Tag: medicine

Eleven Dollars, Part Two

~ theantileslie ~ Leave a comment

I have gotten out of the creative groove lately, and I don’t know why. Perhaps it’s that I need to live a little more before I have something to say. Maybe I just need to turn on the faucet and write until I hit something good. I’m sorry for the wandering you are about to endure, but you might be able to take something away from it, at the very least that you’re probably not as mentally, obnoxiously up and down as I have been over the last few months.

I would never tell her this, but Sam broke me. In every way possible, she just ripped out my guts and handed them to me. Again, I don’t have to be mad about that, but it’s still true. She busted my fairy tale in a matter of a few minutes, as if I never meant anything to her. It can’t be true, because she’s going to hear me in her head for years to come. It’s just how I feel, because I don’t need to get together with her to know the things I did to alienate her. I just don’t care. My mother dying has made me stop caring about a whole bunch of stuff. Why someone outright dumped me instead of being willing to be vulnerable is beyond my comprehension and creates apathy. Grief is hard, breaking up is not hard, comparitively speaking.

After that, I just converted to “blink” decisions. I wasn’t having any luck being patient and/or sexy enough to warrant a message back, and I have enough friends that are willing to love me through all this that agreeing to marry Daniel was not a whim. It was a dream. He had it in his head that I already thought he had the perfect life. No, I was talking about the perfect life I wanted to create with him and Cora, our little rainbow family.

That rainbow family has been torn apart because I refused to apologize for having fights over equality with him. His point was that he was punching down, and only he had that right. He was going to rehab, and it was way more important than Cora and I feeling safe in what we hoped to be our home. If he gets it into his head that he can get back to learning about us, it’s a dream I still want. Daniel offered me everything on a silver platter, and because I thought the drugs to control his cravings had him sane, I believed him hook, line, and sinker.

That is why I believe that he wants to break up with me now. He’s living the hard, rock-bottom truth that he’s an alcoholic and no more medication to make that pain go away. It’s blatantly obvious that he’s an aloholic in recovery because of his PTSD, and I have complete sympathy for that. Because he’s furious with me, he’s said that he’s already found a new group of friends that accept him for exactly who he is. Apparently, he is also dating someone else in rehab, which I am almost sure was just a lie for two reasons. The first is that I don’t care. We never agreed to be exclusive during this time and people in rehab get horny faster than the nurses can catch them, but all hell will break loose if they find out. You’re not even supposed to have a relationship at all until you’ve been out of recovery for a year.

The second thing is that he is my primary. It’s not that I ever want to leave him. It’s that if he comes back, he’s it for me, even if I’m dating someone else. I tell people that. Sure, I’ll date you, but I have a primary partner and I will drop you like a hot potato. Your choice.

But the thing is, Daniel would never make me choose monogamy over polyamory because he’s scared that he wouldn’t be enough for me. That I’d eventually meet a woman and leave him. It’s what makes me lean toward polyamory because I can see it so clearly that I don’t want to cause him pain. I also know that you can open a relationship in the beginning, but you can’t do it later.

But the bottom line is that I don’t know what I want. I have to feel all that out. I can see never wanting to let him out of my sight. I feel our bond is too strong to spend a minute without him ever again. But that’s right now, not ten years from now. If it could happen to Dana and me, it could happen again. Our relationship was closed, but I fell in love with my best friend, anyway. It ripped us apart and caused no amount of enmity, because my best friend would rather have a root canal than be romantic with me. She never would have gotten any of my blushing teenage feelings if I’d thought there was a chance of an actual affair. It was frightening to contemplate. It would have wrecked us even faster if I’d actually been tempted, or I wouldn’t, because I would have seen the threat coming and headed it off at the pass. Actually, I tried, but that worked about as well as cutting off my own arm. I was her friend, too. Why did I think it wouldn’t injure her if I said I couldn’t be friends anymore with her because it was threatening to my marriage.

In short, the only reason I’d ever consider polyamory is taking the chance at agreeing to monogamy and failing yet again and having another breakup to sort out. I also don’t want to cheat. It depends on what Daniel wants to do, because I know he only wants me. He just knows how many relationships I’ve had with women and how they’re more intense sometimes than they are with men. I don’t want to lose my whole life over it.

So basically, I’d probably agree to an open relationship and then never actually do anything about it, but I will never say never because stranger things have happened to me that turned out to be wonderful, but it was hard to grow in that direction.

I’ve been dating Zach for a few months now, and Daniel thinks he’s cool as hell. Zach will return the favor when Daniel is ready to be a complete Doc instead of a complete dick. There will be interviews, because Daniel already trusts him and I’m not sending him to somone he doesn’t know (they haven’t met in person, but they will should the stars align). Zac just wants to know that Daniel has the mental and physical capability to be a husband.

Zac can, but he’s not the marrying kind. He is already full up, I think. I’m just one of the people who hangs out with him while we talk about life.

I hope that Daniel can get it together, though, because I want that conversation to happen. I want Zac to see that going through rehab and giving Daniel the chance to get well was the right thing to do. Cora says that my faith in her father is not misplaced. I hope she is right, and at the very least, I’m proud of what it means for their relationship.

The thing about Daniel that hurts me the most is that he wanted to get married right out of rehab, not so we could be together any faster, but to make travel easier, as well as getting me a PTSD Doc with trauma experience and better meds. Saying goodbye to that is a major loss, because I’d never had someone offer me such a big world of “fix-it” than him, and not because I asked. He’s a Doc. He saw I needed it.

