I Am…

Describe something you learned in high school.

Here’s the link to the audio. You might have to download it into your own media player or the Mega app. SoundCloud wants me to pay because I “upload a lot,” and I get it. I just didn’t know the space limit was so incredibly low. I’m searching around for options, and most of them rely on using my desktop, of which I am not a fan… mostly because I’m not really using SoudCloud to increase the popularity of my blog. The audio is just a convenience.


High school is divided up for me in two segments. The first is that I spent my freshman and sophomore years at High School for Performing and Visual Arts as a trumpet player. The second is that my junior and senior years, I didn’t. I went to a regular American high school. I was still in the music program, though. My junior year I was in varsity choir and varsity band at the same time, the first in the history of the school to do so. I learned how to be in a marching band. My symphonic band was better than the one at ‘PVA (no judgment, it’s just true).

Then, my counselor suggested that I drop one of my music classes because if I took Microcomputer Applications, I could get what was called an “Advanced Diploma.” The band was gearing up to go on all these trips my family couldn’t afford, and it was an easy out to drop band because I knew I couldn’t sell enough fertilizer to pay my own way. Yes. Really. They asked us to sell shit to people.

I dropped choir because I didn’t like the new director coming in, because I knew other people that had her and it wasn’t my bag. I was not a “show choir” person. I do not think that if you can sing, you should automatically be capable of dance as well. I liked great repertory, and pop music wasn’t it (for me). If that sounds persnickety for a teenager, remember that I was a classically trained singer from being in an adult church choir since I was 13.

I didn’t care about Britney Spears. I loved Bach and it showed.

For the record, I care about Britney as a listener. She’s great. I just wouldn’t sing her stuff unless I was doing it as a joke, because I couldn’t pull it off where people would take it seriously. It’s a totally different type of training.

I think I’ve said before that Beyoncé left HSPVA because she didn’t want to be classically trained, and that I continue to be devastated that it did not work out for her. But same vibe, we’re just opposite. She didn’t want to learn everything I’d been taught about being able to blend into a choir, breath control specific to that kind of music, etc. It’s a lot. By the same token, I didn’t want to learn the proper breath control to sing whatever it is the Star Spangled Banner is now in professional football. Whitney Houston doing it in four was the high point. ::looks pointedly at other pop stars:: No one will ever be her, and I knew that I’d only be a cheap imitation. I don’t want that for me, or anyone else. Do what you do and make it count.

Since my dad had left the church, I also got a job in hopes of getting my own spending money. I was 16, so no one thought anything of screwing me over to save themselves, like making me pay things back when I was short on the register when they’d been stealing from the drawer. I’m bad at math, so of course it was all my fault when the drawer was missing $50 at the end of the night. Of course it should come out of my paycheck. It’s what a teenager owes a national corporation, right?

I would never sue them over lost wages, but I would get a kick out of it if they sent me a product and swag box if someone is reading who thinks such a thing could happen at the company. I once proposed to Zyrtec on Twitter and told them they were paying. Then, they later kidded me about forgetting our anniversary and I said, “how do you think I feel? You didn’t get me anything.” The proposal rocked, though….. that I had 99 problems but a itch ain’t one.

I worked for SuperCuts, and in this instance I am not talking about the company. I am talking about the sleight of hand with my own team, not every employee who ever worked there. I mean, I was great at my job in retrospect. They had me, so you’re definitely safe in giving them as much money as you want. I still look back on my time as magical because things that are commonplace today were introduced while I was an employee, most notably, American Crew (for which I am grateful… white people pomade). I think the Paul Mitchell Tea Tree line came out then, too, a total game changer. It was also amazing learning the jargon of how to tell people I want my hair cut so that there’s less room for a mistake.

It doesn’t always work, but it helps.

By the time I graduated from high school, I had set myself up for life in terms of my opinions on everything that is still true about me today. The only thing that’s changed is that I call myself out as I am, bisexual, instead of telling the world I’m a lesbian while not thinking that way, because that label wasn’t something I gave myself. I just have to be louder about being bisexual in a heterosexual relationship than I would if I was actively partnered with a woman, because you can see it with every kiss.

The one thing I didn’t see coming that I didn’t know I needed was dating a bisexual man. That way, we still have all the same cultural references, though I’m older and have more insurance. He doesn’t care whether I look high femme or butch because in one outing, we’d look depressingly heterosexual and in another, it’s a whole bear/twink mood without all the lights, drum & bass, and Ecstasy.

To stop joking, we’ve both been bullied for being queer. That trauma for him is a different playing field, because mine is rooted in embarrassment. I’m either gross and wrong or a plaything given to men, because why wouldn’t women being with women be nothing but a male fantasy? Why would women have agency in this society? Straight women don’t even have it.

Men harass me by seeing me with my then-wife (Kat, in this example) and asking us to kiss in front of them, or come home with us, or any number of things that hurt way more than they would have if it was original. Those examples aren’t all Kat, when it was 2000, or even Meag, when it was 1996. It’s all picking at the same scar every day of my life, because I heard about it before I experienced it. Being an empath made me experience that trauma before it was direct. I felt it on my skin when it happened to my friends.

For men, it’s horrible that they want to be female, their tormentors’ perception and not reality….. but seriously…. As if being female was the worst thing that could happen to a person…… hello…. All connected. Except men don’t stop with horrible comments with other men. It often leads to outright violence and death. I only say this because it happens to men more frequently, but violence against lesbians exists.

It’s a shared understanding, a shared library of images that create empathy. To me, it is especially important because the one thing I really hated about dating Matthew had nothing to do with him at all. It was gaining heterosexual privilege for the first time and rebelling against it hardcore. I remember one instance we’d gone to meet some of his friends, and someone did that thing where they looked around before they told a gay joke, and I wasn’t the picture of volatility you see here.

I said nothing, and just felt all of it. I know now that I should have ripped the dude a new one, but I didn’t want to upset the apple cart when I was meeting my boy’s friends the very first time. I was also like, 24, maybe 25. I was older than Matt, but still a child in my eyes now. I didn’t know what to do, and I was scared.

So now I can look at that and say I’m in a better place because Zac has probably been there. He’s just as out and proud as me. On Wednesday, I noticed right off that his nails were painted teal and he was wearing flowy pants. He’s the head of the queer group at his intelligence agency. I don’t know how he sees himself, but I see him as George Smiley if he had grown up like us. (Smiley is the protagonist in John Le Carre’s most famous series about MI-6.) I showed up in a black t-shirt, jeans, and tie-dyed pattern Crocs. I later put on a navy hoodie and my CIA baseball cap- some of you will remember that was a gift from Zac because he has the badge that allows you into Langley, but not the capability to escort visitors. I wear it almost every day like I’m pitching the afternoon game. Now do you see how we’ve inverted the binary? From the outside, I’m the butch and he’s the femme…. And no one would ever guess that we were into each other unless we weren’t holding hands or being cute to the point of nausea (our MO most of the time).

Editor’s Note: I learned that it was important on the train Thursday, when a young girl at the Franconia Springfield Metro said, “I want to be CIA, too.” I told her that I wasn’t CIA, I just had cool friends, and to call me when she got there. 😛

“Grown up like us” is emotional shorthand for Zac and I having to deal with the perils of being queer from a very, very young age. Zac entered the military under “Don’t Ask, Don’t Tell.” At the same time, I’m not dating a gay man and he’s not dating a lesbian just for kicks. We’re not playing at anything, just being the most authentic versions of ourselves.

I have always been that in some capacity, but I have graduated. You don’t learn that you are brave and unique until someone tells you. In the moment, you’re just doing what you have to do to survive.

In high school, I learned that I would HAVE TO be unique.

My freshman year, I told one person I was gay and by the end of the day, everyone knew. In retrospect, it was the best decision I ever made, because any bullying that came my way was tiresome. They couldn’t blackmail me anymore, and they couldn’t get away with anything more original because they weren’t that clever.

Because I was moving out of the gay neighborhood in Houston to a suburb where everyone knew each other, I went back in the closet…. To save my father’s job according to my mother. My father didn’t care. He knew me. We’d met. But guess which message I heard?

Being in the closet for a school year was amazing and gave me the worst panic attack of my life. Both of those things were true. I would not have wanted to miss the chance of being in marching band, would not have traded my conductors (Mr. Matysiak and Mrs. Bueller [really]) for anything in the world. I would never have wanted to miss learning that I was not only a singer, I was damn good at it. I stood on the shoulders of giants, and my mother accompanied me through it all, literally.

She played the piano for my solos no matter what she was doing, and in seventh and eighth grade, she played for all my friends, too. This was not a small feat, as most piano accompaniments for solos are orchestra reductions. So, my mom hurt me a lot, and she also came through in equal measure. Not only was the piano our lighthouse when we were ships passing in the night, she left it to me in her will. She didn’t give me a setting. She gave me the main character.

In terms of hurting me, all of the panic I’d been feeling that year came to a head when my senior best friend asked me to come with him to his prom. He was literally on the way to pick me up, my hair and makeup done to perfection, when I melted down physically. It caused a monster reaction, a rash, shortness of breath, everything- so the doc came over and gave me a shot of Depomedrol and off we went.

