the ground up every time I need something, it’s a tornado effect. I can experience my disabilities and then do three days of work in six hours.

This is because my disability requires me to prepare my environment before I can be comfortable in it. However, the tape of what I need to do is still running, so it’s not like I’m ignoring the work. I am preparing to write it down. This shows itself in everything from notes to official documentation, because it’s all written communication. Notes were scant when I was in a cubicle farm and perfect when I was alone….. or as close to perfect as my ADHD would allow.

It bothered me that they recorded all our conversations and dinged me for the writing all the time. It’s that it would have been an accommodation that truly helped me because I did not have the executive function to explain a problem translating technical terms to English so that my customers understood what was happening (I was explaining things to a layperson like opening or forwarding ports on a router) AND write down the thought process of the experience the customer was having.

Then, I’d get overwhelmed, have an ADHD/Autism moment, and not remember the conversation verbatim so I could transcribe it…… when they could have easily given me a few moments at the end of the day to summarize each case before I went home by giving me the recordings as well. But they were somehow sacred and it’s my voice? I’m not even putting the burden on the boss to listen to every case in this instance, because that would take hours if they listened to everyone’s every one. So, listening to every case is up to them. It would be an ADA accommodation whether the onus was on either of us.

This is how I won two Rock Star awards and lasted less than a year, basically getting fired for neurodivergence. The reason I won the Rock Star award once was that a coworker was listening in. The reason I got the award twice is that I got a call at three in the morning, forwarded by the vice president of the company. He didn’t want either of us to hear the click when he hung up, so he listened to the whole thing, unbeknownst to me.

I got a page of text from him, a personal note saying he couldn’t believe how charming and chatty I was at that time of night, and loved that when I learned he was in the UK, I said, “I have to ask a question of you that I ask all my British friends. Who is your Doctor?” He said he didn’t watch much anymore but that it was Tom Baker. The vice president of one of the best companies in the world knows my name.

By the end of the letter, I knew I’d won his heart just as much as he’d won mine. I just didn’t win anyone else’s over time because they loved me………… at first. Then, they thought of all my quirks and limitations as dumbass attacks. I never had a genuine issue, but things did get better working from home.

Conversations were always in chat. Even better that at home I had access to my stereo Bluetooth headphones and all our apps were web-based, so it was cool to have a Mac or a Linux box at home. Back then, I had a 27-inch flatscreen iMac (running either OS because both are *nix); I wish I still had it, because it was certainly fast enough to run a word processor, a browser, and an e-mail client, even in the days of Adobe Flash (Flash will run on The Ten Commandments before it runs on an Apple tablet). It was the best of times, it was the worst of times and the winter of our discontent, riots the language of the unheard both because I wasn’t heard and I didn’t understand the problem.

At Alert Logic, I had more days at home in the middle of the night, and at Decision Software, our working from home was limited to network outages and snow days, only in daylight. It started my day more naturally when I started sleeping with the sun. I got up early because I wanted to write on the train, which I took unless I was meeting Lindsay somewhere and needed to get there fast. This led to me getting to the train between 0700-0730 because it tamped down my sensory issues to write when the train was less full.

I was often the earliest employee because of it, because I’d go in as soon as the door opened and fuck around until it was actually time to work. A in, I’d get there at 8:15, have some Maxwell house and a donut, talk to my office mate (a godsend because we were both quiet coders), take my meds, wander over to the web team or the IT guy and see what they’re doing.

I was mostly talking to the IT guy about linux because even though I was a marketing database development person (and bad at it), all IT people are unix geeks stuck in a Windows world because businesses only know how to lock down one OS, even when we’re capable o creating the same policies you have for Windows ourselves. As an aside, if you know unix, you know Linux and vice versa. They’re not exactly the same, but the learning curve is small.

Therefore, it’s a short leap between system administration on a Mac to a System 76 (the most famous Linux pre-built computer company). It’s like learning Microsoft Office first and then trying LibreOffice because it’s free. Not the same, but intuitive.

When we suggest new operating systems because they’re more secure than Windows (in 99% of cases),you’re not handing a chef’s knife to a child. You’re giving your IT department the latitude to keep more people safe.

Plus, at work we generally have fast enough hardware to run a virtual machine and work in Linux so network administrators don’t have to mess with it. All of our IP information is bridged from our Windows settings. The point is, network administrators and “IT guys” are the creatives in business working under a chef who doesn’t want to let us experiment to make anything better…. and they’re pretty mean about it considering we’re the subject matter experts. It affects network security in terms of intrusions from the outside world, privileges and credentials on files inside the organization, and data recovery loss.

You know, the trivial stuff.

Keeping a network free of intrusions means you have to work like a spy or faster. Virus signatures come out faster than foreign intelligence cables.). The certification to be able to get authority in the field takes a tremendous amount of effort, something that managers rarely take into consideration because it’s not their reality. It’s also how companies get fucked because they don’t listen to the autistic programmers/people in the security operations center (SOC) or network security operations (NOC) because they’re lazy, rude, and in a bad mood all the time (that’s HR speak for autistic). Meanwhile, they’re incredible at their jobs because they’re stem autistic. Coding and system administration is their single interest and they’ll go at it with everything they’ve got.

A creative autistic fits nowhere into this equation because STEM autism leads directly to profit. In short, their behavior is excused because businesses and governments need them so badly. The NSA will even take in hackers who have previously been black hat if they’re good enough. Same with DoD. What’s more important? The hacker’s past or national security?