Then, later he got angry that I saw him as “having this perfect life.” No, I don’t. I think he’s in the shit. I wanted him to have more to dream of than a dead end job somewhere just to make ends meet. His possibilities are endless, but they are only suggestions. If Daniel wants to move to the beach in a country where we can both live off his retirement, or I could get a job over the Intenet making American money to supplement his retirement, our digital nomad plan has legs.

My basic philosophy on Daniel is that anything he creates now is his choice… from relationships to writing to whatever he wants to do. It’s just that he’s already done his job. He was embedded with Marines in Kandahar during Operation Enduring Freedom. He deserves to do nothing if that’s what he wants. I just think he’s too curious about music, literature, and history to stay bored if he gets that way.

I just want him to know that I do have his best interests at heart. I’m trying to integrate him into a completely queer family, and if you’ve grown up in NE Texas all your life, that is a tall task. He thinks I want to “reprogram him.” No, I want you to take interest in not treating people as if you’re the center of the universe. He can’t help it. He’s an alcoholic. He’s not capable. But it doesn’t make me sorry that I called him out. It makes me human that I’m willing to take all his shit just to hopefully get the reward of a husband and daughter that might never come.

Well, the kid stays in the picture, but you know what I mean.

I can’t picture a life without Cora anymore because I know where she lives. I feel that she is in great danger. I have just as much trauma regarding Cora walking out her front door every day as I do thinking about how crushed I would have been had Daniel not made it home.

Again, it’s NE Texas and there she is sin. So am I. I could also be shot for being trans because I’m genderqueer. I don’t look like a stereotypical woman, so if someone wasn’t paying attention, they’re not going to care if they shoot us both and I would not know how to cope if she died and I lived.

I want her to move to Baltimore with me, because we’ll get a better deal and it’s not too far from Johns Hopkins or the VA. Because of Texas’ inane laws, Cora cannot get the medication or the surgery she needs and she’s 24 years old. If she wants those things, I think it would be completely doable at Johns Hopkins and if the VA does trans medicine, we could also go to Walter Reed, because that would be free to her.

If there are any veterans out there who know if Walter Reed does trans medicine, that would be helpful. Otherwise, it would be cheaper to fly to Thailand first class and get her care there.

I have never met Cora’s mother, but I would like to be friends with her, too, especially if Daniel is uncomfortable visiting her if she’s living with me. I hope he doesn’t. I’m just as much of his friend as I ever was. I am sure that he’s behind his daughter a hundred percent, and I don’t care how he feels about me in terms of getting back together, because obviously Cora’s treatment is not about him.

I think some part of him thinks he’s responsible for all this, because he doesn’t want her to put away her old pictures because he likes reminiscing. He doesn’t want to burn the old birth certificate as a ceremony. He also thinks he’s alone in all this, that millions of parents haven’t gone through the same thing, having a funeral for the child they lost so they can better accept the child they have.

No one raised Cora to be trans, she just is. She’s been wearing a mask since she was born. For her to break out of it, she needs the support of her entire family in lockstep.

I need them to buy the books. I need them to research on the web. I need her parents to see how they’re contributing to her feelings of unworthiness.

I see this more clearly than Daniel because no one raised me to be queer, either. Learning to be a husband and a wife was a time of trial. I don’t know shit from shinola when it comes to finance, important documents, etc. None of my partners have ever been good at this stuff, either, because they were raised the same as me.

That being said, when I’m with men, I tend to treat them like I’m their husbands because no one has ever done it for them before. Treating their minds and their bodies like they are as beautiful as women, letting them open up with anything and everything they want to talk about, letting them be the little boys they were before life hit them in the face.

Men are more tender when you strip away the bullshit of masculinity as an identity. Even the idea of femininity is bullshit, because when I say that I am all female, it doesn’t register that I, too, am an archetype of a woman and I don’t have to wear makeup or clothes to impress to address that fact. I just don’t care that much and want to be comfortable.

I have genderfluid relationships no matter which gender I’m in a relationship with, because I’ve been with women for so damn long that I don’t approach anything with the manners of a stereotypical wife. Therefore, I have no idea how to treat men, so I treat them like women. It works. I still have some of my butch identity that way, and men are forced into a feminine identity that’s always been there, but dormant since they were children. It makes perfect sense. The dance of intimacy is right because we’re both just people, he no more important than me.

It’s something that I want with Daniel, because I think that kind of love will help him heal from his war wounds. I can be his husband if he’ll let me. He’ll get a kind of love that equalizes us so that the power dynamic is gone. He can be submissive with his emotions and his body if he needs to, and it’s ok. It’s why I’m ok with him being in recovery and why I’m ok with waiting a year to see if the breakup was the right move or not. Part of me will never get over it if it’s real.

But one day, I hope he’ll start moving back to me, Eleven Dollars at a time.

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Boobs! And Cupping!

~ theantileslie ~ Leave a comment

Now that I have your attention, I must tell you in advance that this entry might be a bit boring. Or not. Looking at your own writing is a mixed bag. Unfortunately, what I’m writing about is not sex, drugs, and rock & roll. I mean, it should be. I’m not that old. Ok, I’m 44, and medical advice has changed. I didn’t think I’d be getting a mammogram for at least another year or two. Conventional wisdom has changed to over 40. I was officially NOT. IMPRESSED.

This is because I’ve heard so many horror stories about how much it hurts to have your boobs squished into a machine one at a time. Either the machinery has changed, or the women telling those stories were “jeweling the elephant.” In case you’ve never heard that term before, it comes from an Armistead Maupin novel called The Night Listener.

The main character talks about a friend who went to India for a wedding. It was small and intimate, but by the time the friend came back to the United States, the groom had ridden in on a jeweled elephant. Thus, a great phrase was born (the friend was not from Texas, but I assure you that Texans are not immune to this concept…. a three inch bass that had to be thrown back is a 12-inch keeper at the ice house). So what I’m saying is that it’s a strong possibility that the memory of the mammogram was maybe worse than the test itself. On the other hand, my previous point stands. Perhaps advances in mammography have led to the test being much less painful. I’m going to bet on that.

