I didn’t come up with the most intriguing of things to write about this morning, because the daily prompt was “how do you feel about cold weather.” I answered it last year, so I cannot answer it again. I think I said that I loved it as long as I was dressed appropriately, and I almost always am because I’m autistic and hate the weather on my skin, anyway. So, I tend to overdress and take layers off, rather than getting cold and hoping I find a cheap tourist trap that sells sweatshirts. It’s not worth it when if I wanted an FBI/CIA/DIA shirt I can just ask Zac for one and it will be official instead of a couple of threads being in the wrong place. Autistic people don’t do that.
That’s because autism is all about pattern recognition. Let’s take Chucks, for example. I hated rip-off Chucks because the design was off. I am not one of those people that says “close” is “good enough.” Sometimes, it’s more expensive to be autistic, which sounds funny until you add up the cost of the right clothes, the right shoes, the right everything so you can make it through the day without being irritated. Bombas socks are $60/box. Worth it. American Apparel t-shirts are at least $25/apiece. Worth it. Knit caps that don’t feel like they cost three dollars and will drive your ears insane are probably $25 as well. Worth it.
Clothes for autistic people are extraordinarily specific, because you’re trying to cut down on your sensory issues to make it easier to function in public. My friends would not like hanging out with me as much if I always acted like there was a rock in my shoe. There are only so many quirks a friend can take before you’re “embarrassing them.” I will have to say that this has only started to be a thing in the past year or so, because before that I would social mask within an inch of my life to be acceptable. I have found that I am much more happy being loud. Just put it all out there. People who are embarrassed by me don’t get the right to hear my stories anymore. I know at least one woman who does the same, and she’s not a part of my life anymore. We lost touch about 15 years ago, and I wish I could just have a friend date with her all to myself and lay it out there. I think we would both cry and find someone to confide in, but it’s not a relationship in which I would feel comfortable doing so anymore. However, I can empathize from here and hope that she’s still a fan, and thinks, “wow….. Leslie and I do have a little too much in common for me to ignore this.” We are two peas in a pod, and I wish we could help each other more now than we did then. Back then, we just picked on each other because our sensory issues are over the top and we just ignored them, choosing to be that kind of aggro that’s polite.
But all of the things I noticed in her are actually things she needs to notice in her. It’s not my bag, but I think it would help her to discover herself. That’s all I want to do from here. Hope that she does pick up on it eventually, because it will unlock her personality as easily as it did mine. I don’t have to sit there in silence. I can say things like “I’m autistic and I need you to be sensitive to the fact that florescent lights are way too bright for me. Please respect my quirks and I’ll respect all yours. David makes me use coasters even if it’s an insulated mug. It’s his quirk. I’m here for it. I don’t have to like anyone’s quirks. I need to not set people off. That’s true for any neurodivergent person, including me. If it’s a small thing you have to adjust that literally no one else cares about, but it will make an autistic person more comfortable, do it. Life is hard enough without people stepping all over your sensory issues. They won’t even register if you don’t say “I’m autistic and this is a real thing. I’m not just being dramatic.” Even if you do say you’re autistic, it’s 50/50 as to whether people will respect you or tell you to get over yourself. Neurotypical people are my nemesis when it comes to this, because you’re “making a big deal out of nothing.” No, you think that my brain works exactly like yours, and to you, I’m just “silly” or “rigid” or any number of things people say when they think your autistic quirks are stupid.
That’s the thing. We know they’re stupid. If we could figure out how to turn them off, we would.
We are also not children, just for the record. We are not acting childish when we need comfort items, we are not acting childish when we want to sit in the same spot every time, we are not acting childish because one shirt feels good and the other doesn’t and you can’t figure out why we don’t want to wear it EVER. None of it makes sense unless you also have my brain disorders, and I’m done. I might not rage in front of people as not to be rude, but I’ll rage about it here because this is a survival manual for someone else. Who that might be is anyone’s guess, but it’s here.
Let’s also not pretend your life as the friend or parent of a neurodivergent adult/child is harder than actually being autistic/ADHD, okay? Cut the shit. I’ve been accidentally involved with parents’ groups trying to find peer groups on Facebook, and I’ve never seen a bigger bunch of babies at times. Oh, you think it’s hard that your kid will only eat five things? What about how hard it is when your body rejects EVERYTHING except five things, and everyone just thinks you’re “picky” and “difficult.” Do you think we like being this way? That it’s just so much fun? There are no words for how alarming unfamiliar food is to some autistic people. It is a sensory issue that will set someone’s nerves on fire. It gets worse as you get older…….. “guess who finally decided to show up for once?” It took me three days to get up enough energy to bathe last week. But I grin and bear it because demand avoidance over basic needs doesn’t make sense to neurotypical people and it never will.
I’ve finally got my computer set up the way I want it, and I swear to Christ David thought I had died in my room. I said next time you think that, you could just text me and ask. I told him that when I don’t come out of my room for more than peeing and eating, it means I am utterly obsessed with writing, not that anything is wrong. Plus, I’d just gotten home from Zac’s, and that always takes a lot out of me on the way home because I’m transitioning to writer’s mode rather than socialization mode. I also got food poisoning on Thursday night, so getting home was delayed by several hours so that I didn’t throw up on the train. I’m glad David works from home on Fridays so that I didn’t leave Jack stranded.
It was so nice to spend time with Oliver, who is a dog. I love that I have a Jack away from Jack and an Oliver away from Oliver…… and I am responsible for neither in terms of food or emergency vet bills. It’s a truly great setup, because I like pets, I just don’t want to spend money on them when I know I’d be tapped out quickly.
And that’s all I have to say about that, but I’ll be back on later. It’s going to be what I’m doing now that my hatred of Windows knows no bounds. But before I go, here’s why I love this office so much- my views into the front and back yards. They are no longer in bloom, but when they are, it’s a hundred times more beautiful.
Stories That Are All True 