Black hat hackers can program rootkits that are small programs hidden in the RAM of a server so that they’re impossible to find. This leads to things like CIA and State getting their lists of assets/confidential informants leaked and things like that. I could smack Assange, Snowden, and Manning upside the head no regrets for what they did, because we won’t know what they’ve done to covert ops for 50 years, if not a hundred. It’s humiliating that the call was coming from inside the house. What if any of them are actually Rick Aames and don’t know it? When he turned on us, we lost 10 assets in one summer. But a group does know, and the group is pissed with lots of underlings, whether it’s the president or the Director of National Intelligence, and they all have the right to be pissed, too.

But this is a situation in which someone could say the complete opposite and I’d agree with them, because I don’t think that keeping things from the American people is always correct. I just think that they more than likely made us bite off more than we could chew and obviously didn’t care or didn’t think of that. Audacity is worse, because no one sees the whole picture of intelligence, not even the president of the United States, because we can only give them as much as we have….. but we are the best set of intelligences agencies the world has ever known, so there is room for as much excellence as we can muster while also recognizing our mistakes. However, NSA has the most power in the room and I would argue the most power in the nation because they basically have a lock on HUMINT (human intelligence), especially because they can figure out ways to watch people when they don’t know they’re being watched. People freak out that NSA might be watching and give up their paranoia willingly when a terrorist is caught on camera making bombs that were planned for, say, the twin towers. But what you must remember, Americans who are terrified, is that Russia, China, and every other civilized nation is also watching you. But NSA is also the only one who can go to bat for you if you are located in the United States and get on the radar by mistake. No one can issue an apology except a United States court, provided there is also video of your innocence.

People generally think about what the NSA is doing to them, not what they’re doing for them. I know for certain that Russia and China have the most eyes on me because that’s where I’ve had the most bots since 2003. I have already learned that even when I mean something innocently, people think it’s not. What makes me think that the Chinese or Russian government would give me a break? If I said something that pissed off the right person at the right time, I’d want to know that I was innocent so someone would go to bat for me. In short, if you get international attention, don’t do anything wrong. Getting caught on the radar by accident is saying something that is legal here and illegal there. In Russia and China, it doesn’t take much and I’ve already had a blogger friend who escaped to Hong Kong then came back to the US. With stuff like that, you never want the US to have a reason to let anyone extradite you, especially when you’re queer. You also don’t want to get yourself in the position of being a prisoner exchange if there’s a chance in hell you did anything that would be considered illegal to the FBI.

If you are an American overseas, it’s better to let them extradite you because you won’t go to trial in a country that’s more harsh than ours. For instance, I’d rather be in an Australian jail than the US, but in a US jail over Mexico or Iran. Considering I’m more likely to be caught over the Internet saying things people don’t like, Russia and China are the countries most likely to care…. even when your critic is an American who fell in love with the Cold War and criticizes it in order to make the future better, not to piss people off. It is how that vlogger views China, a bilingual American married to a Chinese woman. He was only trying to improve his community and country- escaping a future in prison for his trouble.

If you’ve made it to the end, I hope it was entertaining to see me ramble like an AuDHD contradiction in terms. But it’s because I can explain so many things that one tangent leads into another- sometimes more smoothly than others. It’s how I get jobs, literally. I got one of them because my resume appeared among the search results at Maryland Workforce Commission. The CEO of the company Googled me and thought I was a hell of a writer, even commenting to everyone that since I’m a hell of a writer, it was only fair that he let me take pot shots at his stuff.

But writing about all these topics doesn’t mean I can do all of them perfectly forever without accommodation because I’ve proved it in every job I’ve ever had. Bosses do not take the ups and downs of autism well, partially because they can’t see it and attribute performance/attitude to other things. It’s partially because companies say they want to accept you for who you are, but don’t actually help you get there because they say they are welcoming without policies to support it.

It reminds me of my first marriage in the business sense of the word. The reason Kathleen and I got married was because we were in Dupont Circle (then called “the froot loop”) and picked up a copy of the local queer rag, The Blade. In it was a statement from the head PR dude that if you got a civil union in Vermont or married in another country, ExxonMobil would have to honor it. The problem was, they couldn’t. We were the first couple that asked for those benefits and the lady at HR I talked to wasn’t even aware that the publicist had made the statement to the newspaper.

Therefore, the policy on queer issues at XOM revolves entirely around me. I deserve all the credit because Kathleen is a hosebeast and I’m just not going to give it to her. She sold my Yoda (I never could have afforded it. I won it in a contest, life-sized so it scared her and she sold it while I was out of the house when it was a collector’s item that would have appreciated- nearly one of a kind.). And I honestly could have forgiven her infidelities if she’d just decided to be Jack Kennedy about it. I mean, tell me, but I don’t care. The problem was the lying. Eleanor wasn’t threatened by Lucy because Franklin wasn’t threatened by Amelia. I’ll get over it. But that’s what I think now. Back then, I would have been threatened af and worried I wasn’t enough and all the things. Now, I write so much that I need more alone time than most girlfriends would want me to have in the first place.

But what I didn’t do is have ADA accommodations there, either.

I cannot be blamed for keeping it tight because I didn’t know. I had to talk about it and couldn’t. My bosses and partners were every bit as responsible for communication gaffes, therefore we both had to be responsible with future interactions. An employer owes an employee ADA accommodations just as much as neurodivergent people have the right to ask for them.

