Structure of My Own Making

Daily writing prompt
What are your daily habits?

When I wrote about this prompt last year, I remember saying that I didn’t have any daily habits. That was 100% true at the time, but now I’m charged with creating a structure with which I can live. My care team at Cognitive Behavioral Health does not think I am ready for a job yet, so I am muddling through what that actually means. Am I disabled for good and should start pursuing government assistance, or am I capable of slowly creating my own recovery into the workforce? My writing does provide a little bit of income, and as I get more popular here and on Medium, I see results. I’ve been a blogger for a very long time, but so far I’ve only had one fan who was so impressed she thought I should be world famous. I would like a few more of those. 😉 But nothing good will happen if I do not take care of myself.

This starts with setting medication reminders in my phone. My day flags if I do not have the correct doses at the right time. I have always been good about taking my medication because I had a doctor tell me that most bipolar patients stop taking their medication when they feel better, not realizing that it’s the medication that’s making them feel that way. However, I was not so on top of it that I remembered to take it at the same time. I’m also on a lot more medication than I used to be……………

I’ll talk about my psychiatric drugs because I think that people need to learn about them. I am not a doctor, just a waiting room that doesn’t suck (thanks, Paul Gilmartin. I stole that line from you). Crazy meds need to be talked about because it’s such a major undertaking to be put on them:

  • Lamictal (lamotrigine)
    • The first time I was put on this mood stabilizer was the first time I knew what it was like to live without depression. It took about six weeks for the fog to lift, but I’d never been more grateful in my life. The only side effect I’ve experienced so far is nausea, and it was very hard to deal with for a long time. Now, I’ve just decided to stay on it regardless of the side effects because other mood stabilizers make my weight balloon. It’s also an old drug now, so it’s relatively cheap if you don’t have insurance.
  • Lexapro (escitalopram)
    • This is the gold standard of SSRIs, and most bipolar people don’t take them. That’s why I think my diagnosis may be wrong, that I actually have autism and not bipolar disorder. In a bipolar patient, SSRIs tend to make them flip out with suicidal ideation, negative/intrusive thoughts, etc. My SSRI keeps me at an even keel when I am really paying attention to my body. As for side effects, I haven’t noticed any of them.
  • Buspar (buspirone)
    • This is what replaced my benzos for anxiety, because it is not related to them and yet performs the same function. It’s better for me because there’s no risk of addiction long term. I do not have an addictive personality, but better safe than sorry. I have been on Klonopin for over 10 years, but my new clinic doesn’t prescribe benzos to anyone. The entire hospital system has put their feet down over it, so I have to adjust. Now that I’ve been on it for several weeks, I am unsure whether it works or not. I will keep you posted. The one thing I do know is that it’s the most important drug for me to take at the same time every day, because it will flat stop working if I miss even one dose.

My crazy meds aren’t the only ones I take, they’re just the most important for keeping my structure stable. It feels like everything is hitting all at once as I age, because I didn’t have to worry about hormone replacement therapy even a year ago.

As an aside, it’s a big joke with my sister that because I’m enby, I thought that if I was going to do hormone replacement therapy, it would be in the other direction…. after that particular doctor’s appointment, I went home and consoled myself by buying both the book and audiobook of “Fried Green Tomatoes at the Whistle Stop Cafe.” I needed some Stress Tabs #10 and some candy bars (but maybe not 11). As it turns out, the book and audio were not enough. I also watched the movie on Prime just to see Kathy Bates… “how do you accidentally run into someone…. how do you accidentally run into someone six times?” I get it now. I’m older and I have more insurance.

My medication is working, and for that I am grateful. Now, my schedule runs from sun up to sun down, skipping the night owl routine altogether. And in fact, when I took my sleeping medication yesterday, the sun wasn’t even fully down yet. I prefer to work in the quiet of the morning, especially on the weekends before the kids in my apartment complex wake. The ones who live above me are particularly loud, which is why I’m glad I have good headphones. I hunker down in my office after a night of wild dreams and try to remember what they are. It provides a writing exercise that’s all my own, propelling me into really thinking about my life and what I want to accomplish. I accomplish nothing without coffee, through which all things are possible.

Coffee is also part of remembering to take my medication, because I have found that a lot of caffeine is just enough to control my ADHD, but Ritalin or Adderrall is too big a jump. I have a coffee machine that makes a cup at a time, and my preferred coffee is Cafe Bustelo. It’s in honor of my old chef, John Kinkaid, because we used to walk to a Cuban restaurant between prep and service for their Cafe Bustelo lattes.

I mentioned in “Why It All Still Hurts” that I was working on a nonprofit, and I am… but that dream has been deferred. Kinkaid was killed in a car accident. I am still reeling from the grief, but I got Kindle Unlimited and added five books on starting a nonprofit to my library. Again, the idea is dinner with dignity, offering the unhoused food they could never afford on their own, and opening my kitchen up to take homeless people on as apprentices if they’d like to learn the trade. I am still sold on this idea, it’s just going to take a lot longer to accomplish than I thought.

That’s because the longer I think about it, the more ideas I have. What if instead of this one nonprofit, we were able to build a library like Oodi in Baltimore? There, I could have my cooking classes and a place to serve food, plus books and maker tools for everyone. My structure these days is centered on how to spend the government’s money for the good of the people. Learning about Oodi and all the services they provide gave me a bigger goal than just “dinner with dignity.” It would give the unhoused a place to go. Maybe my purpose is not to go to Finland, but to bring Finnish ideas to a city that needs them. I want to redirect Maryland’s money from the DC metro area and Annapolis to Baltimore, because it is so underserved. A lot of the city is completely trashed out with no way to fix anything…. or so it seems from an outsider’s perspective that just moved here in December.

I need more time to watch and wait, gathering stakeholders and formatting a business plan. Perhaps my structure will always be internal, because that’s how autists work best. I do not want to go down in history as merely a blogger. I want to create something beautiful that will last and bring hope to people that might not be feeling it that day.