That was the first time that I learned everything can be fixed before school, you’re going. It only backfired once. I had the flu, and Tamiflu was YEARS ahead in the making. If it had, I would have been going to school without spreading it. To be perfectly fair, I’d woken up feeling a little miserable and bloomed at school. It wasn’t a big deal right up until it was.

Actually, that leads to a really funny story. One of our parishioners while I was at HSPVA was a Republican judge, so I went to their convention in like, ‘92, before they were complete nut jobs. While I was there, I bought a button down that was made of real American flag material, and the colors were very dark. It looked sharp…. Or so I thought. I was really sick on my birthday, and nothing would have stopped me from going to school that day in my new threads. I get there and first period was band…. And if Jack Lucas had been there, he would have been SO PROUD OF HIS STUDENTS.

Editor’s Note: I also went to St. Martin’s Episcopal as a teen, where I was unimpressed with President George H.W. Bush….. and thrilled to meet a former Director of CIA (of course). Therefore, it always thrills me that Jonna Mendez managed to fool him, because of course now I know we have mutual friends…. And I am laughing so hard that I can’t even breathe right now.

Those motherfuckers broke out in four part harmony, because they were musicians. They could sing their parts blind. Then, they get to “free,” and Dan Kovaly hits the fucking *cymbals.* I was just as self-deprecating then as I am now, so I thought it was absolutely hilarious while still mortifying. Later, my mom and dad brought me my favorite food, cherry chicken from Ruggles. We got to eat lunch together in the commons, and it was sad that there wasn’t a Happening that day.

Happenings at HSPVA are code for what would now be called a flash mob, probably. You never knew when they were coming, and it was always unique no matter which art area was on showcase. It’s one of the core memories that made me who I am.

Back in high school.

Anything Anywhere All at Once

What job would you do for free?

Link to audio.

I will do anything for the experience of having done it, because I am a firm believer that you don’t say something is bad if you’ve never eaten it…. and that statement has many transitive properties.

Most writers work for free while they’re doing something else for money, and everything I do for money feeds this web site in more ways than one. So whether I’m in Global Information Services or trying to be a cook, I’m still me. To really understand me, you’ll have to read “The Sol Majestic,” which explores the idea of ivory tower vs. hard work. I am both sides of the equation. I am blue collar and an academic because one feeds the other. I do not need a job that captures any more of my attention than is necessary to feed myself, because I don’t live on earth most of the time. My head is in the clouds, and I am constantly wandering for a foothold.

In the clouds, there are no footholds. Blue collar work is an anchor to keep me from flying too close to the sun. Brandon Sanderson says that if you want to be a writer, lay brick or similar, because you need something that your body can do independently of your mind. I agree, because you can get into a rhythm while at the same time giving your characters room to play. I only have two fiction projects in the works and trade off between them, and it’s slow going because I’m a blogger. It’s not that I’m a bad writer, it’s that I’m so inexperienced with style and structure.

At some point I will have to borrow structure from Jonna Mendez, former Chief of Disguise at CIA and in my opinion, the best non-fiction writer that ever lived tied with her husband. Here’s why. Jonna and Tony have the ability to capture what fiction does without writing it. Their books present like spy capers and you get lost in their movies, internal videos that play as you’re reading. I didn’t just read about trying not to get caught in Tehran and Moscow. For the length of the book, I lived it.

Then I met her in person and the books changed yet again, because not only could I picture her more completely in her stories, they were scarier because I really, really liked her. It’s one thing to read about strangers in peril… quite another when you have an emotional attachment to the story. It made me a bigger fan, though. I have two copies of each book by Team Mendez, autographed paper and Kindle.

If it seems weird that I have both, it’s that the Kindle versions came first and the autographs are keepsakes. Plus, I don’t like to write in the margins of my books and it’s not because I’m a purist and think writing in books is bad. It’s that if I want to make a note about something, I want data I can use. If I write a note by hand, I then have to type it. Wasted energy when I can just attach a keyboard to my tablet or Kindle (yes, Kindles support them). I wouldn’t have thought of this unless I’d reviewed so many books that it was necessary. So much easier to copy and paste text from my notes, and it syncs with Goodreads and a few other programs so I can access everything on every device I own.

I would like to say that I love reviewing books, but I don’t. I’m a voracious reader and therefore, my standards are extraordinarily high. I also don’t want to hurt any writer’s chance of making more money. Even if you’re a shitty writer, you still deserve to eat. It’s a different perspective for me because I am also a shitty writer who deserves to eat, so I probably empathize too much when I should be ruthless.

Speaking of which, I still owe Finn Bell a couple of reviews, because he’s one of my favorite writers in the entire world…. mostly because he writes characters and mysteries that you don’t want to end and there are too many questions running through my mind as to what happened after the story ended. I asked him about that, and he said he couldn’t tell me anything because he was keeping things tight for future stories.

I get it, and at the same time, “AAAAAAAAGH! WHAT HAPPENED TO THE PRIEST, FINN?!?!?!?!”

Speaking of priests, preaching is another job I’d do for free as long as I didn’t have to do anything else. It is ultimately the reason I changed my mind about starting a church. I realized that I was too immobilized by grief over my mother’s death to do things like pastoral care when I was the one that needed it so badly. You can become a wounded healer, but only up and to a point. It’s a balancing act of being empathetic and not getting your own crazy spatter all over your congregation. Don’t think it doesn’t happen. I have watched it on many an occasion and didn’t want that for myself.

It was hard enough coming unglued with no one watching except readers who weren’t in the room where I type. I could say what I liked and process “verbally” without feeling like I had a responsibility to keep it together for everyone else.

Here’s what you don’t know before your mother dies that you sure as hell know afterward. If you are the oldest, you are the new matriarch of the family and it might not be because your family wants or needs that. It’s your own mother lion protection mechanism because you were the one your mother trusted with “the rest of them.” You aren’t prepared for that kind of responsibility and if your siblings are also adults, they didn’t give it to you. You took it because that’s what you’ve always done… sacrificing self to take care of everyone that came behind you.

You feel alone in a way you never have, because now it’s all on you…. even when no one needs you and the responsibility is an illusion.

The phrase “even if no one needs you” is not wiping the blood off my cross or anything. It’s that at adult age, “need” is relative. For instance, I want people to want me, not fall apart because they think they can’t function without me. So many people confuse desire with need, and it ate my lunch for a while as I walked toward the new normal. The pace never accelerates. I have run toward nothing.

I’m not sure there’s ever been a sense of loss as great as continuing my own life afterward, because it was so painful. I didn’t want to die, and I didn’t want to live because who cares? That’s the other part no one will tell you. When the person who brought you into the world leaves, a huge part of your tether develops a rip and you aren’t carrying a needle and thread.

Of course this is magnified by my bipolar disorder, but I do know these feelings are also universal. Specificity is measured in tiny increments.

I’d be a grief counselor for free. Nothing fills my soul faster than a mutual stitch and bitch, because if you haven’t lost a parent, there’s no way to understand. I am not being pedantic. You just don’t even know until you get there. It will hit you like a head on collision where you’re driving a Trabant into an oncoming train, and this is true whether you liked said parent or not, because those two people made you. I am not speaking literally. Adopted kids go through the same stuff.

It’s that the core personality is set by six years old, according to Erik Erickson, and generally your parents are there for that. Even your facial expressions and mannerisms take on new meaning when you realize that you are indeed looking at your mother (in my case) and you aren’t offended that she’s staring back, because you’re not a copy anymore. You’re what’s left.

If you haven’t lost a parent, you can empathize with me, but don’t you dare say you know how I feel. I wouldn’t even say that to another person who lost a parent. Just because their parent died doesn’t mean they’re having the same experience.

The one thing we have in common is that “hell is other people.” They don’t know what to say and you can’t get mad because you know they mean well…. even though when they say “I would fall apart if my mother died” you want to scream “WELL IT’S A GOOD THING I’M GOING THROUGH IT AND NOT YOU, JACKASS.” Don’t get me started. It isn’t helpful to get angry, just to say to people the best thing they *can* say to someone grieving is “I’m so sorry.” Don’t add anything. Let those words be humble and enough because they are….. and let me explain why.

When MY mother dies, it’s not your turn to have emotion. It will be your turn, but it is not in that instant. To focus on how you would feel if it happened to you is bullshit to someone to whom it has happened. It will come across as “God, I am so glad I’m not you.” It’s also frustrating for people to say that they don’t know what to say and avoid you when you are literally handing them a script with only two or three words.

When I was in the thick of it, just deep, deep grief, I needed people to do things for me. Two problems with that. I didn’t know what I needed and couldn’t ask for help because it was too much energy… both in the figuring it out and in the asking. I was alone in my room for months because no one is prepared to have their mom die. No one. At the same time, I wasn’t prepared in the slightest. It’s not like anyone could have predicted an embolism because the doctors didn’t know they needed to look for one. I can imagine the notes:

Patient is a 65 year old white female presenting with moderate pain and limited mobility in her left leg. Waiting for x-ray to confirm fractOH MY GOD SHE’S DEAD.