However, I know plenty of people who say to their partners that they’re neurodivergent and what issues they have with thinking, giving them specific information that is very important and all close relationships blow off. For instance, moms are obsessed with baby books. How often do fathers read them? Mental health is just as important as the medical development of a baby and the health of the mother. When you have mental health, sometimes your executive function crumbles and demand avoidance becoming things like not being able to take a shower because the change in sensory environment is too great (I experience this more in winter unless I drag my space heater into the bathroom with me…. a lifesaver when I make it about 80 when I’m in the cold water.). Things like this are why working from home is preferable, too. It ups my productivity when people don’t care if I stay comfortable and work in pajamas and a hoodie.

I am not making the case that autistic people have to limit themselves to pajamas. I’m saying that they need more leniency on the dress code than most people due to sensory issues that impede their performance. For instance, I’m sure it was a huge damn deal when offices started allowing women to wear pants because wearing skirts instead is hell on earth when your sensory issue is bare legs, and let’s stop pretending that’s not an issue for all women considering razor burn and having to shave whether they have road rash or not.

But the trend of making the skirt part of an official women’s uniform went out a long time ago. Now it’s accepting that autistic people need the flexibility to show up in pants without a tailored waist, a soft t-shirt, and a hoodie (which is not cheap to do when you want to look good enough for work and yet tamp down everything that will bother you once you leave the house. Pain before beauty is not an option for anyone, much less people with sensory issues. I am pointing this out because of Steve Jobs and Mark Zuckerberg. They both wear (wore) the same thing every day so it became a decision they only had to made once…….. and owned their own business so that they could do that because no one enforced a dress code on them. I would say it helped them be successful. But what do I know? In 20 years, people won’t even know their names (this is a joke, they’re immortal for evil or for awesome).

Mental illness affects everyone from princes to paupers, but if you know one mentally ill person, you know one mentally ill person. If you know one ADHD, autistic, or AuDHD person, you know one of us. People have preconceived notions about how alcoholics, addicts, and neurodivergent people should or could act, and they impose their standards on everyone else. No, every one is not “a little bit autistic.” I hear that a lot. Everyone has problems, but few are reinforced in processing disorders and depression/anxiety stemming from them. The pressure of internalized hatred of neurodivergent people makes our disabilities worse. The pressure of showing up to a job when you’re seen as problematic often induces meltdown and burnout, essentially being paralyzed with indecision in the moments you don’t already have a social mask for something. And that’s before anyone gives you a demand to which you can’t respond right away. That’s after you’ve conquered the demand avoidance over the things you need to function. Being unable to ask demands of yourself feels the same as being paralyzed over possibly hurting someone else.

But here’s the thing. Lack of accommodation only helps to keep what employers view as “problematic behavior” under wraps. We cannot be trained like a dog into neurotypical responses and wait until you get frustrated enough to fire us over it because we can’t mask at all times, forever. It’s exhausting, like having a job at work and a job that never ends when the world doesn’t adjust to include us. “Less productive” is relative when you’re talking about autism and ADHD, because performance depends on communication and neither party is good at it. Mainstreaming sucks, but neurodivergent people get irritated, too, because not every autistic person’s quirks will line up with mine and vice versa.

But I started this journey by thinking about Red Mist rage, because Harry Wales thought about it first.

If you were him, you would have been beside yourselves, too. When Princess Diana died, Charles told him, patted him on the knee, and left the room. They didn’t expect him to ignore the press once. He felt hung out to dry the first time, too.

Would you have let it happen again?

Being neurodivergent is knowing when to run, because people who love you will want to give you accommodations and the people who don’t might want to, but don’t educate themselves and think they’re the expert because Mary down the street doesn’t have the same symptoms as me, or masks differently so that her symptoms make her seem like a better person than me when we don’t have the same disorder. Perhaps she doesn’t have depression, anxiety, or ADHD. Everything in medicine is one diagnosis…. “it depends.”

I hope that Supergrover eventually reads all of this, because she would have empathy for my plight like none of my other friends would on many, many levels….. and I learned about all of this so recently that she doesn’t know about any of it if she stomped off when she said she did. However, I told her that she needed to keep reading, keep absorbing, so maybe she didn’t because I decided not to feel creepy about it.

I feel weird now, though, because emotions are coming up that I don’t want to dive into, so let’s get back to food and Zac and Oliver, who is a dog.

Said vegan chef needed something better for his computer to promote the restaurant, and his eyes lit up when I told him I’d sell him a tank of an HP printer that wouldn’t die if you took a baseball bat to it and would print 40 black & white pages a minute for forty bucks. Thus the reason why our whole meal was comped and we went back several times just to watch him be creative. It was devastating when they closed.

I keep up with the news to keep up with Zac, because even though he’s not forward deployed with an intelligence unit, I know more about what’s going on with him emotionally if I have some idea about the data he’s collecting. That shit causes real pain. Working for CIA (or DIA, or NSA, etc.) carries a certain cool exterior, but no one ever thinks about these people being the first to learn that terrorists have blown up an elementary school. It doesn’t matter that it’s thousands of miles away. If you learn best by reading, that intelligence will wreck you for a minute because all the info is heightened because of your ability to take it in completely, even sensory memories you’re only imagining and have never happened to you. It’s the same for friends at State and those who have other government jobs where they have to travel to dangerous places. It makes me wonder what might have happened had I made a bigger play for a diplomat I dated for too short a time. Her next posting was in Niger, and she ended up taking someone else because I was so hesitant. It was too fast. I couldn’t change my environment so quickly yet again…. I mean, I can, this was just a couple, three years at most after I moved from Houston to DC. I feel that I dodged a bullet if she was dating me and also found someone to marry in like six weeks. I wasn’t threatened by going to Niger because she was. If I got caught being queer, it would be with her. I was threatened by change and I finally learned to recognize it.