I felt pressure, certainly, but no actual pain (from the test itself…………………..). A few weeks ago, I fell and got a horrible muscle spasm in my back, bad enough to need muscle relaxers and a trip to an orthopedist and physical therapy twice a week. The hardest and most excruciating pain was just having to stand up for 10-15 minutes in a row.

I was also in a lot of emotional pain, because the date was my mother’s birthday. I haven’t felt the overwhelming grief of my mother dying in a long time (every day it’s a dull buzz that runs constantly in my head), but it surfaced mightily when I realized she couldn’t fly up to be with me, nor could I debrief with her over the phone. It was primal, four-year-old child “I want my Mommy.” Because here’s the thing. No matter whether you have family history of breast cancer or not (I don’t), what kind of breast tissue you have (mine is extraordinarily dense and required a couple of takes to get the test right), or whether the person doing the test has one year of experience or 20, the fact that it takes at least a week for the results to come back makes you nervous. You have thoughts that range from “I hope I’m okay” to “I’m probably dying.” I got them earlier this week and they were completely normal.

I also learned that I’m not interested in changing my pronouns or coming out again, but I had a moment of clarity in which I’d never felt more non-binary in my life. I was wearing my hair short and punk, had on both earrings and a cartilage piercing, and was dressed in men’s jeans and an old Ubuntu Studio t-shirt. I’d also brought my well-worn CIA baseball cap for after the test as my emotional support item. It makes me feel braver and stronger than I actually am.

As I was standing there naked from the waist up, I felt truly disconnected from my femininity. It was if my breasts had a life of their own, separate and of me at the same time. I was also completely focused on other things. My pain level was at a seven. I was trying to cover it up with jokes, which brought the pain down to a six and a half. I was also thinking constantly about how I had no idea what was happening most of the time (shut it).

And even though it was completely platonic and professional, I hadn’t been even partially naked in front of another woman for at least seven years, so that was uncomfortable as well… but not in terms of attraction. It was akin to changing in front of other women at a gym……. in seventh grade.

I told the technician that it was my first mammogram, and she said that I had come to the right place. She had 20 years of experience and would make everything as painless and easy as possible, plus, she REALLY loves her job. I said she’d have to, because no matter what the job is, you’d have to love it to do it that long. I made her laugh. Score. Witty rapport with her and endorphins for me.

I was drawn into her bubbly personality. I was wearing this (actually kind of cool) scrub top that tied in two places. She offered to let me drop one side of it at a time, but it unwieldy and time-consuming. I said, “would it be easier for both of us if I just took it off? If you’ve been doing this for 20 years, I’m going to bet you’ve seen a breast before.” She said that was the right answer and we’d be done much quicker.

The funniest part was that she adjusted the machine before I took my top off, and she said, “I have clearly miscalculated.” I laughed so hard that my stomach hurt, and the words of an old girlfriend floated through my head….. “awwww, you got the boobs I always wanted.” That moment of levity carried me through the rest of the test with ease in terms of erasing nervousness, and I think the laughter even brought down my pain more for a minute or so. The hardest part of the test was standing still for fifteen minutes.

A couple of days after the mammogram, physical therapy started. The first session was sublime, because all they did was have me lay on my stomach and massage me for almost an hour and a half. I thought they were all going to be like that.

Nope.

The second session started with 10 minutes on a bicycle to “warm up.” I am what you would call, as Jim Gaffigan says, “indoorsy.” I haven’t exercised in years. I learned something good about myself, which is that even though it had been a long time, it didn’t feel like my calves were going to drop off until the 10 minutes were up.

After that was when my problems really began to kick in. The whole idea is that my arthritis stems from a birth defect. It’s called retrolisthesis, and it occurs when a single vertebra slips and moves back along the intervertebral disc underneath or above it. The quickest way to fix it permanently is to surgically fuse the discs, but my doctor said to try Physical Therapy first and strengthen my core.

When I started those exercises, my other birth defects kicked in. I have a mild case of cerebral palsy, which hasn’t affected my brain or speech, but completely changes my movement and balance. I fall all the time. In fact, I fall so much that I’m bruised all over the place and can never match up which fall goes with which injury. So, of course, the first exercise was trying to balance on a board that sat atop a rubber ball. I could tell that my physical therapist thought I was exaggerating when I couldn’t do it, so I clued him in. He said, “I need you to try a little harder because this exercise is really, really important. Of course it was. And, of course, I was even more terrible at it when I felt under pressure to do well. I am a perfectionist, and any time I feel like I’ve done something less than perfectly, my anxiety kicks up and I feel like a total failure….. even in times where I get 70-80% right.

But this? Grading this would be a zero.

I also told my physical therapist that I saw a treadmill, an eliptical, and a bike, and to never, ever put me on the eliptical, even if God himself came down and told him it was okay. My balance is so off that I fell off the first time I used it. Thinking I just didn’t know how to use the machine, I tried it three more times, which led to (you guessed it) three more falls.

Two weeks ago, we also tried cupping. Apparently it’s supposed to increase the blood flow around your injury, allowing it a better chance to heal itself. I would be willing to try it again, but the first time all I felt was weirdness. Like, the strangest sensation I’ve ever felt in my life. Like other things, though, perhaps it takes more than one session to feel like it helped. But we haven’t done it again. I’ve laid on my stomach and used electrostim with either heat or ice.

