So Much More

What could you do less of?

I could do less of a lot of things.

I could do less writing. It would be worse for my portfolio and better not to spend so much time lost in my head. I am not sure I get a choice on that considering how much quiet I require, but I do recognize that my mind is a busy place and I get lost there. I have said this before, but there are times when autism makes me feel lost to the rest of the world, and I wouldn’t have said that before because I have had that constant feeling since I can remember, I just didn’t have a word for it.

Because, I mean, of course I’m not autistic. I did not equate myself with other autistic kids because my school wasn’t mainstreamed, therefore I rarely saw any. There is also more and more evidence that ADHD and Autism are missed in many, many women because of the way we were raised. I didn’t look like a “special” kid, so I wasn’t. You get on YouTube and you find out that there is no “look” to autism. I do not have mental retardation because of autism, and those two things are conflated often. Autistic people are either savants at coding or developmentally delayed in popular culture. What is missing in the zeitgeist are regular people who also have that processing disorder. The kind where some doctors say, “I’m hesitant to give you a diagnosis because I don’t want you to be unable to see outside it.” Trust me, this is not just for patients. New parents of autistic children are equally shellshocked as me.

What is intimidating is receiving the same amount of information as autistic parents because it’s a lot easier to make decisions for someone else than it is to make decisions for yourself. You don’t have demand avoidance in mentally healthy parents because it is an inborn trait, the reflex to nurture. A baby’s cry affects men and women differently, but they both respond at the drop of a hat if they see a child in trouble and they are in any way parental.

It is so much harder when you realize the child you’re trying to keep alive is you. Like, in middle school there were not consequences this dire for my Tomagotchi. I’m older and less flexible, more demand avoidant because I’ve either been guided away from handling because I didn’t know I was autistic and didn’t realize that ADHD gives it to you as well (not mentioned in any of the layperson’s ADHD books I’ve read). I also didn’t know that if you have it pathologically, that is also part of the autism spectrum, and because I haven’t been diagnosed, I don’t know which is which. Pathologically Demand Avoidance is somehow part of autism and its own thing. Basically, you get treatment. If it doesn’t work, it’s PDA.

Social stigma around figuring out your processing disorders and mental illness is big and difficult because you get it on both sides. From neurotypical people, there is a constant need to reassure you that things aren’t that bad, you’re not autistic (because in their minds what I am saying to them is worlds apart from what they hear), you’re just too hard on yourself and if you X, then……… Their answers are not my answers because I am incapable of their thought process.

It is not a matter of pity on my end, it is a matter of acknowledging disability and illness. There’s a huge difference between acknowledging something and “making it your whole personality.” No one has said this to me, I just know I talk about it a lot because that’s what I’m reading/watching right now- educational videos. It’s not that “it’s my whole personality,” it’s that you didn’t come here on leg day, capiche? I am obsessed with getting the diagnosis of my neurodivergence right, not fitting the facts to a certain outcome. There is such a thing as ADHD with autistic traits, and there is a lot of overlap between the two diagnoses, so it’s not always clear which is which. I already have an ADHD diagnosis. The “huge leap” is in your perception, not my reality.

Here is the other very serious thing. I am the same amount of different now that I will be after I’m officially diagnosed, or after I’m told I have ADHD with autistic traits. ADHD is not valid in the way that autism is, because in other people’s minds, an autism diagnosis is devastating and if your child is ADHD, it’s bad, but at least it’s not fucking autism…………. when the reality is that the introverted form of ADHD can be just as debilitating. It’s invisible because it doesn’t come with physical symptoms and again, a processing disorder that doesn’t affect the development of the brain so that you can’t figure out how a person can be so smart and so stupid at the same time. But that’s neurotypical perception/stigma, not what’s really happening.

For instance, women’s voices were largely absent from ADHD research because to the researchers, ADHD became invisible in people without hyperactivity. People often don’t see autism because I do not have extraordinarily regimented sensory issues. I do not have a meltdown when I touch or taste something unfamiliar, so therefore I cannot have sensory issues. Some people have autism but do handle sensory perception well. Some autistic people are mentally delayed and some aren’t.

High IQ autistic people have two archetypes in society…… the manic pixie dream girl and “Comic Book Guy.”

I know what you’re thinking. Shut it.

No, I don’t identify with Comic Book Guy at all……….. eyeroll.

Now that everything is so expensive, I feel like coders who live in their mother’s basement are the luckiest bastards on earth. They live with people who love them on a salary that really helps everyone while acknowledging that they- are in some ways- able to take care of themselves and also not. I feel a jealousy toward programmers that I don’t feel in other areas of my life because they created the standard that all their sensory issues being tamped down was critical to the way they work and no other department in an office functions that way…… so if you’re autistic and not a programmer you’re just shit out of luck.