I find that working on giving hope to other people is the easiest way to claim hope for myself. I am slowly building a structure into which I can grow, taking others’ ideas and implementing them like a plant takes root in the soil.

But it all starts with remembering to take my medication.

After the Fallout

Share one of the best gifts you’ve ever received.

Today,, I hope you get the best of me. I am sick to my stomach and dragging ass. But I have to keep writing, because I have to be able to write in any mood. Today, I’m not going to write about just one, because they’re the best gifts according to category.

The two best gifts I’ve ever been given emotionally are Dana and Supergrover. This is because things went down hill at all our hands, but it didn’t start out negative, it just became that way…… mostly because I was just so……… meeeeeeeee.

Editor’s Note:

I hear that phrase, “I was just so…….. meeeeee,” in my friend Drew’s voice because one day Dana and I were in the kitchen at Biddy’s for brunch and Drew was doing dinner. He was late, and said, “I was going to throw my clothes on and run, but I said, “what’s that smell?” And then….. “oh. It’s meeeeeeee.” His lateness was instantaneously excused. Some of the other reasons he was late are absolutely unprintable, but make me love him more.

As you can imagine, the conflict with Supergrover was large and we were both angry at the poor choices we made in getting to know each other. They were numerous, and new relationship energy made us avoid all of it. Anything that would have said “this could be problematic down the road” went out the window. Just because someone is a platonic friend doesn’t deter the feelings of “oh my God I just met the most incredible person.” I honestly think this happens to women more than it does men, because I’ve noticed that men choose three friends in fifth grade and decide that’s enough. Plus, straight women bond easily. You could meet your new best friend online or in a bathroom at “Off the Record.”

So, I sent her a Christmas gift one year without knowing how she’d feel about it, and then I opened up about it. I said, “I’m sorry if I overstepped a boundary by sending you a present. To me, it doesn’t feel weird because I got all my other friends presents and you are one of them.” She thanked me and said it was thoughtful, so then I began to treat her just like my friends on the ground.

The next year, I got her two presents because like Jesus, “this is for Christmas AND your birthday.” I told her I was sending her a present. She said, “a real one?” I said, “as opposed to the fake presents I usually get you? Yes. A real present. Like with wrapping paper and shit.” They came in two different packages, but I didn’t clarify. So, she said that if she had known they were for two holidays, she would have waited. She said she’s very good at that, and I have no proof otherwise.

The gift that year was a bracelet with her favorite charity on it. She told me that it was totally something she would have bought for herself. I was so glad that I hit the nail on the head and she was pleased. She’s sent me a lot of presents over the years, though “not like with wrapping paper and shit.” She prefers digital because we’re both book junkies. None of them have ever stood up to the smile on my face when she sent me a picture of the bracelet I got her on her wrist.

That’s because I really sat there and thought about the jewelry that straight women give each other, because I wanted the present to be nice, but not romantic. I wanted to be genuine and sweet to her without upping her fear that we were always going to have to deal with feelings I couldn’t get rid of. It was too important to not.

I think at first she thought it was just a continuation of trying to change her, but over time she began to reciprocate when she realized that no, I was being genuine. I think that’s because I apologized for overstepping a boundary and I wouldn’t do it again if she didn’t approve. By being vulnerable and just asking rather than living in unease, I couldn’t spin out about it. These are exactly the kind of talks that we should have to go forwards and should have had if we don’t. When she gave me the information that she appreciated the gifts and it was very thoughtful, I believed her the first time and stopped worrying. I can take care of my anxiety on my own, but not when people don’t tell me how they’re feeling. I feel that some people are afraid of getting vulnerable with me because they’re afraid of my reaction. Some of it is that they don’t know how an autistic person is going to react to them. Some of it is that they don’t know how a bipolar patient is going to react to them. Every time they’ve replaced my disorders with my personality, and some people try to guess when I’m manic or depressed depending on how I write.

I can assure you that my mental state has nothing to do with the way I write. What has to do with the way I write is that I don’t go back and polish anything. I don’t go back and edit when WordPress screws me over by not publishing the last line of something. I want this blog to be entirely organic until someone else offers to clean all this up for me. This is because I know that I have often kept talking when I’ve run out of things to say….. and I should know better. I think it all the time while creating sermons. However, there are so few long form blogs anymore that I feel I should make use of it. Nowhere else on the internet do you have as much room to say as you can say on WordPress. Although I might test this by posting an entry in its entirety on Facebook just to test that theory. My opinion is that Facebook, X, Insta, etc. are for pithy soundbites, but I could be wrong. I do, however, love a good pithy comeback. “If you can’t say something nice, say something clever but devastating”- Father on the playground with his son in a New Yorker cartoon.

Editor’s Note:

Now that the Doctor Who Anniversary specials are over, I can tell you what bothers me about X. Twitter is so old that it’s like The Doctor went back and changed it. Because now X is a lot easier to remember now since it’s been around a while, adding to its mavitational pull. But, just like with X, I’m wondering how long it will take for Doctor Who to go back and change history so that its gravity again. At this point, it’s a running gag. I hope it was for the Americans, because nothing grabs you into that show like knowing an inside joke….. and after lots of episodes, knowing all of them.

The reason I think it was for the Americans is that it’s an inside joke that’s only a few months old. It wasn’t reaching into history with jokes like that because the Americans don’t have that institutional knowledge- more now since the series first hit Netflix, and I owe my love and devotion to that show to the company itself. I’d watched a few other sci-fi shows, and it was a suggestion. I watched one episode and was absolutely hooked. I wanted to watch the entire thing at once. However, since Dana is as big a sci-fi fan as me, I decided to wait until she got home to see if it grabbed her, too. That’s because if she did like it, I didn’t want to rewatch five episodes later. She loves it just as much as I do, so I suppose waiting could be considered a gift? I hope Zac appreciates my restraint with Slow Horses………..