Speaking of “white female,” I’m laughing because one of the doctors I work with decided to create a macro in a word processor that would automatically change “if” into Indian female. Hilarity ensued. EVERYTHING in medicine depends on “if” and “it depends.”

My analogy for this is that all doctors are half programmer, half waitress. All of them. Doesn’t matter the specialty. It’s soft skills and “if, then.” So many medical problems are just spaghetti code (everything loops back around into a tangled mess).

And then you look at psychologists/licensed counselors and the spaghetti code analogy gets even stronger. People aren’t machines, and logic isn’t emotion.

It’s honestly why I’d cook for free, and I proved it when I was willing to do it for eight bucks an hour. I needed a logical job so that my emotions were a separate part of me. The place I kept to myself because I already had a place to vent and a partner to help carry the financial load (absolutely the most important reason to keep Dana in the back of my mind if and when I start making real money).

So if you ask me what I’ll do for free, I have touched on so many subjects that the answer is anything, as long as it serves a purpose. I think it’s good advice. You can have it.

Free.

Without Tears

I am not sure that this entry will be written without tears, because I’m thinking about so many things that my emotions might leak. I might let the audio sit for a day or two, just to get some emotional distance. It helps the narration if I don’t have to blow my nose. Also, I’m sorry if the audio is poor. I have five housemates and I don’t have an “on air” light, nor would they pay attention to it. I am, however, surprised at just how much my Bluetooth mic picks up. The mic is literally in my ear, and it still picks up noise from all over the second floor. It helps me, though, because it keeps me from flooding out…. So that I can record an entry without tears…. 98% of the time.

I am positive that some people were confused at me crying over the death of Tony Mendez, but let me tell you why. I wrote about it, but it’s been long enough and I haven’t mentioned the connection more than once so it’s time for a rehash.

I wasn’t finished with grieving my mother when Tony died. Grief compounds. Therefore, I knew innately what his widow, Jonna, was going through in terms of having to tough out a public event all armored up while dying inside. My mirror neurons went off like crazy. My grief mixed with hers even though we didn’t talk about it. I took all of that grief home with me and mourned Tony and my mother simultaneously. Therefore, years later, when I think about grief, Tony and my mother both come to mind.

Mourning my mother was so great a loss that I put it deep down inside, hardly ever talked about it unless the other person in the conversation had already lost a parent. This is because the chance was too great that I would open myself up to further injury, because people have no idea what to say and often make it worse.

I will tell you right now that the only thing I actually wanted said was “I’m sorry.” I loved people that showed up and were willing to sit in the silence until I could emote.

Digging that deep was so incredibly hard that I still hadn’t cried as much as I needed to. Crying about Tony was only partially about Tony. The loss of a new book from him ever again really was devastating. But mostly it’s that the grief I felt regarding him was so much bigger than that. Grieving over him allowed me to process my mother’s death, because it was the entrance to a deep, dark cave, ripe for excavation. I just didn’t have any spelunking equipment.

Meeting Jonna was at least the hat with the light.

She broke me open in just the right way, at just the right time. Her armor was my armor laid out in front of me where I could take it in… where I could see my own actions in the third person omniscient.

So, when I talk about Tony Mendez, I can’t do it without tears.

Going through a breakup with a friend has been devastating, and yet not at all. It just depends on the day. Some days I think “no one is her,” and some days I just can’t. What has helped is a book called “My Other Ex,” stories of women who’ve lost their best friends and why “no one is her.” One thing they expressed universally is that with other women, you get so close you can speak without words, but there is no recognition of that type of grief.

I am an INFJ. I feel emotions so deeply that they’re capable of overtaking common sense, and I could write a seven volume book series on my dumbass attacks. Not only do I understand, I grok.

I understand so completely that their grief is my grief. Grief compounds. I cannot talk about that relationship ending without tears. So I compartmentalize, and armor up. No one is trying to see me cry in line at Whole Foods.

Armoring up is necessary only because if I don’t, I will just bleed out emotionally. In the moments where I am not capable of armoring up, it means the grief is too deep. So even though no one was trying to see me cry at a Whole Foods, they must have thought that them being out of the veggie dogs I like was being taken way too seriously.

Although I will say that it was legit a problem. If veggie dogs, vegan cream cheese, and hot sauce didn’t exist, I’d probably be dead by now. I eat them all the time. It’s my favorite lunch, because it takes about a minute to make. Yes, I am a very good cook, but I eat prepared foods most of the time. This is because I don’t want to devote the time and energy to prep. If you come over to eat, I will pull out my good knife. Left to my own devices, I run on sandwiches and Crystal Light.

I believe in Crystal Light, because Crystal Light has always believed in me. Also, not going to lie- finding out there are flavors with caffeine in them has made my whole life easier. I cannot talk about Crystal Light Energy without tears. 😛

“Spare” is a rough read, and I cannot do it without tears, either. Prince Harry and I have so much in common. My platform as preacher’s kid was so much smaller, but I can empathize with his pain. I’ve cried over the loss of Princess Diana, being different than everyone else because he wants to speak his truth, and the list goes on.

And then he went to Afghanistan, and I went from tears to the full-on sob.

I have said over and over that The War Daniel is my primary partner, and that if he changes his mind about marrying me, it’s over for anyone else. The reason that they don’t stand a chance is that we have a trauma bond, which is like a regular bond on steroids.

He’s the only person ever to make me feel better about the emotional abuse handed down to me over the years. I couldn’t listen to him without tears of relief. He said, “your trauma is so much worse than mine, because my enemies in Afghanistan were clearly defined. Yours were the ones closest to you, turncoats all.” If he is willing to walk in my inner landscape, I am willing to walk in his.

In fact, I am hoping to God I didn’t just reject a call from him.

The area code on my phone was his, but the name was “Telemarketer.” They didn’t leave a message, so I hope that means it really was an auto dial. Someone in rehab feeling rejected is not my MO, especially because I need him to know that I love him, honestly and completely.

The only reason I’m even saying that it’s up in the air is because I’m willing to date people casually until January. At that point, it’s a different ball game. I need to know if he still feels the same way after the fog has cleared from his brain. Again, I am trying to think logically through rehab and its aftermath, experience I’ve gotten from being a friend and a coworker.

But even though I’ve dealt with addicts my entire cooking life, that doesn’t mean I can do it without tears. What if he doesn’t come back? What if I’m waiting for nothing? I only think that in my smallest moments, though, because I’m not ready for a serious relationship, anyway. Even the relationship that Daniel and I created previously wasn’t serious. He didn’t tell me to break up with Zac, and thinks he’s adorable (because he is). I didn’t tell him I needed him to be faithful, either. He was going to be off doing his own thing. The best I hoped for this year was letters, calls, perhaps a short visit since he can fly here so easily and without money. The only constraint that the military would put on him is time…. Being flexible about his departure and arrival depending on how many standby seats were available.

The only part that was serious is dreaming of the life I wanted to create with him once he was capable of doing so. It fits my purposes nicely that he doesn’t drink, because I so rarely indulge. Zac likes cocktails, and so do I, especially if it’s something I’ve never tasted before. Therefore, I will always take a drink if Zac is bartending, but I don’t even keep alcohol at my house. I would rather drink Crystal Light. I think we have covered this. 😛

Right now, I am not communicating with Doc. It’s not because I don’t love him more than life itself. I need him to get well, and I don’t want to be a distraction in any way. I wouldn’t be able to live with myself if he thought I needed help more than him and decided to come to my rescue at the expense of his own. The best thing I could possibly do is let rehab have him, and he’ll be done in May.

On the surface, it looks like I am batshit crazy and I realize this. Combat vet and alcoholic. Leslie, are you insane?

Yes, and that’s the point.

Daniel was HM2 in the Navy. That is the equivalent of a civilian nurse practitioner. Therefore, I feel safe with him because me being bipolar would never be an issue. I trust his judgment. If Doc says he can tell whether I’m up or down, I will take that check to the bank and cash it.

On the flip side, is it any wonder that I know how to support a Doc? My family is all medicine, all the time.

A really funny conversation between Doc and me ran thusly:

“I think I’m getting hypomania.” “And what are your qualifications to make this diagnosis?” “I went to medical school in the backseat of a Lexus.”

I am good at standing (sitting) behind people and listening closely.

I have been listening to Doc closely, and trying to understand his pain. Most of the time, I cannot do it without tears. If I start down the road of Doc doing this brave thing and how it was his worst day, I will collapse in a heap. It’s why I’m wiling to forgive him, and struggling through it. I have to forgive him whether he reappears or not. The forgiveness isn’t for him. It’s for me. I won’t be myself until all of this is resolved, even if it’s just getting my own closure.

The only reason I haven’t closed the door is that I can’t think of him going through rehab without tears, either. I know what that’s like, not from a first-person perspective, but from having a best friend back in the day who went through what Doc is going through now. I remember that I gave her a ring that looked like leaves encircling her finger, in honor of turning over her new leaf.

I wear my skeleton claddagh with pride on my right hand, or I did until the silver wore off and it turned my finger green. That’s not Doc’s fault. It wasn’t a gift. I bought it as a placeholder and told Doc where to find my favorite jewelry.