The most frustrating part of all this is twofold. The first is that the physical therapy is helping, but I’m not getting better very fast. The second is that the longer I’m in pain, the more my mental health suffers, because nothing in my body feels good. My psych meds and the muscle relaxers help, but like my physical pain, I’m not getting better very fast. Also, don’t tell my doctor, but I’m cheating. She said that she’d like me to take the muscle relaxers instead of NSAIDS because the NSAIDS might make my acid reflux worse. After a week of that bullshit, I bought four bottles of omeprazole and a year’s worth of Aleve. Along with my back pain, I’ve had arthritis in my hands since I was 30, and my knees have been 44 since I was 19. All of it has to do with working in a kitchen. In college, I was a waitress. When I was older, I became a cook. The repetitive strain injuries have mostly gone away, except for the times when I’m typing like a madman. The arthritis is here to stay. Pretty sure it’s osteo and not rheumatoid, because my knuckles/fingers look normal.

That being said, my stepmother is a rheumatologist and a lot of her patients are women my age…. so of course I’m a tiny, tiny bit paranoid about developing an autoimmune disease.

The upside of all this is that my friends have been amazing, checking in on me a lot and offering to rub my back with Voltaren cream or Icy Hot. It lightens my mood, because since I’m perpetually single (by choice), the one bad thing about it is that I am continually touch-starved…. just not right now.

Next week I’m getting a different massage therapist while my current one goes to visit his family in Tehran. I nearly fainted when he said that because Argo is my favorite movie of all time and space. I joked with him. I said, “could you take a picture of the bazaar for me? I don’t have one without Ben Affleck in it.”

And then we laughed so hard I almost fell over……………………..

The CP and My A

~ theantileslie ~ 1 Comment

I know I am the same person I was before I accepted the fact that I had cerebral palsy and there was nothing I could do about it. There’s no cure, only management. It’s the management that drops my heart into my stomach, because how can you manage something that’s so random? Falls happen. Running into stuff happens. The worst part is being clumsy AND having monocular vision, because when I fall because of something that’s out of my field of vision, my reflexes aren’t fast enough to catch me. Yesterday I didn’t see the step down off a sidewalk and fell so hard on my left hip that I saw stars. I thought I had broken something, but I didn’t. I just have a bruise that would make the medical journals and lingering pain from pebbles and asphalt. Nearly breaking my ass was a wonderful way to start my day, just in case you were wondering.

Life is easier when I have a partner or friend to watch out for me. Sometimes they point out things I might miss, sometimes it helps to have someone to hold onto or help me up. My dad is obviously the best at it, because he’s had decades of experience saying, “watch it. There’s a step down.” Sidewalks are evil (especially when the city leaves them jagged because of buckling), as are door frames, particularly the left side. This is because I am right-eye dominant, and the left side is out of my field of vision. My shoulders sometimes ache from running into them. Is it any wonder that I feel the safest in my own room?

I get agoraphobic sometimes because I am not immune to being laughed at when I fall, nor are people graceful about my lazy eyes (they drift one at a time depending on my field of vision- called an alternating isotropia). I think that people will be less likely to laugh the older I get, because the chance I’ve really hurt myself will be higher. Right now, I just look like a goofy teenager who’s always clowning, as if I am taking pratfalls on purpose.

For the record, I am not.

I will be 42 years old on September 10th, but I look a lot younger than I am because I tend to wear boys’ clothes. I like looking crispy and if I shop in the big boys’ section, I have Oxfords and Polos where the shoulders fit perfectly, as well as shorts that don’t come down past my knees. I think it’s hilarious that I am so liberal, and yet most days I look like a tiny Alex P. Keaton (wow, that reference proves I’m the age I say I am……….).

There’s a simple reason I dress the way I do. Most people think it’s because I’m a little bit butch, a little bit femme. Nope. It’s because I still want to look good even though I need comfortable clothes and shoes in which I can really move. I look fantastic in dresses and heels, but it increases the chance that I will fall by at least 75 percent. The last time I wore heels, the muscles in my left leg went slack and I went to the floor in a heap. That was nine years ago. It just helps that I have the boyish charm of a lesbian to make my style pop. My style actually got better when (ironically) I met a straight woman that looks even better in men’s clothes than I do.

When I sent her sister a picture of me, she said “are you channeling your inner ________? I can think of worse people to resemble.” I replied, “it was accidental, but I’ll give you the popped collar for free. Thank you for pointing it out. I appreciate it sooooooo much. Now, every time I get dressed, I ask myself ‘is this too ________?'” It’s okay. I just chalk it up to the fact that my friend is evil and must be stopped. She knows it. It’s a thing. It has provided us with an endless supply of the fun kind of being teased. I like it.

That was six years ago, and I STILL ask myself if my outfit is too ____________.

Sometimes I don’t care. I like having a style icon to look up to when I am having trouble picking out clothes on my own. I ask myself if she would look hot in it, and if the mental picture is on point, I buy it. We have the same body type, so if she looks good in it, I will, too. It’s been nice to have clothes in which I look polished, but don’t impede my movement more than clothes already do.

I won’t lie, though. I miss the way girl clothes make me feel. Or as Dana and I used to joke about them, “my ho clothes.” I never minded going to clubs in short skirts, etc. because if I fell, people would just assume I was drunk and help me up.

In terms of “helping me up,” I absolutely hate the way that cerebral palsy lessens my self-reliance. I can get around alone, and I do. But having a companion, no matter who it is (parent, sibling, partner, friend), makes walking around the city so much easier. I have done a lot of crying over the past few weeks (months?) because it has finally sunk in that I am not going to recover from this. My movement will never be any better than it is right now. It is a bitter, bitter pill to swallow…. and yet another reason why I shy away from dating because I am terrified of becoming reliant on someone, even though it’s something that would help me navigate life so much easier.