To get back to being afraid of my reactions, what you imagine in your head is going to be a thousand times more amplified than the conversation is going to be if you show up open and ready to both hear and listen. We will not get anywhere if you only show up to think about your responses while I’m talking and not actually consider what I’m saying; it makes me feel unheard. It goes from trying to resolve a problem to trying to prove you’re right. Instead of leaning together, you dig in and conflict deepens.

It is not choices in life that make me spin out. It is uncertainty in relationships. For instance, Supergrover constantly telling me she was busy was perfectly acceptable, even over and over. But in the last eight years, she hasn’t written more than a few sentences in which I couldn’t glean anything. It wasn’t a problem in the moment, and the problem never would have popped up if after six weeks, there was a letter that actually had some thought put into it. Kicking the can down the road was so miserable that I decided to leave her behind. It does not mean that I take only bad memories away. I am fierce about all my feelings for her, for evil or for awesome (wow, that reference dates me).

That’s because my heart is all tangled up with her, because it made no sense. I wish there had been so much more “my mama wolverine instincts are kicking in, here” and so much less “you’re goading and provoking me.” We could have had something incredible, and we both let it go. One day I hope she’ll see that all of my letters are my mama wolverine kicking in, but also loving her like a Democrat instead of a Republican. 😉

I can’t love her like “everything mommy does is right and good and I’m a bad person if I want to change anything.” (You have to keep up with me to know what that means……). I have to love her like an adult who sees the good in everything, but isn’t shy about addressing conflict. That’s why you’ve seen my feelings in real time about this relationship, that they change depending on what I’m remembering that day. My biggest problem in life is that when I say she was a different person, she doesn’t believe me because she deleted everything and I didn’t. Maybe I should have done the same, because I’ve written every entry off the top of my head. I never have to go back and read them. I think the reason I didn’t delete any of them is that I need hard evidence that I am not responsible for everything that ever happened, and I need to forgive myself. That whether she is in my life or not, I got the gift of learning from her even for a time. It was useful, valuable.

And she scares me, but in a good way. I saw a video online of someone like her (not kidding, like when Dr. Wall said, “some other guy who looks just like me.” It was just someone who works for the same type industry and I thought they might know each other), and it made me realize that it was probably good our relationship was online; by the end of the video, my eyebrows were over my forehead and my hair was blown back. Her tone made me want to sit up a little straighter and behave myself, and I felt embarrassed I was in my pajamas. However, it was not a feeling that was unique to the woman in the video or Supergrover. I feel the same way standing next to my little big sister. I say that tongue-in-cheek because I’m older and a lot shorter.

I always think that other people assume I’m her nephew when my hair is cut short, but she’s always so welcoming no matter what I look like that I just try my best not to feel like a troll. Just proud a woman like that doesn’t mind being seen with a woman like me. If we’d met in college, I think we would have had as intense a relationship as we did when we were actually in college together. However, I think that as she drifted towards politics, then lobbying, I don’t know if it would have hung on or not. I would like to believe that we would have, because I cannot drill down on policy with her, but I can certainly advise her on how to treat people when you’re in front of a crowd. I can’t advise her on what to say, but I can advise her on how to say it.

The parts of me that live in her are queer. Not that she actually is. She’s married to a man and has been for a long time. However, she’s queer in the way she votes, where she works, what legislation she puts forth both in Austin and DC, and I’ll give you a for-instance.

She asked me if I thought it was okay to use the word “queer” on their web site because she knew it was a slur. I told her she was right, I wouldn’t do it……. but she was outvoted by her team. It’s fine, it’s their page. What I realized is that I’m the one that has issues with the word “queer” when straight people say it, because they’ve said it with sneers in their voices for so goddamn long. Because of Gen Z, who has no attachment as such, I am starting to feel like an old person…. Actually, that’s not true. The first time I felt old was when I saw a DVD in the grocery store that was ET: 25th Anniversary Edition. And if I felt old then, I’m probably still old.

I just realized I got off on a tangent and got away from talking about gifts and how they dropped into my lap. It’s what happens when you go back up and read a paragraph, think about something you meant to say, and all of the sudden the thing you were writing about isn’t even on the screen anymore………..

If Supergrover didn’t want to be a red string, she was off that list and onto the next. I think that my platonic relationships run just as deeply as my romantic ones, which is probably why at times I didn’t sound any different and at times I totally did. For instance, if I asked her a question that she thought was too personal, I wasn’t asking to goad or provoke her. I was genuinely interested in what she was going to say. On the flip side, my writing language is naturally flowery and romantic because that’s my style with friends, not because that’s how I’d act in person.

When I’m writing, I am not thinking about how to have a conversation with you. I am thinking about how to lay out my thoughts in a beautiful way so that you will take them in. To give you information to chew on without getting in your face.

More and more often, though, the gift was questionable, but hard to stop holding because the wrapping indeed was the gift that changed the me of then into the me of now. When she responded immediately with anger, I went into autistic meltdown. Then, she took her turn to gutter snipe and it went back and forth. We kicked each other out of our lives three or four times a year because she’d never met me in person to hear my tone of voice when I was talking about these things, not even a concept of how it might sound. She also never had to sit with me while I was in pain, rather than attacking me over e-mail. I realized I was done when there was more anger than empathy. She could get away with “judgmental dickhead” in the moment, but attacking me while I’m unarmed is frowned upon in this establishment.

The gift was the journey; we came a very long way, but it took years. That being said, she was always sitting in the guilt of thinking that she wasn’t responding as fast as I wanted- part of her “you’re a dictator” schtick- because I wasn’t angry that she wasn’t responding fast enough. She could take six months, five years, whatever as long as I received all the parts of our story that I’m missing…. on every topic, really, because there are so few things that she talks about, because hearing my story is threatening to her, and she thinks that it will help for her to shut down, because I’ll just forget and move on. No, I’ll think about it more, because I don’t want to nag anyone and I don’t want to be the person that doesn’t take up room in a relationship because I’m frightened of being abandoned. I realized that it was unfair that I had to mind read with her all the time, because it allowed me to step into it up to my ass. It’s how most emotionally unavailable people work. If they don’t tell you their feelings, you can’t take them into consideration. You have to hope you’re going to say/do the right thing rather than knowing how to act beforehand. It’s exhausting.