I should call around and see if I can find a maker who does plating. Even nickel would protect the metal. The only reason it’s worth plating a ring that cost $3.00 is that it’s so unique. Doc is a death metal fan. Skeleton claddagh is not my style, it’s his. Even after he broke up with me, I still wore it like a #livestrong bracelet. It didn’t mean we were still together, just that I hope to God that sending support would help, even if he never knew about it. I mean, he knows I have it and I have sent him a picture, but it might surprise him to know that the ring turned my finger green a few days ago. I didn’t give up on the ring, it gave up on me.

Perhaps it’s for the best that I’m not constantly looking down at my right hand, longing for a dream that might never come. I just don’t want to be certain about anything regarding him, because rehab is hard work and your emotions are all over the place. Again, Cora has said that she doesn’t think my faith in her father is misplaced, so I’m choosing to believe her. Keeping my own strength up is what’s important, because my faith in her father is important to me being who I am through all of this, too.

What kind of partner would I be if I gave up on him while he needed so much compassion? I know what it’s like to push someone away because you’re traumatized, and his trauma goes to eleven. Our pain isn’t even on the same playing field.

….and I can’t think about that without tears.

Eleven Dollars, Part Two

I have gotten out of the creative groove lately, and I don’t know why. Perhaps it’s that I need to live a little more before I have something to say. Maybe I just need to turn on the faucet and write until I hit something good. I’m sorry for the wandering you are about to endure, but you might be able to take something away from it, at the very least that you’re probably not as mentally, obnoxiously up and down as I have been over the last few months.

I would never tell her this, but Sam broke me. In every way possible, she just ripped out my guts and handed them to me. Again, I don’t have to be mad about that, but it’s still true. She busted my fairy tale in a matter of a few minutes, as if I never meant anything to her. It can’t be true, because she’s going to hear me in her head for years to come. It’s just how I feel, because I don’t need to get together with her to know the things I did to alienate her. I just don’t care. My mother dying has made me stop caring about a whole bunch of stuff. Why someone outright dumped me instead of being willing to be vulnerable is beyond my comprehension and creates apathy. Grief is hard, breaking up is not hard, comparitively speaking.

After that, I just converted to “blink” decisions. I wasn’t having any luck being patient and/or sexy enough to warrant a message back, and I have enough friends that are willing to love me through all this that agreeing to marry Daniel was not a whim. It was a dream. He had it in his head that I already thought he had the perfect life. No, I was talking about the perfect life I wanted to create with him and Cora, our little rainbow family.

That rainbow family has been torn apart because I refused to apologize for having fights over equality with him. His point was that he was punching down, and only he had that right. He was going to rehab, and it was way more important than Cora and I feeling safe in what we hoped to be our home. If he gets it into his head that he can get back to learning about us, it’s a dream I still want. Daniel offered me everything on a silver platter, and because I thought the drugs to control his cravings had him sane, I believed him hook, line, and sinker.

That is why I believe that he wants to break up with me now. He’s living the hard, rock-bottom truth that he’s an alcoholic and no more medication to make that pain go away. It’s blatantly obvious that he’s an aloholic in recovery because of his PTSD, and I have complete sympathy for that. Because he’s furious with me, he’s said that he’s already found a new group of friends that accept him for exactly who he is. Apparently, he is also dating someone else in rehab, which I am almost sure was just a lie for two reasons. The first is that I don’t care. We never agreed to be exclusive during this time and people in rehab get horny faster than the nurses can catch them, but all hell will break loose if they find out. You’re not even supposed to have a relationship at all until you’ve been out of recovery for a year.

The second thing is that he is my primary. It’s not that I ever want to leave him. It’s that if he comes back, he’s it for me, even if I’m dating someone else. I tell people that. Sure, I’ll date you, but I have a primary partner and I will drop you like a hot potato. Your choice.

But the thing is, Daniel would never make me choose monogamy over polyamory because he’s scared that he wouldn’t be enough for me. That I’d eventually meet a woman and leave him. It’s what makes me lean toward polyamory because I can see it so clearly that I don’t want to cause him pain. I also know that you can open a relationship in the beginning, but you can’t do it later.

But the bottom line is that I don’t know what I want. I have to feel all that out. I can see never wanting to let him out of my sight. I feel our bond is too strong to spend a minute without him ever again. But that’s right now, not ten years from now. If it could happen to Dana and me, it could happen again. Our relationship was closed, but I fell in love with my best friend, anyway. It ripped us apart and caused no amount of enmity, because my best friend would rather have a root canal than be romantic with me. She never would have gotten any of my blushing teenage feelings if I’d thought there was a chance of an actual affair. It was frightening to contemplate. It would have wrecked us even faster if I’d actually been tempted, or I wouldn’t, because I would have seen the threat coming and headed it off at the pass. Actually, I tried, but that worked about as well as cutting off my own arm. I was her friend, too. Why did I think it wouldn’t injure her if I said I couldn’t be friends anymore with her because it was threatening to my marriage.

In short, the only reason I’d ever consider polyamory is taking the chance at agreeing to monogamy and failing yet again and having another breakup to sort out. I also don’t want to cheat. It depends on what Daniel wants to do, because I know he only wants me. He just knows how many relationships I’ve had with women and how they’re more intense sometimes than they are with men. I don’t want to lose my whole life over it.

So basically, I’d probably agree to an open relationship and then never actually do anything about it, but I will never say never because stranger things have happened to me that turned out to be wonderful, but it was hard to grow in that direction.

I’ve been dating Zach for a few months now, and Daniel thinks he’s cool as hell. Zach will return the favor when Daniel is ready to be a complete Doc instead of a complete dick. There will be interviews, because Daniel already trusts him and I’m not sending him to somone he doesn’t know (they haven’t met in person, but they will should the stars align). Zac just wants to know that Daniel has the mental and physical capability to be a husband.

Zac can, but he’s not the marrying kind. He is already full up, I think. I’m just one of the people who hangs out with him while we talk about life.

I hope that Daniel can get it together, though, because I want that conversation to happen. I want Zac to see that going through rehab and giving Daniel the chance to get well was the right thing to do. Cora says that my faith in her father is not misplaced. I hope she is right, and at the very least, I’m proud of what it means for their relationship.

The thing about Daniel that hurts me the most is that he wanted to get married right out of rehab, not so we could be together any faster, but to make travel easier, as well as getting me a PTSD Doc with trauma experience and better meds. Saying goodbye to that is a major loss, because I’d never had someone offer me such a big world of “fix-it” than him, and not because I asked. He’s a Doc. He saw I needed it.

Then, later he got angry that I saw him as “having this perfect life.” No, I don’t. I think he’s in the shit. I wanted him to have more to dream of than a dead end job somewhere just to make ends meet. His possibilities are endless, but they are only suggestions. If Daniel wants to move to the beach in a country where we can both live off his retirement, or I could get a job over the Intenet making American money to supplement his retirement, our digital nomad plan has legs.

My basic philosophy on Daniel is that anything he creates now is his choice… from relationships to writing to whatever he wants to do. It’s just that he’s already done his job. He was embedded with Marines in Kandahar during Operation Enduring Freedom. He deserves to do nothing if that’s what he wants. I just think he’s too curious about music, literature, and history to stay bored if he gets that way.

I just want him to know that I do have his best interests at heart. I’m trying to integrate him into a completely queer family, and if you’ve grown up in NE Texas all your life, that is a tall task. He thinks I want to “reprogram him.” No, I want you to take interest in not treating people as if you’re the center of the universe. He can’t help it. He’s an alcoholic. He’s not capable. But it doesn’t make me sorry that I called him out. It makes me human that I’m willing to take all his shit just to hopefully get the reward of a husband and daughter that might never come.

Well, the kid stays in the picture, but you know what I mean.

I can’t picture a life without Cora anymore because I know where she lives. I feel that she is in great danger. I have just as much trauma regarding Cora walking out her front door every day as I do thinking about how crushed I would have been had Daniel not made it home.

Again, it’s NE Texas and there she is sin. So am I. I could also be shot for being trans because I’m genderqueer. I don’t look like a stereotypical woman, so if someone wasn’t paying attention, they’re not going to care if they shoot us both and I would not know how to cope if she died and I lived.

I want her to move to Baltimore with me, because we’ll get a better deal and it’s not too far from Johns Hopkins or the VA. Because of Texas’ inane laws, Cora cannot get the medication or the surgery she needs and she’s 24 years old. If she wants those things, I think it would be completely doable at Johns Hopkins and if the VA does trans medicine, we could also go to Walter Reed, because that would be free to her.

If there are any veterans out there who know if Walter Reed does trans medicine, that would be helpful. Otherwise, it would be cheaper to fly to Thailand first class and get her care there.

I have never met Cora’s mother, but I would like to be friends with her, too, especially if Daniel is uncomfortable visiting her if she’s living with me. I hope he doesn’t. I’m just as much of his friend as I ever was. I am sure that he’s behind his daughter a hundred percent, and I don’t care how he feels about me in terms of getting back together, because obviously Cora’s treatment is not about him.