Until I found out I was AuDHD, I didn’t know why I had so much of a propensity to change everything all at once and yet severe sensory issues afterward that were akin to the pain of childbirth. You stop remembering how bad it was after a while and it gives you the crazy idea that a new location is better when it’s not. It’s just destination addiction brought on by poor impulse control. That magnifies when your partner is also ADHD. So, give people a break when they do stuff impulsively. It’s not a defect, it’s a disorder…. and in a lot of ways, the things that we do that seem impulsive to you are absolutely the right answer for us because we process emotional information differently and sometimes more quickly than a neurotypical brain.

We’re not better than you. That’s not the point. The point is that you are beating a dead horse with saying you want diverse candidates and yet your attitudes are the same old shit. There are a lot of words that resonate with HR that make you look like a lazy narcissist who only performs half the time because every time you walk by their office, they are staring out the window. It’s not shutdown and having to psych yourself out of it. It’s avoiding work.

Hell is taking 50 support calls in a day because the policy on time spent with a customer is ridiculously short to make Service License Agreements; everything runs together in terms of writing and talking at the same time, then the next call coming immediately for eight whole hours, four of which are in a row. That fries neurotypical people and not just people fighting through loss of executive function, the meltdown/burnout cycle, or 57 channels that are all blaring and they have to have so much emotional strength to choose between them. That’s why the pace of life is so much better in Europe for neurodivergent/queer people. First of all, the UK and many other countries are more progressive than we are on things like gay marriage and trans medicine. Gay marriage might be old news, but revoking it isn’t. They also have a generous sick policy and wouldn’t argue with me over taking an hour for a therapy session or a med check, even if it was a couple minutes over my allotted 60 minutes.

My health care would be free, so that’s something. It would have been amazing to emigrate to Canada when I was dating Meag, but that was never really a viable option because first of all, we were only apart for a couple months at most before she found someone else, moved in with her, and then broke up with me. Second of all, completely forgivable because we were both 18 and that screams idiot, anyway.

I still think, though, in my heart of hearts that she was the one. But not in a way that makes me want her back. Just that I think we’d have settled into marriage very well once we stopped being idiots because we had a much more natural yin and yang than “my way or the highway” and “suppress everything that’s wrong in order to please her.” And I don’t know for sure, but at least long ago there was a part of Meag that felt the same way, because she told me on a very cold day in an Ottawa Starbucks that she thought we’d made the right choices in life, but regretted that we didn’t get to be partners as adults because she thought we would have been good at it. I choose to believe that she was right, and it fucked me up; I was still in the “she was my first love and I’m over it and all, but no one can say they’re ever really over their first love” headspace. It pulled me in the wrong direction and I cried myself to sleep. In retrospect, it’s the biggest compliment I’ve ever been given, it just took me a while to take it in….. but not years of pining away. I got better after I smuggled Cubans back into the US one trip.

It was one thing to recognize that we had a great past. Quite another to promise each other the future. I think, though, that if we’d put the mountain of work into it that the relationship actually needed in terms of communication, I’d be singing “O Canada” right now. And in fact, I’m glad Meagan dumped me because “I’m Irish. If anything is wrong I’ll just deal with it for the rest of my life.” Meagan had issues that I would not have wanted to take on given the red flags I already saw. It’s not that I saw red flags. I saw an unwillingness to work with me and no idea how to solve that problem. I didn’t have any standards and just lived in a low self-esteem that thought nothing of taking away sleep and replacing it with internal histrionics.

I’m not sure that Meag ever really took in how much she hurt me, because she can apologize all she wants and I accept every one. It’s just that her frame of references were different than mine, therefore she could not understand the problem like I could. I could handle Meag having a beard because she wasn’t out to her parents. I could not handle watching her kiss him or hearing that she did at a party because it started the meltdown/burnout cycle, followed by the depression/anxiety combo meal. I was all for ethical non-monogamy to keep up appearances for her safety, but I didn’t want to be an accessory and I completely was. I enabled absolutely everything that hurt me because I was used to every day emotional abuse and needed it to function. I let her hurt me over and over, forgiving her too fast every time because I didn’t want to be alone…… the drumbeat of a woman’s heart.

I accepted enormous change. My girlfriend couldn’t be my girlfriend in public. I could not mention that she was my girlfriend in conversations to people where it would get back to her friends, thus making an entirely different friend group than her, because most of them did not accept me. I was just the weird girl who acted like a puppy in front of Meagan and I assure you that was not what was happening there. She was on me like white on rice and I loved every minute of it. But I had to deal with my sensory environment being threatened every time a new piece of condoned infidelity came to light. It was more okay when it was a boy because she needed a beard. Sleeping with another woman was just cruel, and not because non-monogamy is bad. Lying and cheating is bad, like coming home and getting into bed with me until I fell asleep right after said date….. when she smelled different and I said nothing. I didn’t find out until she was ready to tell me, because I knew it happened unofficially and didn’t need to pry. She didn’t “protect the path.”

However, I know more intimately than she does why she cheated and let it go. It was too painful to have a connection as large as ours, so she slept with someone else to distance herself from me to have the strength to go. Moving back to Canada was her only option, and I’ve seen that since the beginning- that I should have broken up with her on the last day of school and just didn’t.

I didn’t date anyone for three years after that, and her partner knew exactly why because I was only in town for a few days (or she was and had brought her girlfriend to Houston). Therefore, we flirted like 18-year-olds while never being a serious threat…. except to Katharin. Katharin punched a hole in the wall when I told her that Meagan was spending the night at our apartment, and this was after I told her that her partner and daughter were coming with her and she was staying with me as well. There was enough room for all of us, and Katharin focused on Meagan and me, as if we were hell bent on sneaking out in the middle of the night (which was not actually a bad idea in retrospect given how we’ve come to feel about both women, frankly. We’d just moved past the time in our lives where it was appropriate to want it.).

