To get down to brass tacks, my father and I get along better than my mother and I ever did. It had nothing to with her social expectations of me. It’s that my dad and are are both class clowns and my mother simply gave us The Look when we misbehaved. Neither one of us liked “The Look.”: It said something like “this is inappropriate for a preacher’s family.” We were off the clock. With my mother, the clock never stopped. My dad gave me room to be a kid in the middle of all this mess- partially because he knew the way my mother had stacked the deck against me by pretending I wasn’t disabled mentally or physically, and I didn’t have two processing disorders. I would have known that very early (maybe, research on autism in girls and women is relatively new because of the classic presentation). I could have gotten the help I needed much earlier in life to deal with success. I am fine with everything going wrong. It’s what I know. I get wigged when I think about what it’s going to take for success, get overwhelmed with the details, and demand avoidance ensues. My dad is trying to help me navigate all that, because clearly I do need help, but I am not high needs all the time. People think you’re one or the other, and you fluctuate. High needs days come after you think you’re okay for a few days because everything is normal. Then, all of the sudden, everything is too loud and it’s hot in here. You have reached your limit, and need to tap out. My dad was on the train of wanting to tell me I needed these things. My mother wanted to pretend I was fine.
I am so fine.
Insert laugh track here.
It’s an enormous amount of work to manage a disability because your energy levels vary so significantly. In my case, it fluctuates because I’m ADHD. I do not feel the pull of an iron structure like most autistic people, as in, deciding what I’m interested in- to the exclusion of all else- and an interruption is not only unwelcome, but rude. People wonder why IT guys are such dicks. Here’s the real answer. You’ve interrupted a neurodivergent person and they absolutely cannot handle transitions. Autistic meltdown looks like driving three hours to troubleshoot a server and the only problem is that it isn’t on, despite having three separate people check to see if it was on before you left. You are more likely to interrupt a neurodivergent person to the point where they are angry to the point of rudeness over a seemingly simple small thing. It’s not small to someone who has to prepare to get into the car, prepare to enter the building, prepare for everything to be unfamiliar, and to have to make small talk while you work with people who have absolutely no idea what you do, but feel they must supervise and offer suggestions that if they worked, we wouldn’t be there.
You cannot remote desktop into a server that is unplugged or air gapped.
My dad knows that the little things are the big things. That life is harder for me than it would be if I’d been born under perfect circumstances, or even just later, when the technology in neonatal care was better than it was in 1977. I think I still would have had CP, autism, and stereopsis. Those are often a combo meal because lack of stereopsis and autism are often comorbidities. It’s not so much that I was born wrong, but born too early on multiple levels. Not only was I born in the 70s, I was eight weeks early.
I can think of someone I’d really like to talk to about that, but she doesn’t live local and we’re not close enough for me to just flat out say, “hey, are you autistic?” You never know what people’s word association with autism is in advance. If they have autistic kids, parents, or siblings, they know you’re asking “how does your brain work?” NOT “are you slow?” But, it would be a great conversation to have the next time she’s in town. She’s got all the same issues I do, and it would not surprise me if she had autism as well because of it…. again, combo meal, just like ADHD and autism are comorbidities in up to 80% of cases.
I also know that I got autism from my family somewhere, and I don’t see it in my dad and mom, but I do see it in my granddads. And in fact, I am a perfect mix of them. My dad’s father was creative autistic, and my mother’s father was STEM autistic. I ended up as a geek with a pen.
Perfection.
Saying that I see it in them is also not derogatory, because obviously both had brilliant careers…… and you absolutely cannot under any circumstances prove that autism is not genetic. It is also not an indication of intelligence.
One of my first memories of my dad is him teaching me to say “betahemolytic streptococci,” and “antidisestablishmentarianism.” He broke everything down and strung it together. As a result, I do not misspell much. I know my English roots and my Latin roots because medicine. Unless you’re at High School for Health Professions, I doubt they worry whether you can spell arrhythmia and diarrhea in high school.
I know in British English there are dipthongs. I say “zed.” That’s my final offer. I can’t internationalize everything. 😛
Though I will say that I am well versed in British English because of my grandfather, who got me started on Black Adder, A Bit of Fry and Laurie, Are You Being Served:?, and every BBC anything he could find on KERA. We always watched “A Child’s Christmas in Wales,” just one of the reasons I’d actually like to go to a game in Wrexham rather than watching “Welcome to Wrexham” on Hulu.
(Don’t sleep on it, even if you don’t like football/soccer. Ryan and Rob are hilarious owners and seeing the business side is very much Ted Lasso, Higgins, and Rebecca.)
My father and my grandfather have easily had the most influence on what I do today, because their contributions to my life are unquantifiable in terms of teaching me how to get my ideas out there, and my dad and my grandfather were both doing it before the internet even existed. I remember putting it together that I was very impressed with my grandfather because I remember a series of shots he took of his steel company from the air, not having realized how difficult it is to get those shots while basically hanging out of an airplane. I didn’t have as much insight into that strength from the photograph, but from hearing Jonna Mendez described how she learned…… which is basically hanging out of an airplane. Good luck. God bless. If you’re lucky, you’ll have someone to spot you. Otherwise, it’s just canvas straps you lean against and pray that what you feel under you is not your imagination.
It happens to be true biologically that we are related, but I wouldn’t be as comfortable in my own skin if we hadn’t met, whether we’d ended up as a biological connection or not. They have always kept me grounded, and just because my grandfather has passed on, that does not mean that he’s not in touch. I am carrying on his legacy of writing what I know. I am carrying on the tradition of preaching what I know.
They would have been great as friends, the universe just smiled upon me and I got to be my grandfather’s first granddaughter on my father’s side, and the first grandchild period on my mother’s side, and the oldest child in my first family as well.
I have something with my father and my mother’s father that no one else can have or take away.
I’m the one that made them a dad and grandfather.
Stories That Are All True 