I think some part of him thinks he’s responsible for all this, because he doesn’t want her to put away her old pictures because he likes reminiscing. He doesn’t want to burn the old birth certificate as a ceremony. He also thinks he’s alone in all this, that millions of parents haven’t gone through the same thing, having a funeral for the child they lost so they can better accept the child they have.

No one raised Cora to be trans, she just is. She’s been wearing a mask since she was born. For her to break out of it, she needs the support of her entire family in lockstep.

I need them to buy the books. I need them to research on the web. I need her parents to see how they’re contributing to her feelings of unworthiness.

I see this more clearly than Daniel because no one raised me to be queer, either. Learning to be a husband and a wife was a time of trial. I don’t know shit from shinola when it comes to finance, important documents, etc. None of my partners have ever been good at this stuff, either, because they were raised the same as me.

That being said, when I’m with men, I tend to treat them like I’m their husbands because no one has ever done it for them before. Treating their minds and their bodies like they are as beautiful as women, letting them open up with anything and everything they want to talk about, letting them be the little boys they were before life hit them in the face.

Men are more tender when you strip away the bullshit of masculinity as an identity. Even the idea of femininity is bullshit, because when I say that I am all female, it doesn’t register that I, too, am an archetype of a woman and I don’t have to wear makeup or clothes to impress to address that fact. I just don’t care that much and want to be comfortable.

I have genderfluid relationships no matter which gender I’m in a relationship with, because I’ve been with women for so damn long that I don’t approach anything with the manners of a stereotypical wife. Therefore, I have no idea how to treat men, so I treat them like women. It works. I still have some of my butch identity that way, and men are forced into a feminine identity that’s always been there, but dormant since they were children. It makes perfect sense. The dance of intimacy is right because we’re both just people, he no more important than me.

It’s something that I want with Daniel, because I think that kind of love will help him heal from his war wounds. I can be his husband if he’ll let me. He’ll get a kind of love that equalizes us so that the power dynamic is gone. He can be submissive with his emotions and his body if he needs to, and it’s ok. It’s why I’m ok with him being in recovery and why I’m ok with waiting a year to see if the breakup was the right move or not. Part of me will never get over it if it’s real.

But one day, I hope he’ll start moving back to me, Eleven Dollars at a time.

Strength and Helsinki

Boobs! And Cupping!

Now that I have your attention, I must tell you in advance that this entry might be a bit boring. Or not. Looking at your own writing is a mixed bag. Unfortunately, what I’m writing about is not sex, drugs, and rock & roll. I mean, it should be. I’m not that old. Ok, I’m 44, and medical advice has changed. I didn’t think I’d be getting a mammogram for at least another year or two. Conventional wisdom has changed to over 40. I was officially NOT. IMPRESSED.

This is because I’ve heard so many horror stories about how much it hurts to have your boobs squished into a machine one at a time. Either the machinery has changed, or the women telling those stories were “jeweling the elephant.” In case you’ve never heard that term before, it comes from an Armistead Maupin novel called The Night Listener.

The main character talks about a friend who went to India for a wedding. It was small and intimate, but by the time the friend came back to the United States, the groom had ridden in on a jeweled elephant. Thus, a great phrase was born (the friend was not from Texas, but I assure you that Texans are not immune to this concept…. a three inch bass that had to be thrown back is a 12-inch keeper at the ice house). So what I’m saying is that it’s a strong possibility that the memory of the mammogram was maybe worse than the test itself. On the other hand, my previous point stands. Perhaps advances in mammography have led to the test being much less painful. I’m going to bet on that.

I felt pressure, certainly, but no actual pain (from the test itself…………………..). A few weeks ago, I fell and got a horrible muscle spasm in my back, bad enough to need muscle relaxers and a trip to an orthopedist and physical therapy twice a week. The hardest and most excruciating pain was just having to stand up for 10-15 minutes in a row.

I was also in a lot of emotional pain, because the date was my mother’s birthday. I haven’t felt the overwhelming grief of my mother dying in a long time (every day it’s a dull buzz that runs constantly in my head), but it surfaced mightily when I realized she couldn’t fly up to be with me, nor could I debrief with her over the phone. It was primal, four-year-old child “I want my Mommy.” Because here’s the thing. No matter whether you have family history of breast cancer or not (I don’t), what kind of breast tissue you have (mine is extraordinarily dense and required a couple of takes to get the test right), or whether the person doing the test has one year of experience or 20, the fact that it takes at least a week for the results to come back makes you nervous. You have thoughts that range from “I hope I’m okay” to “I’m probably dying.” I got them earlier this week and they were completely normal.

I also learned that I’m not interested in changing my pronouns or coming out again, but I had a moment of clarity in which I’d never felt more non-binary in my life. I was wearing my hair short and punk, had on both earrings and a cartilage piercing, and was dressed in men’s jeans and an old Ubuntu Studio t-shirt. I’d also brought my well-worn CIA baseball cap for after the test as my emotional support item. It makes me feel braver and stronger than I actually am.

As I was standing there naked from the waist up, I felt truly disconnected from my femininity. It was if my breasts had a life of their own, separate and of me at the same time. I was also completely focused on other things. My pain level was at a seven. I was trying to cover it up with jokes, which brought the pain down to a six and a half. I was also thinking constantly about how I had no idea what was happening most of the time (shut it).

And even though it was completely platonic and professional, I hadn’t been even partially naked in front of another woman for at least seven years, so that was uncomfortable as well… but not in terms of attraction. It was akin to changing in front of other women at a gym……. in seventh grade.

I told the technician that it was my first mammogram, and she said that I had come to the right place. She had 20 years of experience and would make everything as painless and easy as possible, plus, she REALLY loves her job. I said she’d have to, because no matter what the job is, you’d have to love it to do it that long. I made her laugh. Score. Witty rapport with her and endorphins for me.

I was drawn into her bubbly personality. I was wearing this (actually kind of cool) scrub top that tied in two places. She offered to let me drop one side of it at a time, but it unwieldy and time-consuming. I said, “would it be easier for both of us if I just took it off? If you’ve been doing this for 20 years, I’m going to bet you’ve seen a breast before.” She said that was the right answer and we’d be done much quicker.

The funniest part was that she adjusted the machine before I took my top off, and she said, “I have clearly miscalculated.” I laughed so hard that my stomach hurt, and the words of an old girlfriend floated through my head….. “awwww, you got the boobs I always wanted.” That moment of levity carried me through the rest of the test with ease in terms of erasing nervousness, and I think the laughter even brought down my pain more for a minute or so. The hardest part of the test was standing still for fifteen minutes.

A couple of days after the mammogram, physical therapy started. The first session was sublime, because all they did was have me lay on my stomach and massage me for almost an hour and a half. I thought they were all going to be like that.

Nope.

The second session started with 10 minutes on a bicycle to “warm up.” I am what you would call, as Jim Gaffigan says, “indoorsy.” I haven’t exercised in years. I learned something good about myself, which is that even though it had been a long time, it didn’t feel like my calves were going to drop off until the 10 minutes were up.

After that was when my problems really began to kick in. The whole idea is that my arthritis stems from a birth defect. It’s called retrolisthesis, and it occurs when a single vertebra slips and moves back along the intervertebral disc underneath or above it. The quickest way to fix it permanently is to surgically fuse the discs, but my doctor said to try Physical Therapy first and strengthen my core.

When I started those exercises, my other birth defects kicked in. I have a mild case of cerebral palsy, which hasn’t affected my brain or speech, but completely changes my movement and balance. I fall all the time. In fact, I fall so much that I’m bruised all over the place and can never match up which fall goes with which injury. So, of course, the first exercise was trying to balance on a board that sat atop a rubber ball. I could tell that my physical therapist thought I was exaggerating when I couldn’t do it, so I clued him in. He said, “I need you to try a little harder because this exercise is really, really important. Of course it was. And, of course, I was even more terrible at it when I felt under pressure to do well. I am a perfectionist, and any time I feel like I’ve done something less than perfectly, my anxiety kicks up and I feel like a total failure….. even in times where I get 70-80% right.

But this? Grading this would be a zero.

I also told my physical therapist that I saw a treadmill, an eliptical, and a bike, and to never, ever put me on the eliptical, even if God himself came down and told him it was okay. My balance is so off that I fell off the first time I used it. Thinking I just didn’t know how to use the machine, I tried it three more times, which led to (you guessed it) three more falls.

Two weeks ago, we also tried cupping. Apparently it’s supposed to increase the blood flow around your injury, allowing it a better chance to heal itself. I would be willing to try it again, but the first time all I felt was weirdness. Like, the strangest sensation I’ve ever felt in my life. Like other things, though, perhaps it takes more than one session to feel like it helped. But we haven’t done it again. I’ve laid on my stomach and used electrostim with either heat or ice.

The most frustrating part of all this is twofold. The first is that the physical therapy is helping, but I’m not getting better very fast. The second is that the longer I’m in pain, the more my mental health suffers, because nothing in my body feels good. My psych meds and the muscle relaxers help, but like my physical pain, I’m not getting better very fast. Also, don’t tell my doctor, but I’m cheating. She said that she’d like me to take the muscle relaxers instead of NSAIDS because the NSAIDS might make my acid reflux worse. After a week of that bullshit, I bought four bottles of omeprazole and a year’s worth of Aleve. Along with my back pain, I’ve had arthritis in my hands since I was 30, and my knees have been 44 since I was 19. All of it has to do with working in a kitchen. In college, I was a waitress. When I was older, I became a cook. The repetitive strain injuries have mostly gone away, except for the times when I’m typing like a madman. The arthritis is here to stay. Pretty sure it’s osteo and not rheumatoid, because my knuckles/fingers look normal.