Learning all of this was hard won. Very hard won. But I think it has made me a better writer, and the gift I’ve given myself. Even if none of my blog is ever made into a book, it was the training that mattered.

The gift was the journey.

So here are more happy memories instead of sad ones.

The best gifts I’ve ever gotten was from asking her for two things. The first was a voice mail, because I’d never heard her voice before. The funniest thing is that she didn’t start with “Hi, Leslie. It’s Supergrover.” She just launched into talking and I laughed my ass off because I’ve been asking her for a recording of her saying her own name for 10 years. 😛

This was her big chance. 😛

The second was a picture. I would post it if I could, because she’s just one of those women that if she were a model, she’d be one of the people you’d remember and want to see back. At the very least, she’d be the generic picture that comes in a frame you bought off Amazon…….. and you can’t stop staring at her eyes. Now the picture has been in that frame for three years and you really don’t know why. There’s just something about her.

I also think that straight women love just as deeply as lesbians, because I am certain that there are a lot of marriages where that triad is strained. It’s actually threatening when someone has a best friend that will be there for all the partners (especially if they predate you by eons) and you have to measure up………. because again, she’ll be at the wedding, but you may or may not.

In fact, I love getting numbers from straight women because first of all, I’d like to have more friends in the area. Second of all, it shows me just how much progress has been made since I came out (to myself) in probably 1986? Thirdly, I hate dating. I’d rather hang out with friends to see if I like them enough to date them or not. That means it doesn’t matter what orientation the person I meet is, because it doesn’t matter. Either there will be mutual feelings or there won’t, but that doesn’t decrease the quality of the connection. So, I’m looking for people. Who they become to me later is unimportant at this time.

It’s how I know I’m pan. I would say that I was bi, but there’s more than two genders now. Please don’t hate me for wearing bi flags, anyway. It matches more of my outfits. That yellow, tho….. (from my brother-in-law’s X series, #shitlindsaysays: “He looks fast because he’s wearing yellow.” It was my first thought when I wrote the line about the yellow stripe. That at least I would look faster).

I had the gift of enlightenment about the bi flag. Originally, the pansexual movement started with a fight on reddit (no, I’m serious). Someone said that the bi flag wasn’t inclusive of trans people, when that has never been true. Back then, dating both genders meant cis or trans. But I realized that I had to switch teams in terms of identity because bisexual only represents male and female. So, now it’s not that it’s not inclusive of trans people. It’s not inclusive of nonbinary people. I’m not exactly happy with the colors they chose, but it’s not like I’m going to come up with something better…. and not because I’m not capable. It’s just not going to catch on the way it already has.

Maybe it’s just that I’m old and it looks kind of 80s beach to me. I think if the other colors were as dark as they are on the bi flag, I’d be a lot more prone to wear it. I don’t know. Sometimes it might be fun to look like you’re wearing three highlighters.

This year has been the most growth-filled in 10, the best gift I’ve been given- both the memories created and the space to reflect on them…… however, I would be remiss not to include my most popular entries on gifts, about my Scandinavian Snowball Ring. This is because it was in a television commercial in the 80s, so my blog comes up in searches for it because there’s so little information about them left.

It’s a gift I’m giving my Xennial readers, who probably remember the commercial but can’t find a clip.

Saying Macbeth Outside the Theater

Shakespeare understands grief better than I do.

Sir Patrick Stewart said on Graham Norton that when he took on the role of Macbeth, Sir Ian McKellan asked if he could give him some advice. Patrick said, “PLEASE!” Patrick proceeded to make tears roll down my face when he said that Sir Ian said, “the key to unlocking Macbeth is ‘and.’ It is not “tomorrow.” It is “tomorrow….. AND tomorrow…. AND tomorrow.” It is the interminable march of days, the piling on of all kinds of trauma small and large, the fact that it seems like it will never end right up until it does. That’s why there’s such a dramatic boost between happiness while poor and happiness while comfortably middle class. When you have savings, the minutiae of life does not drown you, constantly. It is also true that happiness does not get much deeper after that. Once your basic needs are met, it doesn’t make you another 50% happier to be a multimillionaire.

I think that’s because Shakespeare recognized a specific kind of future. The one where you, too are stuck in a moment and get get out of it. I wish I could do all of life like I cook, which is knowing enough to be able to correct a mistake on the fly… not knowing whether I have just experienced a symptom or whether it’s a regular dumbass attack and treating everything like the latter, blowing it out of proportion with rejection sensitivity disorder. And I could give truly frightening examples of it, but most people who have anxiety and depression jump to the worst of conclusions first because they can’t handle their environment in the first place. It’s hard to feel like people love you when they’re exhausted by behavior that frustrates you all by itself.

It’s hard not to feel like everything is your fault when people are so insistent that the common denominator in every interaction is me. There is no possible way I own a hundred percent of the blame for every situation in which I encounter. It’s just not physically possible, especially when I’m a fixer/pleaser and do things to make people smile often. But people are more naturally drawn to you when things are going well…… and when things aren’t going well tend to think they’re right more than they are. So do I. It’s human nature. The objective truth is found in the chasm between our two stories, and most people don’t have the stomach for that.

