Blue Bird Circle Clinic for Pediatric Neurology
Name: LANAGAN, Leslie Diane
Staffing Conference
Date: August 25th, 1978
Staffing Physician: Robert S. Zeller, MD
The history and physical of this now 11 and one-half month old girl was reviewed in detail. Although she still manifests a great deal of hypotonia, it appears to have improved from the time of her examination one month ago. She is still, however, hyperreflexic.
Our impression is that of hypotonic cerebral palsy, that is in all probability secondary to insults received during the immediate post-natal period. There is also secondary delayed motor development and she is felt to be functioning in approximately the 6-7 month age range. The parents were counseled in depth and told that we could not predict at this time her future motor function or intellectual capabilities [emphasis mine]. She will be referred to the Infant Stimulation Program in Kilgore, Texas within the next week. We would like to see her in our clinic in six months to evaluate her language and motor development. A letter of our findings and recommendations will be sent to the referring physician, Dr. J.B. Bates, and two copies will be sent to the father.
Sheila Owens, MD
Pediatric Resident
When I was almost one, here is the sum total of my physical accomplishments:
- Does not seem to vocalize to recognition.
- Infant rolls from back to stomach, turns head toward origin of voices or sounds and looks at toys in her hand as she plays.
- She can hold a cube in each hand and picks up a cube from table and side.
- It is difficult to say if she definitely looks for fallen toys.
- Her muscle tone is not wasting.
- The tone is moderately decreased and there is weakness of her lower extremity musculature being unable to support her weight.
- Still unable to sit without support.
- The infant has the appearance of a 5-6 month old baby.
When I finally did start talking, I didn’t look older than that. The harder my mother tried to convince people in the grocery store that she was not, in fact, a ventriloquist was met with derision. Instead of suing the pants off the hospital, my mother helped me strengthen my legs. It’s actually amazing that I can walk as well as I can, and that I’m only partially terrible at it. I continue to misstep all the time, mostly due to balance issues. Physical therapists are the bane of my existence because I say I don’t have enough balance for something and those idiots will let me fall and bruise myself a couple of times before they’ll let me be right. I also bruise easily, and I have no idea where most of them originate, because it happens too frequently to count.
My parents both got sort of lucky. I wasn’t an easy kid, but I wasn’t the worst in terms of medical needs….. until now. I met a spy at The International Spy Museum named Tracy Walder, and she had the same thing. She told me that I was the first person outside of her family that she’d ever met who had it. I don’t know how bad her case is, and whether mine is better or worse.
Therein lies the rub.
I’ve been told that I’m intellectually brilliant my whole life, and yet, I don’t really fit into the whole picture of healthy family, either. I was never allowed to play sports, probably why I was attracted to Meag in the first place. She never read this report, so she had no problem taking me out to the soccer field and kicking the ball around. The best compliment I ever got from her was standing in goal, and out of nowhere I hear her booming voice…. “NICE DROP KICK, SWEETIE!” That fed my ego for like five years. It was one good kick. I’ve never even scored a goal, but I might as well have for what it gave me.
It was the first time I realized that I didn’t need as much protection as I thought, and it was the first time I was wrong about something so huge.
So, if Daniel is right that I do choose a devil du jour to fight, this is it. I’m fighting my own body because I’m not even sure if I’m disabled or not. No one has been any help with this, because my sister found this report with my mother’s things after she passed. She didn’t want me in the “special classes.” I didn’t need them intellectually, but I was the physical class clown whether I liked it or not. It’s the same way at work, because work can be high school (except the bullies are bigger). Don’t think adults are above staring at my alternating isotropia, the thing that makes my brain choose one eye to focus with and the other drifts. As my vision has gotten poorer in my left eye, this has helped somewhat because my brain doesn’t choose it as often.
I made a chef miserable because I didn’t have enough strength in my arms to push an entire potato through a fry cutter. I made an owner miserable because I couldn’t carry a mop and a full bucket of water up two flights of stairs. Both of these things led to me getting fired because obviously I was too stupid to do these things.
Tech was difficult because it was a boys’ club, so I constantly felt pressure to carry around desktops and 21-inch CRT monitors to prove myself. It didn’t get really problematic until I had a cart loaded with 20 that it became too heavy to push…. which leads to another impossible kitchen job. Running loaded carts of food and beverages between Terminal A and Terminal E at the airport. That cart had to weigh 2-300 pounds, and the wheels didn’t help at all. I couldn’t even push it enough to get it going.
I’m having the same identity crisis as Daniel, except that I’m just now finding out what it is. I don’t know what I can do and what I can’t. My passion has been ripped out from under me, because I have the heart of a chef. There is nothing I love more than making dinner for my friends. I can still do that, but it’s nothing compared to the rush of 300 covers a night and you’re winning. I just don’t have any consistency, because sometimes my muscle tone and balance is better than others.
I also don’t see in 3D, so no matter how many times I am shown how something is plated, it is physically impossible for me to see height without other points of reference. This carries over into just about everything. I see the world differently. I am often in my own little world because I have so many insecurities that it’s easier not to engage. My whole life I’ve felt something was wrong, and I’ve been treated with kid gloves. Living in the real world takes an enormous support system, and I’m having to do therapy and medication for all the anxiety those appointments bring me…. which is why I haven’t made them. I’m older. I’m arthritic. Everything feels worse when I fall.
Luckily, I am very small. Therefore, when I fall, it’s easy enough to pick myself up or have someone else give me a hand. I rarely pratfall. It always looks like I’ve really hurt myself. I generally just get bruises, but some have been deep. I also used to rip the knees out of my pants from falling on the sidewalk.
This is also not great at work. Everyone is so concerned, and yet nothing changes.
Add being female and queer to all of that, and it’s just being behind an eight ball I never knew was there. I’m not just queer so I get homophobic comments, and I’m not just female so I get misogynistic comments, I also move weird and fall a lot. And people ask me what the hell I’m looking at all the time.
I’m looking at pictures of beautiful, strong women in my head.
Like Tracy Walder. I’m the only one outside of her family she knows that knows (perhaps) how it feels to be her.
I know we only met for a moment, Tracy, but it was a symphony for me. I hope you felt it, too. Solidarity is the name of the game. You’re the first person like me I’ve met, too.
Leslie D. Lanagan
Diarist in Residence
Stories That Are All True 
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