That being said, my stepmother is a rheumatologist and a lot of her patients are women my age…. so of course I’m a tiny, tiny bit paranoid about developing an autoimmune disease.

The upside of all this is that my friends have been amazing, checking in on me a lot and offering to rub my back with Voltaren cream or Icy Hot. It lightens my mood, because since I’m perpetually single (by choice), the one bad thing about it is that I am continually touch-starved…. just not right now.

Next week I’m getting a different massage therapist while my current one goes to visit his family in Tehran. I nearly fainted when he said that because Argo is my favorite movie of all time and space. I joked with him. I said, “could you take a picture of the bazaar for me? I don’t have one without Ben Affleck in it.”

And then we laughed so hard I almost fell over……………………..

The CP and My A

I know I am the same person I was before I accepted the fact that I had cerebral palsy and there was nothing I could do about it. There’s no cure, only management. It’s the management that drops my heart into my stomach, because how can you manage something that’s so random? Falls happen. Running into stuff happens. The worst part is being clumsy AND having monocular vision, because when I fall because of something that’s out of my field of vision, my reflexes aren’t fast enough to catch me. Yesterday I didn’t see the step down off a sidewalk and fell so hard on my left hip that I saw stars. I thought I had broken something, but I didn’t. I just have a bruise that would make the medical journals and lingering pain from pebbles and asphalt. Nearly breaking my ass was a wonderful way to start my day, just in case you were wondering.

Life is easier when I have a partner or friend to watch out for me. Sometimes they point out things I might miss, sometimes it helps to have someone to hold onto or help me up. My dad is obviously the best at it, because he’s had decades of experience saying, “watch it. There’s a step down.” Sidewalks are evil (especially when the city leaves them jagged because of buckling), as are door frames, particularly the left side. This is because I am right-eye dominant, and the left side is out of my field of vision. My shoulders sometimes ache from running into them. Is it any wonder that I feel the safest in my own room?

I get agoraphobic sometimes because I am not immune to being laughed at when I fall, nor are people graceful about my lazy eyes (they drift one at a time depending on my field of vision- called an alternating isotropia). I think that people will be less likely to laugh the older I get, because the chance I’ve really hurt myself will be higher. Right now, I just look like a goofy teenager who’s always clowning, as if I am taking pratfalls on purpose.

For the record, I am not.

I will be 42 years old on September 10th, but I look a lot younger than I am because I tend to wear boys’ clothes. I like looking crispy and if I shop in the big boys’ section, I have Oxfords and Polos where the shoulders fit perfectly, as well as shorts that don’t come down past my knees. I think it’s hilarious that I am so liberal, and yet most days I look like a tiny Alex P. Keaton (wow, that reference proves I’m the age I say I am……….).

There’s a simple reason I dress the way I do. Most people think it’s because I’m a little bit butch, a little bit femme. Nope. It’s because I still want to look good even though I need comfortable clothes and shoes in which I can really move. I look fantastic in dresses and heels, but it increases the chance that I will fall by at least 75 percent. The last time I wore heels, the muscles in my left leg went slack and I went to the floor in a heap. That was nine years ago. It just helps that I have the boyish charm of a lesbian to make my style pop. My style actually got better when (ironically) I met a straight woman that looks even better in men’s clothes than I do.

When I sent her sister a picture of me, she said “are you channeling your inner ________? I can think of worse people to resemble.” I replied, “it was accidental, but I’ll give you the popped collar for free. Thank you for pointing it out. I appreciate it sooooooo much. Now, every time I get dressed, I ask myself ‘is this too ________?'” It’s okay. I just chalk it up to the fact that my friend is evil and must be stopped. She knows it. It’s a thing. It has provided us with an endless supply of the fun kind of being teased. I like it.

That was six years ago, and I STILL ask myself if my outfit is too ____________.

Sometimes I don’t care. I like having a style icon to look up to when I am having trouble picking out clothes on my own. I ask myself if she would look hot in it, and if the mental picture is on point, I buy it. We have the same body type, so if she looks good in it, I will, too. It’s been nice to have clothes in which I look polished, but don’t impede my movement more than clothes already do.

I won’t lie, though. I miss the way girl clothes make me feel. Or as Dana and I used to joke about them, “my ho clothes.” I never minded going to clubs in short skirts, etc. because if I fell, people would just assume I was drunk and help me up.

In terms of “helping me up,” I absolutely hate the way that cerebral palsy lessens my self-reliance. I can get around alone, and I do. But having a companion, no matter who it is (parent, sibling, partner, friend), makes walking around the city so much easier. I have done a lot of crying over the past few weeks (months?) because it has finally sunk in that I am not going to recover from this. My movement will never be any better than it is right now. It is a bitter, bitter pill to swallow…. and yet another reason why I shy away from dating because I am terrified of becoming reliant on someone, even though it’s something that would help me navigate life so much easier.

My attitude right now reminds me of my sister when she was a toddler. If my parents were helping her to a degree she thought was too much, she would say indignantly and angrily “wanna do it BYMYSELF!” It’s not a question of desire to be completely self-sufficient, but practicality.

My health is a psychological issue I need to work on, because it makes my self-worth plummet. Whether it’s rational or not, it makes me feel like a burden and I’ve felt that way for years. Asking someone to take on CP and Bipolar II is a lot, especially when each one is big enough on its own. In my reading about CP, I learned that it can cause mental health problems, so it’s not impossible that the two conditions are related. The difference is that in terms of keeping things under control, Bipolar II is so much easier. There’s medications for it, many of them. If the medication I’m currently on stops working, I have resources.

Physically, I got nothin.’ By that I mean preventative medication. The only thing I can do right now is take pain meds after I fall. Ibuprofen and arthritis-strength Tylenol™ have been lifesavers. Walking helps to a degree, because my muscles get stronger over time. It is also fraught, though, because the more I walk outside, the more chances there are to trip over things.

The one thing I feel good about is that I’m not a flake. I’m not ditzy. These things don’t happen in a vacuum. There’s a solid reason for it, when previously I thought I was just having dumbass attacks all the time. It has solidified my need to take care of myself mentally and physically.

But again, the question on my mind is always “how do you take care of a problem you can’t see? It’s hard enough with problems you can.” I haven’t been idle about looking for help, though. I feel like it would be beneficial to get into group therapy for people who have the same disorder. I am sure that I will find one, but what I’ve found so far is for the parents of kids with juvenile cases and learning to navigate the school system, their home lives, their adjustment to not having a kid that’s completely normal, etc. No wonder my mother wanted to pretend I was.

There is no such thing as competitive suffering, but there are two sides to that coin. The first is being grateful that I do not need crutches or a walker to get around, and that my case is as mild as it is. The second is being able to accept the fact that though others are suffering more, that doesn’t mean I don’t.

I mean, I nearly broke my ass.

The One About the MRI

Months ago, I was in so much pain that I rushed myself to Urgent Care, crying and shaking because my shoulder hurt so bad. I was told to follow up with my doctor because I needed an MRI to see whether it was just a strain or something more serious- a tear, which requires surgical intervention. I didn’t, because I was prescribed a course of narcotics, and by the time I was finished with it and only needed Aleve sporadically, it seemed “unpossible” that it was bad enough for a follow-up. My range of motion was back to normal, and I went back to ignoring it, because I thought I could…. the pain went away on its own.

I should have been more vigilant, because I’ve dealt with this sort of pain for years, not realizing it was my rotator cuff and getting massages to “work out the knots.” Stupid, stupid, stupid. This is what happens when you’re a doctor’s kid. You make uneducated guesses because you think you’ve picked up actual medical knowledge by osmosis. I know exactly how it started. Working in a medical office is fast and furious at times, and every time I left a patient room, I was carrying the chart in my right hand and closing the door with my left. The way I exited, the door ended up being behind me, and it was an awkward reach, but faster than closing the door like a normal person. Later on, the pain came back, because I was cooking professionally all the time and reaching for heavy pots and pans that would invariably put pressure on the already sensitive areas.

Now I’m back in excruciating pain, and decided that seeing a real MD was better than my own less-than-perfect education.Ralph Wiggum I can’t just do occasional courses of narcotics forever, and it should have set off alarm bells that I needed Aleve and Tylenol so often. I have now come to believe that Ralph Wiggum would have made better decisions than me. As Ralph would say, “I’m bembarassed for you!”

Just because I worked in my stepmom’s office for a while doesn’t mean much. I learned a ton, but it’s just not the same. Duh, Leslie. The stupid, it burns…. I feel like the moral equivalent of this picture. Even Ralph went to the doctor, who told him he “wouldn’t have so many nosebleeds if he didn’t keep his finger up there.” Now that’s some sound medical advice.