My attitude right now reminds me of my sister when she was a toddler. If my parents were helping her to a degree she thought was too much, she would say indignantly and angrily “wanna do it BYMYSELF!” It’s not a question of desire to be completely self-sufficient, but practicality.

My health is a psychological issue I need to work on, because it makes my self-worth plummet. Whether it’s rational or not, it makes me feel like a burden and I’ve felt that way for years. Asking someone to take on CP and Bipolar II is a lot, especially when each one is big enough on its own. In my reading about CP, I learned that it can cause mental health problems, so it’s not impossible that the two conditions are related. The difference is that in terms of keeping things under control, Bipolar II is so much easier. There’s medications for it, many of them. If the medication I’m currently on stops working, I have resources.

Physically, I got nothin.’ By that I mean preventative medication. The only thing I can do right now is take pain meds after I fall. Ibuprofen and arthritis-strength Tylenol™ have been lifesavers. Walking helps to a degree, because my muscles get stronger over time. It is also fraught, though, because the more I walk outside, the more chances there are to trip over things.

The one thing I feel good about is that I’m not a flake. I’m not ditzy. These things don’t happen in a vacuum. There’s a solid reason for it, when previously I thought I was just having dumbass attacks all the time. It has solidified my need to take care of myself mentally and physically.

But again, the question on my mind is always “how do you take care of a problem you can’t see? It’s hard enough with problems you can.” I haven’t been idle about looking for help, though. I feel like it would be beneficial to get into group therapy for people who have the same disorder. I am sure that I will find one, but what I’ve found so far is for the parents of kids with juvenile cases and learning to navigate the school system, their home lives, their adjustment to not having a kid that’s completely normal, etc. No wonder my mother wanted to pretend I was.

There is no such thing as competitive suffering, but there are two sides to that coin. The first is being grateful that I do not need crutches or a walker to get around, and that my case is as mild as it is. The second is being able to accept the fact that though others are suffering more, that doesn’t mean I don’t.

I mean, I nearly broke my ass.

The One About the MRI

~ theantileslie ~ 4 Comments

Months ago, I was in so much pain that I rushed myself to Urgent Care, crying and shaking because my shoulder hurt so bad. I was told to follow up with my doctor because I needed an MRI to see whether it was just a strain or something more serious- a tear, which requires surgical intervention. I didn’t, because I was prescribed a course of narcotics, and by the time I was finished with it and only needed Aleve sporadically, it seemed “unpossible” that it was bad enough for a follow-up. My range of motion was back to normal, and I went back to ignoring it, because I thought I could…. the pain went away on its own.

I should have been more vigilant, because I’ve dealt with this sort of pain for years, not realizing it was my rotator cuff and getting massages to “work out the knots.” Stupid, stupid, stupid. This is what happens when you’re a doctor’s kid. You make uneducated guesses because you think you’ve picked up actual medical knowledge by osmosis. I know exactly how it started. Working in a medical office is fast and furious at times, and every time I left a patient room, I was carrying the chart in my right hand and closing the door with my left. The way I exited, the door ended up being behind me, and it was an awkward reach, but faster than closing the door like a normal person. Later on, the pain came back, because I was cooking professionally all the time and reaching for heavy pots and pans that would invariably put pressure on the already sensitive areas.

Now I’m back in excruciating pain, and decided that seeing a real MD was better than my own less-than-perfect education.Ralph Wiggum I can’t just do occasional courses of narcotics forever, and it should have set off alarm bells that I needed Aleve and Tylenol so often. I have now come to believe that Ralph Wiggum would have made better decisions than me. As Ralph would say, “I’m bembarassed for you!”

Just because I worked in my stepmom’s office for a while doesn’t mean much. I learned a ton, but it’s just not the same. Duh, Leslie. The stupid, it burns…. I feel like the moral equivalent of this picture. Even Ralph went to the doctor, who told him he “wouldn’t have so many nosebleeds if he didn’t keep his finger up there.” Now that’s some sound medical advice.

I went to the doctor on Monday, and he wrote me a referral to imaging. The next available appointment wasn’t until today. Dr. Akoto said he wanted to see me back in a week, but I think I’m going to call him and reschedule for next Wednesday, because imaging told me that the radiology report probably wouldn’t be back by Monday since my appointment with them isn’t until 2:15.

If I’m honest, I’ve put this off because even though fixing a rotator cuff tear is quick and easy, the recovery is, in a word, not. I know the Nassers will be great about helping me. They’ve become my adopted family and we’d do anything for each other. But even though I know this logically, I have been at a loss emotionally. I feel alone, even though I am certainly not. I am in a very small place, whimpering for my mommy as consistently as I did when I was five.

I had to come to a place of peace regarding it, because it’s not a problem that will ever be fixed. Today has been about saying “get over it” to myself. Just because I can’t complain to my mother doesn’t mean I don’t need to put on the gangsta rap and get it handled. Longing for a dead person does me about as much good as sticking my head in the sand and hoping my problems will go away on their own.

I have, in effect, created my own multitude of problems, and am now digging myself out. There is, I suppose, something to be proud of in that. Self reliance can be a beautiful thing, although sometimes I feel like I rely on myself too much without letting other people in.

Luckily, I realized this and talked to Dan on the phone (look at me! I called someone!). She thanked me for being vulnerable and reaching out, which felt like a hug from Jesus. She’s not as physically close as the Nassers (she lives in Virginia), but her “just checking in” texts mean so much.

It also helps that I don’t drive, and that public transportation is excellent…. because nothing would be worse than being tempted to drive with one arm. Generally, one accident leads to another because even though you’re just doing normal things, you’re already off-balance.