I also got a taste of what being a parent meant. That it was getting up at 0500 and hauling ass to Waffle House because kid is on a schedule and we’re fucking late. It was then that I knew Meagan and I would have been wonderful parents had the stars aligned, but a passing thought to a falling star, a beautiful memory that could have happened had we been diligent about it.

She needed to open up more. I needed to deal with the disabilities I didn’t know I had. It is also true that pegging us as Glennon and Abby is more accurate than it isn’t, I assure you. We both turned each other out in the same behavior with equal and opposite reactions. My joy in her made me a better writer and fluent in the language of the pitch. I write about the same shit Glennon does and Abby’s voice is indistinguishable from Meag’s in their podcast. It’s not the same pitch, tone, or tambre. It is the same jargon and my mind makes up the rest. She is within me and without me, and sometimes she’s so heavy I just have to lose myself in the music.

Damn, I may never write a paragraph more true that that last one. Shiiiiiiiat. If I ever did get her back, this is it. However, she’s another person I won’t let back into my life without significant work, because she’s proven herself both not to lay her feelings on the table and disappear without a trace. You get one or the other, not both.

I can handle insecurity in dates and times at which we might see each other because that’s the nature of being an adult. I cannot handle an insecure environment, and I cannot count on it with her because of her past behavior. It doesn’t mean that I think she’s less wonderful that she was a few paragraphs ago. She’s just free to do that with someone else. An anxious attachment requires care and feeding because it’s one person’s responsibility to help the other person with anxiety by being clear in communication and not avoidant. It’s the other person’s responsibility to control their anxiety and communicate clearly in return. For instance, an anxious attachment says that if anyone says they’re busy, it’s because they don’t want to spend time with you. An avoidant attachment style and an anxious one is managed by being clear about what is happening. It’s on the anxious person not to spiral out about it and assume that your reasons are actually lies. It’s on the avoidant person not to avoid direct confrontation and hear people out without emotionally detaching and feeling guilty, making up for lack of emotional intimacy with genuinely thoughtful gifts that are supposed to say everything you want to hear and don’t.

Words have power, and I know that. I have known it my whole life. It just wasn’t until I started exploring all my flaws and failures that I could see why they exist. It helps prepare me for a future with neurodivergence, mental health issues, and being physically disabled because I have a space to see it and self-soothe. I am actually managing the best way I know how. I am not a constant burden or ignoring all my responsibilities, and I can see it because I can tell what’s a symptom and what’s not. I will never have truly long relationships without that give and take, and in no way did I get things for which I couldn’t ask. In many ways, I was ignored if I did.

The most embarrassing autistic meltdowns I’ve ever had were at home in the parsonage and in the first hour after my emotional abuser finished her last concert at my church. I knew she was leaving for real and I was crying crocodile tears because I was 14. We could stay close with letters and phone calls, but it was never the same, even when we were capable of visiting in real life again. It hadn’t been that long, maybe four and a half years at most. But in my opinion, she lost her 20s the moment she married her partner and that’s why she never looked at me the same. I went from “I’m older and often not wiser” to “you’re annoying” real, real fast. I’d aged five years, she’d aged 15. The most sinister thing she ever did to me that I struggled to forgive the longest was marrying a woman that if she, my dad, and me were all in the same room you couldn’t find the differences with a map and a flashlight. She, in a very real sense, passed me over for a facsimile. I’m sure she thought that imitation was the sincerest form of flattery, but even though it was wrong I was fucking furious. She wanted to be a power couple, but didn’t want to wait for the inconvenience of letting me go to college and grad school when there was a minister already ordained right there.

I am not saying that I would have been good at being her partner if she had waited, or that it wouldn’t have been pedophilia in the beginning. What I’m saying is that we fit each other like a glove whether I was too young for her or not, leading me to absolutely ignore the downside of being abused and let her have all of me. The emotional vampire who found a very willing familiar because I was so young. I know enough to know she didn’t want that, but she did want a partner that was good for her image and I fit the bill because I knew how to be on her arm and speak in public, being as personable as people twice my age through nature and nurture. It’s the reason why neither she nor Supergrover’s age difference bother me. I’ve been conversing with people from kids younger than me to retirement age since I learned to talk. When I was a toddler, one of my best friends was an old coot who worked at an ExxonMobil service center. He always smelled of tobacco, oil, and gas. His name was Bill Killian, the proper addition to “Lanagan.” At that age, I knew how to read the newspaper AND laugh at dumb cartoons.

I still do that. Regular Show is life because I carry a picture of the cast in my head a lot. My favorite character is Mordecai, but he’s the nerdy side of me. It’s Muscle Man and Hi-Five Ghost that bring out my sense of adventure and laughter.

You know who else has a sense of adventure and laughter? MY MOM!

And on that note, I have prepared my environment to accept more demands. I think I will start by making some Alfredo. Demand avoidance touches everything, because I’ve been avoiding asking myself to cook since last night. That right there is a huge part of why some autistic people cannot live alone. There are programs to get me a home health nurse to stop by, and I need to see if I am eligible for it. Or maybe it’s a social worker. In either case, it makes sense to me while single because I don’t have a partner to share these kinds of things with. It also makes sense while in a relationship because it’s not putting the burden of caregiving on someone that you don’t pay. It’s why when I’m in a relationship, I would pay my housekeeper before I would pay my cell phone bill to keep resentment off my girl, or beautiful boy, as I’ve called him from the beginning. But Zac doesn’t want a romantic partner living with him, so it’s not an issue for us, anyway. But what I know is that if I did live with him, I would rather have someone to take care of the house rather than facing demand avoidance, loss of function, meltdown, and burnout cycles because then the fight seems between you and not around you. Resentment is toxic like nothing else.