I went to the doctor on Monday, and he wrote me a referral to imaging. The next available appointment wasn’t until today. Dr. Akoto said he wanted to see me back in a week, but I think I’m going to call him and reschedule for next Wednesday, because imaging told me that the radiology report probably wouldn’t be back by Monday since my appointment with them isn’t until 2:15.

If I’m honest, I’ve put this off because even though fixing a rotator cuff tear is quick and easy, the recovery is, in a word, not. I know the Nassers will be great about helping me. They’ve become my adopted family and we’d do anything for each other. But even though I know this logically, I have been at a loss emotionally. I feel alone, even though I am certainly not. I am in a very small place, whimpering for my mommy as consistently as I did when I was five.

I had to come to a place of peace regarding it, because it’s not a problem that will ever be fixed. Today has been about saying “get over it” to myself. Just because I can’t complain to my mother doesn’t mean I don’t need to put on the gangsta rap and get it handled. Longing for a dead person does me about as much good as sticking my head in the sand and hoping my problems will go away on their own.

I have, in effect, created my own multitude of problems, and am now digging myself out. There is, I suppose, something to be proud of in that. Self reliance can be a beautiful thing, although sometimes I feel like I rely on myself too much without letting other people in.

Luckily, I realized this and talked to Dan on the phone (look at me! I called someone!). She thanked me for being vulnerable and reaching out, which felt like a hug from Jesus. She’s not as physically close as the Nassers (she lives in Virginia), but her “just checking in” texts mean so much.

It also helps that I don’t drive, and that public transportation is excellent…. because nothing would be worse than being tempted to drive with one arm. Generally, one accident leads to another because even though you’re just doing normal things, you’re already off-balance.

And lastly, I can’t help but feel that my mental health has allowed my physical health to go by the wayside, because I am just not on the ball with following up. I’m not too depressed to do so, I’m so ADHD that keeping up with my to-do list is often overwhelming to an enormous degree.

Today, I’m on top of it. I will schlep myself over to imaging even though it’s snowing and I’m cold AF. I will schlep myself to the doctor next week because it’s an A-list priority. I used to be a Franklin Covey disciple, but that fell by the wayside when I stopped using pen and paper. I am sure there’s a ton of software to replace it, but I’ve settled for Google Tasks. It is very good in terms of remembering things, but there’s really no way to add priorities as well. The best I can do is add due dates, and I am way too good at the snooze button.

Speaking of the snooze button, now it’s really time to stop writing and get ready. I may be a little afraid of the results, but it’s better than not knowing. I wish I had realized this long ago, but “better nate than lever.”

Please send me as much good karma as you can muster. I could use the boost, because even if you don’t tell me you sent it, I can feel it in spades.

Nothing Stays the Same

I wanted to wait to post my next entry until I actually had something to say. I know that not updating my blog reduces traffic, thus dampening my quest for world domination. On the other hand, I don’t want to be one of those people who doesn’t take time to think before writing…. anything will do, because it’s not about craft, it’s about attracting views, visits, likes, and followers. I feel like I have enough already. Not believing I have enough just leads to verbal vomit for its own sake… and to me, that just doesn’t cut it.

I mean, I’ve always been the type to just lay out everything on this web site and let people make their own decisions about what they read, and when I post often, it’s because having something to say comes along that frequently. It’s organic, never forced. Lately, I’ve realized that most of my ruminations are just continuations of things I’ve already said, probably more than three or four times. I promise that I am not regurgitating content. It’s the way my brain works.

I think about a problem right up until I don’t. The interesting part (or, at least, it’s interesting to me) is that I tend to start a couple of steps back and rehash, but when I’m thinking about something a second (third, fourth, fifth, 17th……) time, the overall arc is the same and different small details jump out, often changing the course of the dialogue… conversations that happen between me and me. Though Shakespeare was not talking about discourse with oneself, he might as well have been. The play’s the thing… especially in moments where I’ve caught myself red-handed…. infinitely more scary than feeling caught by anyone else. I’m better at kicking my ass than you are. Write it down.

I’ve scared myself for the past couple of weeks because I make it a point to look at my Facebook memories, and along with all of my funny memes is this mountain range of emotions. Note to self: more peaks, less valleys.

WordPress propagates to my author page, which means that I am equally stupid and brave enough to post things to my own profile. If I skipped doing so, old entries wouldn’t appear at all. It isn’t about torturing myself- many, many more readers click through from my profile because I’ve been on Facebook for 10 years. The “Stories” page has only existed since 2015, and as of right this moment, only has about 100 followers. After a decade, I have 745 friends and 38 followers. The platform is exponentially larger. My Facebook profile propagates to @ldlanagan on Twitter, and my author page to @lesliecology. Again, I have more followers on my own Twitter feed than the feed for my web site… the difference is that @lesliecology is nothing but a WordPress feed, and @ldlanagan is everything I post on Facebook, period. My profile is public, and my Facebook statuses are generally longer than Tweets, so anyone can click through to the original post.

So there’s the setup as to why I wanted to separate out my blog entries from my Facebook profile/Twitter feed, and why it hasn’t worked out.

Scaring myself the last couple of weeks has been about entries from four years ago, starting with PTSD as a teenager and it unraveling my thirties into divorce, losing a good friend, and so much compounded mental instability that I needed more help than my friends and family could give. Poet Mary Karr gave me the phrase “checking into the Mental Mariott,” and I’ve used it relentlessly since.

Joking about it covers up deep wounds, and that’s why I write about them instead of speaking. When I am writing, I have a bit of clinical separation. I can look at the land mines without detonation. I cannot say the same is always true for reading. Occasionally, I feel the distance of having grown as a person, so that the entry feels like it was written by someone else. More often, I am remembering every tiny detail about the setting and the arc of the story. Then body memory kicks in, and if my heart and brain were racing in the moment, I feel it again; it doesn’t matter how much time has passed.

It isn’t all bad, though, because I write in equal measure about how good I’m feeling, and those excited butterflies also return…. sometimes, but not often, in the same entry. The other plus is getting to decide if what was true at that time is still true today, and as a rule with some exceptions, it’s not. There are truth bombs that hit me just as hard now as the day I wrote them, but for the most part, this blog has been dynamic, and has changed just as often as I have (which is, like, the point).

Whether I’m reading an up day or a down, it is exhilarating to see that few things stay the same.

I will always have the regular, boring adult problems… and at the same time, my life is bigger than that. Managing Bipolar II, remnants of PTSD (anxiety, mostly) and ADHD so that I am not a ball of negative crazy keeps it interesting. I emphasize “negative crazy” because I don’t know anyone who isn’t crazy in a positive way. I am not attracted on any level to the mundane. Regular people with big dreams are often lumped in with “crazy,” because most people don’t dream big.

Even my dreams have been adjusted. I am still dreaming big, but the focus is not on starting my own church anymore. Perhaps in the distant future, I’ll think about it again. But right now, when I enter into any church building, consecrated or not, “my mother is dead” becomes an ostinato.

From Google Dictionary:

Ostinato

os·ti·na·to
/ästəˈnädō/

noun: ostinato; plural noun: ostinati; plural noun: ostinatos

a continually repeated musical phrase or rhythm.

“The cellos have the tune, above an ostinato bass figure.”

Even the sentence used to illustrate the word is appropriate, because you don’t just hear bass. You feel it.

I have written before that she’s everywhere I look, because over our lives together, I cannot think of an element within church life where she was absent. I cannot think of a single thing that was all mine until I moved to Portland and began preaching at Bridgeport UCC.

I have always been the Mary. She was the Martha.

There was no judgment on her part. I just mean that I have always been the thinker and she has always been the actor…. Actually, I take that back. My mother was one of the few people I’ve met in this life that had extraordinarily creative ideas and the ability to execute them, which is rare.

Few people manage to live on the ground and in the air at the same time (it’s a miracle I can tie my own shoes).

In Luke 10:41-42, Jesus is speaking to Martha, who has complained to him that (I’m paraphrasing) “Mary’s just sitting on her ass while I’m doing all the work. Can’t you go rattle her cage?” And Jesus says, “Martha, Martha, thou art anxious and troubled about many things. But one thing is needful, and Mary hath chosen the better part, which shall not be taken away from her.” He actually says this to the woman that invited him and his entire crew into her house and wants to feed everyone. Now, I don’t know whether you’ve ever cooked and served for 16 (fairly certain Lazarus was there- unclear), but I can see Martha’s point and I get a little bit irritated with Jesus. It’s not that one part is better than the other. Thinking is not better than doing. Doing is not better than thinking. They’re just different mindsets, and the evening wouldn’t have been possible without both.

I am certain that Mary and Martha need each other. Martha is grounded, and keeps Mary from floating away. Mary reminds Martha to look at the stars once in a while.

So when I think about the work I did to investigate starting a homeless ministry in Silver Spring, what comes up for me is that my Martha is no longer with us. It rends the mental tapestry I created, and I descend into darkness.

I am still excited by theology of all types- Abrahamic, Eastern, you name it. But right at this very minute, I’d rather spend my time thinking and writing, sometimes posting sermons on this web site rather than waxing philosophic in front of a physical crowd.