And lastly, I can’t help but feel that my mental health has allowed my physical health to go by the wayside, because I am just not on the ball with following up. I’m not too depressed to do so, I’m so ADHD that keeping up with my to-do list is often overwhelming to an enormous degree.

Today, I’m on top of it. I will schlep myself over to imaging even though it’s snowing and I’m cold AF. I will schlep myself to the doctor next week because it’s an A-list priority. I used to be a Franklin Covey disciple, but that fell by the wayside when I stopped using pen and paper. I am sure there’s a ton of software to replace it, but I’ve settled for Google Tasks. It is very good in terms of remembering things, but there’s really no way to add priorities as well. The best I can do is add due dates, and I am way too good at the snooze button.

Speaking of the snooze button, now it’s really time to stop writing and get ready. I may be a little afraid of the results, but it’s better than not knowing. I wish I had realized this long ago, but “better nate than lever.”

Please send me as much good karma as you can muster. I could use the boost, because even if you don’t tell me you sent it, I can feel it in spades.

Nothing Stays the Same

~ theantileslie ~ Leave a comment

I wanted to wait to post my next entry until I actually had something to say. I know that not updating my blog reduces traffic, thus dampening my quest for world domination. On the other hand, I don’t want to be one of those people who doesn’t take time to think before writing…. anything will do, because it’s not about craft, it’s about attracting views, visits, likes, and followers. I feel like I have enough already. Not believing I have enough just leads to verbal vomit for its own sake… and to me, that just doesn’t cut it.

I mean, I’ve always been the type to just lay out everything on this web site and let people make their own decisions about what they read, and when I post often, it’s because having something to say comes along that frequently. It’s organic, never forced. Lately, I’ve realized that most of my ruminations are just continuations of things I’ve already said, probably more than three or four times. I promise that I am not regurgitating content. It’s the way my brain works.

I think about a problem right up until I don’t. The interesting part (or, at least, it’s interesting to me) is that I tend to start a couple of steps back and rehash, but when I’m thinking about something a second (third, fourth, fifth, 17th……) time, the overall arc is the same and different small details jump out, often changing the course of the dialogue… conversations that happen between me and me. Though Shakespeare was not talking about discourse with oneself, he might as well have been. The play’s the thing… especially in moments where I’ve caught myself red-handed…. infinitely more scary than feeling caught by anyone else. I’m better at kicking my ass than you are. Write it down.

I’ve scared myself for the past couple of weeks because I make it a point to look at my Facebook memories, and along with all of my funny memes is this mountain range of emotions. Note to self: more peaks, less valleys.

WordPress propagates to my author page, which means that I am equally stupid and brave enough to post things to my own profile. If I skipped doing so, old entries wouldn’t appear at all. It isn’t about torturing myself- many, many more readers click through from my profile because I’ve been on Facebook for 10 years. The “Stories” page has only existed since 2015, and as of right this moment, only has about 100 followers. After a decade, I have 745 friends and 38 followers. The platform is exponentially larger. My Facebook profile propagates to @ldlanagan on Twitter, and my author page to @lesliecology. Again, I have more followers on my own Twitter feed than the feed for my web site… the difference is that @lesliecology is nothing but a WordPress feed, and @ldlanagan is everything I post on Facebook, period. My profile is public, and my Facebook statuses are generally longer than Tweets, so anyone can click through to the original post.

So there’s the setup as to why I wanted to separate out my blog entries from my Facebook profile/Twitter feed, and why it hasn’t worked out.

Scaring myself the last couple of weeks has been about entries from four years ago, starting with PTSD as a teenager and it unraveling my thirties into divorce, losing a good friend, and so much compounded mental instability that I needed more help than my friends and family could give. Poet Mary Karr gave me the phrase “checking into the Mental Mariott,” and I’ve used it relentlessly since.

Joking about it covers up deep wounds, and that’s why I write about them instead of speaking. When I am writing, I have a bit of clinical separation. I can look at the land mines without detonation. I cannot say the same is always true for reading. Occasionally, I feel the distance of having grown as a person, so that the entry feels like it was written by someone else. More often, I am remembering every tiny detail about the setting and the arc of the story. Then body memory kicks in, and if my heart and brain were racing in the moment, I feel it again; it doesn’t matter how much time has passed.

It isn’t all bad, though, because I write in equal measure about how good I’m feeling, and those excited butterflies also return…. sometimes, but not often, in the same entry. The other plus is getting to decide if what was true at that time is still true today, and as a rule with some exceptions, it’s not. There are truth bombs that hit me just as hard now as the day I wrote them, but for the most part, this blog has been dynamic, and has changed just as often as I have (which is, like, the point).

Whether I’m reading an up day or a down, it is exhilarating to see that few things stay the same.

I will always have the regular, boring adult problems… and at the same time, my life is bigger than that. Managing Bipolar II, remnants of PTSD (anxiety, mostly) and ADHD so that I am not a ball of negative crazy keeps it interesting. I emphasize “negative crazy” because I don’t know anyone who isn’t crazy in a positive way. I am not attracted on any level to the mundane. Regular people with big dreams are often lumped in with “crazy,” because most people don’t dream big.

Even my dreams have been adjusted. I am still dreaming big, but the focus is not on starting my own church anymore. Perhaps in the distant future, I’ll think about it again. But right now, when I enter into any church building, consecrated or not, “my mother is dead” becomes an ostinato.

From Google Dictionary:

Ostinato

os·ti·na·to
/ästəˈnädō/

noun: ostinato; plural noun: ostinati; plural noun: ostinatos

a continually repeated musical phrase or rhythm.