The reason this entry is so long is that I’m trying to explain to myself why I do not have autism imposter syndrome. The poster child for an autistic person is not me because it is not my only diagnosis….. and again, if you don’t fit the picture of “autism” in other people’s heads, they will say things like “you don’t look autistic” or “I go through the same thing and I’ve never been depressed.” That “you don’t look autistic” is a kick in the groin. It means your disabilities will be minimized to an enormous degree because you’re not stimming all over the place. Even high functioning autistic and ADHD adults stim to calm their minds, but only a true autistic meltdown that involves ENORMOUS outbursts is valid. My meltdowns don’t look like the kid on “The Good Doctor” and I’m not as rigid as Sheldon Cooper. Two reasons for that. The first is that autism presents differently among all people. The second is that there is a marked difference in how ADHD and autism present in women.

Part of it is that women are so much better at social masking than men, because they’ve been taught a strict protocol for behavior that men just haven’t because they’re men. They own the rules. Part of it is that if low function is the picture of autism, hyperactivity is the picture of ADHD. So, either women are covering it or they’re ignored because they’re not jumping around like seven year old meth heads on a bender. Female ADHD is almost always internal because of both gaps in visibility by professionals, gay or straight pegged as only a “weird Barbie.”

When I can write beautiful things, I am beautiful to other people. When I exhibit signs of my processing disorders or mental heath issues, I am not. If I find my place in the world by measuring other people’s opinions of me, I will not be able to stay in one place very long. I have run out of everyone else’s frustration long enough.

This is my story. If you’re starting with this entry, it’s not the beginning. But we are just getting started. If you listen closely, your inner voice might talk to mine as you read. You’ll find the message you needed to hear, even if it’s not the one you wanted. That’s because I’m AuDHD, not a reject.

The pity is that we all have to work through it every moment of every day when there are so many simple accommodations.

This is how I do it.

About ADHD and Autism

What skill would you like to learn?

I am not picking something I don’t know anything about, but if I start now, I might learn some of the finer points by the time I die. I will never know them all. There is a crossover, and I’m starting to think that I’m more autistic than ADHD. Stopping the Adderrall only convinces me some of the time. I mean, I can list the symptoms I have and they’re all text book……. but they’re also signs of being autistic and trauma reflexes. Even if I went to a doctor, I think my issues are so complex that they would think what I do…. it’s not a case of just one thing. Everything in medicine starts with one diagnosis. Just one.

“It depends.”

That’s why med students are asked for diagnosis, secondary diagnoses, and protocols.

Experts in medicine are not counted by how many As they got in medical school, though if they fuck up, that’s definitely an indication. No, being a superb doctor depends only on what you’ve seen and what you haven’t.

You’ve seen it if you’ve ever watched “House” (it’s not lupus). Those kids go through every dependency like they’re on a bender searching for House’s opioids. They don’t tell you this on the show, but every illness they’re talking about is what’s called a “fascinoma,” probably Latin for “first case” or something. I’m too lazy to look it up, but that’s what it means for lay people, anyway. In law, it’s “prima facie” (pronounced “fa-chee.”). My three fields have dependencies in common. You have no idea how much they matter in Ubuntu.

In all of these things, particularly Ubuntu and medicine, the consequences for being wrong are drastic and cause gastrointestinal distress.

Here’s why I’m specifically mentioning Ubuntu. Most linux nerds have autism. Most nerds, for that matter. You don’t have to be neurodivergent to be a nerd, but neurotypicals, you should know not to intrude on a safe space. You do it all the fucking time by thinking you’re going to be cool and go to ComicCon, but when you get there you’re somehow put off by the other patrons. If you can’t learn anything about the Autism spectrum by observing a Star Trek convention, you’re not paying attention. Neurotypicals seem to live by the slogan “walk softly and carry a big stick.” That’s because you’re perfectly lovely until we do something you don’t understand, and then you get judgmental and sometimes angrily so.

Supergrover definitely didn’t have empathy for it, but at the same time, she didn’t know enough about me to really take it in, because she knows from autism. And she didn’t see any neurodivergence in me not because she wouldn’t, but because she couldn’t. I’m not blaming her, because it would have been totally different if I’d been hanging out at her house for the last eight years. If she’d actually seen me in my day in, day out appearance and mannerisms, she would have had me pegged by the way I walk. Also, I’m not sure that it would occur to her how much crossover there is between me and some of the other people she interacts with on a daily basis. She didn’t get it and not because she didn’t want to. It was impossible to do all that online.

“The medium is the message.” -Marshall McLuhan

I think after a while, we just got so used to our rhythm that meeting up seemed weird, plus I could have more of her if I was only in her DMs because I was the only one traveling with her consistently. I am not sure  that anyone e-mails her more than me (by quite a large margin…. and if that’s not true, what I lack in frequency, I make up for in volume.

I wonder if she ever knew I was writing letters to her like a WWII-era high school sweetheart. I didn’t even realize that until today. News from the home front, essentially.  I wanted to be one of the pictures taped up in the cockpit, but I never wanted to be the only one unless that was a possibility. Next to her son or something. I don’t know.. Just not left in a box in Virginia.

