Literally, the furthest I’ve traveled from home is Paris. I did not feel at home there because I did not speak the language, but I found unparalleled beauty everywhere in the urban jungle. I particularly liked the Metro’s dedication to typography. Luckily, my dad was with me so I didn’t spend the whole trip unmoored by unfamiliarity. He does speak a bit of French and had been to Paris before so he could lead me around.
I will never forget misreading a menu and accidentally ordering two ice cream sundaes for dessert, then to the amazement of my father, proceeded to take both of them down in stride. I think it was all the walking- my appetite was insatiable at mealtimes. At the Musee D’Orsay, I ate what amounted to an entire duck…. or seemed like it.
We actually got trapped in the Musee D’Orsay for a while because the yellow vests were protesting and they locked down the museum just in case. It didn’t matter, I was lost in the Van Gogh room, looking for signs of Amy Pond (there are none, it was just fun).
I would fly back to Paris just to eat breakfast at McDonalds, strangely enough. The cassis sundae I had was better than anything I’ve had in the US, and the same for silver dollar pancakes with Nutella. Proof that in France, the ice cream machine works……….
Figuratively, the furthest I’ve been from home is this time in my life. I have no idea what I’m doing. My apartment needs to be majorly overhauled and my executive dysfunction is having none of it. I made some progress by doing some laundry yesterday, but I’m going to need help to get everything clean. There’s no way all my blankets are going to fit into our washer and dryer, and it’s becoming the season to need them.
I’m overwhelmed by the prospect that I really do need to apply for disability and get the ball rolling, because my bipolar disorder spinning out three times in 10 years has convinced my cognitive behavioral group this is what’s best for me. I am on board because bipolar disorder is not the only disability I have, it’s just the only one that’s heavily documented.
I was diagnosed with hypotonia at 18 mos old, with no follow ups. I think it might have been a misdiagnosis in the 1970s because the people with CP that I do know say that I walk with the “CP Shuffle.” But whether it’s CP or hypotonia, it creates problems with movement, particularly outside where the sidewalks are uneven. CP could also be responsible for my lack of stereopsis, another disability that causes problems while walking and driving. Things literally come out of nowhere because I can only use my left or my right eye one at a time in terms of focus.
The laundry list of what’s wrong with me and why is starting to add up…. that disability is something I could have gotten at 18 and am now only starting to deal with my disorders because I was masking so hard to cover them.
It’s a journey that’s incredibly far from home if you’ve never taken it. Unmasking can be a kind of freedom, or it can slowly become a prison as people see you more and more differently.
You don’t leave home. You drift.
Stories That Are All True 
💙 “Thank you for sharing so honestly—your words carry both beauty and bravery. Wishing you strength and support as you keep moving forward.”
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Well written
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