“The cellos have the tune, above an ostinato bass figure.”

Even the sentence used to illustrate the word is appropriate, because you don’t just hear bass. You feel it.

I have written before that she’s everywhere I look, because over our lives together, I cannot think of an element within church life where she was absent. I cannot think of a single thing that was all mine until I moved to Portland and began preaching at Bridgeport UCC.

I have always been the Mary. She was the Martha.

There was no judgment on her part. I just mean that I have always been the thinker and she has always been the actor…. Actually, I take that back. My mother was one of the few people I’ve met in this life that had extraordinarily creative ideas and the ability to execute them, which is rare.

Few people manage to live on the ground and in the air at the same time (it’s a miracle I can tie my own shoes).

In Luke 10:41-42, Jesus is speaking to Martha, who has complained to him that (I’m paraphrasing) “Mary’s just sitting on her ass while I’m doing all the work. Can’t you go rattle her cage?” And Jesus says, “Martha, Martha, thou art anxious and troubled about many things. But one thing is needful, and Mary hath chosen the better part, which shall not be taken away from her.” He actually says this to the woman that invited him and his entire crew into her house and wants to feed everyone. Now, I don’t know whether you’ve ever cooked and served for 16 (fairly certain Lazarus was there- unclear), but I can see Martha’s point and I get a little bit irritated with Jesus. It’s not that one part is better than the other. Thinking is not better than doing. Doing is not better than thinking. They’re just different mindsets, and the evening wouldn’t have been possible without both.

I am certain that Mary and Martha need each other. Martha is grounded, and keeps Mary from floating away. Mary reminds Martha to look at the stars once in a while.

So when I think about the work I did to investigate starting a homeless ministry in Silver Spring, what comes up for me is that my Martha is no longer with us. It rends the mental tapestry I created, and I descend into darkness.

I am still excited by theology of all types- Abrahamic, Eastern, you name it. But right at this very minute, I’d rather spend my time thinking and writing, sometimes posting sermons on this web site rather than waxing philosophic in front of a physical crowd.

What I do not know is whether I will always feel the same, or whether my time is not yet here.

What I do know is that the fight has left me. I am too mired in grief to get passionate enough to affect change. In fact, I wouldn’t say that I’m extraordinarily passionate about anything at all. When my mother died, so did several pieces of me. I know for certain that it would have been easier had I gotten to see my mother live a long life and there was no aspect of “dear God, they took her too soon.” I knew I would be sad when she died, but I was completely caught off guard by the rage at getting robbed.

Embolisms make great thieves who never need getaway cars.

I am still grieving the future that I thought I would get, and piecing together a new normal. It’s a good thing that on this day next year, I’ll read this again, and perhaps that new normal will have some structure. The concrete has been mixed, but I think I added a little too much water, because it just. Won’t. Set.

Slinging and Hash

~ theantileslie ~ 1 Comment

My coworkers are so young that I was sitting at the bar after my shift a few months ago, having a beer. The man next to me told me his name and that he was a sound editor at NPR. He asked me what I did, and I told him that I “sling hash here.” The bartender, young enough to be my son, said, “I thought you were a cook. You’re a drug dealer?” The sound editor nearly fell off his bar stool laughing and said, “I think that’s old diner slang.”

But today’s entry is about a different kind of sling. My left shoulder has been bothering me for a few weeks, but the pain has been fully manageable with Aleve and Tylenol… that is, until yesterday morning. I woke up in so much pain that I couldn’t stop crying, and didn’t until I got to Urgent Care.

I couldn’t possibly see how I was going to cook and wash dishes, so I gave Chef a heads up as to what was going on, and could he possibly find someone to work for me? To his absolute credit, for which I will thank him publicly, he told me to get to Urgent Care and let him know what they said. He’d find a way to work it out, even though there was no one to take my place. It created a tiger mom loyalty in me, and by the time I got to Urgent Care, as the tears flowed, I said, “there is no possible way that I can miss work tonight. If there’s any way you could treat this as a sports injury and just shoot it up with something, let’s do it.” If chef was willing to work a man down that night just so I was taken care of, the least I could do was try my hardest, exhausting all possible options, before staying home. I knew that I was going to either be miserable at work or miserable at home, so why not at least try to be miserable and make money at the same time?

The Urgent Care that I went to is incredibly risk-averse, the doctor told me, so he wasn’t allowed to put steroids directly into my shoulder, even though he thought it was the best course of treatment for what I needed in the moment (doesn’t work long-term). Instead, he did a long and thorough physical examination, determining that I had strained my rotator cuff, and that I should get it imaged with an Ortho to confirm it was just a strain and not an actual tear. If it’s just a strain, his recommendation is physical therapy. A tear requires surgery that, from what I hear, is relatively quick and easy, but the recovery is hell on wheels. One of my mom friends said that her son tore his, and just like the friends my age, had a difficult time with it. So I am definitely praying for a positive outcome, and if you’ll pray with me, send good vibes, use black magic, whatever, I’m game. Anything that taps into the power of the universe is fine with me. I know all of my readers can’t possibly believe in God, but even if you’re an atheist, believing in doctors is my first choice as well. Faith doesn’t come without shoe leather, and their work is as close to God’s as I’ve seen on this earth (there’s a reason I donate to MSF every chance I get).