I know by now that I am every bit the photo I say I am, and here’s how I know that.

She rips me off all the time. We’ve been writing to each other for 10 years. I absolutely know that things I’ve said have entered her lexicon, and she quotes me almost every day. I know they weren’t all bad lines, and hers weren’t either. I think I’ve said “painting my feelings as fact” 50 times since she said it. She says “pack up your toys and go home” now. There are word associations with me by the thousands. This is why I believe that I am her Impossible Girl, woven into her from the inside out. I haven’t changed her because we interact. I have changed her because now our brains are inextricably interrelated because reading someone’s most important thoughts makes them last a lifetime. She has two legacies now…… the one that’s big and impressive, and the one that fucking matters.  We’ve been writing to each other for 10 years. I absolutely know that things I’ve said have entered her lexicon, and she quotes me almost every day. I know they weren’t all bad lines, and hers weren’t either. I think I’ve said “painting my feelings as fact” 50 times since she said it. She says “pack up your toys and go home” now. T This is why I believe that I am her Impossible Girl, woven into her from the inside out. I haven’t changed her because we interact. I have changed her because now our brains are inextricably interrelated because reading someone’s most intimate thoughts is different than having a conversation.

Reading things makes you retain information longer than conversation.

It’s just that she’s so busy she cannot retain all of it. I’ve made it impossible. “LORDAMERCY” is a direct quote. 😛 I wish she would just not read it until she had time rather than responding immediately, because writing is what I do, not her. Of course I’m going to have more output than her if I’m workshopping an idea. During one of our big fights about it, I called her out on the carpet and she didn’t respond at all to it. “I told you to create a folder in Outlook and a filter so that my e-mails weren’t coming directly to your inbox, but going into that folder so you weren’t getting notifications for them. It was your choice not to do it. I didn’t expect you to be johnny on the spot, but you were.” That’s because she’s a fixer/pleaser always trying to please me as well.

Interestingly enough, this did not start happening until after I was a total idiot, so I’m wondering if she’s reacting to me like she reacts to her husband now. That nothing is ever good enough for me because she’s trying to please me and doesn’t see that I don’t need it. That gives me more empathy than anger, enough to bring me to tears because if I’d noticed what she was doing, I could have said, “my beautiful girl……. stop. You’re perfect.” And in fact I did try to say that a million different ways, but it didn’t take.

She is so pure- concentrated hope, love, sweetness, and light. She will also eat your face off.

Only my mother knows the whole story, and she didn’t hear it until long after she died. I comforted her and told her she could go, because I was safe. That she never had to worry about me again, both because she couldn’t and didn’t have to anymore. All the mother-love I have in me transferred to her and not as a replacement. Because she has kids. She’s already a mom. She got offended when I said she had that vibe, like it was some sort of joke. Even if I had been joking, I would have meant “I think of you as that vibe because it’s the one I need most desperately.” But it’s a mix. I kidded her later about our past and she destroyed me, not a sick burn that I thought was funny, either.

I told her that, too. Then she got even more defensive. I realize that I dropped an absolute bomb on her, but it’s never about me. Ever. I don’t have needs. I just said something to piss her off. It’s only my behavior, not what triggered it.

But my mother is the only one who knows exactly who I’m dressing down when I do it and she would be horrified. Absolutely horrified. That’s because my mother put a lot of stock into titles. But the rest of the world sees her as her title. In my head, she’s six. Our inner children talk to each other in adults’ voices. (What could possibly go wrong? Editor’s Note: A LOT). I am not sure that she’s taken in that I’m 14 when I talk to her…. and I’m not 14 with anyone else, because I don’t trust anyone else that much. She got in under the wire and disarmed the bomb. You only think my anger management is bad now. She metaphysically hugged and kissed me back together…. but I’m still a work in progmess. I have just begun the process to complete the transition.

Transitioning is a big word in my community. I hope I have a quarter of resurrection in me that my friend Evan has. God, he’s the most beautiful trans boy I know, and a redhead like Zac. Trans people have a lot of crucifixion moments. Lots of Sanhedrins out there, lots of Pilates…… but unlike Pilate, they were never chosen by anyone to have input.

I don’t have contempt for the Sanhedrin, because they were always going to be assholes. I have contempt for people who have the ability to not be an asshole and DON’T. Pilate could have saved all this from happening…. crucifying someone for their words and not their actions, a minority in culture because the Jews were ruled by the Romans. Jesus has more in common with Sandra Bland than he has with Joel Osteen, and please go right up and tell him to his face…. also don’t be an asshole. Put that shit on YouTube and send me a link. 😉

I would give up my life’s savings for that asshole to get a clue. He is a white supremacy Jesus apologist with one of the biggest platforms in the world.

He could overhaul American Christianity………….. but he doesn’t.

What all of this has to do with ADHD and Autism is that I’ve been rambling for 30 minutes without stopping regarding things that excite me because I can. I cannot do this in conversation witih anyone else, and I have stopped trying. No one puts up with it

Even when I can’t help it.

So I have to learn it on my own.


I just want you guys to know that I’m crying right now. Writing these entries take a lot out of me, a tempest in a teacup. Sorry for the cut and paste mess.I left it in because it proved my point.

A Stroke, Hopefully of Luck

I just received word that my dad has had a stroke, but there’s a lucky aspect in all of this. That’s that one of his medications is likely to have caused it and the symptoms should go away. He’s having a bit of trouble speaking and moving, but his brain is fully intact. Therefore, it is less o a worry because he’s been like that for a few hours and nothing has gotten worse. The reason he has not already been through an MRI today is because you can’t have a pacemaker on while you’re in the machine, so they have to wait for a technician to turn it off. So far, the brain is clear. What you have to fear is not what you can see, it’s what you can’t. When you’re looking at brain activity from the top down, it spiders outward and one layer might cover up another.