People conflate “the common denominator is you” to mean that you are responsible for every slight that happens (as if you have that kind of power) and every misfire in communication; it’s “you are somewhat responsible because a situation takes two or more people to create and you need to own your part.” For instance, Dana and I agreed that we both fucked each other up. After one fight, we divided up percentages and decided it was 60/40 in her favor. Then, I told her I would have taken 75 and she lowballed herself. I tend to take on more guilt than I should, and I am now only reclaiming a normal amount of room in the universe rather than being unable to dictate any terms with anyone. It leads all my energy to bleed out, trying to please everyone from my family to strangers. This has often led to people being entitled to their boundaries with me while ignoring mine because I’ve let them get away with it for so long.

I didn’t decide that I was the only arbiter of my friendship with Supergrover. She shut down and didn’t give me information, then didn’t have any tolerance for me making decisions based on what I thought rather than what was actually going on with her. But it wasn’t because I didn’t ask or want that information to purposefully ignore her needs. It’s that mine were never addressed, ever. She felt great about me adoring her, but not about the fact that she had severely emotionally wounded me. And I wouldn’t have cared by now if she hadn’t forgiven me on the surface so that I felt like I was a ghost in her life. The one in which she thought I was a threat and then checked in with me, not establishing new boundaries so that I didn’t constantly walk on eggshells around her.

Like getting annoyed that I wanted to know something basic through conversation, seemingly annoyed I hadn’t looked it up when I couldn’t have Googled the information, anyway. Why would I do that if I don’t want to give you the impression that I try to get information about you that you don’t want to give?

Tomorrow…. AND tomorrow…. AND tomorrow….

The feeling of how she treated me hasn’t gone away, and I know exactly why I didn’t walk. It felt like the pattern to which I’d become accustomed to in childhood, trying desperately to please someone that had already moved on so that it felt like I was pouring love into them while they tolerated me. Fully capable of being a baby monkey, too scared to walk away from wire because I don’t know how to find cloth yet. I haven’t been taught. But I am teaching, reparenting myself. Trying to give mysellf what I didn’t get, and part of it is saying what I mean and meaning what I say. Everything is a lie as I figure out what’s masking and what’s not.

I just know that my social masking wasn’t limited to autism, it was reinforced by trying to be good (which meant quiet and out of the way) and covering my needs. I’m not special. Most women and girls do this. However, most girls aren’t preacher’s kids, either.

I’m not trying to piss anyone off, it’s just a side effect of change. People see me differently and they ought to. But remember that we’re both going through a struggle and behavior doesn’t exist in a vaccum. If I have to be responsible for my behavior, you have to be responsible about what triggered it. You cannot say I am wrong a hundred percent of the time, because my self-esteem isn’t low enough to believe it anymore. I can work with boundaries, but not when you don’t set them.

So much of my need to run from Supergrover stemmed from her marrying Michael, then not telling me for almost two years, then saying “surely I must have gotten the wedding announcement,” then saying there weren’t pictures, etc. I can believe that last one, but everything else sounds like “lies you tell” when you want to protect someone…. and this isn’t the first or only example of her doing it. Her identity fundamentally changed, her life had moved on in a concrete way, and it felt like I wasn’t worth telling…. whether it was/is true or not. It’s not what she intended, it’s what I felt in those moments. She also didn’t talk about anything but work when that was the last thing I wanted to know about her most days.

It was too big a hurt to mend alone, but an even bigger one that she was right there and couldn’t hear me. She had the right to set that boundary with me, but I had the right to walk away when she did it, because she explicitly said that there were things she wouldn’t be opening up about again…. which was, of course, the thing that drove my crazy dreams. Then, over time, she relaxed about it and I felt like there was a new boundary set with no way of knowing whether it was true. Actions and words didn’t line up for a long time. She wouldn’t have reacted to me so angrily all those years if I hadn’t hurt her, or if we had truly mended the rift. We “put the word ‘free’ on a note so high we couldn’t sing it,” paraphrasing Tony Kushner. Or, one of us couldn’t. Taking Kushner literally, I can hit that high B flat at 1500 yards when I’m on my game. I’m currently not, but that’s not the point. The point is that you get out what you put into it. I wouldn’t be able to hit an emotional high B flat at 1500 yards without years of understanding someone, just like years of voice lessons makes me able to sing “The Star Spangled Banner” (No one will ever, no not ever beat Whitney Houston taking it in four at the SuperBowl.) I will never be Whitney Houston without another party’s input. It takes both of us being vulnerable to move forward.

It’s so counterintuitive, but leans the relentlessness of life into rolling joy rather than rolling pain.

Being able to move fast and take chances doesn’t happen in a vacuum, either. It comes from examining yourself to the point where you understand and trust your own intuition, because you’ve talked to enough people to know whether you’re a good judge of a situation or not. How often your behavior is a source of joy or worry. When it pays off to focus on yourself and when you’re ignoring people. When you ignore them too long, they’ll go away.

When I tried to set boundaries with someone who had no issue setting them with me and just not apprising me of the situation consistently enough to understand it, she ran. I don’t have to take it personally, but I do have to remember it’s what she does. She doesn’t let me know what the boundaries are and blames me for overstepping them, but is also the one I’d trust with my whole life because she’s shown me she’s rock solid in other areas of our relationship. It’s worth working on, but…

Tomorrow….. AND tomorrow… AND tomorrow.

One of Those People

Yesterday in my thread about Sinead O’Connor, I was called “one of those people.” The assumption she made was so far off that I could easily see she was butt hurt in her own life and lashing out at me. Those of you that do know me will laugh. She thought I was a health nut when I said that high cholesterol was an indication of how bad you need to break up with Pizza Hut…. that certainly people do drop dead, but it’s difficult to separate out random cards when the deck is stacked against you. That’s because people who die of natural causes so young are in the minority. There is ALWAYS an explanation if you look hard enough, because it’s science. We are not talking about woo woo shit here. I am also betting that the person who called me “one of those people” didn’t have JAMA articles for company. I could have been wrong, but she didn’t say she was a medical professional or that she had family who are.

However, I’m definitely “one of those people.”