As for the treatment I got yesterday, I chose a clinic that was close enough to walk to work from there, so after an IM injection of Toradol and oral Vicodin 5/325, I actually made it to my shift 30 minutes early, where I briefed Chef on all that had happened, and he thanked me profusely for coming in anyway, especially since my arm was in a sling to take pressure off my shoulder. I don’t wear it while working or typing, but other than that, I don’t take it off. I also realized that 325mg of Tylenol was probably not adequate, so I took an additional one. The doctor said that by the time I got home from work, the Toradol will have worn off, so I took two Aleve as well. Anything to relieve the inflammation, especially since I probably added to it last night. Even with Vicodin on board, everything still hurt like hell, especially after cleaning the kitchen, particularly sweeping & mopping. It was at that moment I thought, “maybe a desk job is for me,” and then I remembered that I was in just as much pain there, because the repetitive strain injuries never stopped, as well as more often than not, having a bad chair that always, always caused sciatica, as well as agitating the arthritis in my back. I absolutely understand that not all offices can afford Aerons, but so far, those have been the only chairs that don’t cause me pain. Even the knock-offs work, as long as they’re good ones and not the cheapest available.

I promise, I’m not snobby about it. Just worried for my own health. Even though osteoarthritis isn’t nearly as bad as rheumatoid, it’s no joke. It makes you feel like a very old person, no matter how young you are. Going from the kitchen to a desk job is just trading one type of pain for the other, equally severe in their own ways.

I definitely need to follow up with physical therapy, because with my level of activity, I’m likely to tear the rotator cuff up real good (if you’e going to do something, do it right).

And on that note, it’s time for a nap, provided I can find a comfortable position.

Four and a Half Brownies

~ theantileslie ~ Leave a comment

I’ve been playing on my computer since I woke up, failing to realize that the clock was ticking on taking my next dose of medication. My head started to hurt in that old familiar way, and I thought, “I should write about this…. just a stream-of-consciousness entry as chemicals flood my bloodstream.”

I generally need to eat before I take any meds, particularly Lamictal. I look in the fridge and the only thing I’ve got left is four and a half brownies. I get out a paper towel and take all of them upstairs, where I proceed to inhale them like an angry Dustbuster.

I open my blog post editor and get out my pill bottles, which brings us to the present. I have just taken Lamictal, Lexapro, and Klonopin. That means, at this very moment, I feel as if I am capable of tearing out my hair. I will not, and wouldn’t even if I hadn’t taken my meds. The feeling, though, echoes from a scene in one of my favorite movies:

Distraction isn’t always a bad thing. Works every time.

Well, actually….. there’s nothing that can distract me enough from this kind of pain to just let it go. A corner of my mind will be stuck there, wondering if I am about to cry or vomit, or better yet, cry and vomit. It seems physically impossible, but I have done it on multiple occasions. The best way I’ve found to explain the type of physical pain I feel during withdrawal from my psych meds comes from the eighties. Remember those tests of the emergency broadcast system that would come on your TV, and for what seemed like eight hours but was only in reality about 20 seconds the most annoying sound on earth blared loud enough to clear your sinuses? Now, imagine this sound coming from you internally so you can’t lower the volume:

The longer I go without medication, the louder the sound gets, and the louder the sound gets, the more violent my physical reaction. When the medication kicks in, everything becomes blessedly quiet. I am grateful that it is not just a dimmer switch and I don’t have to live like this all the time. Withdrawal creates the worst physical symptoms of my mental illness, because when I remember to take everything on time, I am generally very happy and healthy. All the highs and lows are gone, so I can get on with my day and not think about being sick anymore.

But that’s not where we are right now. I haven’t even begun to feel a twinge of relief. The good news is that I don’t have to take any additional medication. My brain chemicals will sort themselves out, I don’t need a painkiller or an anti-inflammatory on top of it. Sometimes I do think of Tylenol and ibuprofen as my “dessert,” you know, just to put a cherry on top of the sundae, but it doesn’t matter. My psych meds aren’t going to kick in any faster because I took something for the headache, and because the headache is psychiatric in nature, the painkiller won’t do much. I know this because when I’ve been truly up shit creek because I’ve left the house without medication and taken painkillers and anti-inflammatories on their own, I would have had equal luck getting rid of the pain by throwing five dollars against a wall.

I swallowed the pills this time before I started shaking, so I got that goin’ for me. It’s involuntary when I’m in this much pain. My brain feels like it’s trying to pull itself apart, and my body reacts by trying to “get away from the noise.” Reminds me of one of my favorite jokes:

Q: Why do bagpipers walk when they play?
A: To get away from the noise.

or…

A. Moving targets are harder to hit.

I can tell that I’m not depressed because wit can still make an appearance. It’s just withdrawal, and that’s a relief. Managing Bipolar II is hard enough without having to deal with mood swings…. and by that, I mean it’s hard enough staving them off. I don’t have to be in depression or hypomania for Bipolar II to be a total pain in the ass.

It’s not unlike a physical disease, though. Diabetics have complicated lives without symptoms, just maintenance alone is enough. I know myself well enough that I would much rather deal with the inconvenience of maintenance than the full-blown effects of going untreated.

The way my college psychiatrist figured out I was on the bipolar rather than unipolar spectrum was that I was getting way, way, way too much sleep, and then for about three or four days a month, not able to sleep at all. My productivity level was through the floor, and on the days I couldn’t sleep, would shoot through the roof, where I would try to fit in as much activity as I could before the next wave of depression hit.

Before my Bipolar II diagnosis, I couldn’t understand why I was taking depression medication and never getting any better. My behavior changed dramatically when a mood stabilizer was added to what I was already taking. I was able to sleep normally, and the world looked quite different. It was in color all the time, instead of when the color channel decided to flip on after a series of black and white shows… but never fun ones, like I Love Lucy. Every day was akin to the worst Perry Mason rerun on repeat.

It’s been 10-15 minutes, so any time now, I will be back to my regularly scheduled program. I’m not feeling as much better by now as I thought I would, so perhaps it’s time for a hot shower.

I have brownie crumbs in my lap.