I am hoping it is just a side effect, because I have a different reality now that my mother is dead. I know how serious all of this is, and to pay more attention. At this point, it’s not time to go home. And yet, I understand and have empathy for myself because there’s not a lot I could do if I was there. Everyone right now is just sitting around waiting, and I can do that from here.

Although I do have those moments of “Jesus Christ, just come pick me up.” I’m not airing a grievance with my family, it’s just an expression I’ve picked up over the years when a situation is bad. It’s especially apt in this one because I don’t say it much when going in this direction. Most of the time it’s directed at Southern oppression and am phoning home to Maryland. It’s a coping mechanism, and it’s a good one.

It doesn’t take me long to get tired of living in the Bible belt, but I would return in a heartbeat if my dad needed me, and he knows that. It hits different when the universe knocks you on your ass by your losing one parent, because it makes you paranoid about the other one. It has nothing to do with how my dad is- all signs are good at this point. It’s a waiting game. It has everything to do with my frame of reference for the world being completely smashed to bits. When your parent dies, you are not the same person. Not even close. It rewires everything.

Knowing how much it changes you changes how you feel about other people’s deaths. You know it’s important to celebrate people’s lives and the time they had with you rather than desperately wishing for more. The universe has dice, and it is good at them.

Although I will say that in my grief over my mother, it was very much loss of the future we were building together because dying at 65 is nowhere near long enough to enjoy being retired. She retired in May and died in October. Her husband was 12 years older than her, and it never occurred to her that she would die first. It didn’t occur to him, really, either I don’t think. We were all shocked, therefore death cannot frighten me any more than it already has.

Your parent dying changes you more than it changes them, mostly because once you’ve been through that level of grief, you don’t want to go through it ever again. The main thing is acknowledging that my dad is just unwell right now, and we don’t know anything. I am not making things more serious than they are, just saying where I am emotionally.

When my dad gets sick, it’s natural to worry. It’s just not natural to think that him being unwell means he’s going to die immediately, because that’s my own echo chamber regarding my mother, not anything regarding his health. My mother had an embolism that wasn’t caught in time. She was almost DOA from the time that my stepdad called the ambulance. There were maybe 35 minutes between calls from Lindsay that my mom was being rushed to the hospital and the one where she was dead and I needed to come home. 35 minutes to process what happened with my grandfather’s death, which is that he lived so long he was ready to go. My mother died years ago, and he was fine until a few months ago. He died right before his 93rd birthday. There is no rhyme or reason with illness or death. You’ve just got to dance with them what brung you.

I’m glad I have a place to go when I’m internally freaking out and you know it’s not reality, because I’m not telling you the emotions of everyone in the room. It’s how everything is coming across to me, which is not objective truth. The only objective truth that I know is that before my mother died, I was not prepared for the reality of either one of my parents getting sick.

I am not spiraling out because my dad is sick. I’m rambling because I don’t have the blinders I did then. I do not have to worry that there are things left unsaid or anything like that, it’s just the natural thing a daughter does, just like he always does the things that dads do.

If he could speak properly, it would have been him who called me to tell me his complete history, physical, chief complaint, what is being done, what will be done, and three links describing the procedure and the protocol. We’re kinda different from other families, but we’ve all worked at the practice long enough we can hang.

It wasn’t child labor. We got paid. 😉

It’s also a completely different situation with my dad because he has one of the best doctors in the world watching over him, so she can translate from doctor to idiot quite fluently. That would be talking to people like me, if you were wondering…….

I pretend to know a lot more than I do, which is why if I am sent links, I will read them. They won’t be articles written by Joe from college, they’ll be official prescribing information or JAMA articles. If my stepmom doesn’t think he’ll get the proper care, she’ll move him until she does. His defibrillator is actually controlled by a company out of Boston.

Therefore, my worries are nothing more than my own. I just know you guys will worry with me, and I take all those good feelings in just as easily as I overexplain incessantly while waiting for news.

So far, I have to assume all is good, because if it was bad, someone would tell me to be worried and they’d be accurate about it.

But Jesus Christ, just come pick me up.

I’m Not Sure

Have you ever had surgery? What for?

I’ve had classic little kid surgeries, but I don’t know if they count because none of them were what you’d think of when the phrase “major surgery” comes around. I had tubes put in my ears. I had the muscles shortened on one eye so it didn’t drift as bad. Nothing where I had to stay in the hospital, except for an allergic reaction. That was at least 30 years ago, and I never did figure out the trigger. Perhaps it was the stress of coming out. I was in fifth grade. It is not impossible, because it was so mystifying that Dr. Leaves thought it could be the pink dye in Benadryl.

With the benefit of time, I doubt it.

Right now I am doing emotional surgery on myself, which I have been doing all along as a blogger. I just feel like I’ve graduated from stitching myself up to removing diseased tissue. I am getting out all the good and bad things in my life, throwing them up here like a set of X-rays so that I can look at them dispassionately. It’s the only way I can direct myself, because I cannot feel this level of emotional pain and physically move without it.

I have come to a very good place. This morning, I am just empty. I have spent all my energy pouring everything out, and the tap is dusty. I have to wait for a rainstorm to access inspiration, and that is okay. When the inspiration to write is the ending of a major relationship (in terms of time, not romance), I write until I shut down.

It Is Now Safe to Turn Off Your Computer.