Tell Me What You Desire

What do you want?

The hardest thing I get asked is about my preferences. When I am in front of other people, I suddenly lose the ability to advocate for myself, simply going with the flow. I am getting better about this, though, because what I have noticed is that people don’t respond well to uncertainty. They respond to clear needs and boundaries…. that it actually is more work for them when you “don’t care.” Because of course I care. I am just afraid.

Afraid that the thing I need will be considered weird or “too much.”

I had to get over that pretty quick. I’m autistic. All my needs have been viewed as weird or too much at one time or another, and I am self-aware enough to know that other people are right; my needs are weird and often too much. If they weren’t, it wouldn’t be hard to be an autistic person’s caretaker.

But even that is changing as I learn to dictate what it is that will make my life easier. It’s not a matter of caretaking, but collaboration. I have stopped masking because I do not have the energy for it. I do not have the ability to constantly sit in discomfort because it makes other people react differently to me. I can also spot masking across the room, so I empathize with all the other people who are constantly squashing sensory needs to make peace.

I think one of the most famous misnomers in autistic culture is that we are picky eaters. I cannot speak for everyone, but for me it is not “picky.” I prefer “same.” I will eat anything and everything when I am ready to focus on food. But when a meal is just energy and not entertainment, I want something simple and repeatable.

Pretty sure if Whole Foods stopped making veggie dogs I’d be dead by now.

It’s really the difference between my old personality and my new one clashing. Because of course, my personality has not changed so much as evolved. I don’t feel the need to impress anyone; if they don’t like me, it’s not my bag. And in fact, that’s one of the things my blog has done for me. I’ve had to deal with blowback since the beginning, standing by things I wrote even when they weren’t true in retrospect.

It is never that I was wrong and now I’m right. It has always been “I am giving you information that is based on what I know right this minute. Tomorrow’s timestamp may be completely different and that’s okay.” My analogy for this is the Bible. Lots of verses contradict each other, but it’s not due to wrong and right. It is due to the passage of time. Society completely changed between the Old Testament and the New.

People’s idea of who God was to them changed, and that’s very much how it feels to be a blogger. You don’t change- the system around you does.

Figuring out what I need in the midst of all that is a constant battle.

But I’m getting better.