It’s just not who she thinks. I’m bipolar. What I have noticed is that no one loves a bipolar person more than they do at their funeral. They weep and gnash teeth and say “they’re so sorry,” but people aren’t generally interested in learning how to support people with mental issues because it’s genuinely difficult, especially if the patient isn’t medication compliant and has symptoms that show consistently.

It is a truism that Sinead O’Connor had mental health issues that weighed on her. She also had lots of critics that treated her like crap, as well as people who aren’t fans just talking trash and none of them had any idea what was really going on. She took people’s shit her whole life, and it wore her down. It might have been cancer. It might have been a heart attack. What I know for sure is that bipolar didn’t help. It made her feel worse, carrying burdens that are too large for anyone because the medical example would be an autoimmune disease. Your brain is constantly trying to protect you. It thinks the answer is to shut down. It will, if you let it.

I am doing what I can to become emotionally bulletproof so that people can’t rattle me. But it doesn’t take away from the fact that I still deal with people who are insensitive all the time and very, very sure that they’re right. What they don’t say is that they’re bipolar.

Not the woman that called me “one of those people.” Not the person who said she was a fucking therapist and proceeded to try and diagnose me from a couple of Facebook comments. You aren’t even supposed to diagnose someone in the first session, as impossible as health insurance makes it to leave it off the table. After I said that I was just talking medicine, that I was expressing an opinion, that I had the patient perspective and the background to be able to express my opinion as educated but not fact, she said, “I don’t need your resume. I don’t think you’re being attacked as much as you think you are.” There were 75 comments worth of bullshit. My phone has been blowing up all night. The audience will kill you if you let them.

I told her that her comment about “I don’t need your resume” came across as passive-aggressive and that I hoped she was more objective with her actual patients… and that if I needed to look at my words, she needed to look at hers. She assumed that I had some sort of wish to say that Sinead’s whole life could be summed up with bipolar. I was talking about her health history.

My phone is still blowing up, but I’ve tapped out. I’ve said everything in the most objective, dispassionate tone I can muster. To other people, it comes across as aggressive, apparently, but I think that’s because on the Internet, people aren’t used to there being boundaries. That you cannot make up a whole bunch of shit and decide that’s the sum total of me, either.

When people don’t have context for something, they make it up. I cannot tell you how true this is with my beautiful girl. I made a ton of assumptions because she was so busy that she couldn’t pay attention to me, but she could skim my e-mails and tell me if I was on the right track. Sometimes I was. Sometimes I wasn’t. It just was difficult because when she’d get angry about an assumption, we wouldn’t talk it out.

That’s because I was sending her heartfelt letters, and she was reducing me to a Facebook comment section. I can’t show her my weird little world, and I can’t show that to all of Facebook, either. But what I can do is clear up misconception as long as other comments don’t anger me. When I get angry, I withdraw. I deal with my anger on my own instead of taking it out on other people.

But people have a stunning ability to gut you when they think you’re wrong and they’re right, because fuck your feelings. It’s not just Republicans vs. Democrats. It’s all of us. We’re too quick to anger, trigger happy idiots because when someone questions you on something online, you must go nuclear immediately. And then when you don’t get the answer you thought you were going to get, you must double down and keep stabbing.

The audience will kill you if you let them.

So I stopped putting on the show.

Good & Plenty

I haven’t been writing a lot lately, and I think that’s because I haven’t been writing lately. Once so much has happened, you don’t even know where to start, so you get overwhelmed. And then you think, “I’ll blog tomorrow” ad infinitum amen.

Finally, today is the day, inspired by the candy box next to my desk.

I didn’t really become a fan of licorice until I became a singer, and then a cook. Singing because just about every throat recovery tea out there has anise in it, and cooking because roasted fennel is divine. And then I branched out into liking ouzo and Sambuca, especially good in black coffee.

Finally, finally I liked the candy, from the twisted braids to jelly beans to allsorts to the aforementioned little candy-covered bites, although I find that they are the best when they are fresh. Once the candy coating dries out, they just don’t taste the same. The best Good & Plentys have the texture of a Hot Tamale. With fresh ones, I pour a huge mouthful in so I get the maximum amount of sugar to licorice ratio. A serving is 28 pieces and I’m almost certain I’ve done it in one bite. My only wish is that they’d make them in flavors, particularly peach.

In Portland, there used to be a Greek restaurant downtown that you couldn’t miss because there was a huge purple octopus on top. Dana and I wandered in for Happy Hour, and their specialty drink was a “Greekarita,” frozen peach bellini and ouzo. It is one of the best things I have ever put in my mouth, thus my longing for peach flavoring to be added to the beauty that is the Good & Plenty sugar coating. When the restaurant closed, I tried making my own, to varying degrees of success.

But now that my cocktails are limited to every once in a while and we don’t keep (much) alcohol in the house (usually old because it’s left over from parties), I haven’t tried here. I don’t even have a martini set anymore, or even the glasses, because even though I love the classic (gin, not vodka, let’s not get stupid), I just can’t see spending the money when 100% of the time, I only get a drink when I’m out with friends, and even that is rare. I am much more likely to enjoy sugar free soda or iced tea with lemon and Splenda, plus the blessing of free refills (hey, if they’re gonna charge me over two dollars for something that costs less than a quarter to make, I’m gonna have five).

I just wish that more restaurants carried sugar free options that didn’t begin and end with Diet Coke. Not that I’m not a fan, I just wish I had more than one choice. For something a tiny bit different, I go to District Taco or Cava, because both have sugar free cola that’s a little higher-end. District Taco has Boylan’s, and Cava has Maine Root Mexicane in both regular and Splenda (if you’re not opposed to regular soda, try the blueberry…. plus, Cava has “the good ice.”). Even the ubiquitous Chipotle has both Diet Coke and Coke Zero, which is at least something.

Quick Coca-Cola fact:

The reason Diet Coke and Coke Zero taste so different is that Diet Coke is based on Tab (come on, it was 1982), and Coke Zero is based on Coke Classic.