What I do not know is whether I will always feel the same, or whether my time is not yet here.

What I do know is that the fight has left me. I am too mired in grief to get passionate enough to affect change. In fact, I wouldn’t say that I’m extraordinarily passionate about anything at all. When my mother died, so did several pieces of me. I know for certain that it would have been easier had I gotten to see my mother live a long life and there was no aspect of “dear God, they took her too soon.” I knew I would be sad when she died, but I was completely caught off guard by the rage at getting robbed.

Embolisms make great thieves who never need getaway cars.

I am still grieving the future that I thought I would get, and piecing together a new normal. It’s a good thing that on this day next year, I’ll read this again, and perhaps that new normal will have some structure. The concrete has been mixed, but I think I added a little too much water, because it just. Won’t. Set.

Slinging and Hash

My coworkers are so young that I was sitting at the bar after my shift a few months ago, having a beer. The man next to me told me his name and that he was a sound editor at NPR. He asked me what I did, and I told him that I “sling hash here.” The bartender, young enough to be my son, said, “I thought you were a cook. You’re a drug dealer?” The sound editor nearly fell off his bar stool laughing and said, “I think that’s old diner slang.”

But today’s entry is about a different kind of sling. My left shoulder has been bothering me for a few weeks, but the pain has been fully manageable with Aleve and Tylenol… that is, until yesterday morning. I woke up in so much pain that I couldn’t stop crying, and didn’t until I got to Urgent Care.

I couldn’t possibly see how I was going to cook and wash dishes, so I gave Chef a heads up as to what was going on, and could he possibly find someone to work for me? To his absolute credit, for which I will thank him publicly, he told me to get to Urgent Care and let him know what they said. He’d find a way to work it out, even though there was no one to take my place. It created a tiger mom loyalty in me, and by the time I got to Urgent Care, as the tears flowed, I said, “there is no possible way that I can miss work tonight. If there’s any way you could treat this as a sports injury and just shoot it up with something, let’s do it.” If chef was willing to work a man down that night just so I was taken care of, the least I could do was try my hardest, exhausting all possible options, before staying home. I knew that I was going to either be miserable at work or miserable at home, so why not at least try to be miserable and make money at the same time?

The Urgent Care that I went to is incredibly risk-averse, the doctor told me, so he wasn’t allowed to put steroids directly into my shoulder, even though he thought it was the best course of treatment for what I needed in the moment (doesn’t work long-term). Instead, he did a long and thorough physical examination, determining that I had strained my rotator cuff, and that I should get it imaged with an Ortho to confirm it was just a strain and not an actual tear. If it’s just a strain, his recommendation is physical therapy. A tear requires surgery that, from what I hear, is relatively quick and easy, but the recovery is hell on wheels. One of my mom friends said that her son tore his, and just like the friends my age, had a difficult time with it. So I am definitely praying for a positive outcome, and if you’ll pray with me, send good vibes, use black magic, whatever, I’m game. Anything that taps into the power of the universe is fine with me. I know all of my readers can’t possibly believe in God, but even if you’re an atheist, believing in doctors is my first choice as well. Faith doesn’t come without shoe leather, and their work is as close to God’s as I’ve seen on this earth (there’s a reason I donate to MSF every chance I get).

As for the treatment I got yesterday, I chose a clinic that was close enough to walk to work from there, so after an IM injection of Toradol and oral Vicodin 5/325, I actually made it to my shift 30 minutes early, where I briefed Chef on all that had happened, and he thanked me profusely for coming in anyway, especially since my arm was in a sling to take pressure off my shoulder. I don’t wear it while working or typing, but other than that, I don’t take it off. I also realized that 325mg of Tylenol was probably not adequate, so I took an additional one. The doctor said that by the time I got home from work, the Toradol will have worn off, so I took two Aleve as well. Anything to relieve the inflammation, especially since I probably added to it last night. Even with Vicodin on board, everything still hurt like hell, especially after cleaning the kitchen, particularly sweeping & mopping. It was at that moment I thought, “maybe a desk job is for me,” and then I remembered that I was in just as much pain there, because the repetitive strain injuries never stopped, as well as more often than not, having a bad chair that always, always caused sciatica, as well as agitating the arthritis in my back. I absolutely understand that not all offices can afford Aerons, but so far, those have been the only chairs that don’t cause me pain. Even the knock-offs work, as long as they’re good ones and not the cheapest available.

I promise, I’m not snobby about it. Just worried for my own health. Even though osteoarthritis isn’t nearly as bad as rheumatoid, it’s no joke. It makes you feel like a very old person, no matter how young you are. Going from the kitchen to a desk job is just trading one type of pain for the other, equally severe in their own ways.

I definitely need to follow up with physical therapy, because with my level of activity, I’m likely to tear the rotator cuff up real good (if you’e going to do something, do it right).

And on that note, it’s time for a nap, provided I can find a comfortable position.

Four and a Half Brownies

I’ve been playing on my computer since I woke up, failing to realize that the clock was ticking on taking my next dose of medication. My head started to hurt in that old familiar way, and I thought, “I should write about this…. just a stream-of-consciousness entry as chemicals flood my bloodstream.”

I generally need to eat before I take any meds, particularly Lamictal. I look in the fridge and the only thing I’ve got left is four and a half brownies. I get out a paper towel and take all of them upstairs, where I proceed to inhale them like an angry Dustbuster.

I open my blog post editor and get out my pill bottles, which brings us to the present. I have just taken Lamictal, Lexapro, and Klonopin. That means, at this very moment, I feel as if I am capable of tearing out my hair. I will not, and wouldn’t even if I hadn’t taken my meds. The feeling, though, echoes from a scene in one of my favorite movies:

Distraction isn’t always a bad thing. Works every time.

Well, actually….. there’s nothing that can distract me enough from this kind of pain to just let it go. A corner of my mind will be stuck there, wondering if I am about to cry or vomit, or better yet, cry and vomit. It seems physically impossible, but I have done it on multiple occasions. The best way I’ve found to explain the type of physical pain I feel during withdrawal from my psych meds comes from the eighties. Remember those tests of the emergency broadcast system that would come on your TV, and for what seemed like eight hours but was only in reality about 20 seconds the most annoying sound on earth blared loud enough to clear your sinuses? Now, imagine this sound coming from you internally so you can’t lower the volume:

The longer I go without medication, the louder the sound gets, and the louder the sound gets, the more violent my physical reaction. When the medication kicks in, everything becomes blessedly quiet. I am grateful that it is not just a dimmer switch and I don’t have to live like this all the time. Withdrawal creates the worst physical symptoms of my mental illness, because when I remember to take everything on time, I am generally very happy and healthy. All the highs and lows are gone, so I can get on with my day and not think about being sick anymore.

But that’s not where we are right now. I haven’t even begun to feel a twinge of relief. The good news is that I don’t have to take any additional medication. My brain chemicals will sort themselves out, I don’t need a painkiller or an anti-inflammatory on top of it. Sometimes I do think of Tylenol and ibuprofen as my “dessert,” you know, just to put a cherry on top of the sundae, but it doesn’t matter. My psych meds aren’t going to kick in any faster because I took something for the headache, and because the headache is psychiatric in nature, the painkiller won’t do much. I know this because when I’ve been truly up shit creek because I’ve left the house without medication and taken painkillers and anti-inflammatories on their own, I would have had equal luck getting rid of the pain by throwing five dollars against a wall.

I swallowed the pills this time before I started shaking, so I got that goin’ for me. It’s involuntary when I’m in this much pain. My brain feels like it’s trying to pull itself apart, and my body reacts by trying to “get away from the noise.” Reminds me of one of my favorite jokes:

Q: Why do bagpipers walk when they play?
A: To get away from the noise.

or…

A. Moving targets are harder to hit.

I can tell that I’m not depressed because wit can still make an appearance. It’s just withdrawal, and that’s a relief. Managing Bipolar II is hard enough without having to deal with mood swings…. and by that, I mean it’s hard enough staving them off. I don’t have to be in depression or hypomania for Bipolar II to be a total pain in the ass.

It’s not unlike a physical disease, though. Diabetics have complicated lives without symptoms, just maintenance alone is enough. I know myself well enough that I would much rather deal with the inconvenience of maintenance than the full-blown effects of going untreated.

The way my college psychiatrist figured out I was on the bipolar rather than unipolar spectrum was that I was getting way, way, way too much sleep, and then for about three or four days a month, not able to sleep at all. My productivity level was through the floor, and on the days I couldn’t sleep, would shoot through the roof, where I would try to fit in as much activity as I could before the next wave of depression hit.

Before my Bipolar II diagnosis, I couldn’t understand why I was taking depression medication and never getting any better. My behavior changed dramatically when a mood stabilizer was added to what I was already taking. I was able to sleep normally, and the world looked quite different. It was in color all the time, instead of when the color channel decided to flip on after a series of black and white shows… but never fun ones, like I Love Lucy. Every day was akin to the worst Perry Mason rerun on repeat.

It’s been 10-15 minutes, so any time now, I will be back to my regularly scheduled program. I’m not feeling as much better by now as I thought I would, so perhaps it’s time for a hot shower.

I have brownie crumbs in my lap.