For instance, lights are usually very low in a server room, as are sounds. A server room has the same decibel level as a library. I live like Mr. Robot, because CPTSD and AuDHD being comorbidities means that I am constantly more comfortable with less stimulation through sound and more information through sight. Loud noises and bright lights are anathema to all of those things. I do not have a problem with flashing lights, but office fluorescents. I have a problem with prolonged eye contact, because sensory information becomes too much; I also become self-conscious about my eye drifting. It’s why I’m much better about maintaining eye contact when I’m wearing my baseball cap. I don’t think it’s much of a distraction, but my brain believes it is.

I could do less caring about my appearance, and so much more. By caring about my appearance, I could do more in terms of skin routines and putting on makeup once in a while when I actually feel like it. By not caring about my appearance, I mean constantly worried about how I look in front of other people because it’s not whether I’m attractive or not, it’s whether my social masks are working.

If I don’t call attention to my disability, you won’t notice it and I’m grateful until we get close enough that we can’t social mask around it anymore. It gets more intense with more connection, because social masks fail on a whole other level when you live with someone. I have never had a partner that truly understood me, partly because I’m a complicated case psychologically and partially because I didn’t have the tools to express myself.

You know what I also couldn’t do? I also couldn’t say, “I know you’re feeling personally attacked, but here’s several videos of other people explaining how their symptoms affect them so that you know I’m not just ‘using my disability as an excuse.;” The “motherfucker” is implied. I do not have a problem taking responsibility for my behavior as it is sometimes problematic, but I draw the line at seeing only my behavior as problematic and not acknowledging that things don’t happen in a vacuum. I can say that moving to DC was the last thing that happened, but Dana put us on the road toward divorce originally because of my reaction to her DUI, not blaming her because she got one. There is a cause and effect to everything.

In short, I can take responsibility for developing a wandering eye in a relationship not built for it, but I will not take responsibility for Dana’s drunken mistake that changed my whole sensory perception of life.

You are not the same person at work after a full night’s sleep, and one of the things that would have saved our marriage in retrospect was me putting my foot down and saying, “you’re on your own, kid.” This does not mean me stopping helping her. I mean forcing her to quit her job and get a different one if her boss didn’t move her schedule. That taking her to work in the middle of the night while holding down an office job would bring about destruction for me because I am not capable of it. I got fired from Marylhurst for the same reasons I got fired at Alert Logic. Especially when I don’t sleep at night, I cannot listen and talk at the same time, nor listen and write things down. The reason that transcribing the constitutional law class was easy is because I was transcribing, not taking notes. I was not having to constantly make a decision on what was important to write down and what wasn’t. I got that on my own, by going back and reading what I’d written down, faster to process because I’d heard it once.

I cannot blame Dana for her mistakes, but I can blame my reactions to them. Dana getting a DUI doesn’t make my words and actions okay, or let me off of any kind of hook. I am acknowledging that in a relationship, I only own half.

The problem came in thinking that my issues were so much worse than Dana’s. That Dana needed help and I was just a bad person. There was no medical explanation for why I did what I did, so it was worse….. and yet, there was a medical explanation. I was overloaded and overwhelmed, depressed and anxious except for when I was hypomanic and at no time able to regulate those things. So much was said without thinking, which is why there’s such a disconnect between my thoughts and the words I used in the heat of a moment.

With autism, the heat of the moment is everything. If your words are charged, we will pick up all 7,000 subtexts and our brains are immediately overloaded because we don’t know how to respond. This is why it’s easier to communicate with a neurodivergent person in text. It’s a balance, though, because we have to get to know your voices well enough to have context for when we leave it out. For instance, I think our conversations would have gone a lot differently had I known in the early years that hearing Supergrover’s voice feels like watching molasses drip……. she is a velvet hammer. I might not have been so quick to attribute rage if I’d known she was so laid back in person. She does not portray that through text. In text, she’s strident and it’s “pull yourself up from your bootstraps.” I only get frustrated when she can’t see I’m barefoot.

I choose to be butt hurt over this right now, while it’s happening, because what I know to be true is that my history is to save it all up until I explode, and as Supergrover herself has said, my anger isn’t helpful. She’s right, and in a lot of cases it’s due to lack of coping mechanism. In others, it’s autism and I can’t work around it. That’s because coping mechanisms fail when sensory overload is happening.

This relationship was a new level of sensory overload because we are both so different from each other. I cannot blame anyone else for anything, but I can get it all out so that I can look at it and see what I can do about my own situation.

I think more about it now, so that I know I can and will do less later.

I could do a lot less thinking about all of this. But it wouldn’t turn out the way I think it would. I would be even less able to regulate my emotions.

I cannot do less of that.