For that reason (and now that my mother is dead and can’t wring my neck for saying so, I prefer Diet Pepsi, which she always thought tasted like moth balls and called it “that Pepsi mess.”). Of course, I have more variety at home, I just mention Diet Pepsi because that’s usually the only choice in restaurants that have Pepsi contracts (sometimes I am blessed with Diet Dew or Dr Pepper). I’m like, the one person in the world where Pepsi actually IS okay, at least in the South.

My actual favorite is Cherry Coke Zero, but you can usually only find it at the grocery/convenience stores and no one I’ve found has it on tap unless you find a restaurant with a Coca-Cola Freestyle…. but if I find one of those, I’m getting Cherry Fanta Zero).

I know this entry is starting a bit different from the usual emotional vomiting I normally do in this space, but I haven’t used my writing muscle in public very often lately, and I have to start somewhere.

The funniest thing that’s happened recently is that Facebook has added a dating app inside the regular mobile app, and since my relationship status is single, I was automatically added to it as a beta tester. So, this woman reaches out to me and in her pictures portion, there are only pictures of Jesus with writing in Spanish.

So, I sent her this message from my iPhone, and then I’ll translate:

Hablas ingles? Mi espanol es muy mal por que solamente estudio dos anos en escuela (no ~ hahahahahaha), y ahora tengo quarenta dos anos.

“Do you speak English? My Spanish is very bad because I only studied two years in school (no ~ hahahahaha), and now I have 42 years.”

Here’s why this is truly hilarious. Años in Spanish is “years.” Anos in Spanish is “asshole,” or anus if you’re not using slang.

So, what I ACTUALLY said is that I studied two assholes in school and now I have 42 assholes. The reason for this is that in English, for age you say “I am 42 years old.” In Spanish, it’s “I have 42 years.”

Really must check to see if special characters are on the emoticons keyboard……. didn’t think of it then, though.

Technically, this is not entirely true. I did study Spanish for two years in high school, but when I was a junior and senior in high school, I went on three mission trips to Reynosa, Mexico, across the border from McAllen, Texas (two between each school year and one at Christmas).

Immersion helped me more than anything else, because it’s amazing how fast you learn when you have no other choice. And while I didn’t know much Spanish, I knew more than anyone else in my group, so I became the de facto translator……………….. again, often to hilarious results, but God bless the Mexican people because they didn’t laugh at me, ever. Just gently corrected me, even when what I said should have made them laugh so hard they could have died from asphyxiation.

I enjoyed Reynosa very much, but the entire area was very, very poor and I couldn’t see myself living there because it was hard to find a proper house. Most of them were poorly put-together shacks with tin roofs…. of course, this has probably changed since I was last there, but if I did choose to relocate to Mexico, I would probably settle in Ensenada (please click on this link- it is gorgeous).

I didn’t go there on a mission trip- my stepmother took our whole familyactividades-principales_baja-california_ensenada_visita-la-bufadora_01 and all her employees on a trip that left from Long Beach, California and went to both Catalina Island and Ensenada. Though Catalina Island was extremely pretty, Ensenada was life-changing for me. It is a place that is both beautiful and practical.

Lots of restaurants and things to see (my favorite was La Bufadora, the second largest marine geyser in the world, capable of shooting water 60 feet in the air). It is also easy to speak English, because lots of Americans retire as ex-pats to Baja California when their medical costs in the United States get too high (ahem). However, I definitely would not suggest moving there speaking only English, because there are certain parts of the city where English is prevalent, and others where English will only get you a “that dumb American” look.

The weather is roughly the same as any city on the Pacific Coast. Our trip was during Spring Break, and it was in the mid-60s most of the time….. basically the Mexican Portland, Oregon. That didn’t stop us from snorkeling, though, despite a huge mass of jellyfish.

The absolute biggest thing that would keep me from really moving there is that I wouldn’t want to give up my United States citizenship (hard for me to live in a place I can’t vote).

I also believe that the United States will have universal health care eventually, and maybe even sooner than I think. Medicaid is already expanded to low-income people in some states, and either that will be broadened or the U.S. will come up with something similar and yet new.

I am all for universal health care because of my mental state. Most private insurances have no problem covering a new patient exam and 15-minute med checks with a psychiatrist, but when it comes to therapy, you usually get 13 sessions a year and then you have to start paying out of pocket. Universal health care says you can have as many medical and mental health appointments you need, rather than are allotted.

For part of the time, I was a psych major at University of Houston, then changed my major to political science because psychology changed me too much. I kept analyzing and trying to diagnose people in my head, and my speech reflected it. To put it mildly, it wasn’t pleasant for anyone, even when I was absolutely right.

I met a psychiatrist named Justin at a winery- we struck up a conversation while waiting in line for a taste. He said something so funny I will never forget it (this was almost 10 years ago). He put his finger horizontally on his lips and buzzed to indicate full-on crazy and then said, “you won’t find that in the DSM, but you know it when you see it.” It was a good thing we were just in line and not actually drinking, because either I would have choked to death or wine would have come out of my nose.

But by the time I decided to switch majors, I already had plenty enough hours for a completed minor. I bring this up because the most important thing I learned actually came from the overview class, Psych 101. It’s that medicine and therapy are two sides of the same coin, inextricably interrelated. For people with situational depression, lifting their mood will help a lot, but talking through the situation with an outside, objective person is what gives them the coping mechanisms to be able get back off the medication altogether.

For people who struggle with chronic illness, they do not have a choice. Medication is a given, because you can’t talk away a chemical imbalance. Going to therapy will not suddenly make your brain create the right amount of neurotransmitters. It’s different for everyone- for some, it’s seratonin. For others, it’s dopamine or norepinephrine.

When you have a chronic mental health problem, therapy is mostly about dealing with it, from anger that you’ll always be this way because there is only treatment, no cure, to the inevitable fallout from people with normal brains who just can’t understand why you’re so different, and why you tend to say things that make no sense in their brain and perfectly legitimate in yours. Communication is a large chasm, and you tend to beat yourself up mightily at the ones they’ll never remember and for you, it’s been four years (20?) and you still feel embarrassed. It also happens more frequently than you would think that a friendship between a neurotypical and a mentally ill person doesn’t work out, because you just don’t see eye-to-eye on what seems like everything…. or, the mentally ill person is having a rough time and is spiraling out and the neurotypical person mistakes that for how you’re going to be all day, every day, and they just can’t handle it.

You march to the beat of your own drum, because you don’t have a choice, and people are generally (but not always) terrible at making allowances because since they’ve never experienced depression/bipolar/ADHD/schizophrenia/etc. they don’t know what allowances to make, and most of the time, we don’t know exactly what it is we need, anyway… or at the very least, can’t put it into words that actually translate into action on their part.

In my case, things that are difficult for most people are easy for me, and things that are easy for neurotypicals get me overwhelmed and flustered…. for instance, creating habits that will help me take care of myself. I am not the kind of person that does well with managing laundry or finding anything. Well, actually, I am great at finding things, just not the thing I’m looking for at the time (oh, there’s the headphones I lost three months ago. Now where are my keys? I JUST had them in my hand.) Yesterday I spent a half hour looking for Bluetooth headphones that were around my neck.

Romantically, once the honeymoon period is over, I have trouble with those relationships. Being with a neurotypical person seems like a good choice because two crazy people in one relationship leads to bad patterns that feed off of each other for years on end, and neither one of you realizes that it just keeps getting worse. But “seems” is correct, because you walk on eggshells with a neurotypical trying not to let your crazy spatter drive the person away, or what’s even harder to admit, bringing them into your own dysfunction so that their normal changes, and your fucked up becomes their fucked up and there’s no one to say “this is bad. We need help.”

I don’t need or want anyone to enable the bad moods and behaviors I experience on my own, and I also don’t want to have to worry about my own mental health as well as my partner’s, because all too often, I stop taking care of myself and all my attention goes to “helping” the other person (too much of an empath for my own good)….

If you have a mental illness, the only one that can truly help you is you. Trying to lift someone else out of depression is like helping a little old lady cross the street when she doesn’t want to go, so she’s banging your head with her purse the whole time. But it’s your own fault, really, because if something needs to change, they have to want it. They can’t/won’t help themselves (depending on the level of spiral) just because YOU need/want it. The worst feeling in the world in a relationship is watching someone go through something in which you feel totally and completely helpless. The only thing you can do is keep yourself strong so that you can deal with what life is handing you, or get out of the relationship altogether because you can’t just keep living that way. You both get resentful at each other (maybe not at first. Empathy comes first.) because one person feels trapped and the other person feels nagged, because it doesn’t matter how you meant it. Perception is everything. Sometimes, your depression makes you feel so low that any suggestion that might make you feel better actually comes across as “you’re not doing enough. You are not enough. You are a bad person because you cannot do these things.” When depression is bad enough, the want to feel better goes away completely, because you just don’t care whether you live or die. Most mentally ill people do get suicidal ideation (normal, especially when embarrassed). Fewer people get to the point where they’re making plans, and even fewer get to the point where they’re invested in carrying them out and start preparing). However, those numbers are on the rise. But for the most part, mentally ill people don’t actively want to die. They just don’t care.

Whether they’re alive or dead is neither better nor worse…. keeping in mind that they are forgetting the repercussions for the people around them, only the way they feel because depression is inherently myopic. It’s acutely important to let mentally ill people know they matter to you, because depression uses the best lies:

  • No one will miss me.
  • You’re never going to get any better. Life is always going to look like this. It’s just going to be one long slog of trying to find medication that works… for a while, and then you have to do it all over.
  • Even people who do love you are also exhausted by you…. and you don’t want to be known as the burden of your family and friends your whole life, do you?
  • You are completely worthless. You bring nothing to the table.
  • You’re going to get fired because no one understands you…. that the hardest part of any job is getting there, because it’s just another day of trying to fit into a culture where everyone does everything the same way and can’t understand why you can’t “because it’s so easy anyone could do it….”

For most mentally ill people, bright ones, anyway, high level thinking is where they excel and mundane tasks are where they fall flat on their faces. They’re great with excellent ideas, not so much with the execution.

I think this is because high-level thinking is one of the few jobs that has the ability to cut through the depression, because it has positive consequences. Low-level jobs only have negative ones. People who can barely spell or add are thought of as so much smarter than you and not because they are. It’s because they can do these mundane tasks quickly and efficiently and you are the absolute dumbass who can’t.

But in any company, you start at the bottom, and by the time you get to high-level thinking, you’ve been fired long before that….. because you could possibly revolutionize or motivate or create something that would really contribute, but they hated you after six months to a year of saying, “no, we don’t do it that way.”

And in low-level jobs, the reason you’re so different is that your mind is eating you from the inside out. Rote is the enemy of depression, because lack of mental stimulation pulls you back into the drizzle of your mind. There are rarely thunderstorms, it’s just constantly overcast, with rain heavy enough to need an umbrella. You don’t care enough to find yours, and no one in any office will offer you one.

For Bipolar I & II people, coworkers don’t understand your personality…. how you can be so cheery for weeks at a time and then something will set you off and now you can barely make eye contact. So, not only do they think you’re a dumbass, most of the time they don’t even particularly like you…. but that’s okay, because you don’t really like you, either.

If you’re wondering why this entry jumps all over the place, my ADHD brain works in tangents. One topic starts a tangent, and that one branch starts ten more, all in different directions. It’s as if my brain is a tree with no trunk. I suppose it’s a good thing, because not everyone reads this site for the same reason. For instance, it is surprising just how many people visit my site when I mention Diet Coke.

And on that note, I think I’ll end here. You’ve got (good &) plenty to read by now.